mycfjourney.blogspot.com
Mastering the Art of Breathing, One Stitch at a TimeThis 30-something's journey with Cystic Fibrosis, Lynch Syndrome, CFRD and the Lung Transplant process
http://mycfjourney.blogspot.com/
This 30-something's journey with Cystic Fibrosis, Lynch Syndrome, CFRD and the Lung Transplant process
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Mastering the Art of Breathing, One Stitch at a Time | mycfjourney.blogspot.com Reviews
https://mycfjourney.blogspot.com
This 30-something's journey with Cystic Fibrosis, Lynch Syndrome, CFRD and the Lung Transplant process
mycfjourney.blogspot.com
Mastering the Art of Breathing, One Stitch at a Time: One Year Post- Whipple
http://mycfjourney.blogspot.com/2015/07/one-year-post-whipple.html
Mastering the Art of Breathing, One Stitch at a Time. This 30-something's journey with Cystic Fibrosis, Lynch Syndrome, CFRD and the Lung Transplant process. Tuesday, July 28, 2015. One Year Post- Whipple. Today marks my one year since having the whipple done on my pancreas. My health is doing great. I still do not require insulin although my OGTT I had done recently still put me in the abnormal range. So I am monitoring sugars for my appointment in October. But I am not diabetic like we thou...Besides s...
Mastering the Art of Breathing, One Stitch at a Time: My Kidneys
http://mycfjourney.blogspot.com/2015/07/my-kidneys.html
Mastering the Art of Breathing, One Stitch at a Time. This 30-something's journey with Cystic Fibrosis, Lynch Syndrome, CFRD and the Lung Transplant process. Wednesday, July 29, 2015. I am not quite sure what is up with them. Or if it is even them causing me issues. Back in March I had a BAD UTI. So bad I was peeing purple.yes PURPLE. I should have taken a picture it was so weird! Hopefully the 24 hour collection will reveal something about what is up with these infections. They are not fun at all...
Mastering the Art of Breathing, One Stitch at a Time: Game Changer
http://mycfjourney.blogspot.com/2015/08/game-changer.html
Mastering the Art of Breathing, One Stitch at a Time. This 30-something's journey with Cystic Fibrosis, Lynch Syndrome, CFRD and the Lung Transplant process. Monday, August 3, 2015. I have discussed this before, but now that reality is happening. Orkambi has been approved and is available to those with DDF508 mutations. ME. Vertex' drug has been approved and my life could change. Dramatically or barely noticeably. So why am I feeling this barrage of emotions? So what do I do now? My Blog List / Friends.
Mastering the Art of Breathing, One Stitch at a Time: CF Awareness Post Question Day 21 and 22
http://mycfjourney.blogspot.com/2015/05/cf-awareness-post-question-day-21-and-22.html
Mastering the Art of Breathing, One Stitch at a Time. This 30-something's journey with Cystic Fibrosis, Lynch Syndrome, CFRD and the Lung Transplant process. Friday, May 22, 2015. CF Awareness Post Question Day 21 and 22. Day 21 I asked for more questions and I got them! What was it like for you to travel outside the US having CF? Subscribe to: Post Comments (Atom). My Blog List / Friends. To love and be loved. It's All Good In Joshland. Terrible Twos All Over Again. Less than 24 hours. I miss my husband.
Mastering the Art of Breathing, One Stitch at a Time: CF Awareness Post Question Day 20
http://mycfjourney.blogspot.com/2015/05/cf-awareness-post-question-day-20.html
Mastering the Art of Breathing, One Stitch at a Time. This 30-something's journey with Cystic Fibrosis, Lynch Syndrome, CFRD and the Lung Transplant process. Wednesday, May 20, 2015. CF Awareness Post Question Day 20. You have had experiences of a volume and magnitude with the health care system that few have. I'm interested in your insights. What I'm most curious about are your experiences. Are there things which healthcare workers unwittingly do or say which aren't helpful? I know there are a lot of fa...
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Sandy's CF Life: Time Flies!
http://sandyscflife.blogspot.com/2011/02/time-flies.html
Sunday, February 13. I think I'm due for a bit of an update. The last few weeks have gone well in terms of my health. I had a run-in with CMV, but after a couple of weeks of oral anti-virals, it's gone again. Otherwise, I'm keeping up with my workouts, meds, sleep, and I'm even eating better. I have probably eaten more vegetable this year than I did all. I have also officially read my first novel in over a year. It's an awesome feeling to get back to the things I enjoy! I am making all sorts of goals and...
Life and living it: May 2009
http://livingjennslife.blogspot.com/2009_05_01_archive.html
Life and living it. Thank you for visiting my blog.Join in my journey with life with CF, a vent, Ehlers-Danlos and then some :). Wednesday, May 6, 2009. It really has been a very long time. I amright now. Tubing and all during the wee hour of two am. I guess there is nothing else really new to report, I will post some pics once I get off of my lazy ass and download my pics from my camera to the computer. I know.simple and shouldn't take long right? Yes, that is true but I am the ultimate procrastinator e...
