livingwithheterotaxy.wordpress.com
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livingwithheterotaxy | Just another WordPress.com site | livingwithheterotaxy.wordpress.com Reviews
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Lorna | livingwithheterotaxy
https://livingwithheterotaxy.wordpress.com/stories/lorna
Just another WordPress.com site. I was not diagnosed at birth, the doctors thought I had a hole in my heart (my parents were told this as they were leaving the hospital, almost as an afterthought), and I was sent home with my parents who were told it would probably right itself. I was an extremely difficult baby; would not eat, cried constantly and was a general pain! The Glenn Shunt operation alone was not enough, it was just the first part of my re plumbing! When I was 4 years old I had a total cava pu...
Information & Support | livingwithheterotaxy
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Just another WordPress.com site. Below are organisatons that provide information and support for heterotaxy. Please let us know if you feel we should add any sites to the list :. Heterotaxy Hope Organization (H20). 8211; a group of Heterotaxy survivors and parents of survivors dedicated to working for the Heterotaxy Community. This website contains information about our organization and Heterotaxy . Http:/ heterotaxyhope.org/default.aspx. 8211; Raising awareness of heterotaxy syndrome.
livingwithheterotaxy | livingwithheterotaxy
https://livingwithheterotaxy.wordpress.com/author/livingwithheterotaxy
Just another WordPress.com site. March 22, 2012. After speaking to some of the amazing parents on the Heterotaxy Network and finding out about the ‘Heterotaxy for Hope Organisation’ I have decided to create a blog. A site where us ‘grown up’ heterotaxy children can tell you our stories, the ups and downs, what we find difficult when living with heterotaxy but most importantly, how we live and enjoy life regardless! Blog at WordPress.com. Create a free website or blog at WordPress.com.
Our Stories | livingwithheterotaxy
https://livingwithheterotaxy.wordpress.com/stories
Just another WordPress.com site. Below are the links to us ‘grown up’ heterotaxy kids who have written about how we live our lives with heterotaxy. Hopefully more and more of us will be adding our experiences so please bear in mind we are a working progress! Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). You are commenting using your WordPress.com account. ( Log Out. Notify me of new comments via email.
livingwithheterotaxy
https://livingwithheterotaxy.wordpress.com/2012/03/22/hello-world
Just another WordPress.com site. March 22, 2012. After speaking to some of the amazing parents on the Heterotaxy Network and finding out about the ‘Heterotaxy for Hope Organisation’ I have decided to create a blog. A site where us ‘grown up’ heterotaxy children can tell you our stories, the ups and downs, what we find difficult when living with heterotaxy but most importantly, how we live and enjoy life regardless! This entry was posted on Thursday, March 22nd, 2012 at 9:54 pm and posted in Uncategorized.
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ThE WaRnEr's: September 2012
http://jrwarner2.blogspot.com/2012_09_01_archive.html
Wednesday, September 26, 2012. Sorry it's been so long! Subscribe to: Posts (Atom). LINK TO MY MIRACLE BABY'S PAGE. Sorry its been so long! Jay and I have been married for 6 years and together for 8 :) I dont know what I would ever do without him, he is the love of my LIFE! We have 2 beautiful little girls together. Our first is our adorable Braylee who is 5, and sweet little Addisyn will be 3 this July. Then we have our newest addition Ryker (our little miracle baby! View my complete profile. He is his ...
heterotaxypolysplenia.blogspot.com
Finding Answers to Heterotaxy, Polysplenia Syndrome: CHD-UK...A website with lots of information on CHD
http://heterotaxypolysplenia.blogspot.com/2012/02/chd-uka-website-with-lots-of.html
Finding Answers to Heterotaxy, Polysplenia Syndrome. A 10 year old girl living with Heterotaxy - Polysplenia. Join me in my quest to find answers to my questions as I learn about heterotaxy. Thursday, February 9, 2012. CHD-UK.A website with lots of information on CHD. In honor of CHD awareness week. I am posting a link to a website that I wanted to share with all of you. Http:/ congenital-heart-defects.co.uk/WhatisCongenitalHeartDefects.aspx. Subscribe to: Post Comments (Atom). Ava - The story of a baby ...
heterotaxypolysplenia.blogspot.com
Finding Answers to Heterotaxy, Polysplenia Syndrome: Brady's full sentence
http://heterotaxypolysplenia.blogspot.com/2010/03/bradys-full-sentence.html
Finding Answers to Heterotaxy, Polysplenia Syndrome. A 10 year old girl living with Heterotaxy - Polysplenia. Join me in my quest to find answers to my questions as I learn about heterotaxy. Saturday, March 27, 2010. Last night, we took the kids to the YMCA for family swim. We had so much fun and the kids loved it. Today, Brady said to his dad, "Lets go swimming". Can you believe Brady said a full sentence. Well he did! I am so excited! I just wanted to share that with all of you. Drawing Heart Project -...
