livingwithclippers.blogspot.com
Living With CLIPPERSLiving With CLIPPERS
http://livingwithclippers.blogspot.com/
Living With CLIPPERS
http://livingwithclippers.blogspot.com/
TODAY'S RATING
>1,000,000
Date Range
HIGHEST TRAFFIC ON
Saturday
LOAD TIME
0.5 seconds
16x16
32x32
PAGES IN
THIS WEBSITE
19
SSL
EXTERNAL LINKS
10
SITE IP
172.217.3.97
LOAD TIME
0.454 sec
SCORE
6.2
Living With CLIPPERS | livingwithclippers.blogspot.com Reviews
https://livingwithclippers.blogspot.com
Living With CLIPPERS
livingwithclippers.blogspot.com
Living With CLIPPERS: September 2014
http://livingwithclippers.blogspot.com/2014_09_01_archive.html
A blog about the experience of living with CLIPPERS - Chronic Lymphocytic Inflammation with Pontine Perivascular Enhancement Responsive to Steroids. Tuesday, 16 September 2014. Holiday snap from Southern Italy. I recently read an interesting short communication entitled " CLIPPERS among patients diagnosed with non-specific CNS neuroinflammatory diseases. By Dr Kerrn-Jespersen and colleagues from hospitals in Denmark. Read other articles in this series at Living With CLIPPERS. Posted by -Bill Crum.
Living With CLIPPERS: FAQ
http://livingwithclippers.blogspot.com/p/faq.html
A blog about the experience of living with CLIPPERS - Chronic Lymphocytic Inflammation with Pontine Perivascular Enhancement Responsive to Steroids. What is this FAQ? This FAQ summarises the current situation regarding CLIPPERS. I am not a medical professional and answers to any of these questions reflect. My own understanding and interpretation of complex medical issues. Please do not use any of the information here as a subsitute for expert medical advice. Who wrote this blog? Where do I start? After I...
Living With CLIPPERS: May 2015
http://livingwithclippers.blogspot.com/2015_05_01_archive.html
A blog about the experience of living with CLIPPERS - Chronic Lymphocytic Inflammation with Pontine Perivascular Enhancement Responsive to Steroids. Wednesday, 13 May 2015. A box of stuff. A bag of tubes. Read other articles in this series at Living With CLIPPERS. Is licensed under a Creative Commons Attribution-NonCommercial-NoDerivs 3.0 Unported License. Posted by -Bill Crum. Links to this post. Subscribe to: Posts (Atom). Subscribe to Living With CLIPPERS by Email. Subscribe Now via a feed.
Living With CLIPPERS: November 2014
http://livingwithclippers.blogspot.com/2014_11_01_archive.html
A blog about the experience of living with CLIPPERS - Chronic Lymphocytic Inflammation with Pontine Perivascular Enhancement Responsive to Steroids. Monday, 3 November 2014. Steps in the right direction . hopefully. To counteract the grey skies, shortening days and dipping temperatures in the UK, there has been a hint of progress in our understanding of CLIPPERS. In their paper Effective antituberculous therapy in a patient with CLIPPERS: New insights into CLIPPERS pathogenesis. They speculate in some de...
Living With CLIPPERS: January 2015
http://livingwithclippers.blogspot.com/2015_01_01_archive.html
A blog about the experience of living with CLIPPERS - Chronic Lymphocytic Inflammation with Pontine Perivascular Enhancement Responsive to Steroids. Sunday, 25 January 2015. A "Happy" meal I had over Christmas. A belated Happy New Year to everyone out there. January 2015 marks the 3-year "anniversary" of when my CLIPPERS symptoms retreated far enough for me to function more or less normally. At the time I was still on tapering Prednisolone. And attempting to ramp up Azathioprine. I still occasionally try...
TOTAL PAGES IN THIS WEBSITE
19
About | Clippers Disease
http://www.clippersdisease.org.uk/about
What is Clippers Disease? About Clippersdisease.org.uk. The first thing that I did when I found out about the possibility the CLIPPERS was the condition that my daughter could have, like many would do is to Google it. It was then that I realised how little information was out there. Bill Crum’s blog is the best resource, all I want to do is add another voice. If you have any study documentation, input, requests or and ideas about how I can make this a better resource I would love to hear from you.
Another relapse after a good run | Clippers Disease
http://www.clippersdisease.org.uk/another-relapse-after-a-good-run
What is Clippers Disease? Another relapse after a good run. As a parent I have gone through every emotion imaginable, from frustration, anger and despair. I am also extremely proud. My daughter is one of the bravest people I know, taking all of what this terrible condition has thrown at her and still carried on. August 31st, 2014. September 10, 2014 at 3:32 am. When you say she started getting I’ll again can you tell me what those symptoms were? Log in to Reply. September 10, 2014 at 3:34 am. Thank you f...
