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Lydia Unicorn | Learning how to take care of our rare and magical daughter with disabilities

Learning how to take care of our rare and magical daughter with disabilities

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Lydia Unicorn | Learning how to take care of our rare and magical daughter with disabilities | lydiaunicorn.wordpress.com Reviews
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Learning how to take care of our rare and magical daughter with disabilities
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1 medical summary
2 web resources
3 lydia unicorn
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5 4 comments
6 new house
7 5 comments
8 new wheelchair
9 1 comment
10 two to adore
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Lydia Unicorn | Learning how to take care of our rare and magical daughter with disabilities | lydiaunicorn.wordpress.com Reviews

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Learning how to take care of our rare and magical daughter with disabilities

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Lydia Unicorn | Learning how to take care of our rare and magical daughter | Page 17

https://lydiaunicorn.wordpress.com/page/17

Learning how to take care of our rare and magical daughter. August 29, 2013. This isn’t new news but just medical information from July I’ve been meaning to post for a while. Maybe someone out there has seen this cluster of symptoms before and has a diagnosis… Continue reading →. August 28, 2013. It’s her opium den grin. Despite being sleepy, she’s still meeting her one-a-day smile quota. This is today’s smile. I worked hard to get it. But it’s there. August 27, 2013. August 27, 2013. August 27, 2013.

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Two to Adore | Lydia Unicorn

https://lydiaunicorn.wordpress.com/2015/04/09/two-to-adore

Learning how to take care of our rare and magical daughter. April 9, 2015. This photos says it all. Siblings. So similar. So different. I am an only child and most of my understanding of the sibling relationship came from reading. Category : Lydia's Family. Last Showing of Fierce Love. One thought on “ Two to Adore. April 9, 2015 at 2:07 pm. This is so very beautiful! Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public).

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Lydia Unicorn | Learning how to take care of our rare and magical daughter | Page 4

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Learning how to take care of our rare and magical daughter. March 7, 2015. This is a piece that came out of the play-writing workshop. I am sharing it while thinking of Eva and her mom. Some of you know how we became friends, but that is… Continue reading →. March 1, 2015. March 1, 2015. How to remember Eva. I just wanted to pop in here quickly and say thank you. Since my last post, and Eva’s death, I have received a huge amount of support from old readers and new. I…. February 19, 2015. February 6, 2015.

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About | Lydia Unicorn

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Learning how to take care of our rare and magical daughter. What’s with the unicorn thing? Or maybe that was a child of the 80s thing. Anyway, she is as unique, lovely and pure of heart as you can imagine any good unicorn should be. But more importantly Lydia smiles at least once a day as per her mother’s requirement of her, and she really likes to listen to classical music and snuggle. She has a big brother and super fun father who love her madly. Here is a link to the first post:. And yes, the soundtra...

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Web Resources | Lydia Unicorn

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Learning how to take care of our rare and magical daughter. Stuff I come across in my research that might be useful to other families in the same crazy boat. PARENT SEEKING LT DIAGNOSIS. Find Zebra is a search engine for medical professionals to cross-reference symptoms of difficult medical cases. Like disease bingo. Not really that helpful for us but sometimes it leads me into new ideas about a possible diagnosis. http:/ findzebra.compute.dtu.dk/. Post) http:/ www.nih.gov/. We haven’t been able to...

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About | Lilla isa

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Isa's journey living with epilepsy and brain malformation. Hi and welcome to Isa’s life. I’m Lizette, Isa’s mom and this is her story. I’m a Mexican born now living in Sweden, I’m married to Nicklas and we have a yoga studio in Uppsala Sweden, just so you understand if you read something about classes or the studio, this is where we spend most of our day together with Isa. If you want to read about Isa’s story, the best place to start is here “Where to begin? Lilla Isa means: Little Isa in swedish. The O...

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Lilla isa | Isa's journey living with epilepsy and brain malformation. | Page 2

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Isa's journey living with epilepsy and brain malformation. Shorter leg or not? August 26, 2014. When she walks and when you look at her legs it feels like the difference is more than just a few millimeters, you can see how one leg is just shorter, not just a few millimeters. The answer he had, was that as the left side of her body is weaker she doesn’t have the strength to stretch the leg completely. August 18, 2014. Isa is big, and when I say that she is big, I mean that she has grown up so much! It fee...

