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MCAD Deficiency (MCADD) - supplemental newborn screening could save your childs life.

Dedicated to raising awareness of the genetic disorder MCAD deficiency and the importance of early detection.

http://www.mcadangel.com/

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MCAD Deficiency (MCADD) - supplemental newborn screening could save your childs life. | mcadangel.com Reviews
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Dedicated to raising awareness of the genetic disorder MCAD deficiency and the importance of early detection.
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1 genetic disorder
2 MCAD
3 early detection
4 MCAD deficiency
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6 newborn screening
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9 coupons
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about mcad,angel alexis,heaven's child,precious alexis,christmas,in heaven,lexi's song,grandma's gift,a birthday,angel tears,madison,michelle,alex,kira,anna,david,samara,isaac,dylan and chase,gavin,alexis' mcadd story,mcad angel home,about alexis
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MCAD Deficiency (MCADD) - supplemental newborn screening could save your childs life. | mcadangel.com Reviews

https://mcadangel.com

Dedicated to raising awareness of the genetic disorder MCAD deficiency and the importance of early detection.

INTERNAL PAGES

mcadangel.com mcadangel.com
1

Christmas In Heaven - original Christmas poem by Kris Smith

http://www.mcadangel.com/christmas-in-heaven.html

MCADD = Medium Chain Acyl-CoA Dehydrogenase Deficiency. Written December 22, 2003 by Kris Smith. We've shared our hearts, full of Holiday Cheer. And shopped for presents for loved ones this year. The house is dressed up with garland and lights. That sparkle and shine through the Holiday nights. But even with all of this Holiday bliss. There's someone we lost that we terribly miss. And as this Christmas Day draws near. We wish with all of our hearts she was here. She's living her life way up past the stars.

2

David Cole's MCADD story

http://www.mcadangel.com/david-cole.html

MCADD = Medium Chain Acyl-CoA Dehydrogenase Deficiency. After what seemed like forever, I finally went into labor with my second child, my son David. During my delivery I had a temperature that worried the doctors. After breaking my water and seeing it was murky they were even more worried. I on the other hand was fine. After all, I had a very healthy little girl at home waiting for her new baby brother. What could go wrong? During the first 2 days he was given 2 bottles of formula to get his sugar level...

3

Gavin's MCADD story

http://www.mcadangel.com/gavin.html

MCADD = Medium Chain Acyl-CoA Dehydrogenase Deficiency. Gavin is a fraternal twin to Logan and was born at 34 weeks gestation on June 4, 2007. From the begining he has had many problems but alot of them were put off as prematurity related. He spent almost 3 weeks in the NICU with his twin for temperature instability, feeding problems and low blood sugar as well as low weight gain. Once he was home from the NICU we were told he was a very healthy baby however I argued with them about that. At the time of ...

4

Brothers Dylan and Chase share their MCAD story

http://www.mcadangel.com/brothers.html

MCADD = Medium Chain Acyl-CoA Dehydrogenase Deficiency. Chase and Dylan Morris. Dylan and Chase's MCAD Story. My husband and I were 22 when our first son was born and we were so excited. Dylan was born on June 13, 2000 and weighed in at 7lbs 4oz. He was a beautiful baby and seemed perfectly healthy. We were devestated, the whole family was. We were so scared, angry, we did not know how to feel. Ya know. why my baby? Dylan had an IQ test done at UNC Chapel Hill and they were very impressed with the result...

5

A Birthday In Heaven - poem by Kris Smith

http://www.mcadangel.com/birthday-in-heaven.html

MCADD = Medium Chain Acyl-CoA Dehydrogenase Deficiency. A Birthday In Heaven. 2005 Written by Kris Smith. I heard you crying yesterday. And felt your heart-sent love. So I’m sending you this message. Now, from Heaven up above. You’re wondering if I’ll celebrate. My birthday (way up here). I know you’re missing me today. I feel your essence near. God planned a special day for me. He told me with a wink. He’d ordered me a special cake. It’s Angel food, I think). I’m getting lots of hugs from God.

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mcadmom.wordpress.com mcadmom.wordpress.com

January | 2009 | Kinda Crunchy Mom

https://mcadmom.wordpress.com/2009/01

January 25, 2009. Filed under: Crunchy stuff. 8212; by mcadmom @ 10:08 pm. We’ve been baking bread. Here is the recipe we’ve been working on. You could change it up easily by using different sweetners (and yes, you have to use some but you could reduce by about a third) or flours. This recipe makes a wad of dough– beware! First, the sponge:. 3 cups warm water (warm from the tap is fine). 2 T active dry yeast (or 2 packets). 5 cups white bread flour. 3/4 cup of ground flax seeds. January 18, 2009. This Ch...

mcadmom.wordpress.com mcadmom.wordpress.com

November | 2008 | Kinda Crunchy Mom

https://mcadmom.wordpress.com/2008/11

November 11, 2008. Filed under: Mama notes. 8212; by mcadmom @ 12:54 pm. 8221;) and don’t want to even try it. I may not be too old to have a baby, but I am starting to feel weary of the constant hope that I may be pregnant followed by the realization that I am not. And I do not want my mid-life to be characterized by the desire for a larger family and the devastation at not having one. The Smart Way to Watch TV. The best gift ever. Great article from a fun blog! Nonviolent parenting site, great resource.

