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Myeloma HopeMinnesota Don discusses treatments for multiple myeloma and his own experiences with them.
http://myelomahope.blogspot.com/
Minnesota Don discusses treatments for multiple myeloma and his own experiences with them.
http://myelomahope.blogspot.com/
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Myeloma Hope | myelomahope.blogspot.com Reviews
https://myelomahope.blogspot.com
Minnesota Don discusses treatments for multiple myeloma and his own experiences with them.
myelomahope.blogspot.com
Myeloma Hope: 03/01/2015 - 04/01/2015
http://myelomahope.blogspot.com/2015_03_01_archive.html
Wednesday, March 11, 2015. A couple of weeks ago Mayo sent me a cube-shaped box (kit), perhaps 10 inches on all sides, containing five vials, instructions, a FedEx overnight return label, and a freezable gel block about the size of a pound of hamburger. Instructions said to do the draw on March 9. Just to check, I stopped in at the clinic a week or so ago, showed them the box, and asked about the kit draw. "Oh yeah, we do that all the time," was the response. I froze the gel. Links to this post. I have b...
Myeloma Hope: Day One of Cycle One
http://myelomahope.blogspot.com/2015/04/day-one-of-cycle-one.html
Wednesday, April 22, 2015. Day One of Cycle One. I'm now on a study of a new drug (Primary drug), along with dexamethasone (Dex). I take both once per week for three weeks, then one week off from the Primary drug, then repeat that cycle. Dex with the evening meal: ten tiny 4-mg tablets = 40 mg. Wait an hour and a half after finishing the meal and my one beer. I asked - the pharmacist said beer is food. Tsk. Take a Kytril tablet (Granisetron) against possible nausea. Wait another half hour. My biggest con...
Myeloma Hope: End of Cycle One
http://myelomahope.blogspot.com/2015/05/end-of-cycle-one.html
Wednesday, May 20, 2015. End of Cycle One. Tuesday, May 19, 2015:. Nothing much yet. Today my IgG was 1230 mg/dL, actually up just slightly (within measurement tolerance) from recent months, and M-spike was 1.2 g/dL, about the same as recent months. No change there, but still stable. Dr L did not seem concerned, pointing out that this regimen isn't as likely as other regimens to produce quick, dramatic results. We'll just have to wait another month. Steady as she goes. I'll be a patient patient. Neverthe...
Myeloma Hope: Day 6 of Cycle One
http://myelomahope.blogspot.com/2015/04/day-6-of-cycle-one.html
Monday, April 27, 2015. Day 6 of Cycle One. Good CBC. As part of my new myeloma regimen, we do a CBC with differential at the end of each of the first three weeks, just before taking the next dose of the Primary Drug. I get that done at the local clinic, with the results sent to Mayo Clinic. I'm not a doctor, but I know what my doctors want to see in the CBC, and by that standard I'm doing great:. Subscribe to: Post Comments (Atom). Don Is Now On. View my complete profile. This blog started in May, 2007.
Myeloma Hope: End of Cycle Two
http://myelomahope.blogspot.com/2015/06/end-of-cycle-two.html
Tuesday, June 23, 2015. End of Cycle Two. Tuesday, June 16, 2015:. I have been on a trial of a new oral regimen for two months now, and I am a little disappointed to report that there is no significant change in my numbers. My IgG dropped from 1230 to 1190 mg/dL this month, and M-Spike from 1.2 to 1.1 g/dL, but both of those values are well within their recent variability. The good news is that the numbers didn't go up! In the meantime I am physically quite active with. Running, cycling, and lawn mowing,...
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Best Day of the Year: Easter 2014
http://bestdayoftheyear.blogspot.com/2014/04/easter-2014.html
Best Day of the Year. Journal: Running, Spirituality, Encouragement, Myeloma, Survival, Blessings. Sunday, April 20, 2014. Pastor Sarah Breckenridge reading the Easter Gospel at St. Andrew's Lutheran Church in Mahtomedi Minnesota. Orchestra and choirs, American Sing Language interpreted. Ice finally went out on the lake on Easter Sunday. Mallards (and egrets) were swimming in the park when we went for our hour run after church. We appreciated seeing three precious grandnieces and a nephew today.
