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Monday, 9 February 2015. A Room With My View. I have been room bound, more or less, for the last 18 months (anyone tilting their head to one side, pulling a sad face and sighing need to stand next to a wall and bang their heads against it for a few minutes.). I saw you this morning/you are moving so fast/can't seem to loosen my grip/on the past" sings Leonard Cohen in his sublime, "In My Secret Life" and that just about sums my memory up perfectly. I'm working on it and constantly check in with my carers...

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Monday, 9 February 2015. A Room With My View. I have been room bound, more or less, for the last 18 months (anyone tilting their head to one side, pulling a sad face and sighing need to stand next to a wall and bang their heads against it for a few minutes.). I saw you this morning/you are moving so fast/can't seem to loosen my grip/on the past sings Leonard Cohen in his sublime, In My Secret Life and that just about sums my memory up perfectly. I'm working on it and constantly check in with my carers...

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10 rude awakenings

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Stuff | mrjimsweeney.blogspot.com Reviews

https://mrjimsweeney.blogspot.com

Monday, 9 February 2015. A Room With My View. I have been room bound, more or less, for the last 18 months (anyone tilting their head to one side, pulling a sad face and sighing need to stand next to a wall and bang their heads against it for a few minutes.). I saw you this morning/you are moving so fast/can't seem to loosen my grip/on the past" sings Leonard Cohen in his sublime, "In My Secret Life" and that just about sums my memory up perfectly. I'm working on it and constantly check in with my carers...

INTERNAL PAGES

mrjimsweeney.blogspot.com

1

Stuff: Rude Awakenings

http://www.mrjimsweeney.blogspot.com/2015/01/rude-awakenings_30.html

Friday, 30 January 2015. Iresia, my Sri Lankan carer, arrives first and tells me that Josephine, my other carer, will be running late. Minor disruption to the regular routine but nothing too troublesome. Until. Iresia arrives at the side of the bed to disconnect my overnight catheter bag which usually contains about a litre of urine. That's the usual amount give or take. Oh no What happened? She holds the empty catheter bag. Where has all the urine gone? We all laugh and an appropriate response had alrea...

2

Stuff: February 2015

http://www.mrjimsweeney.blogspot.com/2015_02_01_archive.html

Monday, 9 February 2015. A Room With My View. I have been room bound, more or less, for the last 18 months (anyone tilting their head to one side, pulling a sad face and sighing need to stand next to a wall and bang their heads against it for a few minutes.). I saw you this morning/you are moving so fast/can't seem to loosen my grip/on the past" sings Leonard Cohen in his sublime, "In My Secret Life" and that just about sums my memory up perfectly. I'm working on it and constantly check in with my carers...

3

Stuff: September 2010

http://www.mrjimsweeney.blogspot.com/2010_09_01_archive.html

Tuesday, 28 September 2010. My MS never ceases to surprise me. Not content with having rewired my immune system so that it attacks my nerves with a gusto that it really should be applying to the bad guys, it has PMS. Regular readers will be aware that I intended to pull the plug on my body before the MS had got into the attic and destroyed the main fuse box. 8220;The best laid plans of mice and men/ oft go awry.”. A) Beautiful Spain won the World Cup beautifully “encima el tuyo, Alemania”. By substitutin...

4

Stuff: Nuns Escape Unscathed

http://www.mrjimsweeney.blogspot.com/2010/09/nuns-escape-unscathed.html

Tuesday, 28 September 2010. My MS never ceases to surprise me. Not content with having rewired my immune system so that it attacks my nerves with a gusto that it really should be applying to the bad guys, it has PMS. Regular readers will be aware that I intended to pull the plug on my body before the MS had got into the attic and destroyed the main fuse box. 8220;The best laid plans of mice and men/ oft go awry.”. A) Beautiful Spain won the World Cup beautifully “encima el tuyo, Alemania”. By substitutin...

5

Stuff: A Room With My View

http://www.mrjimsweeney.blogspot.com/2015/02/a-room-with-my-view.html

Monday, 9 February 2015. A Room With My View. I have been room bound, more or less, for the last 18 months (anyone tilting their head to one side, pulling a sad face and sighing need to stand next to a wall and bang their heads against it for a few minutes.). I saw you this morning/you are moving so fast/can't seem to loosen my grip/on the past" sings Leonard Cohen in his sublime, "In My Secret Life" and that just about sums my memory up perfectly. I'm working on it and constantly check in with my carers...

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maybemstruth.blogspot.com

Maybe MS Truth: April 2013

http://maybemstruth.blogspot.com/2013_04_01_archive.html

MS is a thin description of who I am. This is how it is. Thursday, 11 April 2013. It's not the Andes. I went to the gym as usual on Wednesday morning. Okay, it's not entirely usual in that some Wednesdays I'm busy doing something else, debilitated by MS fatigue or simply not in the mood. Wednesday morning is Neuro Group at Oxsrad. Coincidentally, today I googled the Andes and the page I clicked on - Andes. Links to this post. Tuesday, 2 April 2013. Never mind the weather. And jolly good company. Never mi...

maybemstruth.blogspot.com

Maybe MS Truth: It's not the Andes

http://maybemstruth.blogspot.com/2013/04/its-not-andes.html

MS is a thin description of who I am. This is how it is. Thursday, 11 April 2013. It's not the Andes. I went to the gym as usual on Wednesday morning. Okay, it's not entirely usual in that some Wednesdays I'm busy doing something else, debilitated by MS fatigue or simply not in the mood. Wednesday morning is Neuro Group at Oxsrad. Coincidentally, today I googled the Andes and the page I clicked on - Andes. Please do not be rude or disrespectful. If you know who I am, just refer to me as Toots. Often a wi...

