Welcome to Maroteaux-Lamy.com, your complete online resource promoting awareness and diagnosis of Maroteaux-Lamy syndrome (MPS VI), to advance optimal management of this rare disease and improve the lives of the people who are touched by it.
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Maroteaux-Lamy.com, complete online resource for MPS VI | mpsvi.com Reviews
https://mpsvi.com
Welcome to Maroteaux-Lamy.com, your complete online resource promoting awareness and diagnosis of Maroteaux-Lamy syndrome (MPS VI), to advance optimal management of this rare disease and improve the lives of the people who are touched by it.
"More" Adventures: Meet Terry
http://thelifeofmore.blogspot.com/2012/07/meet-terry.html
2012 London Hospital metabolic newsletter featuring Jasper. Link to CHCH news clip (Oct 2011). Link to radio interview (August 2011). Thursday, 19 July 2012. Hi Everyone. Please click the link below and read a story written about Jasper's friend Terry and the great work/effort he's put in so far toward making our life easier and better particularily while we're at the hospital, but it has an impact even when we're not. Jasper loves Terry and I dare say the feeling is mutual! View my complete profile.
ourtreystreasures.blogspot.com
Trey's Treasures: Time Flies
http://ourtreystreasures.blogspot.com/2012/02/time-flies.html
Saturday, February 25, 2012. WOW…just when I thought I’d given myself a breather and pretty much caught up on postings for a while, time flew by and it’s already the end of February…making me way over due on updating Trey’s blog. This coming Thursday will be 20 weeks …5 months already that we have been flying back and forth to Oakland on a weekly basis…time sure has flown! Goofing around adding Brocs hair and mine to Trey for some pretty funny pictures! Well for whatever reason, last weeks’ accompl...
ourtreystreasures.blogspot.com
Trey's Treasures: Christmas Card 2011
http://ourtreystreasures.blogspot.com/2011/12/christmas-card-2011.html
Wednesday, December 21, 2011. Thank you my sweet friend Ashley for helping me get over the guilt of not sending out Christmas cards this year by explaining that by doing Trey's blog, our friends and family get to see pictures of the kids throughout the year and that people would understand. I did make a few cards so that I could stick them in the boys' scrapbooks so that when they grow up they will never really know which year I missed, ha-ha! What did we do right that day to get Broc to smile so big!
ourtreystreasures.blogspot.com
Trey's Treasures: Lovin' another nurse
http://ourtreystreasures.blogspot.com/2012/01/lovin-another-nurse.html
Wednesday, January 11, 2012. December 29, 2011. Devora was Trey's infusion nurse today and boy o'boy did she have his number within a moments time. Another nurse that we love here in Oakland and are so appreciative of! Devora was spot on with Trey when she came back from the toy box with a bear.a green soccer bear none the less! Trey loves his new bear, "kicks" almost as much a Miss Devora :o). Subscribe to: Post Comments (Atom). View my complete profile. 8220;T” is for Trey. WHAT IS MPS IVA? Other sympt...
ourtreystreasures.blogspot.com
Trey's Treasures: Little Elf
http://ourtreystreasures.blogspot.com/2011/12/little-elf.html
Wednesday, December 21, 2011. I just had to post this.Trey's teacher is so creative and out did herself once again with these little elf's.Trey's classmates. She hung them in the hallway outside their class for all to enjoy.enjoy I sure did! Thank you Mrs. Nelson for not only being an AMAZING teacher but also a super creative one too! Subscribe to: Post Comments (Atom). View my complete profile. 8220;T” is for Trey. Look what Trey found amongst his French fries at lunch the other day. WHAT IS MPS IVA?
ourtreystreasures.blogspot.com
Trey's Treasures: Emotional Day
http://ourtreystreasures.blogspot.com/2014/10/emotional-day.html
Wednesday, October 15, 2014. October 15, 2014. In October 1988, President Ronald Reagan Proclaimed October as National Pregnancy and Infant Loss Awareness Month. There have been numerous days since Treys birth that I have felt extremely blessed to have him in my life but I'd have to say that today ranks right up there at the top. Gia holding Trey just weeks before Sable would be born. I can't begin to count how many times I have felt the "elephant in the room", the "target on my back", the looks, the sta...
ourtreystreasures.blogspot.com
Trey's Treasures: Jingle Jog
http://ourtreystreasures.blogspot.com/2011/12/jingle-jog.html
Wednesday, December 21, 2011. December 21, 2011. Thank you Drake, Thank you Haley Elementary Student Council, staff and students for making Trey beneficiary of this "healthy" event and fun day! Trey enjoyed stretching before the jog, posing for a class picture and during the jog he was in his stroller as his classmates gave him "knuckles" and high- fives when they jogged by him. Trey also had a lot of fun cheering on his friend at the finish line as they completed the race. View my complete profile.
