samsmom-heathers.blogspot.com
Samantha's Mom- Life with love, and loss and me: Mitochondrial Information and Support
http://samsmom-heathers.blogspot.com/p/mitochondrial-information-and-support.html
Samantha's Mom- Life with love, and loss and me. Grief does not change you Hazel. It reveals you." John Green, The Fault in our Stars. Mitochondrial Information and Support. We are thrilled to support mitochondrial research and support through Miracles for Mito. A non-profit founded from Samantha's Memorial fund. If you need support through this disease, please feel free to contact us at Miracles for Mito. Or at heather.schichtel@gmail.com. No one should walk this journey alone. Subscribe to: Posts (Atom).
ourexceptionallife.blogspot.com
Our Exceptional Life: May 2014
http://ourexceptionallife.blogspot.com/2014_05_01_archive.html
And Then There Were Five. Pay It Forward with us. Saturday, May 10, 2014. Selfies with John Green…Yeah, That Happened. And fist bumps (complete with teaching Mr. Green the jelly fish add on). And hugs. And autographs. And …getting the chance to tell someone that their creation has touched you deeply. Yeah…that all really did happen tonight! Earlier tonight, I posted the following on FB:. 8220; The Fault in Our Stars author and actors meet and greet.there is an amazing, wonderful story to tell for why.
ourexceptionallife.blogspot.com
Our Exceptional Life: Kids Medical History
http://ourexceptionallife.blogspot.com/p/kids-medical_21.html
And Then There Were Five. Pay It Forward with us. It just means their severity took a bigger leap than one would expect based on the rest of this wacky family. But then, Mito has never been, and never will be predictable, so saying ANYTHING is unexpected with mito is silly. The reality is, we don’t know, might never know, and when all is said and done, it’s completely unimportant. So there! Mitochondrial Disease – mtDNA Mutations on Complex I and IV. Central Auditory Processing Disorder. Hypoventilation ...
ourexceptionallife.blogspot.com
Our Exceptional Life: New “Normals”
http://ourexceptionallife.blogspot.com/2011/09/new-normals.html
And Then There Were Five. Pay It Forward with us. Tuesday, September 27, 2011. New “Normals”. It occurred to me yesterday when we went to the dentist office for the girls to get their teeth cleaned, that while we have adjusted and accepted some new “normals” here at home….have adjusted to the looks when we are out in public….for those that love us, some forewarning of these “new normals” is in order. A few weeks back, Madison’s nausea returned with a vengeance. I’ve suspected for some time, based o...
ourexceptionallife.blogspot.com
Our Exceptional Life: Selfies with John Green…Yeah, That Happened
http://ourexceptionallife.blogspot.com/2014/05/selfies-with-john-greenyeah-that.html
And Then There Were Five. Pay It Forward with us. Saturday, May 10, 2014. Selfies with John Green…Yeah, That Happened. And fist bumps (complete with teaching Mr. Green the jelly fish add on). And hugs. And autographs. And …getting the chance to tell someone that their creation has touched you deeply. Yeah…that all really did happen tonight! Earlier tonight, I posted the following on FB:. 8220; The Fault in Our Stars author and actors meet and greet.there is an amazing, wonderful story to tell for why.
ourexceptionallife.blogspot.com
Our Exceptional Life: 26 Days in ICU
http://ourexceptionallife.blogspot.com/2012/06/26-days-in-icu.html
And Then There Were Five. Pay It Forward with us. Sunday, June 10, 2012. 26 Days in ICU. Michael and Abby-Urban Assault Ride-Austin, Texas. In all honesty, my brain cannot wrap itself around it being our 26. Off on a bike/camping adventure. What I know, without question, is that we will all be okay. We will find a way to accept our “new normals” and we will continue to truly LIVE as we have for so many years before this. A few links to some awesome articles and blog posts about Michael. And this one incl...
ourexceptionallife.blogspot.com
Our Exceptional Life: July 2014
http://ourexceptionallife.blogspot.com/2014_07_01_archive.html
And Then There Were Five. Pay It Forward with us. Thursday, July 10, 2014. Blessed and Grateful: Superstars and Camp. We have some exciting, awesome news to share! My boy (whom I really can no longer call a boy) has been. Nominated to be honored in a very special way! A few weeks ago I got a call from our Palliative Care Social Worker to share that they. Would like to nominate Chance to be a part of “ The Night of Superstars. 8221; in our area! His time with the Youth Advisory Council there at Cook Child...
mitoaction.org
About Mitochondrial Disease - Mito FAQ | Mitochondrial Disease Action Committee - MitoAction
http://www.mitoaction.org/mito-faq
Skip to main content. Stay Up to Date! Like us on Facebook. For the latest news and announcements. How Energy is Made. Aging, Disease and Mitochondria. Clinical Trials and Studies. Transitioning and Coordinating Care. Tips/Tools for Living with Mito. Energy 4 Education VIDEO. Birth to 3 years. High School and Beyond. Sample IEP and Letters. Special Needs and Disability Law. Appeals for Compounded Meds. Munchausen and Medical Child Abuse. MA Mito Cocktail Mandate. Cut the Red Tape. Capes 4 Cal 5K. What ar...
ourexceptionallife.blogspot.com
Our Exceptional Life: Blessed & Grateful: Superstars & Camp
http://ourexceptionallife.blogspot.com/2014/07/blessed-grateful-superstars-camp.html
And Then There Were Five. Pay It Forward with us. Thursday, July 10, 2014. Blessed and Grateful: Superstars and Camp. We have some exciting, awesome news to share! My boy (whom I really can no longer call a boy) has been. Nominated to be honored in a very special way! A few weeks ago I got a call from our Palliative Care Social Worker to share that they. Would like to nominate Chance to be a part of “ The Night of Superstars. 8221; in our area! His time with the Youth Advisory Council there at Cook Child...
ourexceptionallife.blogspot.com
Our Exceptional Life: Contact
http://ourexceptionallife.blogspot.com/p/email.html
And Then There Were Five. Pay It Forward with us. Always happy to hear from others. Feel free to email me at kass@swbell.net. Subscribe to: Posts (Atom). View my complete profile. Past Caring Bridge Pages. Learn More About Mitochondrial Disease. The Mitochondrial Medicine Society. Foundation for Mitochondrial Medicine: FireFlyer Blog. United Mitochondrial Disease Foundation. Waiting for Jack after practice…. Life, Love and Laundry. Happy Birthday, Alex! Hangin’ In There. Life with the Ferrells. My Crazy ...
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