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lunaandwe.blogspot.com

Luna & We

Luna & We is a blog about our baby girl, Luna, who has a series of rare heart formations; including dextrocardia, double-inlet right ventricle, and pulmonary Artesia. At just 10 months old she has undergone two open heart surgeries, angioplasty, and countless echocardiograms, EKGs, and blood work. BUT, despite all this, Luna is a happy and healthy baby girl.

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Luna & We | lunaandwe.blogspot.com Reviews
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Luna &amp;amp; We is a blog about our baby girl, Luna, who has a series of rare heart formations; including dextrocardia, double-inlet right ventricle, and pulmonary Artesia. At just 10 months old she has undergone two open heart surgeries, angioplasty, and countless echocardiograms, EKGs, and blood work. BUT, despite all this, Luna is a happy and healthy baby girl.
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5 insurance
6 obamacare
7 pre existing condition
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crossing state lines,sabrina,3 comments,labels healthcare reform,insurance,obamacare,pre existing condition,tiny hero,labels heros,memorial day,post fontan,the architect,1 comment,labels aha,american heart association,but pajamas,here,or here,no comments
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Luna & We | lunaandwe.blogspot.com Reviews

https://lunaandwe.blogspot.com

Luna &amp;amp; We is a blog about our baby girl, Luna, who has a series of rare heart formations; including dextrocardia, double-inlet right ventricle, and pulmonary Artesia. At just 10 months old she has undergone two open heart surgeries, angioplasty, and countless echocardiograms, EKGs, and blood work. BUT, despite all this, Luna is a happy and healthy baby girl.

INTERNAL PAGES

lunaandwe.blogspot.com lunaandwe.blogspot.com
1

Luna & We: January 2010

http://lunaandwe.blogspot.com/2010_01_01_archive.html

Monday, January 25, 2010. Diapergate: The trials of flying with cardiac (and non-cardiac) kids. The girls playing in Sangster International Airport. (A closer look reveals a scrape on Luna's nose incurred from a nasty pool-side spill). I thought I would follow-up to my last post since basically everything I wrote about CHD kids needing the breathing assistance of a Portable Oxygen Concentrator in-flight was completely wrong. The Architect, being an Architect and really adept at anything architect-y or in...

2

Luna & We: March 2010

http://lunaandwe.blogspot.com/2010_03_01_archive.html

Monday, March 29, 2010. Luna surprises herself by successfully blowing out her candles. On March 11th at 5:23pm, Luna turned two-years old. Luna shares her birthday with Rupert Murdoch (that just makes me laugh.Murdoch, the owner of Fox Network, is naturally considered the most evil figure among Progressives-the irony that our little Lu shares his birthday is not lost). But some other interesting people share her birthday too. Like the guy who wrote the Hitchhiker's Guide to the Galaxy. Our appointment e...

3

Luna & We: Visions of Sugar Plums with PBDEs Dancing in My Head

http://lunaandwe.blogspot.com/2010/12/visions-of-sugar-plums-with-pbdes.html

Wednesday, December 29, 2010. Visions of Sugar Plums with PBDEs Dancing in My Head. If you’re like me, every year at Christmas you receive a pair of pajamas. This year The Architect gave me a lovely pair of ‘Simply Vera’ flannel pajamas that are super soft and cozy. My children typically receive new pairs from their Memere at Christmastime. For me this ritual is a painful one. As I said this to my in-laws last year I could see their eyes glaze over. So, you can imagine now how on Christmas Day when my ki...

4

Luna & We: Voices of the Heart: 15th Annual New Hampshire Heart Ball

http://lunaandwe.blogspot.com/2011/02/voices-of-heart-15th-annual-new.html

Sunday, February 13, 2011. Voices of the Heart: 15th Annual New Hampshire Heart Ball. Last Friday I spoke before an audience of 400 at the Sky Meadow Country Club in Nashua, New Hampshire. My speech was about our journey with Luna (I accidentally wrote 'to' Luna, which could also be accurate-the language and world we were about to embark upon was about as foreign to me as the moon.). Sabrina Velandry; Journey with Luna. We entered the darkened ultra sound room and I laid for what seemed like an eternity ...

