mydanceintherain.org

My Dance in the Rain | The journey of my life, learning the ropes of motherhood raising seven children. A special little girl with Cri du Chat Syndrome and Primary Ciliary Dyskenisia. All while trying to find myself along the way; Crazy is my normal!

The journey of my life, learning the ropes of motherhood raising seven children. A special little girl with Cri du Chat Syndrome and Primary Ciliary Dyskenisia. All while trying to find myself along the way; Crazy is my normal! (by My Dance in the Rain)

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My Dance in the Rain | The journey of my life, learning the ropes of motherhood raising seven children. A special little girl with Cri du Chat Syndrome and Primary Ciliary Dyskenisia. All while trying to find myself along the way; Crazy is my normal! | mydanceintherain.org Reviews

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The journey of my life, learning the ropes of motherhood raising seven children. A special little girl with Cri du Chat Syndrome and Primary Ciliary Dyskenisia. All while trying to find myself along the way; Crazy is my normal! (by My Dance in the Rain)

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3 about me

4 sophie’s page

5 sophie’s friends

6 contact me

7 justice for victoria

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10 justiceforv on facebook

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My Dance in the Rain | The journey of my life, learning the ropes of motherhood raising seven children. A special little girl with Cri du Chat Syndrome and Primary Ciliary Dyskenisia. All while trying to find myself along the way; Crazy is my normal! | mydanceintherain.org Reviews

https://mydanceintherain.org

The journey of my life, learning the ropes of motherhood raising seven children. A special little girl with Cri du Chat Syndrome and Primary Ciliary Dyskenisia. All while trying to find myself along the way; Crazy is my normal! (by My Dance in the Rain)

INTERNAL PAGES

mydanceintherain.org

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Sophie’s Friends | My Dance in the Rain

http://mydanceintherain.org/sophies-page/sophies-friends

My Dance in the Rain. The journey of my life, my path to redefine myself and a special little girl with Cri du Chat Syndrome and Primary Ciliary Dyskenisia who changed it all. Cri du Chat Syndrome, 5p-. Sophie’s Birth Story. Sophie’s Health & Development. Friends Page, Bayleigh. Friends Page, Diana. Friends Page, Dylan. Click on the links below to get to know some more of our friends. Celebrate with us their wonderful accomplishments, support and the love we all share together! Leave a Reply Cancel reply.

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#CriDuChat | My Dance in the Rain

http://mydanceintherain.org/tag/criduchat

My Dance in the Rain. The journey of my life, my path to redefine myself and a special little girl with Cri du Chat Syndrome and Primary Ciliary Dyskenisia who changed it all. Cri du Chat Syndrome, 5p-. Sophie’s Birth Story. Sophie’s Health & Development. Friends Page, Bayleigh. Friends Page, Diana. Friends Page, Dylan. Our Diagnosis and moving past it. Survive she would not walk, talk or have the ability to have a productive life. I am in no way an expert of being the parent of a child with different ab...

3

Sophie’s Birth Story | My Dance in the Rain

http://mydanceintherain.org/sophies-page/sophies-birth-story

My Dance in the Rain. The journey of my life, my path to redefine myself and a special little girl with Cri du Chat Syndrome and Primary Ciliary Dyskenisia who changed it all. Cri du Chat Syndrome, 5p-. Sophie’s Birth Story. Sophie’s Health & Development. Friends Page, Bayleigh. Friends Page, Diana. Friends Page, Dylan. Sophie’s Birth Story. They honored my request to remove the feeding tube and allow her to bottle feed and to remove the oxygen. Within 24 hours she was on room air and 48 hours no fee...

4

DCF | My Dance in the Rain

http://mydanceintherain.org/tag/dcf

My Dance in the Rain. The journey of my life, my path to redefine myself and a special little girl with Cri du Chat Syndrome and Primary Ciliary Dyskenisia who changed it all. Cri du Chat Syndrome, 5p-. Sophie’s Birth Story. Sophie’s Health & Development. Friends Page, Bayleigh. Friends Page, Diana. Friends Page, Dylan. Justice for Victoria Petition. Do not allow these entities to make decisions not based on the law but on their own personal decisions. That is NOT JUSTICE! When Victoria was 3 months old ...

