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Madeline's JDM Story

Diary of daughter with Juvenile Dermatomyositis

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Madeline's JDM Story | madelinesjdmstory.blogspot.com Reviews
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Diary of daughter with Juvenile Dermatomyositis
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Madeline's JDM Story | madelinesjdmstory.blogspot.com Reviews

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Diary of daughter with Juvenile Dermatomyositis

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1

Madeline's JDM Story: August 2009

http://madelinesjdmstory.blogspot.com/2009_08_01_archive.html

Diary of daughter with Juvenile Dermatomyositis. In less than a month. First Day of School. Sample letter to teachers, school nurse, administr. Thursday, August 27, 2009. We brought Madeline today after school to have her blood drawn. Right after, we brought her to dance. She did great. She is so brave. Now we are spending the rest of the evening studying. Summer sure was easier. I will go to medical records tomorrow to get her results. It will be interesting to see what her blood. And then vomited every...

2

Madeline's JDM Story: December 2008

http://madelinesjdmstory.blogspot.com/2008_12_01_archive.html

Diary of daughter with Juvenile Dermatomyositis. Hot cheeks.Hot flashes. Its beginning to look a lot like Christmas. Snow Day in Louisiana. Red Cheeks and Tingling. Wishing for winter weather (or atleast 50 degree o. 2008You are dead to me! Wednesday, December 31, 2008. 2008You are dead to me! It' almost over. This dreadful year of ours called 2008. We are only a little over an hour away (CST) and I am so happy for 2009 to be here. The year started out great with Madeline's birthday to Mardi. But, the go...

3

Madeline's JDM Story: August 2008

http://madelinesjdmstory.blogspot.com/2008_08_01_archive.html

Diary of daughter with Juvenile Dermatomyositis. 8 months and counting. Sometimes you forget she is sick.and then you ar. Stress does cause problems. Open House/Sample Teacher Letter. Its raining on the first day of school - yea! Sacrament of the Sick. How blessed we are. The Poison is Working. Just got back from the hospital. How is she not exhausted? We have a visitor coming.named Gustav. Gustav is scaring me. Saturday, August 30, 2008. Gustav is scaring me. Saturday, August 30, 2008. We went grocery s...

4

Madeline's JDM Story: April 2009

http://madelinesjdmstory.blogspot.com/2009_04_01_archive.html

Diary of daughter with Juvenile Dermatomyositis. Dancing at the Beach. High emotions.or just plain tired. Feeling Good and Blessed. Thursday, April 30, 2009. Madeline was in the newspaper today. This is she (left) and her friend Chesney. At the Mobile dance competition. This was their tap outfit that they danced to the song "New Orleans". It's an awesome routine. They also performed this routine at our recent competition in Florida. Go Madeline! Thursday, April 30, 2009. Tuesday, April 28, 2009. A scienc...

5

Madeline's JDM Story: April 2008

http://madelinesjdmstory.blogspot.com/2008_04_01_archive.html

Diary of daughter with Juvenile Dermatomyositis. Finding a pediatric rheumatologist. April - What do we tell our baby? Until the doctor appointment. Madelines first day to miss school. We didnt have to tell her/medications. First day of meds - April 14. Week Two - April 21. Wednesday, April 30, 2008. Madeline is red all over - her face, arms, legs, etc. She does not feel well at all. In fact, came home from school and slept - which she never does. We are still not taking meds. Wednesday, April 30, 2008.

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The Neel Life: My Little Miss Girly Girl

http://baneelfamily.blogspot.com/2009/01/my-little-miss-girly-girl.html

CLICK HERE FOR THOUSANDS OF FREE BLOGGER TEMPLATES. Tuesday, January 20, 2009. My Little Miss Girly Girl. So this is how her 'make up putting on skills' turned out:. Of course, when it was time for her to put her clothes on I had to wipe all of it off. I could not let her go out of the house looking like that! She made sure to tell me 'mama, do not wipe my make up off'. So I told a big fib - 'Addy, let me wipe your nose'. She did not know that I managed to hit her whole face! I LOVE MY GIRLY GIRL!

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The Neel Life: Birthday Month!

http://baneelfamily.blogspot.com/2008/03/birthday-month.html

CLICK HERE FOR THOUSANDS OF FREE BLOGGER TEMPLATES. Monday, March 17, 2008. March has been such a busy month for us. We have had so many birthday's this month including Addy's. She turned 3 on March 3rd. For her 1st party, we headed to Alexandria to celebrate with all her friends on March 1. It was a beautiful day and she had a great turn out at her party. We had it at the park behind Buelow Lake. She is too funny sometimes! Posted by Brent and Angela. March 17, 2008 at 7:02 PM. View my complete profile.

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The Neel Life: March 2008

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CLICK HERE FOR THOUSANDS OF FREE BLOGGER TEMPLATES. Tuesday, March 25, 2008. Happy Easter to everyone! What a wonderful time of year to celebrate the resurrection of our Lord and Savior, Jesus Christ! His resurrection symbolizes the eternal life that is granted to all who believe in Him! We had a good Easter this year. We did not celebrate with our family as we stayed down in Baton Rouge this year. With the gas prices rising and building our house, it just made since to stay put. Monday, March 17, 2008.