maybemstruth.blogspot.com

Maybe MS Truth: August 2013

http://maybemstruth.blogspot.com/2013_08_01_archive.html

MS is a thin description of who I am. This is how it is. Wednesday, 21 August 2013. As Time Goes By. Every morning my 8am iPhone alarm song tells me "You must remember this" and sometimes I think "why? Why must I remember? As Time Goes By. Links to this post. Subscribe to: Posts (Atom). Here, probably Southish, United Kingdom. Often a wilted flower, MS is a thin description of who I am. I have MS, I try not to suffer with it. I sometimes do mad things, partly because of it. I think I remember...Gilenya -...

maybemstruth.blogspot.com

Maybe MS Truth: September 2012

http://maybemstruth.blogspot.com/2012_09_01_archive.html

MS is a thin description of who I am. This is how it is. Wednesday, 26 September 2012. There seem to be too many ouch points in my life with MS. Many of them are not physical pain. Recently there’s been. The falling fails – the most dramatic was one I tweeted about. Jemima and I fell in a tangle in the new venue for the show we were in. That was an ouch of physical pain. My bruises were spectacular like this on my thigh. And I miss MyMan. I miss that person to share my life with. He said on the p...But I...

maybemstruth.blogspot.com

Maybe MS Truth: Cough, sneeze, splutter, freeze

http://maybemstruth.blogspot.com/2013/01/cough-sneeze-splutter-freeze.html

MS is a thin description of who I am. This is how it is. Saturday, 19 January 2013. Cough, sneeze, splutter, freeze. The hardest bit about accepting this level of ill is that I haven't been out in the snow. I've not thrown a snowball, not made a snowman (or snow-woman! I've not wrapped up in layers, put on wellies and made my footprints the first in any patch of white. I want to trudge through it before it turns to ice and slush. I want to run across an expanse of pristine snow. View my complete profile.

maybemstruth.blogspot.com

Maybe MS Truth: December 2012

http://maybemstruth.blogspot.com/2012_12_01_archive.html

MS is a thin description of who I am. This is how it is. Thursday, 27 December 2012. This Month’S MiSsive is brought to you by the letters M and S (not the well known retailer). For the headteacher’s voice. Ms Stuart has gorgeous tones and is a joy for me to hear on BBC Radio 2 in the MorningS. The MuSic of my life is an unknown ManuScript MoStly played out in MicroSoft packages or eaten with dodgy quantities of MSg. If I make MiStakes, I proMiSe to recoMpenSe as best I can. This xMaS I have not kissed u...

maybemstruth.blogspot.com

Maybe MS Truth: Taboo to you - BOO! I'm back!

http://maybemstruth.blogspot.com/2014/03/taboo-to-you-boo-im-back.html

MS is a thin description of who I am. This is how it is. Tuesday, 11 March 2014. Taboo to you - BOO! It has been a ridiculously long time since I blogged and I am not going to try to explain why. Not least because I'm not sure why. Today I had a conversation with a dear friend who has a blog I didn't know about before ( laraknowlden.blogspot.co.uk. I am more honest about my multiple sclerosis than I used to be. It holds less fear for me to say I have MS when in professional situations. I more fre...I exp...

maybemstruth.blogspot.com

Maybe MS Truth: What the heck?!

http://maybemstruth.blogspot.com/2013/03/what-heck_19.html

MS is a thin description of who I am. This is how it is. Tuesday, 19 March 2013. It's been a long time since I have blogged (two months). Apart from mini blogging on social network sites (and I don't think Twitter or Facebook status updates count as blog posts), I don't seem to have had time to write. It's crazy I know but at a recent MS award ceremony I was described as nutty, I didn't win the award. But my friend and fellow MSer Jo did. So, what the heck? Busy, busy, busy. View my complete profile.

maybemstruth.blogspot.com

Maybe MS Truth: Senseless

http://maybemstruth.blogspot.com/2013/07/senseless.html

MS is a thin description of who I am. This is how it is. Tuesday, 16 July 2013. I cycled into town today to meet fellow MSSY. Group members for a drink (that's a defytheMonSter* feat in itself) and I wondered how much time do we spend not seeing, not hearing, not smelling, not feeling, and, yes, not tasting. I must remember to keep my mouth closed when cycling - I'm vegetarian and flies don't taste good*! Or is this senseless? 18 July 2013 at 17:01. Please do not be rude or disrespectful. Subscribe to: P...

maybemstruth.blogspot.com

Maybe MS Truth: Never mind the weather

http://maybemstruth.blogspot.com/2013/04/never-mind-weather.html

MS is a thin description of who I am. This is how it is. Tuesday, 2 April 2013. Never mind the weather. Whilst I was still a student (single hons Drama at University of Hull and the department is coming up to a 50th anniversary celebration. more of that another time). where was I? Here we are again, Happy as can be, All good friends and jolly good company. Strolling 'round the town, Out upon a spree, All good. And jolly good company. And jolly good company.". 2 April 2013 at 20:45. Good to hear about the...

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Stuff

Monday, 9 February 2015. A Room With My View. I have been room bound, more or less, for the last 18 months (anyone tilting their head to one side, pulling a sad face and sighing need to stand next to a wall and bang their heads against it for a few minutes.). I saw you this morning/you are moving so fast/can't seem to loosen my grip/on the past" sings Leonard Cohen in his sublime, "In My Secret Life" and that just about sums my memory up perfectly. I'm working on it and constantly check in with my carers...

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