5

Friends Page, Bayleigh | My Dance in the Rain

http://mydanceintherain.org/sophies-page/sophies-friends/friends-page-bayleigh

My Dance in the Rain. The journey of my life, my path to redefine myself and a special little girl with Cri du Chat Syndrome and Primary Ciliary Dyskenisia who changed it all. Cri du Chat Syndrome, 5p-. Sophie’s Birth Story. Sophie’s Health & Development. Friends Page, Bayleigh. Friends Page, Diana. Friends Page, Dylan. Friends Page, Bayleigh. The Doctors said their goodbyes to us and said you have the strongest little girl we have ever met She is the reason that makes us love what we do! I'm fine b...

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tallessamaailma.blogspot.com

Tallessa maailma: huhtikuuta 2014

http://tallessamaailma.blogspot.com/2014_04_01_archive.html

Keskiviikko 23. huhtikuuta 2014. Nämä ihanat keväiset päivät! On helppo hengittää ja vain nauttia olostaan. Älä kuuntele käskijöitä,. Kuuntele hiljaisen puheen puroa. Ei tietä tarvitse valita,. Vaan mihin metsään polku tallata. Pitkän odotuksen jälkeen, kevään väreistä hullaantuneena! Jostain nousee mieleen ajattomankaunista Ranya ElRamlyn. Ihmiset ovat kuin lasimaalausikkunoita. He säihkyvät ja loistavat, kun aurinko osuu heihin,. Mutta pimeyden laskettua heidän todellinen kauneutensa. Pääsiäisen valoa ...

tallessamaailma.blogspot.com

Tallessa maailma: tammikuuta 2015

http://tallessamaailma.blogspot.com/2015_01_01_archive.html

Maanantai 26. tammikuuta 2015. Elämä on tilaisuus, hyödy siitä. Elämä on kauneus, nauti siitä. Elämä on autuus, maista sitä. Elämä on uni, todellista se. Elämä on haaste, kohtaa se. Elämä on velvollisuus, täytä se. Elämä on peli, pelaa sitä. Elämä on lupaus, täytä se. Elämä on suru, voita se. Elämä on laulu, laula se. Elämä on ponnistus, hyväksy se. Elämä on tragedia, kohtaa se. Elämä on seikkailu, uskaltaudu siihen. Elämä on onni, luo se. Elämä on liian arvokas, älä tuhoa sitä. Niin, äitejä nuo molemmat:.

tallessamaailma.blogspot.com

Tallessa maailma: maaliskuuta 2014

http://tallessamaailma.blogspot.com/2014_03_01_archive.html

Maanantai 31. maaliskuuta 2014. Muutamia koneelle unohtuneita kuvia tänään. Ajalta kun kevät ei ollut vielä näin pitkällä. Mitä muuta kuului viikonloppuumme? Borschkeittoa, kiireetöntä yhdessäoloa, rauhallisia ajatuksia, kerrankin. Vapaapäiviä. Ulkoilua ja auringosta nauttimista. Katsomista uusin silmin-. (Niin, uusin ja laserleikatuin, sitäkin. Ja jotenkin muutoinkin.). Elämään evästä ja pohdintoja pintaa syvemmältä voit lukea vaikka täältä. Luomakunnan Äiti ja Isä, Aurinko ja Vuori. Väärästä kiinnittym...

beautifulunexpectedjourney.blogspot.com

A Beautiful Unexpected Journey: March 2012

http://beautifulunexpectedjourney.blogspot.com/2012_03_01_archive.html

A Beautiful Unexpected Journey. Taleigha Karyce, Where It All Began. Cri Du Chat Syndrome. We must be willing to let go of the life we planned. so that we can have the life that is waiting for us! Monday, March 19, 2012. We started our journey with Habitat for Humanity back in January of 2011. It feels like it has taken forever to be able to say this, but the build of our house is finally underway! I don't think that there are even words to express our excitement! We drove past our house. That is an unde...

