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livingwithheterotaxy.wordpress.com

livingwithheterotaxy | Just another WordPress.com site

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Lorna | livingwithheterotaxy

https://livingwithheterotaxy.wordpress.com/stories/lorna

Just another WordPress.com site. I was not diagnosed at birth, the doctors thought I had a hole in my heart (my parents were told this as they were leaving the hospital, almost as an afterthought), and I was sent home with my parents who were told it would probably right itself. I was an extremely difficult baby; would not eat, cried constantly and was a general pain! The Glenn Shunt operation alone was not enough, it was just the first part of my re plumbing! When I was 4 years old I had a total cava pu...

2

Information & Support | livingwithheterotaxy

https://livingwithheterotaxy.wordpress.com/information-support

Just another WordPress.com site. Below are organisatons that provide information and support for heterotaxy. Please let us know if you feel we should add any sites to the list :. Heterotaxy Hope Organization (H20). 8211; a group of Heterotaxy survivors and parents of survivors dedicated to working for the Heterotaxy Community. This website contains information about our organization and Heterotaxy . Http:/ heterotaxyhope.org/default.aspx. 8211; Raising awareness of heterotaxy syndrome.

3

livingwithheterotaxy | livingwithheterotaxy

https://livingwithheterotaxy.wordpress.com/author/livingwithheterotaxy

Just another WordPress.com site. March 22, 2012. After speaking to some of the amazing parents on the Heterotaxy Network and finding out about the ‘Heterotaxy for Hope Organisation’ I have decided to create a blog. A site where us ‘grown up’ heterotaxy children can tell you our stories, the ups and downs, what we find difficult when living with heterotaxy but most importantly, how we live and enjoy life regardless! Blog at WordPress.com. Create a free website or blog at WordPress.com.

4

Our Stories | livingwithheterotaxy

https://livingwithheterotaxy.wordpress.com/stories

Just another WordPress.com site. Below are the links to us ‘grown up’ heterotaxy kids who have written about how we live our lives with heterotaxy. Hopefully more and more of us will be adding our experiences so please bear in mind we are a working progress! Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). You are commenting using your WordPress.com account. ( Log Out. Notify me of new comments via email.

5

livingwithheterotaxy

https://livingwithheterotaxy.wordpress.com/2012/03/22/hello-world

Just another WordPress.com site. March 22, 2012. After speaking to some of the amazing parents on the Heterotaxy Network and finding out about the ‘Heterotaxy for Hope Organisation’ I have decided to create a blog. A site where us ‘grown up’ heterotaxy children can tell you our stories, the ups and downs, what we find difficult when living with heterotaxy but most importantly, how we live and enjoy life regardless! This entry was posted on Thursday, March 22nd, 2012 at 9:54 pm and posted in Uncategorized.

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jrwarner2.blogspot.com jrwarner2.blogspot.com

ThE WaRnEr's: September 2012

http://jrwarner2.blogspot.com/2012_09_01_archive.html

Wednesday, September 26, 2012. Sorry it's been so long! Subscribe to: Posts (Atom). LINK TO MY MIRACLE BABY'S PAGE. Sorry its been so long! Jay and I have been married for 6 years and together for 8 :) I dont know what I would ever do without him, he is the love of my LIFE! We have 2 beautiful little girls together. Our first is our adorable Braylee who is 5, and sweet little Addisyn will be 3 this July. Then we have our newest addition Ryker (our little miracle baby! View my complete profile. He is his ...

heterotaxypolysplenia.blogspot.com heterotaxypolysplenia.blogspot.com

Finding Answers to Heterotaxy, Polysplenia Syndrome: CHD-UK...A website with lots of information on CHD

http://heterotaxypolysplenia.blogspot.com/2012/02/chd-uka-website-with-lots-of.html

Finding Answers to Heterotaxy, Polysplenia Syndrome. A 10 year old girl living with Heterotaxy - Polysplenia. Join me in my quest to find answers to my questions as I learn about heterotaxy. Thursday, February 9, 2012. CHD-UK.A website with lots of information on CHD. In honor of CHD awareness week. I am posting a link to a website that I wanted to share with all of you. Http:/ congenital-heart-defects.co.uk/WhatisCongenitalHeartDefects.aspx. Subscribe to: Post Comments (Atom). Ava - The story of a baby ...

heterotaxypolysplenia.blogspot.com heterotaxypolysplenia.blogspot.com

Finding Answers to Heterotaxy, Polysplenia Syndrome: Brady's full sentence

http://heterotaxypolysplenia.blogspot.com/2010/03/bradys-full-sentence.html

Finding Answers to Heterotaxy, Polysplenia Syndrome. A 10 year old girl living with Heterotaxy - Polysplenia. Join me in my quest to find answers to my questions as I learn about heterotaxy. Saturday, March 27, 2010. Last night, we took the kids to the YMCA for family swim. We had so much fun and the kids loved it. Today, Brady said to his dad, "Lets go swimming". Can you believe Brady said a full sentence. Well he did! I am so excited! I just wanted to share that with all of you. Drawing Heart Project -...