2013 October | Clippers Disease
http://www.clippersdisease.org.uk/2013/10
What is Clippers Disease? Archive for October, 2013. The 4th episode begins. When my daughter got diagnosed officially, the plan was to taper her steroids as usual, and to try to find some new medication that might help delay the occurrences of more episodes. Episode 4 has now begun. My daughter has started to show all of the symptoms again, less than a month after stopping the […]. October 20th, 2013. A very brief history of my daughters illness. October 20th, 2013. So what’s it all about. So what’...
A very brief history of my daughters illness | Clippers Disease
http://www.clippersdisease.org.uk/a-very-brief-history-of-my-daughters-illness
What is Clippers Disease? A very brief history of my daughters illness. Here is a brief history of how my daughter came to be diagnosed with C.L.I.P.P.E.R.S. We originally thought our teenage daughter was going through a bit of a clumsy stage having just finished a growth spurt. In a relatively short period of time it became apparent that something much worse was going on. The doctors would still like to confirm the diagnosis using a tissue sample from one of her lesions eventually but at the moment ther...
The 4th episode begins | Clippers Disease
http://www.clippersdisease.org.uk/the-4th-episode-begins
What is Clippers Disease? The 4th episode begins. When my daughter got diagnosed officially, the plan was to taper her steroids as usual, and to try to find some new medication that might help delay the occurrences of more episodes. October 20th, 2013. Click here to cancel reply. You must be logged in. To post a comment. Another relapse after a good run. The 4th episode begins. A very brief history of my daughters illness. So what’s it all about. Another relapse after a good run. The 4th episode begins.
Clippers Disease - Chronic Lymphocytic Inflammation with Pontocerebellar Perivascular Enhancement Responsive to Steroids
http://www.clippersdisease.org.uk/blog
What is Clippers Disease? Another relapse after a good run. August 31st, 2014. The 4th episode begins. When my daughter got diagnosed officially, the plan was to taper her steroids as usual, and to try to find some new medication that might help delay the occurrences of more episodes. October 20th, 2013. A very brief history of my daughters illness. Here is a brief history of how my daughter came to be diagnosed with C.L.I.P.P.E.R.S. October 20th, 2013. So what’s it all about. My daughter has been diagno...
About Clippers Disease | Clippers Disease
http://www.clippersdisease.org.uk/what-is-clippers-disease
What is Clippers Disease? What is Clippers Disease? Chronic Lymphocytic Inflammation with Pontocerebellar Perivascular Enhancement Responsive to Steroids ). CLIPPE.R.S. is a very rare inflammatory disease of the central nervous system. It is mainly classed as a brain disorder that causes lesions on the brain. On occasion though, it can also cause lesions on the spine. A lot of medical staff aren’t familiar with CLIIPPERS because of its rarity. Subacute gait ataxia (loss of coordination). Treatment often ...
2014 August | Clippers Disease
http://www.clippersdisease.org.uk/2014/08
What is Clippers Disease? Archive for August, 2014. Another relapse after a good run. I couldn’t bring myself to write a post to tell you how my daughter was doing because I didn’t want to jinx the good run we have had with her being well. My daughter was symptom free for around 13 weeks after coming off of her steroids. Much longer than the longest period in the […]. August 31st, 2014. Another relapse after a good run. The 4th episode begins. A very brief history of my daughters illness.
So what’s it all about | Clippers Disease
http://www.clippersdisease.org.uk/so-whats-it-all-about
What is Clippers Disease? So what’s it all about. Well, the site is obviously about the condition called Chronic Lymphocytic Inflammation with Pontocerebellar Perivascular Enhancement Responsive to Steroids (CLIPPERS). My daughter has been diagnosed with CLIPPERS and looking for information has been quite difficult. There is very little information out there about this newly documented condition, the main site that I found helpful is livingwithclippers.blogspot.co.uk. If you can provide any information a...