beautifulunexpectedjourney.blogspot.com

A Beautiful Unexpected Journey: February 2012

http://beautifulunexpectedjourney.blogspot.com/2012_02_01_archive.html

A Beautiful Unexpected Journey. Taleigha Karyce, Where It All Began. Cri Du Chat Syndrome. We must be willing to let go of the life we planned. so that we can have the life that is waiting for us! Tuesday, February 14, 2012. Anxiety and a Few Tears. Even as I sit here, there is an intense level of anxiety that I feel is completely taking over. How do I control something that seems to be so far out. Only day four, but again, there has been no. Change. Nothing changes! There has to be a solution, right?

myriversride.wordpress.com

Cri du Chat Syndrome | My Rivers Ride

https://myriversride.wordpress.com/cri-du-chat-syndrome-2

A great WordPress.com site. Mosaicism Cri du Chat Syndrome (CdCS). Cri du Chat Syndrome. My friends with Cri du Chat Syndrome. Cri du Chat Syndrome. Cri du Chat Syndrome. Dr Lejeune died April 3, 1994. What is Cri du Chat Syndrome? When something goes wrong with the chromosome in the process of creating a new human being, the code cannot be read properly and the child’s body and brain may not develop correctly. When a problem results from this genetic mistake it is called a genetic disorder. There are mo...

myriversride.wordpress.com

Hot Tips | My Rivers Ride

https://myriversride.wordpress.com/hot-tips

A great WordPress.com site. Mosaicism Cri du Chat Syndrome (CdCS). Cri du Chat Syndrome. My friends with Cri du Chat Syndrome. The most important tip and reminder is the 4 R’s! Rights, Responsibilities, Recordkeeping. Know your child’s rights and your own. Don’t be in denial about a possibility diagnosis- the other could help you get your child’s services that are needed. Reach out to other parents. Apply for some services that maybe needed later in life very early as there may be a wait list. Watch your...

myriversride.wordpress.com

My Rivers Ride | My Rivers Ride

https://myriversride.wordpress.com/author/myriversride

A great WordPress.com site. Mosaicism Cri du Chat Syndrome (CdCS). Cri du Chat Syndrome. My friends with Cri du Chat Syndrome. Author Archives: My Rivers Ride. About My Rivers Ride. CHanges Updates and More. December 31, 2014. Sorry it has been such a long time since I have posted. So much has been going on I can actually say it was crazy and finally settled! Some holes in the raft, to seasons changing, to detours that needed … Continue reading →. Child with special needs. You can’t get me! August 9, 2013.

beautifulunexpectedjourney.blogspot.com

A Beautiful Unexpected Journey: December 2011

http://beautifulunexpectedjourney.blogspot.com/2011_12_01_archive.html

A Beautiful Unexpected Journey. Taleigha Karyce, Where It All Began. Cri Du Chat Syndrome. We must be willing to let go of the life we planned. so that we can have the life that is waiting for us! Saturday, December 17, 2011. In the morning, we praised Taleigha for doing such a great job! Like I stated before, she was definitely my little trooper. She was so happy to get all of the probes removed. She ate breakfast, got cleaned up, and it was off for home! I know that God is helping me and guiding me,.

beautifulunexpectedjourney.blogspot.com

A Beautiful Unexpected Journey: April 2013

http://beautifulunexpectedjourney.blogspot.com/2013_04_01_archive.html

A Beautiful Unexpected Journey. Taleigha Karyce, Where It All Began. Cri Du Chat Syndrome. We must be willing to let go of the life we planned. so that we can have the life that is waiting for us! Monday, April 29, 2013. For real this time! 160; Prepare yourself, as this post may be lengthy! 160; I will admit that. But anxious! 160; No. In my head? 160; But with two young girls, we all know that is impossible)! 160; Some days, I struggle just to get out of bed! 160; I know that I give both of my girls ...

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My Dance in the Rain | The journey of my life, learning the ropes of motherhood raising seven children. A special little girl with Cri du Chat Syndrome and Primary Ciliary Dyskenisia. All while trying to find myself along the way; Crazy is my normal!

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