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My Blessed Life With Camden James....and a CDH journey.....

He who dwells in the shadow of the Most High will abide in the shelter of the Almighty. I will say to the Lord, "My refuge and my fortress, my God, in whom I shall trust." Psalm 91

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My Blessed Life With Camden James....and a CDH journey..... | myblessedlifewithcamden.blogspot.com Reviews
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He who dwells in the shadow of the Most High will abide in the shelter of the Almighty. I will say to the Lord, &quot;My refuge and my fortress, my God, in whom I shall trust.&quot; Psalm 91
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1 no more tubeless
2 blessings
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7 a busy march
8 good
9 amazing progression
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My Blessed Life With Camden James....and a CDH journey..... | myblessedlifewithcamden.blogspot.com Reviews

https://myblessedlifewithcamden.blogspot.com

He who dwells in the shadow of the Most High will abide in the shelter of the Almighty. I will say to the Lord, &quot;My refuge and my fortress, my God, in whom I shall trust.&quot; Psalm 91

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My Blessed Life With Camden James....and a CDH journey.....: March 2012

http://myblessedlifewithcamden.blogspot.com/2012_03_01_archive.html

My Blessed Life With Camden James.and a CDH journey. He who dwells in the shadow of the Most High will abide in the shelter of the Almighty. I will say to the Lord, "My refuge and my fortress, my God, in whom I shall trust." Psalm 91. Monday, March 26, 2012. Not to schedule another surgery for his nissen stretching, or to even tell me they dont want to do it! Is my main frustration! Other than that he is talking like crazy, and is my sweetness! Subscribe to: Posts (Atom). Obviously to keep close friends ...

2

My Blessed Life With Camden James....and a CDH journey.....: June 2012

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My Blessed Life With Camden James.and a CDH journey. He who dwells in the shadow of the Most High will abide in the shelter of the Almighty. I will say to the Lord, "My refuge and my fortress, my God, in whom I shall trust." Psalm 91. Monday, June 18, 2012. Back to the nissen.again.and again.and again. He continues to do well tolerating tube feeds so was definitely was a soy intolerance! It has been wonderful to not watch him retch! Subscribe to: Posts (Atom). View my complete profile.

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My Blessed Life With Camden James....and a CDH journey.....: Feeding tube is officially GONE!

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My Blessed Life With Camden James.and a CDH journey. He who dwells in the shadow of the Most High will abide in the shelter of the Almighty. I will say to the Lord, "My refuge and my fortress, my God, in whom I shall trust." Psalm 91. Tuesday, December 4, 2012. Feeding tube is officially GONE! I want my tube back in! BTW- he is so stinkin' funny and cute when he tries to be mean and it lasts for all of 2 minutes) (What is. Bothering him is the granulation tissue that is left form the tube. he says he...

4

My Blessed Life With Camden James....and a CDH journey.....: September 2012

http://myblessedlifewithcamden.blogspot.com/2012_09_01_archive.html

My Blessed Life With Camden James.and a CDH journey. He who dwells in the shadow of the Most High will abide in the shelter of the Almighty. I will say to the Lord, "My refuge and my fortress, my God, in whom I shall trust." Psalm 91. Friday, September 21, 2012. Cardiologist follow up in . ONE year? Yep =o) Heart cath went great. Camden recovered from anesthesia for several hours afterwards then was walking around as if nothing happened. He said, " I'm fine, momma! Sunday, September 16, 2012. Well, Tuesd...

5

My Blessed Life With Camden James....and a CDH journey.....: Spring update! :)

http://myblessedlifewithcamden.blogspot.com/2014/03/spring-update.html

My Blessed Life With Camden James.and a CDH journey. He who dwells in the shadow of the Most High will abide in the shelter of the Almighty. I will say to the Lord, "My refuge and my fortress, my God, in whom I shall trust." Psalm 91. Thursday, March 20, 2014. So, we will be heading back to Nemours this month and next for some check ups. March 27, 2014 at 8:55 PM. I am praying for sweet Camden James! Keep us updated, please! April 23, 2014 at 8:49 PM. And his eye situation? Love you later, Raelyn. I am m...

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Jaime's World: April 2013

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Wednesday, April 24, 2013. I thought this was simply too cute NOT to share! Such talent the boy has! Just to put things in perspective, yesterday marks the first time I held Jaime, 4 yrs ago. He was 1 week old.and then coded for the first time, during the night, just hours after the photo was taken. We've come a long way from our NICU days to discovering bubble talent and I couldn't be more proud of him! Baby steps to desensitizing him! Tuesday, April 16, 2013. Happy 4th Birthday, Jaime! Make it this far!

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Gentges Zoo: July 2010

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An interesting mix of chaos and quiet all wrapped up in one happy family! Thursday, July 29, 2010. We have had the tremendous blessing of having wonderful doctors, nurses, and social workers, a fantastic PH clinic, and insurance that has covered just about all of his medical expenses. His meds are quite expensive and we are so thankful for his insurance! We were able to meet with them this week. YAY! John and I could barely contain our excitement! For once, this horrible disease has a benefit for Joshua!