mcadmom.wordpress.com mcadmom.wordpress.com

The best gift ever | Kinda Crunchy Mom

https://mcadmom.wordpress.com/2009/01/18/the-best-gift-ever

January 18, 2009. The best gift ever. 8212; by mcadmom @ 1:28 pm. This Christmas was hard–just plain hard, and I haven’t been able to stop and write about any of it until now. We did a great job of leading up to the holiday–the tree was up, the house decorated, Livvy and I even made cookies. But then in the days leading up to the BIG DAY I kind of lost out on the whole thing. 8220;Well, you can have that one, then mom. You can have that ‘magination I have lots.”. Leave a Comment ». Enter your comment here.

mcadmom.wordpress.com mcadmom.wordpress.com

Wow, that’s insightful | Kinda Crunchy Mom

https://mcadmom.wordpress.com/2008/09/24/wow-thats-insightful

September 24, 2008. Wow, that’s insightful. 8212; by mcadmom @ 10:57 pm. Every channel was jammed up tonight with Bush’s speech. Did you know that our “entire economy is in danger”? And I found out today that grass is green too–what a day. Long to see this coming? It’s like an economic Katrina–the rest of us have known for a long time that the roof was caving in, but somehow our government doesn’t get that channel. I get it, and we don’t even have satellite. 1 Comment ». 8212; November 13, 2008 @ 7:35 pm.

mcadmom.wordpress.com mcadmom.wordpress.com

A letter to my daughter at 15 | Kinda Crunchy Mom

https://mcadmom.wordpress.com/2008/09/22/a-letter-to-my-daughter-at-15

September 22, 2008. A letter to my daughter at 15. 8212; by mcadmom @ 12:01 am. Now at fifteen, I know that to you I am impossibly irritating. But my wonder at you has never, and will never cease. 1 Comment ». 8212; September 23, 2008 @ 1:00 am. Feed for comments on this post. Leave a Reply Cancel reply. Enter your comment here. Please log in using one of these methods to post your comment:. Address never made public). You are commenting using your WordPress.com account. ( Log Out. The best gift ever.

mcadmom.wordpress.com mcadmom.wordpress.com

October | 2008 | Kinda Crunchy Mom

https://mcadmom.wordpress.com/2008/10

October 27, 2008. 8212; by mcadmom @ 12:59 pm. Because I am so paranoid I did not post that we were headed off to Florida–I promise I have not yet abandoned this blog! My brother-in-law was getting married and we decided to make a long trip out of the occasion. I have many things to write but they are clogged up together in a jumble right now and all I can think of are small snippets of things. I will share more, but right now I am left with:. The way my hair smelled after days of saltwater.

mcadmom.wordpress.com mcadmom.wordpress.com

Kneediness | Kinda Crunchy Mom

https://mcadmom.wordpress.com/2009/01/25/kneediness

January 25, 2009. Filed under: Crunchy stuff. 8212; by mcadmom @ 10:08 pm. We’ve been baking bread. Here is the recipe we’ve been working on. You could change it up easily by using different sweetners (and yes, you have to use some but you could reduce by about a third) or flours. This recipe makes a wad of dough– beware! First, the sponge:. 3 cups warm water (warm from the tap is fine). 2 T active dry yeast (or 2 packets). 5 cups white bread flour. 3/4 cup of ground flax seeds. 2 Comments ». 8212; Janua...

mcadmom.wordpress.com mcadmom.wordpress.com

Back from paradise | Kinda Crunchy Mom

https://mcadmom.wordpress.com/2008/10/27/back-from-paradise

October 27, 2008. 8212; by mcadmom @ 12:59 pm. Because I am so paranoid I did not post that we were headed off to Florida–I promise I have not yet abandoned this blog! My brother-in-law was getting married and we decided to make a long trip out of the occasion. I have many things to write but they are clogged up together in a jumble right now and all I can think of are small snippets of things. I will share more, but right now I am left with:. The way my hair smelled after days of saltwater. You are comm...

mcadmom.wordpress.com mcadmom.wordpress.com

I grow softly | Kinda Crunchy Mom

https://mcadmom.wordpress.com/2009/05/17/i-grow-softly

May 17, 2009. Filed under: Mama notes. 8212; by mcadmom @ 6:11 pm. Livvy and Bitty, the day before the kittens were born. Every year I wait for the day when the leaves pop open, and every year I miss it. I know when it’s coming because I can see the tiny buds up high on the poplars. I vow to look every day for the magic morning when everything bursts alive and this year I missed it again. 1 Comment ». This post was so beautiful I just cried! 8212; July 28, 2009 @ 5:16 pm. Feed for comments on this post.

mcadmom.wordpress.com mcadmom.wordpress.com

Expiration dates | Kinda Crunchy Mom

https://mcadmom.wordpress.com/2008/11/11/expiration-dates

November 11, 2008. Filed under: Mama notes. 8212; by mcadmom @ 12:54 pm. 8221;) and don’t want to even try it. I may not be too old to have a baby, but I am starting to feel weary of the constant hope that I may be pregnant followed by the realization that I am not. And I do not want my mid-life to be characterized by the desire for a larger family and the devastation at not having one. 2 Comments ». With God nothing is impossible🙂. 8212; November 13, 2008 @ 7:34 pm. 8212; November 16, 2008 @ 4:15 pm.

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MCAD Deficiency (MCADD) - supplemental newborn screening could save your childs life.

MCADD = Medium Chain Acyl-CoA Dehydrogenase Deficiency. This web site is dedicated to the memory of. February 5, 1995 March 9, 2003. Alexis had just turned 8 years old when a silent and deadly killer called MCADD swiftly took her life. Her "Birthday Girl" ribbon still hung on her bedroom door. She had a 5 month-old baby sister that she had been wishing for ever since she learned what a baby sister was. She didn't move. She didn't talk. She didn't cry. She didn't wake up. She was put on dialysis early Sun...

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