Best Day of the Year: Fargo Marathon - May 10, 2014
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Best Day of the Year. Journal: Running, Spirituality, Encouragement, Myeloma, Survival, Blessings. Friday, May 23, 2014. Fargo Marathon - May 10, 2014. Starting line on the interstate bridge between North Dakota and Minnesota. Norwegian accordian band (note the troll standing guard along the curb). Course was well marked, except we half marathoners were directed (repeatedly) into the lane marked for elete runners. Start of the races. Many bands cheered runners on the way. Spectators lined the streets.
Best Day of the Year: Christmas 2013
http://bestdayoftheyear.blogspot.com/2014/01/christmas-2013.html
Best Day of the Year. Journal: Running, Spirituality, Encouragement, Myeloma, Survival, Blessings. Monday, January 13, 2014. Flowers from Trader Joes. Uncle Bob, self-decorated. Kity in a gift box. Whose woods are these. I think I know. fill up with snow" Robert Frost. Thanks for sharing your photos. I had to smile at the kitty in a gift box.what is it about boxes that just call out for cats? January 13, 2014 at 11:52 AM. Subscribe to: Post Comments (Atom). Sweet Pea at Indoor Races. Blogs I Like to Read.
Best Day of the Year: Images of Ann Arbor Marathon & Half
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Best Day of the Year. Journal: Running, Spirituality, Encouragement, Myeloma, Survival, Blessings. Sunday, March 30, 2014. Images of Ann Arbor Marathon and Half. Temperature after the race. Beer glasses for age group awards. Half marathon finisher's medal. Labels: Ann Arbor Marathon. Subscribe to: Post Comments (Atom). Sweet Pea at Indoor Races. Sweet Pea (conversational in American Sign Language) is the computer technician, posting all pictures. View my complete profile. Indoor races in January.
Transplants | Multiple Myeloma Blog
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Please Subscribe to get a daily link to Pat's blog via email. Your privacy is important to us. We will never spam you and keep your personal data secure. RSS feed for this section. I’m not dead yet! Posted on February 08 2016 by Pat Killingsworth. The commonly used name here for plasmapheresis is plasma exchange. I”m being hooked up for my third, three hour round of plasma exchange. Honestly, I’m in pretty bad shape. Tough day for me and my blood. Posted on February 06 2016 by Pat Killingsworth. It’...
2016 Pat's Myeloma Beach Party | Multiple Myeloma Blog
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Please Subscribe to get a daily link to Pat's blog via email. Your privacy is important to us. We will never spam you and keep your personal data secure. 2016 Pat’s Myeloma Beach Party. Add to your calendar. 2016 PAT'S MYELOMA SURVIVAL SCHOOL. Friday, Apr 1,2016 - Sunday, Apr 3,2016. Time: 6:00am - 11:45pm. Pat's Myeloma Survival School. Check In Begins Friday, April 1st, Noon-1:30pm Registration Includes:. Do you want to Sponsor Someone? 201 Jean Lafitte Blvd. Fernandina Beach, 32034.
Supplements/Drugs | Multiple Myeloma Blog
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Please Subscribe to get a daily link to Pat's blog via email. Your privacy is important to us. We will never spam you and keep your personal data secure. RSS feed for this section. How and when to take dexamethasone. Posted on January 07 2016 by Pat Killingsworth. Canadian patients need help getting daratumumab. Posted on December 23 2015 by Pat Killingsworth. Financial aid: Takeda wants to help. Lets work together. Posted on November 25 2015 by Pat Killingsworth. Tags: Dr. Orlowski. Following the news t...
Archives | Multiple Myeloma Blog
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Please Subscribe to get a daily link to Pat's blog via email. Your privacy is important to us. We will never spam you and keep your personal data secure. Pat's Myeloma Survival School. Allogeneic stem cell transplant. Autologous stem cell transplant. First relapse to transplant. Living With Multiple Myeloma. Andrew Schorr's Patient Power. Dr James Berenson discusses innovative anti-myeloma therapies. Ed's Myeloma Blog. Gary Petersen's Myeloma Survival Blog. Leukemia and Lymphoma Society.
