miagracesheartjourney.blogspot.com

Mia Grace Marrone's Heart Journey

HLHS Video Series (CHOP). Every Heart Parent Needs One. Every Heart Parent Needs One. 2nd Annual Heart Hero Hustle. Love Two Little Bugs. Monday, April 18, 2011. Every Heart Parent Needs One. Mia Marrone Heart Charm. Mia grace Marrone was born on April 25, 2010 with HLHS. Sadly Mia passed away on July 25th, 2010. Although her time on the earth was cut way to short Mia continues to inspire hope and create awareness. Print an order form here. If you do not have a Facebook account. Mia Marrone Heart Charm.

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Mia Grace Marrone's Heart Journey | miagracesheartjourney.blogspot.com Reviews

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HLHS Video Series (CHOP). Every Heart Parent Needs One. Every Heart Parent Needs One. 2nd Annual Heart Hero Hustle. Love Two Little Bugs. Monday, April 18, 2011. Every Heart Parent Needs One. Mia Marrone Heart Charm. Mia grace Marrone was born on April 25, 2010 with HLHS. Sadly Mia passed away on July 25th, 2010. Although her time on the earth was cut way to short Mia continues to inspire hope and create awareness. Print an order form here. If you do not have a Facebook account. Mia Marrone Heart Charm.

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1 what is hlhs

2 chop cardiac center

3 hlhs parent information

4 owen's heart

5 spring break

6 1 week ago

7 julianne's heart

8 1 year ago

9 grace's heart

10 brief updates

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what is hlhs,chop cardiac center,hlhs parent information,owen's heart,spring break,1 week ago,julianne's heart,1 year ago,grace's heart,brief updates,5 years ago,pink heart,blue heart,posted by,the marrone family,3 comments,no comments,will,1 comment

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Mia Grace Marrone's Heart Journey | miagracesheartjourney.blogspot.com Reviews

https://miagracesheartjourney.blogspot.com

HLHS Video Series (CHOP). Every Heart Parent Needs One. Every Heart Parent Needs One. 2nd Annual Heart Hero Hustle. Love Two Little Bugs. Monday, April 18, 2011. Every Heart Parent Needs One. Mia Marrone Heart Charm. Mia grace Marrone was born on April 25, 2010 with HLHS. Sadly Mia passed away on July 25th, 2010. Although her time on the earth was cut way to short Mia continues to inspire hope and create awareness. Print an order form here. If you do not have a Facebook account. Mia Marrone Heart Charm.

INTERNAL PAGES

miagracesheartjourney.blogspot.com

1

Mia Grace Marrone's Heart Journey: August 2010

http://miagracesheartjourney.blogspot.com/2010_08_01_archive.html

HLHS Video Series (CHOP). A Million Things To Say.Everyone wants to know. Not Sure What That Was. Love Two Little Bugs. Tuesday, August 10, 2010. A Million Things To Say.Everyone wants to know.Miss you Little Lady. You should be thankful you have Madden", okay well she was my child too. "Luckily she was a baby and you did not have to bury your five year old", okay but that still does not make it easy. So in darkness there is light and it makes me happy that I was even able to have her for 87 days. I ...

2

Mia Grace Marrone's Heart Journey: Give Back and Light the Way

http://miagracesheartjourney.blogspot.com/2011/01/give-back-and-light-way.html

HLHS Video Series (CHOP). An Arranged Friendship by Stacey Lihn. Give Back and Light the Way. Not Sure What That Was. Love Two Little Bugs. Sunday, January 2, 2011. Give Back and Light the Way. I, along with nine fellow heart moms, would like to reshape the outlook for HLHS infants and children. Over the last few months, we formed Sisters by heart. We hold Sisters by heart. Or to learn more about our mission, please visit our blog at www.heartsisters.blogspot.com. From our hearts to yours,. I agree. ...

3

Mia Grace Marrone's Heart Journey: March 2010

http://miagracesheartjourney.blogspot.com/2010_03_01_archive.html

HLHS Video Series (CHOP). I know I am slacking, yet I promise to be better! Not Sure What That Was. Love Two Little Bugs. Wednesday, March 24, 2010. I know I am slacking, yet I promise to be better! Wow do I even need to explain? So we arrived early this time in Philadelphia but still I have had no time to see the city. I recorded Man vs. Food Philadelphia to see what we needed to eat and see.lol! There is only a 4% difference between Mia and Madden. Go Mia! Subscribe to: Posts (Atom).

