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lovinglittleellie.blogspot.com

Loving Little Ellie

Seeking answers for our daughter's undiagnosed disease.

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Seeking answers for our daughter&#39;s undiagnosed disease.
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Loving Little Ellie | lovinglittleellie.blogspot.com Reviews

https://lovinglittleellie.blogspot.com

Seeking answers for our daughter&#39;s undiagnosed disease.

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1

Loving Little Ellie: July 2013

http://lovinglittleellie.blogspot.com/2013_07_01_archive.html

Seeking answers for our daughter's undiagnosed disease. Sunday, July 28, 2013. Our Visit to the National Institutes of Health - Undiagnosed Disease Program. Our visit to the National Institutes of Health - Undiagnosed Disease Program and what we learned. The highly anticipated visit to the NIH’s Undiagnosed Disease Program has come and gone. All the hope and excitement that had been on our minds these past several months is now just a memory. Jean Johnson, Ellie and Myself, Cynthia Tiff, Gretchen Golas.

2

Loving Little Ellie: Donations

http://lovinglittleellie.blogspot.com/p/donations.html

Seeking answers for our daughter's undiagnosed disease. To learn more about this amazing organization, please visit :. Http:/ www.firstgiving.com/fundraiser/SWAN/elliesproject. Subscribe to: Posts (Atom). Ellie goes to preschool. WHAT IN THE WORLD WAS THAT GOING TO LOOK LIKE? And, this is technically her last year before becoming a kind. When it all began. Pediatrician, Genetics, Neurology, Audiology, Endocrinology, Nutrition, Opthamology, Plagiocephaly, Physical Therapy, Occupational Th. The speech I ga...

3

Loving Little Ellie: December 2013

http://lovinglittleellie.blogspot.com/2013_12_01_archive.html

Seeking answers for our daughter's undiagnosed disease. Saturday, December 28, 2013. It is the loneliest place to be when you know something terrible is happening to your child before any doctors can confirm it. They might never confirm it, but as a mom, you just know it. Sometimes, it is sooo good. Other times, it is so scary. I do have faith all of this is for a greater purpose and I can cry tears of grief along with smiles of happiness knowing I am so blessed for every moment. I am not done trying.

4

Loving Little Ellie: Scattered Pieces

http://lovinglittleellie.blogspot.com/2013/04/scattered-pieces.html

Seeking answers for our daughter's undiagnosed disease. Tuesday, April 30, 2013. 8220;The day we met…frozen, I held my breath. Right from the start I knew that I had found a home for my heart.”. How do you hear “less than 50% chance she will be with you at 12” or “profoundly disabled” or “failure to thrive” and then go home to life? Dinner to make and conversations about school and extracurricular activities. It’s an implosion of the mind, a tornado of emotions:. Uncertainty, fear, love. Sometimes I just...

5

Loving Little Ellie: February 2013

http://lovinglittleellie.blogspot.com/2013_02_01_archive.html

Seeking answers for our daughter's undiagnosed disease. Wednesday, February 27, 2013. Just an Average Girl. They bought a home. They started a family. They had a typical healthy baby girl. She loved her mommy. She had average grades. She enjoyed singing and playing barbies. She was a fashion designer. She was a mom of twelve cabbage patch kids. She played legos with her brother and built forts. She made a mess of the house. She listened to loud music. She fell in love. She had her heart broken. We will w...

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Loving Little Ellie

Seeking answers for our daughter's undiagnosed disease. Monday, December 7, 2015. Ellie goes to preschool. WHAT IN THE WORLD WAS THAT GOING TO LOOK LIKE? And, this is technically her last year before becoming a kindergartner. How was this going to work? She needs to be carried most of her day. She doesn't talk, engage with people, or follow directions like a typical student would. Ellie and her WONDERFUL teacher Shelley. Ellie goes 4 days a week for about 2 1/2 hours each day. When we arrive at schoo...

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Loving Leah, Tommy, Nic and Kenny

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Our International Adoption Journey

Our International Adoption Journey. Tuesday, June 12, 2012. Every woman that he sees is "Mama" and that is endearing to me. He doesn't understand the concept of family and what a mom really is. It will come with time. It took Luke a very long time to understand that. Matthew was meant to be in our family and I can't wait to have him wake up each day! With all of this time on my hands, I was able to complete his adoption video. Enjoy! Thursday, May 31, 2012. I Love the Vacuum. Tuesday, May 29, 2012. He as...

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He's My World!

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