heterotaxypolysplenia.blogspot.com
Finding Answers to Heterotaxy, Polysplenia Syndrome: Another Pneumonia/Influenza A
http://heterotaxypolysplenia.blogspot.com/2009/06/another-pneumonia.html
Finding Answers to Heterotaxy, Polysplenia Syndrome. A 10 year old girl living with Heterotaxy - Polysplenia. Join me in my quest to find answers to my questions as I learn about heterotaxy. Friday, June 19, 2009. Subscribe to: Post Comments (Atom). With awareness comes understanding and with understanding comes change. From a special friend in Canada (Laura). But I believe god only gives us special little ones when we are special too. Hold onto that my dear friend.”. Helping Hallie - A very special litt...
heterotaxypolysplenia.blogspot.com
Finding Answers to Heterotaxy, Polysplenia Syndrome: Update
http://heterotaxypolysplenia.blogspot.com/2010/03/update.html
Finding Answers to Heterotaxy, Polysplenia Syndrome. A 10 year old girl living with Heterotaxy - Polysplenia. Join me in my quest to find answers to my questions as I learn about heterotaxy. Friday, March 19, 2010. 160; My fingers are crossed that Chloe will stay infection free for the next 6 months and will not have to go back to be seen. Next week, both kids will see genetics and Chloe will see her developmental doctor. I am also hoping to have great feedback that I can share with you all. 8220;God mu...
heterotaxypolysplenia.blogspot.com
Finding Answers to Heterotaxy, Polysplenia Syndrome: Aiden's Angels, Inc.
http://heterotaxypolysplenia.blogspot.com/2012/03/taken-directly-from-aidens-angels-inc.html
Finding Answers to Heterotaxy, Polysplenia Syndrome. A 10 year old girl living with Heterotaxy - Polysplenia. Join me in my quest to find answers to my questions as I learn about heterotaxy. Tuesday, March 20, 2012. Aiden's Angels, Inc. Aiden is a 2 year old little boy with Heterotaxy and CHD. His mom is a nurse, his dad a pharmacist. The non-profit organization to help families in the Central Kentucky area with children born affected by congenital heart disease. Aiden's Angels, Inc. 8220;God must trust ...
heterotaxypolysplenia.blogspot.com
Finding Answers to Heterotaxy, Polysplenia Syndrome: Nathan a little boy with Heterotaxy and complex CHD
http://heterotaxypolysplenia.blogspot.com/2012/03/nathan-beaudoin-little-boy-with.html
Finding Answers to Heterotaxy, Polysplenia Syndrome. A 10 year old girl living with Heterotaxy - Polysplenia. Join me in my quest to find answers to my questions as I learn about heterotaxy. Monday, March 26, 2012. Nathan a little boy with Heterotaxy and complex CHD. God bless him and also his family. July 29, 2012 at 5:05 PM. How is he doing? What an Angel. God Bless him. 3. December 30, 2012 at 4:02 PM. Subscribe to: Post Comments (Atom). From a special friend in Canada (Laura). 4 Broken Hearts: A moth...
heterotaxypolysplenia.blogspot.com
Finding Answers to Heterotaxy, Polysplenia Syndrome: Angel Flight and Angel Bus
http://heterotaxypolysplenia.blogspot.com/2011/06/angel-flight-and-angel-bus.html
Finding Answers to Heterotaxy, Polysplenia Syndrome. A 10 year old girl living with Heterotaxy - Polysplenia. Join me in my quest to find answers to my questions as I learn about heterotaxy. Wednesday, June 22, 2011. Angel Flight and Angel Bus. Angel Flight is a non profit organization that arranges free air transportation for any serious medically related need. Angel Bus is a non profit organization that arranges free ground transportation for any serious medically related need. Ava - The story of a bab...
heterotaxypolysplenia.blogspot.com
Finding Answers to Heterotaxy, Polysplenia Syndrome: A great Article...A must read...
http://heterotaxypolysplenia.blogspot.com/2011/07/great-articlea-must-read.html
Finding Answers to Heterotaxy, Polysplenia Syndrome. A 10 year old girl living with Heterotaxy - Polysplenia. Join me in my quest to find answers to my questions as I learn about heterotaxy. Sunday, July 17, 2011. A great Article.A must read. See link below.It's an article on Heterotaxia, Congenital Heart Disease, and Primary Ciliary Dyskinesia. Http:/ circ.ahajournals.org/content/115/22/2793.full. Subscribe to: Post Comments (Atom). With awareness comes understanding and with understanding comes change.