4

Mia Grace Marrone's Heart Journey: January 2011

http://miagracesheartjourney.blogspot.com/2011_01_01_archive.html

HLHS Video Series (CHOP). An Arranged Friendship by Stacey Lihn. Give Back and Light the Way. Not Sure What That Was. Love Two Little Bugs. Friday, January 7, 2011. An Arranged Friendship by Stacey Lihn. Most of you have heard of an arranged marriage, but Zoe was in for an arranged friendship. Fair? Perhaps not. But don't "moms know best? After Zoe's surgery and discharge, Jenn and I communicated often (via email, texts, phone, you-name-it.) Heart mommy support knows no boundaries! On July 25, 2010, Zoe ...

5

Mia Grace Marrone's Heart Journey: Every Heart Parent Needs One

http://miagracesheartjourney.blogspot.com/2011/04/every-heart-parent-needs-one_18.html

HLHS Video Series (CHOP). Every Heart Parent Needs One. Every Heart Parent Needs One. Not Sure What That Was. Love Two Little Bugs. Monday, April 18, 2011. Every Heart Parent Needs One. Mia Marrone Heart Charm. Mia grace Marrone was born on April 25, 2010 with HLHS. Sadly Mia passed away on July 25th, 2010. Although her time on the earth was cut way to short Mia continues to inspire hope and create awareness. Print an order form here. Or by emailing a request to HLHS.HeartHugsForMia@yahoo.com. It is a gr...

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calebsheartstory.blogspot.com

Caleb's Heart Story: Tiresome Tears

http://calebsheartstory.blogspot.com/2011/05/tiresome-tears.html

TuneList - Make your site Live. Saturday, May 21, 2011. I know that as I continue to mourn, it will hit me with no warning. It's been that way for awhile. I miss you my little chunky boocious. :). May 21, 2011 at 2:57 PM. I remember thinking that Id run out of tears I cried so much. Im so sorry. Im sending you love today. xo. The Real Life of a Red Head. May 21, 2011 at 3:28 PM. May 23, 2011 at 10:57 AM. Thinking of you today and sending you strength. Subscribe to: Post Comments (Atom). Heart defects are...

calebsheartstory.blogspot.com

Caleb's Heart Story: Mother's Day 2011

http://calebsheartstory.blogspot.com/2011/05/mothers-day-2011.html

TuneList - Make your site Live. Sunday, May 8, 2011. Today was actually a good day. Caleb was on my mind a lot, wishing that he was here with us. But Kailey and Kyle really made it special, and reminded me how blessed I really am. And feeling this little one moving around has helped as the days pass by. These flowers are beautiful, and Kailey was so good at keeping them a secret! What would things with Caleb be like? Would he be 7 and 1/2 months, or would we have lost him along the way? A life so brief, ...

jacobsspecialheart.blogspot.com

Jacob's Journey: August 2013

http://jacobsspecialheart.blogspot.com/2013_08_01_archive.html

Thursday, August 15, 2013. Home and LOVING IT! THANK YOU FOR ALL OF THE PRAYERS! As you can see, they worked. I am sorry I have not updated the blog since we have been home but we have been busy. Jake is doing AMAZING. He is pretty much back to normal. Happy, playing and pretty much pushing every limit and restriction he was sent home on lol. As soon as we got home I set up my command center. Anyone who knows me also knows that I do better when I am in control (I am a serious control freak). Diuril is no...

jacobsspecialheart.blogspot.com

Jacob's Journey: October 2014

http://jacobsspecialheart.blogspot.com/2014_10_01_archive.html

Tuesday, October 28, 2014. Wow, I can't believe how long it has been since I have updated Jake's blog. I haven't written in over a year! I apologize for the lack of updates, so much has happened over the last year. One big and exciting event was Jacob's Make-a-Wish trip! The last time I blogged Jake had just come home from having his Fontan (Last open heart surgery). I am happy to report that heart wise he has been doing great! Getting his EKG, such a big boy now. 1st day of Pre-K. I am not denying he is...

