marfan.org.tw
馬凡之家關愛馬凡氏症，永遠陪伴您的馬凡之家。
http://marfan.org.tw/
關愛馬凡氏症，永遠陪伴您的馬凡之家。
http://marfan.org.tw/
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關愛馬凡氏症，永遠陪伴您的馬凡之家。
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200602.22-罕見 馬凡氏症 易患心血管疾病 大愛台語新聞. 200606.26-蜘蛛人症 身高194 只能看同學打球. 200710.14-罕病 得罕見馬凡氏症 一小五生近視2000度. 201312.01- 蜘蛛人 勇媽抗罕病 給兒做榜樣. 201411.24-罕病勇士周子涵 長長的傷口 化做尋找生命的出口. 幸福報報- 一個不能少 高人一等的街頭藝人 馬凡氏症張瓊玉.
馬凡之家
http://www.marfan.org.tw/home
最後更新日期 2015.1.7. 馬凡氏症病友聯誼會 2014 年會，特別邀請到台大醫院小兒心臟內科邱馨慧醫師，與病友與家屬們分享關於馬凡氏症以及常見的照顧問題，像是用藥、懷孕、手術 . 等。 或要申請加入病友分享行列 即在 病友分享 區張貼文章.
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香港馬凡氏綜合症協會
http://marfan.org.hk/link1.php
International Federation of Marfan Syndrome Organizations IFMSO. Http:/ www.marfanworld.org/. IFMSO 旨在為不同國家及地區之馬凡氏綜合症病人組織提供全球性的溝通平台，現有 22 個國家或地區之組織加入 IFMSO。 The National Marfan Foundation. 全國馬凡氏基金 ( 美國 ). Http:/ www.marfan.org/. The Canadian Marfan Association. Http:/ www.marfan.ca/. 由 Elizabeth McHenry 及其他病人與醫生於 1986 成立，除向向病人、家屬及醫護界準確發放最新馬凡氏綜合症訊息外，並致力加強公眾對此病之認識及警覺，鼓勵病人自組支持小組。 Http:/ www.marfan.org.uk. Stanford University Center for Marfan Syndrome and Related Connective Tissue Disorders.
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香港馬凡氏綜合症協會
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馬凡之家
衛教] 維繫生命的薄膜 心臟瓣膜疾病 懶人包. 馬凡氏症病友聯誼會 2014 年會，特別邀請到台大醫院小兒心臟內科邱馨慧醫師，與病友與家屬們分享關於馬凡氏症以及常見的照顧問題，像是用藥、懷孕、手術 . 等。 最後更新日期 2018.3.13.
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