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Breathing for Baby Clay: Our CDH Story: Wake up, Clay belly!

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Breathing for Baby Clay: Our CDH Story. Saturday, October 5, 2013. Wake up, Clay belly! Praying for poop.that's what we've been doing since surgery. He finally had a decent bowel movement tonight, nothing huge, but hey.it's a start! And it was without the help of a suppository so that's good he did it all on his own. Gettin lots of momma lovins.I think we're both tired of hospital living :/. October 5, 2013 at 8:29 PM. Thinking of you guys! October 7, 2013 at 8:54 AM. You are praying for poop? Im glad th...

breathingforclay.blogspot.com breathingforclay.blogspot.com

Breathing for Baby Clay: Our CDH Story: September 2013

http://breathingforclay.blogspot.com/2013_09_01_archive.html

Breathing for Baby Clay: Our CDH Story. Friday, September 27, 2013. Of course, things never go as planned with Mr. Clayton Cash and this trip to the hospital has been no different. Lil turkey likes to keep us on our toes! Repair surgery #3 was scheduled for Thursday morning, instead we found ourselves in the ER with a fever and a cough. We've moved from the PICU to a regular room today and have been told they want to keep us here until surgery day, which sounds like may happen next Tuesday or Thursday.

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Breathing for Baby Clay: Our CDH Story: October 2013

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Breathing for Baby Clay: Our CDH Story. Thursday, October 10, 2013. At full feeds but feeling puny :(. Well the good news is, we are up to full feeds of 56ml/hr and he's doing great with that so far! His g-tube is still racked, and will have to be for another week or so, then we can work on condensing feeds into boluses. So, we will be here for another day or two until we get something figured out. Y'all say a prayer for my lil man. This never gets any easier :(. Saturday, October 5, 2013. He has perked ...

breathingforclay.blogspot.com breathingforclay.blogspot.com

Breathing for Baby Clay: Our CDH Story: September 2012

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Breathing for Baby Clay: Our CDH Story. Sunday, September 16, 2012. Back in the big city :/. Well we've had an eventful few days to say the least. In my last blog, I was excited that our doc discontinued some of Clays meds: diuril, sodium chloride, and potassium chloride. We had to have a BMP drawn this past Wednesday to make sure his electrolyte levels weren't missing the supplements. Can just I say how bad it SUCKS to watch your baby get poked with a needle every 6 hours? And this wasn't a little poke,...

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Breathing for Baby Clay: Our CDH Story: January 2013

http://breathingforclay.blogspot.com/2013_01_01_archive.html

Breathing for Baby Clay: Our CDH Story. Thursday, January 24, 2013. Clay was scheduled to have the Nissen Fundoplication surgery this coming Tuesday, January 29th. I've been dreading it more and more everyday.both the actual procedure, but more so for the 7-10 day recovery in the PICU (or more, knowing how things usually go with Mr. Clay-bug). Thank y'all for keeping up with us.we appreciate the support more than you'll ever know! Here's a few pictures of the silly boy:. Him's bad to the bone. Raising Di...

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Breathing for Baby Clay: Our CDH Story: Repair surgery hold-up...

http://breathingforclay.blogspot.com/2013/09/repair-surgery-hold-up.html

Breathing for Baby Clay: Our CDH Story. Friday, September 27, 2013. Of course, things never go as planned with Mr. Clayton Cash and this trip to the hospital has been no different. Lil turkey likes to keep us on our toes! Repair surgery #3 was scheduled for Thursday morning, instead we found ourselves in the ER with a fever and a cough. We've moved from the PICU to a regular room today and have been told they want to keep us here until surgery day, which sounds like may happen next Tuesday or Thursday.

johnandlaurenkirkland.blogspot.com johnandlaurenkirkland.blogspot.com

The Kirkland's: A Boy and His Cars!!

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John, Lauren, Kaylee and Kyle and Siri. Wednesday, December 28, 2011. A Boy and His Cars! To say that Kyle is obsessed with Cars would be a huge understatement lol! He loves to sit in the floor and play with all his cars. I dont let him have full access to them whenever he wants (because I dont want 100 little hot wheels all over the house) So he enjoys when I let him dump them all out and we get in the floor and play with him! Posted by The Kirkland's. Subscribe to: Post Comments (Atom).

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My Blessed Life With Camden James....and a CDH journey.....

My Blessed Life With Camden James.and a CDH journey. He who dwells in the shadow of the Most High will abide in the shelter of the Almighty. I will say to the Lord, "My refuge and my fortress, my God, in whom I shall trust." Psalm 91. Thursday, June 2, 2016. People have recently asked things: "Will he still be able to eat? As long as her needs it. I am thinking years. I am in no rush to get this out and have to do this over again! Can he swim or get on his belly? Thankful to our Lord! I can't wait to get...

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