TOTAL LINKS TO THIS WEBSITE
10
Living with Claire | Lifestyle, travel and food blog by Claire Bahn
Lifestyle, travel and food blog by Claire Bahn. Review of Urban Accents Santa Fe Mole Sauce Mix. January 10, 2017. January 8, 2017. Review of Urban Accents Santa Fe Mole Sauce Mix' data-url='http:/ livingwithclaire.com/2017/01/urban-accents-santa-fe-mole/'. 8221;, well according to Wikipedia. Mole is the generic name for a number of sauces originally used in Mexican cuisine, as well as for dishes based on these sauces. Outside Mexico, it often refers specifically to mole poblano. December 28, 2016. Well ...
living with clarity
Common Variable Immune Deficiency {CVID}. Immune System Disorders and The Ripple Effect. Auto-Immune Disease and Immune Deficiency= What are the differences; there is much confusion about these. The common factor in these is the effect they have on the Immune System. Auto-Immune – a disease resulting from a disordered immune reaction in which the antibodies are produced against one’s own tissues; body tissues are attacked by it’s own…. Immune System Disorders and The Ripple Effect.
Fine writing instruments for people who really use them
Fine writing instruments for people who really use them. New England Pen Show. A selection of pens and pencils, mostly vintage items made during the 'golden age of writing instruments,' roughly 1900 to 1950. Great things for everyday living, made from the superior materials and with the superior workmanship of the past. You'll see wristwatches, eyeglass frames, and more. New England Pen Show. Wedding and social calligraphy by Rob Morrison. See Rob Morrison in Stylus. 3 East Pinedale Lane.
Living With Cleveland | All Things CLE
Indians: Check Out Photos of Right Field District and Gate C area. March 23, 2015. Opening day is almost here and we’re excited about the renovations happening at Progressive Field. Here are a few photos of the progress down on Carnegie and Ontario. Photo via Cleveland.com. Photo via Cleveland.cbslocal.com. Photo via IndiansProspectInsider.com. Photo via NewsNet5.com. Photo via Cleveland.com. Photo via TribeVibe.mlbblogs.com. Photo via CBCTC.org. Photo via Cleveland.com. Photo via Cleveland.com. If that ...
livingwithclippers.blogspot.com
Living With CLIPPERS
A blog about the experience of living with CLIPPERS - Chronic Lymphocytic Inflammation with Pontine Perivascular Enhancement Responsive to Steroids. Sunday, 21 January 2018. A reminder of warmer times. It's wall-to-wall rain and sleet currently! I have a meeting with my consultant in a few months so will pick his brain for any updates from the medical perspective. Thanks for sticking with the blog and if anyone has any ideas for contents or wants to write an entry, let me know and we'll sort something out.
Living With CLL | Patients' Stories About Living with Chronic Lymphocytic Leukemia
Every 30 minutes, someone is diagnosed with chronic lymphocytic leukemia. CLL is an incurable blood cancer. This site offers hope for those who are new to CLL. It highlights patients’ stories to illustrate that many of us live for years with the disease and more importantly, we can lead happy and joyful lives in the face of our leukemia.
Living With CML
We will all learn to live with this illness, Chronic Myelogenous Leukemia, that is in one of us. I hope to share the journey with others and to make a difference along the way. Tuesday, March 06, 2018. And then I found a couple of groups online filled with others with CML. At first I thought it was a typo when I read that some had been alive, and going strong, 10 and 12 years after diagnosis! I am more than happy, more than utterly grateful. And so I find myself in a very happy place. Annie - Stevens mom.
Living With Cogan
This is a story about my sudden severe to profound hearing loss and vertigo at the age of 26 from the onset of the rare disease, Cogan's Syndrome. Here, you'll watch and read me handling all that entails becoming unexpectedly disabled, including: disappointment, alienation, confusion, frustration; support, thankfulness, courage and hope. Monday, July 22, 2013. It's Not Always Easy (Living With Cogan's Syndrome). July 21st, 2013. When I first got sick I gained twenty pounds. I felt gross and hated loo...
innocutis.com
Inova 4% & 8%. News & Events. SITAVIG STOPS COLD SORES BEFORE THEY START. Introducing a new single-dose treatment that hits the target every time. Cold sores are a sore subject for many, which is why new Sitavig is such a breakthrough. It’s a single-dose treatment that can ease cold sore symptoms, speed up healing, and in some cases, stop cold […]. Inova ACT 4/1 and 8/2. Inova Acne Control Therapy (ACT) – Incorporates: Benzoyl peroxide 4% and salicylic acid 1% Benzoyl peroxide 8% and salicylic acid...
livingwithcolitis.blogspot.com
! Living with Ulcerative Colitis
Living with Ulcerative Colitis. Monday, September 20, 2010. Natural Remedies for Ulcerative Colitis: Exercise. You said I'll do it tomorrow, yesterday. Just get out there and do it. Links to this post. Thursday, September 16, 2010. Many people think that networking is something that you do, rather than a way that you live. Networking is a life skill, rather than something you do only when you want something. Links to this post. Tuesday, September 14, 2010. Natural Remedies for Ulcerative Colitis: Yogurt.