5

Luna & We: And so it begins. (Fontan)

http://lunaandwe.blogspot.com/2010/05/and-so-it-begins-fontan.html

Friday, May 28, 2010. And so it begins. (Fontan). Luna looking like a day at the beach the day after her surgery. Once Luna was good and loopy, the anesthesiologists brought her back. She protested a bit, so Paul carried her to a place where she’d get to breathe the "happy strawberry air”. (More trippy drug references, I personally worry about future drug dependence problems for these heart kids than I do about the heart function itself). When Paul and I arrived in the ICU, she looked like this. Her nurs...

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huininkfamily.blogspot.com huininkfamily.blogspot.com

Our Crazy Life......: March 2010

http://huininkfamily.blogspot.com/2010_03_01_archive.html

Follow our journey through lifes ups and and downs. Born Sept. 2 , 1998. Born Sept 14, 2004. Born Sept 5, 2006. Ryley ( transplant ). Gavin ( HLHS - Fontan). Riley ( DORV -Fontan). Asher ( HLHS ). Dominic ( Fontan ). Gracie ( heart issues ). Luna (Complex Heart ). Yale ( transplant ). Josh ( TGA ). Lindsay ( transplant ). Friday, March 12, 2010. Well this picture was christmas eve. kinda blurry. but you get the idea. Hunter and Magic playing with the race car set that Santa left for them. Hunter is still...

huininkfamily.blogspot.com huininkfamily.blogspot.com

Our Crazy Life......

http://huininkfamily.blogspot.com/2012/07/this-is-hunters-graduation-from-sk-2012.html

Follow our journey through lifes ups and and downs. Born Sept. 2 , 1998. Born Sept 14, 2004. Born Sept 5, 2006. Ryley ( transplant ). Gavin ( HLHS - Fontan). Riley ( DORV -Fontan). Asher ( HLHS ). Dominic ( Fontan ). Gracie ( heart issues ). Luna (Complex Heart ). Yale ( transplant ). Josh ( TGA ). Lindsay ( transplant ). Thursday, July 5, 2012. This is Hunters graduation from SK, 2012. Tristian and his brother at the celebration. Hunter and Miss Moon, what a good teacher. That i have seen on her face.

huininkfamily.blogspot.com huininkfamily.blogspot.com

Our Crazy Life......: January 2011

http://huininkfamily.blogspot.com/2011_01_01_archive.html

Follow our journey through lifes ups and and downs. Born Sept. 2 , 1998. Born Sept 14, 2004. Born Sept 5, 2006. Ryley ( transplant ). Gavin ( HLHS - Fontan). Riley ( DORV -Fontan). Asher ( HLHS ). Dominic ( Fontan ). Gracie ( heart issues ). Luna (Complex Heart ). Yale ( transplant ). Josh ( TGA ). Lindsay ( transplant ). Tuesday, January 4, 2011. Well I have slacked off majorly the last few months. Life has been busy and stressful. So my month of December started off with this wonderful view. I hope tha...

huininkfamily.blogspot.com huininkfamily.blogspot.com

Our Crazy Life......: November 2009

http://huininkfamily.blogspot.com/2009_11_01_archive.html

Follow our journey through lifes ups and and downs. Born Sept. 2 , 1998. Born Sept 14, 2004. Born Sept 5, 2006. Ryley ( transplant ). Gavin ( HLHS - Fontan). Riley ( DORV -Fontan). Asher ( HLHS ). Dominic ( Fontan ). Gracie ( heart issues ). Luna (Complex Heart ). Yale ( transplant ). Josh ( TGA ). Lindsay ( transplant ). Tuesday, November 3, 2009. So, as October started, the kittens are growing and Hunter is loving them more and more. Hunter with his very own baby pumpkin. Tristian with his pumpkin.

huininkfamily.blogspot.com huininkfamily.blogspot.com

Our Crazy Life......

http://huininkfamily.blogspot.com/2012/06/wow.html

Follow our journey through lifes ups and and downs. Born Sept. 2 , 1998. Born Sept 14, 2004. Born Sept 5, 2006. Ryley ( transplant ). Gavin ( HLHS - Fontan). Riley ( DORV -Fontan). Asher ( HLHS ). Dominic ( Fontan ). Gracie ( heart issues ). Luna (Complex Heart ). Yale ( transplant ). Josh ( TGA ). Lindsay ( transplant ). Tuesday, June 19, 2012. Wow it has been ages since i posted on here. that must mean that everything is going well. Subscribe to: Post Comments (Atom). About My Crazy Family. For more in...