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The Neel Life: January 2009

http://baneelfamily.blogspot.com/2009_01_01_archive.html

CLICK HERE FOR THOUSANDS OF FREE BLOGGER TEMPLATES. Tuesday, January 20, 2009. My Little Miss Girly Girl. So this is how her 'make up putting on skills' turned out:. Of course, when it was time for her to put her clothes on I had to wipe all of it off. I could not let her go out of the house looking like that! She made sure to tell me 'mama, do not wipe my make up off'. So I told a big fib - 'Addy, let me wipe your nose'. She did not know that I managed to hit her whole face! I LOVE MY GIRLY GIRL! For th...

baneelfamily.blogspot.com baneelfamily.blogspot.com

The Neel Life: January 2008

http://baneelfamily.blogspot.com/2008_01_01_archive.html

CLICK HERE FOR THOUSANDS OF FREE BLOGGER TEMPLATES. Tuesday, January 8, 2008. Well another National Chamionship is under our belt! What a great game played last night. I was so worried about the 1st couple of minutes, but as the DJ said on the radio this morning "those first 10 points were just "welcome to Louisiana points"! Posted by Brent and Angela. Monday, January 7, 2008. Addy and I had nothing to do so we decided to go watch Brent and let Addy play in the wide open space! Posted by Brent and Angela.

thetaylorhjourney.blogspot.com thetaylorhjourney.blogspot.com

Taylor's Mission to Remission: January 2011

http://thetaylorhjourney.blogspot.com/2011_01_01_archive.html

Taylor's Mission to Remission. Taylor was diagnosed with a very rare auto-immune disease called. On Dec. 13th, 2009; while there is not a cure,. Remission is possible with early and aggressive treatment. This is Taylor's Mission to Remission. Sunday, January 2, 2011. Saying goodbye to Prednisolone! Tomorrow is the last day of oral steroids! She'll now be down to this:. Every morning she would sit down to that line up. I could see she was tired and I'd just say "honey. this is just for now, not fo...It's ...

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Taylor's Mission to Remission: The story we tell...

http://thetaylorhjourney.blogspot.com/2011/04/story-we-tell.html

Taylor's Mission to Remission. Taylor was diagnosed with a very rare auto-immune disease called. On Dec. 13th, 2009; while there is not a cure,. Remission is possible with early and aggressive treatment. This is Taylor's Mission to Remission. Wednesday, April 27, 2011. The story we tell. Easier said than done some days, absolutely, but when you have this crazy cute girl smiling and giggling back at you, it's pretty hard not to be humbled and have your attitude put in check. When you're going to have a ba...

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Taylor's Mission to Remission: Saying goodbye to Prednisolone!!!

http://thetaylorhjourney.blogspot.com/2011/01/saying-goodbye-to-prednisolone.html

Taylor's Mission to Remission. Taylor was diagnosed with a very rare auto-immune disease called. On Dec. 13th, 2009; while there is not a cure,. Remission is possible with early and aggressive treatment. This is Taylor's Mission to Remission. Sunday, January 2, 2011. Saying goodbye to Prednisolone! Tomorrow is the last day of oral steroids! She'll now be down to this:. Every morning she would sit down to that line up. I could see she was tired and I'd just say "honey. this is just for now, not fo...I sti...

thetaylorhjourney.blogspot.com thetaylorhjourney.blogspot.com

Taylor's Mission to Remission: May 2010

http://thetaylorhjourney.blogspot.com/2010_05_01_archive.html

Taylor's Mission to Remission. Taylor was diagnosed with a very rare auto-immune disease called. On Dec. 13th, 2009; while there is not a cure,. Remission is possible with early and aggressive treatment. This is Taylor's Mission to Remission. Tuesday, May 18, 2010. I just can’t boast enough about this little girl’s outlook! She’s just amazing! There was an anonymous donation left on the Firstgiving website for $100 – and to that person, I want to say thank you from the bottom of our hearts! I was so grat...

thetaylorhjourney.blogspot.com thetaylorhjourney.blogspot.com

Taylor's Mission to Remission: April 2010

http://thetaylorhjourney.blogspot.com/2010_04_01_archive.html

Taylor's Mission to Remission. Taylor was diagnosed with a very rare auto-immune disease called. On Dec. 13th, 2009; while there is not a cure,. Remission is possible with early and aggressive treatment. This is Taylor's Mission to Remission. Thursday, April 15, 2010. Again, the disclaimer is that blood levels are just the tip of the iceberg, but to me it reflects the momentum and direction Taylor is headed. Thursday, April 15, 2010. Subscribe to: Posts (Atom). Http:/ www.curejm.com. It's been too long!

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Madeline's JDM Story

Diary of daughter with Juvenile Dermatomyositis. Well, JDM entered into our life again! Friday, June 26, 2015. Well, JDM entered into our life again! Of course, we called our physician at Texas Children's and that is when the second blow occurred. He had retired! Friday, June 26, 2015. Subscribe to: Posts (Atom). New Years Eve 2007. Her rash on New Year Eve 2007. We were treating at this time as poison ivy. Madeline, January 2008. Madeline, January 2009. Our Sweet Baby Girl. View my complete profile.

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