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Wordless Wednesday | Lilla isa

https://lillaisa.wordpress.com/2014/11/05/wordless-wednesday

Isa's journey living with epilepsy and brain malformation. November 5, 2014. Isa’s day care picture. 4 thoughts on “ Wordless Wednesday. November 5, 2014 at 1:55 pm. Farmors söta lilla tjej. November 5, 2014 at 7:02 pm. When I see your pictures Lizette, I admire your two wonderful girls; Ella is so cute but when I see Isa my heart opens up. I love her. November 6, 2014 at 11:06 am. Lovely charming fantastic girl . She is so Beautiful. Iza is magic. November 6, 2014 at 11:06 am. Leave a Reply Cancel reply.

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lillaisa | Lilla isa

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Isa's journey living with epilepsy and brain malformation. It’s been a while…. July 3, 2016. Isa is 4 1/2 years old. She has improved tremendously in every sense over this year, much more that I could have ever imagined. She has surprised us over and over again. After her intensive training with Veronika she started walking barefoot, standing up and sitting down from a chair, leaning down to pick up stuff and slowly she became quick and good at it. After a few months without medication she started sa...

seizinghope.com seizinghope.com

Love and Loss | seizinghopedotcom

https://seizinghope.com/2015/08/05/love-and-loss

August 5, 2015. I see your magic Haley. Even when it’s buried and hard to find. I see. When we talk about love and loss of a loved one we often think only of death. What I, and many families like ours, endure is a different loss altogether. It’s the loss of the one you love even though they’re sitting on your lap. It’s day in and day out living with, loving fiercely, someone that you know is a shell of themselves. There is a difference between expectation and hope. As we embark on a new, uncharted, p...

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Dear Ella | Lilla isa

https://lillaisa.wordpress.com/2014/11/03/dear-ella

Isa's journey living with epilepsy and brain malformation. November 3, 2014. Every time she does something new (and new things happen everyday, all the time) Nicklas and I can’t help but to look at each other and smile, and by smile I mean wide side to side smile. I’m in love, big time. 6 thoughts on “ Dear Ella. November 3, 2014 at 10:24 pm. They are both adorable. November 4, 2014 at 6:33 pm. You have no idea how much more thankful, we know how nothing is for granted and we are enjoying it so much🙂.

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The value of life – Transitioning Angels

https://transitioningangels.com/2017/01/07/the-value-of-life

The journey with a child who has a life-limiting condition. Follow Transitioning Angels on WordPress.com. Follow Blog via Email. Enter your email address to follow this blog and receive notifications of new posts by email. Join 71 other followers. The value of life. The obstetrician told me “No one would blame you if you chose to terminate the pregnancy, considering everything”. Back to the nurse on the phone. The results of the amniocentesis were in. My baby boy was COMPLETELY HEALTHY. There has been a ...

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Lydia Unicorn | Learning how to take care of our rare and magical daughter with disabilities

Learning how to take care of our rare and magical daughter with disabilities. July 30, 2015. So, what’s happening with the Marijuana oil? I’ve been meaning to write an update on marijuana for Lydia’s seizures. There’s no news and no change, let me say that first. Lydia currently has about 50 seizures a day. She hasn’t… Continue reading →. July 15, 2015. Video – Lydia Learning to use an Adapted Switch. July 13, 2015. May 23, 2015. April 9, 2015. April 6, 2015. Last Showing of Fierce Love. 8220;Fierce Love...

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Lydia Jost was in a terrible car crash on Friday, July 4th. Please keep her in your prayers. You may comment on any post by clicking the comment link under each post. You can also subscribe to this blog. Look for a link at the bottom of the blog. Also look for a SLIDESHOW at the bottom. If you have pictures to add, please send to camruns@gmail.com. Thursday, December 25, 2014. Please note-changing my email address. I am now using jjost6@gmail.com. Saturday, June 16, 2012. Monday, December 29, 2008. Ginny...

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