huininkfamily.blogspot.com huininkfamily.blogspot.com

Our Crazy Life......: July 2010

http://huininkfamily.blogspot.com/2010_07_01_archive.html

Follow our journey through lifes ups and and downs. Born Sept. 2 , 1998. Born Sept 14, 2004. Born Sept 5, 2006. Ryley ( transplant ). Gavin ( HLHS - Fontan). Riley ( DORV -Fontan). Asher ( HLHS ). Dominic ( Fontan ). Gracie ( heart issues ). Luna (Complex Heart ). Yale ( transplant ). Josh ( TGA ). Lindsay ( transplant ). Friday, July 30, 2010. Wow It has been a while. Sorry I didn't realize that it has been so long wince my last post. Tht would be great! Subscribe to: Posts (Atom). About My Crazy Family.

huininkfamily.blogspot.com huininkfamily.blogspot.com

Our Crazy Life......: Wow.... It has been a while....

http://huininkfamily.blogspot.com/2010/07/wow-it-has-been-while.html

Follow our journey through lifes ups and and downs. Born Sept. 2 , 1998. Born Sept 14, 2004. Born Sept 5, 2006. Ryley ( transplant ). Gavin ( HLHS - Fontan). Riley ( DORV -Fontan). Asher ( HLHS ). Dominic ( Fontan ). Gracie ( heart issues ). Luna (Complex Heart ). Yale ( transplant ). Josh ( TGA ). Lindsay ( transplant ). Friday, July 30, 2010. Wow It has been a while. Sorry I didn't realize that it has been so long wince my last post. Tht would be great! Subscribe to: Post Comments (Atom). My oldest dau...

huininkfamily.blogspot.com huininkfamily.blogspot.com

Our Crazy Life......: April 2010

http://huininkfamily.blogspot.com/2010_04_01_archive.html

Follow our journey through lifes ups and and downs. Born Sept. 2 , 1998. Born Sept 14, 2004. Born Sept 5, 2006. Ryley ( transplant ). Gavin ( HLHS - Fontan). Riley ( DORV -Fontan). Asher ( HLHS ). Dominic ( Fontan ). Gracie ( heart issues ). Luna (Complex Heart ). Yale ( transplant ). Josh ( TGA ). Lindsay ( transplant ). Wednesday, April 28, 2010. So if all my readers , friends and family wouldn't mind saying a prayer or two. and sending some good vibes his way , that would be very much appreciated.

huininkfamily.blogspot.com huininkfamily.blogspot.com

Our Crazy Life......: July 2012

http://huininkfamily.blogspot.com/2012_07_01_archive.html

Follow our journey through lifes ups and and downs. Born Sept. 2 , 1998. Born Sept 14, 2004. Born Sept 5, 2006. Ryley ( transplant ). Gavin ( HLHS - Fontan). Riley ( DORV -Fontan). Asher ( HLHS ). Dominic ( Fontan ). Gracie ( heart issues ). Luna (Complex Heart ). Yale ( transplant ). Josh ( TGA ). Lindsay ( transplant ). Thursday, July 5, 2012. This is Hunters graduation from SK, 2012. Tristian and his brother at the celebration. Hunter and Miss Moon, what a good teacher. That i have seen on her face.

huininkfamily.blogspot.com huininkfamily.blogspot.com

Our Crazy Life......: May 2010

http://huininkfamily.blogspot.com/2010_05_01_archive.html

Follow our journey through lifes ups and and downs. Born Sept. 2 , 1998. Born Sept 14, 2004. Born Sept 5, 2006. Ryley ( transplant ). Gavin ( HLHS - Fontan). Riley ( DORV -Fontan). Asher ( HLHS ). Dominic ( Fontan ). Gracie ( heart issues ). Luna (Complex Heart ). Yale ( transplant ). Josh ( TGA ). Lindsay ( transplant ). Monday, May 3, 2010. Cath Is All done. Thanks to al those who sent e-mails, and FB messages , I really appreciated it. Subscribe to: Posts (Atom). Here is a link to more family pictures.

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