RIP | Multiple Myeloma Blog
http://multiplemyelomablog.com/category/rest-in-peace
Please Subscribe to get a daily link to Pat's blog via email. Your privacy is important to us. We will never spam you and keep your personal data secure. RSS feed for this section. Tags: losing a loved one to cancer. We need more open and honest conversations about multiple myeloma. Posted on January 22 2016 by Pat Killingsworth. Cancer patients lost a hero this week. Posted on January 12 2016 by Pat Killingsworth. Rest in peace dearest Sara. Posted on January 08 2016 by Pat Killingsworth. As often happe...
Therapy | Multiple Myeloma Blog
http://multiplemyelomablog.com/category/therapy
Please Subscribe to get a daily link to Pat's blog via email. Your privacy is important to us. We will never spam you and keep your personal data secure. RSS feed for this section. I’m not dead yet! Posted on February 08 2016 by Pat Killingsworth. The commonly used name here for plasmapheresis is plasma exchange. I”m being hooked up for my third, three hour round of plasma exchange. Honestly, I’m in pretty bad shape. Tough day for me and my blood. Posted on February 06 2016 by Pat Killingsworth. It’...
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myelomafrailtyscorecalculator.net
MYELOMA FRAILTY SCORE CALCULATOR
NL: 31 (0)10 7038410 USA: 1 617 342 7098 http:/ www.skylinedx.com/. Create a new account. Your request has been registered. We sent an email to complete your registration. Create a new account. MYELOMA FRAILTY SCORE CALCULATOR. Developed by International Myeloma Working Group for the prognosis of elderly myeloma patients. The score system (range 0-5), based on age, comorbidities, cognitive and physical conditions, developed by Palumbo A. et al. Identifies 3 groups of patients:.
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Myeloma Honor Roll
Everyone on this list is a hero in the war against multiple myeloma, an incurable, universally-fatal cancer. We remember them here. Monday, January 31, 2011. May All Who Have Suffered Find Peace. Husband of Nedra, dx 18 Dec 2002, died 20 May 2004 at age 68. Roger Abler, husband of Margaret, died 8 Oct 2001 at age 71. Mother of Jim, dx Mar 2002, died 30 Nov 2003 at age 77. Father of Sandy Adzgery, dx 29 Jan 2001, died 20 Mar 2001 at age 72. Husband of Machiko, dx 14 Jun1992, died 2 Sep 2000 at age 64.
Myeloma Hope
Sunday, September 17, 2017. Pomalyst has been part of my treatment regimen, 2 mg daily, for all but one of the last nine years. For the past two months my doc and I have tried cutting that to 2 mg for 21 of each 28 days, with no discernible increase in M-Spike or IgG. Perhaps we'll reduce it more, we'll see. Some inflammation at the bottom of the esophagus. This matches my own symptoms of occasional acid reflux. Something to deal with. Stable, chronic thyroiditis. Yup. Dealing with it. Links to this post.
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MYELOMA STATE OF THE ART 2016
MYELOMA STATE OF THE ART 2016. The Myeloma State of the Conference 2016 is closed now. We thank the faculty and delegates to make it grand success. The abstracts can be downloaded from here.
Myeloma Journey
A journey dealing with Multiple Myeloma, from the viewpoint of the wife. The road is sometimes a smooth highway and sometimes a bumpy dirt trail. But we are never lost. God walks with us. Doug was diagnosed with Multiple Myeloma in August 2008. As of October 2011, Doug's Myeloma has morphed into Lambda Light Chain Myeloma. Saturday, December 2, 2017. Heading into another relapse. This leg of the journey is not that different from what we've experienced before, but it feels stressful. He wants to keep Dou...
IMF - International Myeloma Foundation - Mieloma Múltiplo Home
Estamos aquí para ayudar a todos aquellos que están luchando contra el mieloma - pacientes,. Familiares, amigos, cuidadores y la comunidad médica y científica. Sobre el Mieloma Múltiple. Diferentes tipos de mieloma. Estadiaje del mieloma y diagnóstico. Preguntas que debe hacer a su médico. CÓMO IMF PUEDE AYUDARLO. LO QUE SE NECESITA SABER. Regístrese para recibir noticias de la participación de mieloma. Sobre el Mieloma Múltiple. Diferentes tipos de mieloma. Estadiaje del mieloma y diagnóstico. La decisi...
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