marciabraden.com

myfragileboy.blogspot.com

My Journey Through Motherhood: February 2011

http://myfragileboy.blogspot.com/2011_02_01_archive.html

My Journey Through Motherhood. I have a 6 year old son who has been diagnosed with Fragile X Syndrome. This is a blog about the ups and downs after the diagnosis. "Some people come into our lives, leave footprints on our hearts, and we are never the same." -Franz Peter Schubert. Sunday, February 27, 2011. I can't seem to wake up today! I received so much great, useful information I couldn't believe it! One important thing she talked about was that Fragile X children learn best "indirectly". If I tell...

fxam.org

Resources

http://www.fxam.org/resources.html

We know how frustrating it is to not know where to go for help, or to get information, or to find support and services that are available. Below are some - certainly not all - links, information and contacts that may be able to direct you to the right places. Should you come across other items that you think would be beneficial to others, feel free to send that to us atsupport@fxam.org. Be sure to check back often as we add more and more to this page. National Fragile X Foundation. Your Genes Your Health.

sarajaneofalltrades.blogspot.com

Sara Jane of All Trades: February 2015

http://sarajaneofalltrades.blogspot.com/2015_02_01_archive.html

Sara Jane of All Trades. Thursday, February 5, 2015. As I rang in 2015, I made some promises to myself. NOT resolutions - promises. I promised myself that I would make healthy choices, take time to take care of ME, do more of what I loved, and challenge myself to be a better human being. There will be challenges and set backs. I actually gained a pound this week - BOO! But I will maintain my focus and keep the big picture in mind. I am so fortunate to have the support of my family and friends and cou...

frageelayx.blogspot.com

Fra-gee-lay X: Resources

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What is Fragile X? Your Genes Your Health:. Http:/ www.ygyh.org/. Http:/ www.fraxa.org/. The National Fragile X Foundation:. Http:/ www.fragilex.org/. Http:/ www.genetests.org/. A publicly funded medical genetics information resource developed for physicians, other healthcare providers, and researchers, available at no cost to all interested persons. Select “GeneReviews” do a search on FMR1 or FRAGILE X to pull up information on Fragile X. Http:/ www.fxtas.org/. Dr Marcia Braden (behavioral expert):.

sarajaneofalltrades.blogspot.com

Sara Jane of All Trades: Raising Awareness

http://sarajaneofalltrades.blogspot.com/2014/08/raising-awareness.html

Sara Jane of All Trades. Monday, August 25, 2014. The ALS Association www.alsa.org. ALS Therapy Development Network www.als.net. The purpose of the event is three-fold: to raise awareness about Fragile X and it's associated disorders, to raise funds so that our small, volunteer-run non-profit organization can continue to provide educational events and opportunities to local families affected by Fragile X Disorders, and to provide a fun-filled afternoon for our kids and families. August 25, 2014 at 1:02 PM.

sarajaneofalltrades.blogspot.com

Sara Jane of All Trades: February 2016

http://sarajaneofalltrades.blogspot.com/2016_02_01_archive.html

Sara Jane of All Trades. Sunday, February 7, 2016. Yoga to constitute the daily wearing of yoga pants. I knew I was uncomfortable in my own skin. I hated the way I looked in pictures. It was becoming increasingly difficult for me to keep up with our VERY active son. I was suffering from a host of health issues that I knew. Could be improved if I was making healthier lifestyle choices. I was ready. Again. For the LAST. My little pink book. So what is different this time? As for strategy and execution, tha...

sarajaneofalltrades.blogspot.com

Sara Jane of All Trades: About Me

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Sara Jane of All Trades. I love to craft, sew, scrapbook, make jewelry, perform, organize, collaborate, crochet…you name it, I dabble in it! I started this blog as equal parts advocacy/awareness and therapy. Enjoy! Subscribe to: Posts (Atom). View my complete profile. National Fragile X Foundation. Awesome Inc. theme. Theme images by latex.

sarajaneofalltrades.blogspot.com

Sara Jane of All Trades: June 2015

http://sarajaneofalltrades.blogspot.com/2015_06_01_archive.html

Sara Jane of All Trades. Friday, June 19, 2015. Babies and Prophetic Dreams. Strange. I knew I would be a great Mom and do everything in my power to be sure that my child had a positive life outcome but I knew in my heart that no matter what I did, his destiny had been - to a certain extent - pre-determined by powers greater than mine. Career is not one of them. Over the years I have felt more and more connected to this story and validated in my odd, youthful. I am content with my gifts.

sarajaneofalltrades.blogspot.com

Sara Jane of All Trades: August 2014

http://sarajaneofalltrades.blogspot.com/2014_08_01_archive.html

Sara Jane of All Trades. Monday, August 25, 2014. The ALS Association www.alsa.org. ALS Therapy Development Network www.als.net. The purpose of the event is three-fold: to raise awareness about Fragile X and it's associated disorders, to raise funds so that our small, volunteer-run non-profit organization can continue to provide educational events and opportunities to local families affected by Fragile X Disorders, and to provide a fun-filled afternoon for our kids and families. Thursday, August 21, 2014.