ourtreystreasures.blogspot.com
Trey's Treasures: Me and My Uncle B
http://ourtreystreasures.blogspot.com/2011/12/me-and-my-uncle-b.html
Wednesday, December 21, 2011. Me and My Uncle B. Aunt Cathy and Uncle Brian got to spend a rare one-on-one day and night with their little Treybo last week. Trey was in his glory, spoiled rotten and feeling like a big guy for getting to have a sleep over without his brothers! I can't remember all the cool stuff Uncle B (and Auntie C - she never, ever gets the credit) sent home with Trey the next morning but I just had to get a picture of the two of them dressed alike! Subscribe to: Post Comments (Atom).
ourtreystreasures.blogspot.com
Trey's Treasures: October 2014
http://ourtreystreasures.blogspot.com/2014_10_01_archive.html
Wednesday, October 15, 2014. October 15, 2014. In October 1988, President Ronald Reagan Proclaimed October as National Pregnancy and Infant Loss Awareness Month. There have been numerous days since Treys birth that I have felt extremely blessed to have him in my life but I'd have to say that today ranks right up there at the top. Gia holding Trey just weeks before Sable would be born. I can't begin to count how many times I have felt the "elephant in the room", the "target on my back", the looks, the sta...
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MP Svenska AB | På land och till havs
På land och till havs. MP Svenska är en livsmedelsgrossist med dagliga leveranser till rederier på Östersjön. Ett nära samarbete med våra kunder är en förutsättning för en framgångsrik relation för bägge parter. Vi ser hellre våra kunder som kollegor än just kunder. Vi har ett brett sortiment men vi lägger vårat fokus ”mitt på tallriken”. Mat prioriteras före salladsskålar och servetter helt enkelt. Mer om vårt sortiment hittar du här. Vi ingår i Wiklöf holding-koncernen. Grönsaker, frukt och bär.
MPS Verniciatura S.r.l.
MPS Verniciatura S.r.l. Verniciatura uv in c/terzi di mobili. Via Martiri di Via Fani, 27. Tel 0722 726135 FAX 0722 700960.
MPS Verniciatura S.r.l.
MPS Verniciatura S.r.l. Verniciatura uv in c/terzi di mobili. Via Martiri di Via Fani, 27. Tel 0722 726135 FAX 0722 700960.
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Mucopolisacaridosis tipo VI
Este blog esta creado con la intención de colaborar en la difusión de esta enfermedad que cuenta con poca información. Nuestro fin es ayudar a pacientes y familiares. Esperamos cumplir con las expectativas y recibiremos con los brazos abiertos toda la información que puedan aportar. Sábado, 17 de noviembre de 2012. MPS VI – Una enfermedad hereditaria poco común. Algunas personas con signos de MPS VI tienen una demostración de síntomas tempranos y claros. A pesar de que los síntomas no son claros inicialm...
Maroteaux-Lamy.com, complete online resource for MPS VI
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MPSVI Community
Living With MPS VI. The MPS VI Community is now on Facebook! Make friends, share your ideas, plans and hopes on how to live with MPS VI. To join the "Living with MPS VI" group on Facebook.
mpsvideoproductions.blogspot.com
MPS Productions
Freelance Artist¦Designer¦Producer. Saturday, 12 November 2011. Screen shot from the new Sonic Soul music video - Shine Like Stars. Wednesday, 9 November 2011. Artwork by chris searle, FOX-HOUND. Tuesday, 8 November 2011. Alice in Wonderland, concept art. ongoing . Monday, 7 November 2011. Photo by Mike B. Subscribe to: Posts (Atom). View my complete profile. Screen shot from the new Sonic Soul music video - . Artwork by chris searle, FOX-HOUND. Alice in Wonderland, concept art. ongoing . Photo by Mike B.
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Novinky
Novinky v našom sortimente. Ponukový leták LED reflektorov a LED žiaroviek firmy KANLUX. Novinky - Apríl 2011 SK - na stiahnutie. Záhradné svietidlá SK - 2011 - na stiahnutie. Katalóg výrobkov - novinky - november 2010 - na stiahnutie. Wwwmpsvietidla.sk - 2010 - Všetky práva vyhradené, prevádzkovateľ : MP svietidlá s.r.o. webmail.
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