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Living With Herpes
See, that’s what the app is perfect for. Wahhhh, I don’t wanna. It's Not the End of Your Social Life. Meet and Date People With Herpes. You Are Not Alone. Best Herpes Dating Sites 2018. Herpes rates decline across US. Herpes infections are decreasing across nearly every demographic in the United States, according to a new report. The report, published Wednesday by the National Center for Health Statistics. Feb 7th, 2018. I Have Herpes And It’s Not The End Of The World. Mono and even cold sores — th...
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living with herpes
Ad5 Network – highest CPM rates! February 23, 2017. Posted in Business Products and Services. Ad5 Network – highest CPM rates! February 23, 2017. Posted in Business Products and Services. Ad5 Network – highest CPM rates! February 23, 2017. Posted in Business Products and Services. What I Can Teach You About Meters. February 7, 2017. What Is A Water Flow Meter? But that’s to this instrument called the flow meter, it can now be measured accurately. What are the different types of flow meters? The positive ...
Living with Herpes 1 2 - A Guide on How to Live with Herpes
Living with Herpes 1 2. Living with Herpes Simplex 1 and 2. This is a blog where you are going to find the best answer to 24 common questions about. Quick search for the answer to your question(s):. 1 How to live with herpes? 2 How do you get herpes? You get herpes after you come into contact with Herpes Simplex Virus 1 or Herpes Simplex Virus 2. 3 How do you know if you have herpes? 4 How to tell your partner if you have herpes? What is there to hide when you have genital or oral herpes? It is wiser to ...
Living with Herpes – What It Is and 5 Ways to Cope with It
Learning How to Cope with a Common STD. Herpes on the Buttocks. Living with Herpes What It Is and 5 Ways to Cope with It. Avoidable But Only to a Certain Extent. Eight Different Types that Can Affect Humans. Where Viruses Hang Out. The type 2 herpes virus is most often found in nerve cells in the area of the sacrum or tail bone. It is, therefore, most active in that area of the body and therefore is primarily responsible for outbreaks of genital herpes. Diagnosing and Treating Infections. Common drugs us...
livingwithheterotaxy.wordpress.com
livingwithheterotaxy | Just another WordPress.com site
Just another WordPress.com site. March 22, 2012. After speaking to some of the amazing parents on the Heterotaxy Network and finding out about the ‘Heterotaxy for Hope Organisation’ I have decided to create a blog. A site where us ‘grown up’ heterotaxy children can tell you our stories, the ups and downs, what we find difficult when living with heterotaxy but most importantly, how we live and enjoy life regardless! Create a free website or blog at WordPress.com. The Elegant Grunge Theme.
Living with HIBM
What it's like to live with a progressive neuromuscular disease. Sunday, August 10, 2014. Please find me at my new home:. Sunday, June 1, 2014. It's not like me to post two days in a row. I hesitated momentarily because so much of yesterday's post, especially the piece from Gabrielle, was about being able to share the difficult feelings without feeling obligated to wrap them up with a bow. But I kind of can't help myself. It just so happens that last night was such an incredible gift. How am I to cope?
Living With HIBM – What it's like to live with a progressive neuromuscular disease
How You Can Help. February 12, 2018. February 13, 2018. Then the upper body weakness set in. It had actually been there all along, but not in the significant, disabling way it was slowly morphing into. How foolish I had been for believing that not being able to walk was the most dreaded outcome of this disease. There is an easy fix for that disability. Such is not the case for hand, arm, upper back and shoulder weakness. Read more “My Anthem”. Resolve to Get Naked in 2018. January 3, 2018. January 3, 2018.
| Living With Hicks
Tips & Products. May 19, 2015. Low Sodium Spicy Fish Tacos & Avocado Cream Sauce. Well, the latest update is that we are back to a very strict low sodium diet. After a couple years of Derrick feeling great, we are back to more sever symptoms. We are tapering back salt again, and will be eating 1,000mg per day. As you know, this can be a challenge, but honestly is […]. Filed Under Low Sodium. September 16, 2014. Low Sodium Butternut Squash & Sweet Potato Oatmeal Mash-up. This gallery contains 2 photos.
livingwithhighbloodpressure.com
livingwithhighbloodpressure.com
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Living With High Blood Pressure
Living With High Blood Pressure. Symptoms of High Blood Pressure. January 28, 2018. That’s exactly it; there are no high blood pressure symptoms until the effects of it hit you by deteriorating your organs, causing stroke or heart failure. Did you know it is possible to go about your day-to-day life and miss the signs and symptoms of this particular problem? In my case I did notice some dizziness that caused me to black out for just a fraction of a second and I mean a fraction. So what is blood pressure?
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