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mumtochromoboy.blogspot.com

Little Blip

A blog about parenting a little boy with a rare genetic disorder.

http://mumtochromoboy.blogspot.com/

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Little Blip | mumtochromoboy.blogspot.com Reviews
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A blog about parenting a little boy with a rare genetic disorder.
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Little Blip | mumtochromoboy.blogspot.com Reviews

https://mumtochromoboy.blogspot.com

A blog about parenting a little boy with a rare genetic disorder.

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mumtochromoboy.blogspot.com mumtochromoboy.blogspot.com
1

Little Blip: One in a Million

http://mumtochromoboy.blogspot.com/2012/03/one-in-million.html

A blog about parenting a little boy with a rare genetic disorder. Friday, 23 March 2012. One in a Million. Last weekend we travelled to Birmingham to meet up with a group of other families with children with Chromosome 16 variations. We were fortunate to have two members of the Swiss research team in attendance. Professor Jacquemont and Anne Maillard had kindly agreed to do a presentation about their research findings into copy number variations (CNV) on chromosome 16. Friday, March 23, 2012. Poor loves&...

2

Little Blip: The First Post

http://mumtochromoboy.blogspot.com/2012/02/first-post.html

A blog about parenting a little boy with a rare genetic disorder. Tuesday, 21 February 2012. Floppy, bendy boy aged 2. Tuesday, February 21, 2012. 18 March 2012 at 17:11. Sorry it took so long to find what it was, I hope you get outside help and support too. 16 April 2012 at 00:32. Will be following your blog with interest. My son has chromosome 22q11 deletion, which is more common but still complex and there remains a lack of awareness xx. Subscribe to: Post Comments (Atom). Just Bring the Chocolate.

3

Little Blip: Small step,giant leap.

http://mumtochromoboy.blogspot.com/2012/03/small-stepgiant-leap.html

A blog about parenting a little boy with a rare genetic disorder. Tuesday, 6 March 2012. Small step,giant leap. Max's development progresses at ". Max Speed, in Max time". Like everything else about Max its. One thing we have learnt to do over the years is to accept this, try not to worry when it seems to take forever to achieve things. The beauty of having a child with Special Needs is that other parents may note the. When those achievements come they are so sweet and the joy of them can lift me for days.

4

Little Blip: April 2012

http://mumtochromoboy.blogspot.com/2012_04_01_archive.html

A blog about parenting a little boy with a rare genetic disorder. Tuesday, 17 April 2012. The Oxygen Junkie - Guest Post. Fran aka The Oxygen Junkie has kindly written a blog post about Max and Disability Rocks. Fran may be only 14 but she is wise beyond her years. She has recently got through to the final 3 in the Amnesty International Young Journalist of the year. We are very proud of her and wish her good luck for the final on the 8th May. This is the post Fran wrote for her blog. After having a bit o...

5

Little Blip: Disability Rocks

http://mumtochromoboy.blogspot.com/2012/03/disability-rocks.html

A blog about parenting a little boy with a rare genetic disorder. Sunday, 11 March 2012. In June 2011 , Richard was made redundant form his job as a manager in the NHS. Shortly after this during a holiday in Ibiza the concept of Disability Rocks was born. During our stay in Ibiza we became very aware of all the club and party scenes and began to wonder just how accessible these events were for individuals with disabilities. Some friends took their children along to Ibiza Rocks. Sunday, March 11, 2012.

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Pictures | swanfreddie

https://swanfreddie.wordpress.com/freddie-in-pictures

Welcome to Holland 2. All about my undiagnosed son and his family. With my big sister. Playing xbox with daddy. The start of the hospital trips. Beginning of tube feeding. Still stuck in hospital. Nice and snug back at home. Getting a big boy. Learning to sit up. With my big sister. In my new sensory room. 5 comments on “ Pictures. January 20, 2012 at 8:34 pm. Such a cute little lad! March 5, 2012 at 6:52 pm. Love photos, very cute. April 21, 2012 at 10:29 pm. Great pics. What a sweetie he is. 🙂. As you...

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A blog about parenting a little boy with a rare genetic disorder. Tuesday, 17 April 2012. The Oxygen Junkie - Guest Post. Fran aka The Oxygen Junkie has kindly written a blog post about Max and Disability Rocks. Fran may be only 14 but she is wise beyond her years. She has recently got through to the final 3 in the Amnesty International Young Journalist of the year. We are very proud of her and wish her good luck for the final on the 8th May. This is the post Fran wrote for her blog. After having a bit o...

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