jacobsspecialheart.blogspot.com

Jacob's Journey: October 2012

http://jacobsspecialheart.blogspot.com/2012_10_01_archive.html

Tuesday, October 23, 2012. Hitting the Odds (again): The Factor Five Leiden Gene. When we left off I was talking about our trip to Cincinnati. Well we have actually been there again since then but I will get to that in a minute. To finish the blog post I started TWO months ago, the second day Jake had a ultrasound of his clot (Which he screamed through). Fast forward 3 weeks which also happened to be 3 weeks ago (told you I am behind on updating). Jacob has 1 Factor Five Leiden gene. My little man didn't...

jacobsspecialheart.blogspot.com

Jacob's Journey: Long overdue update...

http://jacobsspecialheart.blogspot.com/2014/10/long-overdue-update.html

Tuesday, October 28, 2014. Wow, I can't believe how long it has been since I have updated Jake's blog. I haven't written in over a year! I apologize for the lack of updates, so much has happened over the last year. One big and exciting event was Jacob's Make-a-Wish trip! The last time I blogged Jake had just come home from having his Fontan (Last open heart surgery). I am happy to report that heart wise he has been doing great! Getting his EKG, such a big boy now. 1st day of Pre-K. I am not denying he is...

jacobsspecialheart.blogspot.com

Jacob's Journey: July 2013

http://jacobsspecialheart.blogspot.com/2013_07_01_archive.html

Wednesday, July 31, 2013. She left and we went on with our day. Since they wake Jake up like that he starts out the day trusting no one. He tells anyone who steps foot in our room "Bye-Bye. See you later". He is afraid of everyone. It is pretty sad, but he is so sweet about it. Next the fellow came in. He told me the X-ray looked a lot worse (My heart sank). Think there is enough stuff in his bed lol? Lol Wait. WHAT? Within 10 minutes he started vomiting. FINALLY AN ANSWER TO HIS VOMITING. Jake ate like ...

jacobsspecialheart.blogspot.com

Jacob's Journey: New Year... New Updates!

http://jacobsspecialheart.blogspot.com/2015/01/new-year-new-updates.html

Saturday, January 17, 2015. New Year. New Updates! I hope everyone had a great holiday season. The boys had a wonderful Christmas and got spoiled by Santa. Their elf (Ralphie). Came back to stay with us again and Jake LOVE it. Jake really got into the holiday spirit this year. He especially loved all of the decorations. It was so cute seeing how excited he was over Christmas. So that is great news as well. Dr Stines (Jake's local cardio). And purple fingernails are all the rage now, haven't you heard?

calebsheartstory.blogspot.com

Caleb's Heart Story: 8 Months Ago

http://calebsheartstory.blogspot.com/2011/05/8-months-ago.html

TuneList - Make your site Live. Friday, May 27, 2011. I planted flowers for Caleb, red and white petunias. Still on the lookout for an angel figurine. There is a stepping stone, that says Love with all your heart, and another saying Bless this Garden. May 27, 2011 at 4:08 PM. I know that fog that you speak of all too well and it seems like it has come on so much more heavy in these 8 and 9 month anniversaries. maybe more of the shock is still wearing off? July 5, 2011 at 8:12 PM. What is a congenital hea...

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Sunday, April 25, 2010. For the last couple weeks I've been working on the family blog! I love the software and am excited for this new beginning. Here's the link. www.preciousparkers.com. Posted by Jayme Parker. Friday, April 16, 2010. I feel like I should share the story behind these pictures. The first time I saw Baby as Art. And saw cherry tree blossoms half off. I knew. Places, their head is hidden.I could go on and on. Posted by Jayme Parker. Picture taken by brianna saban. April 5th- 6months 1week.

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Mia Grace Marrone's Heart Journey

HLHS Video Series (CHOP). Every Heart Parent Needs One. Every Heart Parent Needs One. 2nd Annual Heart Hero Hustle. Love Two Little Bugs. Monday, April 18, 2011. Every Heart Parent Needs One. Mia Marrone Heart Charm. Mia grace Marrone was born on April 25, 2010 with HLHS. Sadly Mia passed away on July 25th, 2010. Although her time on the earth was cut way to short Mia continues to inspire hope and create awareness. Print an order form here. If you do not have a Facebook account. Mia Marrone Heart Charm.

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