heterotaxypolysplenia.blogspot.com heterotaxypolysplenia.blogspot.com

Finding Answers to Heterotaxy, Polysplenia Syndrome: Another Pneumonia/Influenza A

http://heterotaxypolysplenia.blogspot.com/2009/06/another-pneumonia.html

Finding Answers to Heterotaxy, Polysplenia Syndrome. A 10 year old girl living with Heterotaxy - Polysplenia. Join me in my quest to find answers to my questions as I learn about heterotaxy. Friday, June 19, 2009. Subscribe to: Post Comments (Atom). With awareness comes understanding and with understanding comes change. From a special friend in Canada (Laura). But I believe god only gives us special little ones when we are special too. Hold onto that my dear friend.”. Helping Hallie - A very special litt...

heterotaxypolysplenia.blogspot.com heterotaxypolysplenia.blogspot.com

Finding Answers to Heterotaxy, Polysplenia Syndrome: Update

http://heterotaxypolysplenia.blogspot.com/2010/03/update.html

Finding Answers to Heterotaxy, Polysplenia Syndrome. A 10 year old girl living with Heterotaxy - Polysplenia. Join me in my quest to find answers to my questions as I learn about heterotaxy. Friday, March 19, 2010. 160; My fingers are crossed that Chloe will stay infection free for the next 6 months and will not have to go back to be seen. Next week, both kids will see genetics and Chloe will see her developmental doctor.  I am also hoping to have great feedback that I can share with you all. 8220;God mu...

heterotaxypolysplenia.blogspot.com heterotaxypolysplenia.blogspot.com

Finding Answers to Heterotaxy, Polysplenia Syndrome: Aiden's Angels, Inc.

http://heterotaxypolysplenia.blogspot.com/2012/03/taken-directly-from-aidens-angels-inc.html

Finding Answers to Heterotaxy, Polysplenia Syndrome. A 10 year old girl living with Heterotaxy - Polysplenia. Join me in my quest to find answers to my questions as I learn about heterotaxy. Tuesday, March 20, 2012. Aiden's Angels, Inc. Aiden is a 2 year old little boy with Heterotaxy and CHD. His mom is a nurse, his dad a pharmacist. The non-profit organization to help families in the Central Kentucky area with children born affected by congenital heart disease. Aiden's Angels, Inc. 8220;God must trust ...

heterotaxypolysplenia.blogspot.com heterotaxypolysplenia.blogspot.com

Finding Answers to Heterotaxy, Polysplenia Syndrome: Nathan a little boy with Heterotaxy and complex CHD

http://heterotaxypolysplenia.blogspot.com/2012/03/nathan-beaudoin-little-boy-with.html

Finding Answers to Heterotaxy, Polysplenia Syndrome. A 10 year old girl living with Heterotaxy - Polysplenia. Join me in my quest to find answers to my questions as I learn about heterotaxy. Monday, March 26, 2012. Nathan a little boy with Heterotaxy and complex CHD. God bless him and also his family. July 29, 2012 at 5:05 PM. How is he doing? What an Angel. God Bless him. 3. December 30, 2012 at 4:02 PM. Subscribe to: Post Comments (Atom). From a special friend in Canada (Laura). 4 Broken Hearts: A moth...

heterotaxypolysplenia.blogspot.com heterotaxypolysplenia.blogspot.com

Finding Answers to Heterotaxy, Polysplenia Syndrome: Angel Flight and Angel Bus

http://heterotaxypolysplenia.blogspot.com/2011/06/angel-flight-and-angel-bus.html

Finding Answers to Heterotaxy, Polysplenia Syndrome. A 10 year old girl living with Heterotaxy - Polysplenia. Join me in my quest to find answers to my questions as I learn about heterotaxy. Wednesday, June 22, 2011. Angel Flight and Angel Bus. Angel Flight is a non profit organization that arranges free air transportation for any serious medically related need. Angel Bus is a non profit organization that arranges free ground transportation for any serious medically related need. Ava - The story of a bab...

heterotaxypolysplenia.blogspot.com heterotaxypolysplenia.blogspot.com

Finding Answers to Heterotaxy, Polysplenia Syndrome: A great Article...A must read...

http://heterotaxypolysplenia.blogspot.com/2011/07/great-articlea-must-read.html

Finding Answers to Heterotaxy, Polysplenia Syndrome. A 10 year old girl living with Heterotaxy - Polysplenia. Join me in my quest to find answers to my questions as I learn about heterotaxy. Sunday, July 17, 2011. A great Article.A must read. See link below.It's an article on Heterotaxia, Congenital Heart Disease, and Primary Ciliary Dyskinesia. Http:/ circ.ahajournals.org/content/115/22/2793.full. Subscribe to: Post Comments (Atom). With awareness comes understanding and with understanding comes change.

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livingwithheterotaxy | Just another WordPress.com site

Just another WordPress.com site. March 22, 2012. After speaking to some of the amazing parents on the Heterotaxy Network and finding out about the ‘Heterotaxy for Hope Organisation’ I have decided to create a blog. A site where us ‘grown up’ heterotaxy children can tell you our stories, the ups and downs, what we find difficult when living with heterotaxy but most importantly, how we live and enjoy life regardless! Create a free website or blog at WordPress.com. The Elegant Grunge Theme.

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Living With HIBM – What it's like to live with a progressive neuromuscular disease

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Living With High Blood Pressure

Living With High Blood Pressure. Symptoms of High Blood Pressure. January 28, 2018. That’s exactly it; there are no high blood pressure symptoms until the effects of it hit you by deteriorating your organs, causing stroke or heart failure. Did you know it is possible to go about your day-to-day life and miss the signs and symptoms of this particular problem? In my case I did notice some dizziness that caused me to black out for just a fraction of a second and I mean a fraction. So what is blood pressure?