Life and living it: May 2010
http://livingjennslife.blogspot.com/2010_05_01_archive.html
Life and living it. Thank you for visiting my blog.Join in my journey with life with CF, a vent, Ehlers-Danlos and then some :). Wednesday, May 12, 2010. Waiting is no game. That is how long the RX company says it will take which I find ludicrous. I am pissed.I have been lucky to make it a week, now I have to wait another? Hugs and well wishes to all,. Subscribe to: Posts (Atom). Me and my doggie. Tip of the Iceburg. There is usually more to what is plainly seen. A big hello to you! Waiting is no game.
Life and living it: April 2010
http://livingjennslife.blogspot.com/2010_04_01_archive.html
Life and living it. Thank you for visiting my blog.Join in my journey with life with CF, a vent, Ehlers-Danlos and then some :). Wednesday, April 21, 2010. Just so. tired. I am not usually the whiny type, but today I feel like sitting in a corner and having an all out temper tantrum tantamount to a two year old's out of sheer frustration. It is spring, the weather is finally beautiful and I do want to go out and play so to speak, but where am I? Who the hell knows.could it be infection? Okay, here's the ...
Life and living it: March 2010
http://livingjennslife.blogspot.com/2010_03_01_archive.html
Life and living it. Thank you for visiting my blog.Join in my journey with life with CF, a vent, Ehlers-Danlos and then some :). Wednesday, March 24, 2010. A day in the life of. Subscribe to: Posts (Atom). Me and my doggie. Tip of the Iceburg. There is usually more to what is plainly seen. A big hello to you! Please sit back and join me in my journey onward. :). View my complete profile. Http:/ jennsartgallery.blogspot.com/. A day in the life of. Knowing that I am loved. Listening to my favorite assortme...
Life and living it: Better times...
http://livingjennslife.blogspot.com/2009/07/better-times.html
Life and living it. Thank you for visiting my blog.Join in my journey with life with CF, a vent, Ehlers-Danlos and then some :). Sunday, July 5, 2009. I finally begged my doctor to please just let me access my port and I will take care of the rest. The only issue was my insurance paying for the Rocephin. Amazingly, they covered it! I knew that they had made some changes this year, but to cover IV antibiotics? Well, they looked that big LOL! Phenergen was in my hands and relief would soon follow. I lo...
Life and living it: September 2008
http://livingjennslife.blogspot.com/2008_09_01_archive.html
Life and living it. Thank you for visiting my blog.Join in my journey with life with CF, a vent, Ehlers-Danlos and then some :). Tuesday, September 30, 2008. Yes, that's right. Electrified. Yesterday I had my EMG at MGH, I still hated it even though the doctor was very kind and as gentle as he could be. But even with being careful and kind, those needles still hurt! Until next time my friends, Jenn :). Wednesday, September 24, 2008. Follow up with my ENT. This weekend, I plan on going apple picking (well...
Life and living it: December 2009
http://livingjennslife.blogspot.com/2009_12_01_archive.html
Life and living it. Thank you for visiting my blog.Join in my journey with life with CF, a vent, Ehlers-Danlos and then some :). Thursday, December 10, 2009. It's been too long. I want to believe that but it isn't real life, I know that but I try to convince myself otherwise. Of course, there will come a time when it will be time to say my final good byes, when being here hurts too much and I will know when it is time. But for now, rest assured, I am here to fight another day. Until next time,. Eating a ...
amatteroflifeandbreath.blogspot.com
A Matter of Life and Breath: May 2012
http://amatteroflifeandbreath.blogspot.com/2012_05_01_archive.html
A Matter of Life and Breath. Life, Lung transplant, and Cystic Fibrosis. And Everything In Between. I am a 33-year-old wife, sister, daughter, friend, law school graduate, CFer, lifelong student of public service, blog writer, patient, Sagittarius, reader, Top chef fan, double-lung transplant recipient (twice! View my complete profile. Want to Contact Me? Please email me suggestions, thoughts, comments, or criticism. Seriously, I love hearing from you guys! Send all emails to:. A Breath of Fresh Air.
amatteroflifeandbreath.blogspot.com
A Matter of Life and Breath: February 2013
http://amatteroflifeandbreath.blogspot.com/2013_02_01_archive.html
A Matter of Life and Breath. Life, Lung transplant, and Cystic Fibrosis. And Everything In Between. I am a 33-year-old wife, sister, daughter, friend, law school graduate, CFer, lifelong student of public service, blog writer, patient, Sagittarius, reader, Top chef fan, double-lung transplant recipient (twice! View my complete profile. Want to Contact Me? Please email me suggestions, thoughts, comments, or criticism. Seriously, I love hearing from you guys! Send all emails to:. Transplant: The Fairy Tale.
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Mastering the Art of Breathing, One Stitch at a Time
Mastering the Art of Breathing, One Stitch at a Time. This 30-something's journey with Cystic Fibrosis, Lynch Syndrome, CFRD and the Lung Transplant process. Tuesday, January 26, 2016. Rest in Peace Aunt Marybeth. Monday my Aunt passed away. She had pancreatic and liver cancer. The past two months she has been hospitalized and this was expected, but not expected. She leaves behind 2 beautiful daughters in high school. I remember going to the baby shower for her first baby, my cousin. I had my 3 month cli...
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