myjourneyintoholland.blogspot.com

My Journey Into Holland

My Journey Into Holland. This is about my journey into "Holland" and my experiences with my daughter, Elizabeth. Elizabeth has multiple disabilties - Dandy Walker Malformation, hepatic fibrosis, vison impairment, seizures, aspiration/swallowing issues, low tone and developmental delay - but she doesn't let that slow her down! We have had a pretty crazy journey, but it's been a learning experience and an absolutely wonderful ride. Saturday, July 21, 2012. We have a diagnosis. Wednesday, July 18, 2012.

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My Journey Into Holland | myjourneyintoholland.blogspot.com Reviews

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My Journey Into Holland. This is about my journey into Holland and my experiences with my daughter, Elizabeth. Elizabeth has multiple disabilties - Dandy Walker Malformation, hepatic fibrosis, vison impairment, seizures, aspiration/swallowing issues, low tone and developmental delay - but she doesn't let that slow her down! We have had a pretty crazy journey, but it's been a learning experience and an absolutely wonderful ride. Saturday, July 21, 2012. We have a diagnosis. Wednesday, July 18, 2012.

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6 we're still here

7 the journey continues

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My Journey Into Holland | myjourneyintoholland.blogspot.com Reviews

https://myjourneyintoholland.blogspot.com

My Journey Into Holland. This is about my journey into "Holland" and my experiences with my daughter, Elizabeth. Elizabeth has multiple disabilties - Dandy Walker Malformation, hepatic fibrosis, vison impairment, seizures, aspiration/swallowing issues, low tone and developmental delay - but she doesn't let that slow her down! We have had a pretty crazy journey, but it's been a learning experience and an absolutely wonderful ride. Saturday, July 21, 2012. We have a diagnosis. Wednesday, July 18, 2012.

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myjourneyintoholland.blogspot.com

1

My Journey Into Holland: Wow, has it been that long?

http://www.myjourneyintoholland.blogspot.com/2012/01/wow-has-it-been-that-long.html

My Journey Into Holland. This is about my journey into "Holland" and my experiences with my daughter, Elizabeth. Elizabeth has multiple disabilties - Dandy Walker Malformation, hepatic fibrosis, vison impairment, seizures, aspiration/swallowing issues, low tone and developmental delay - but she doesn't let that slow her down! We have had a pretty crazy journey, but it's been a learning experience and an absolutely wonderful ride. Monday, January 9, 2012. Wow, has it been that long? Tolerated petting the ...

2

My Journey Into Holland: December 2010

http://www.myjourneyintoholland.blogspot.com/2010_12_01_archive.html

My Journey Into Holland. This is about my journey into "Holland" and my experiences with my daughter, Elizabeth. Elizabeth has multiple disabilties - Dandy Walker Malformation, hepatic fibrosis, vison impairment, seizures, aspiration/swallowing issues, low tone and developmental delay - but she doesn't let that slow her down! We have had a pretty crazy journey, but it's been a learning experience and an absolutely wonderful ride. Tuesday, December 14, 2010. Quick check in at Houston. Bird On the Street.

3

My Journey Into Holland: We're still here!!

http://www.myjourneyintoholland.blogspot.com/2012/07/were-still-here.html

My Journey Into Holland. This is about my journey into "Holland" and my experiences with my daughter, Elizabeth. Elizabeth has multiple disabilties - Dandy Walker Malformation, hepatic fibrosis, vison impairment, seizures, aspiration/swallowing issues, low tone and developmental delay - but she doesn't let that slow her down! We have had a pretty crazy journey, but it's been a learning experience and an absolutely wonderful ride. Wednesday, July 18, 2012. Subscribe to: Post Comments (Atom).

4

My Journey Into Holland: March 2011

http://www.myjourneyintoholland.blogspot.com/2011_03_01_archive.html

My Journey Into Holland. This is about my journey into "Holland" and my experiences with my daughter, Elizabeth. Elizabeth has multiple disabilties - Dandy Walker Malformation, hepatic fibrosis, vison impairment, seizures, aspiration/swallowing issues, low tone and developmental delay - but she doesn't let that slow her down! We have had a pretty crazy journey, but it's been a learning experience and an absolutely wonderful ride. Wednesday, March 16, 2011. Horses, horses, horses. Thursday, March 3, 2011.

5

My Journey Into Holland: We have a diagnosis

http://www.myjourneyintoholland.blogspot.com/2012/07/we-have-diagnosis.html

My Journey Into Holland. This is about my journey into "Holland" and my experiences with my daughter, Elizabeth. Elizabeth has multiple disabilties - Dandy Walker Malformation, hepatic fibrosis, vison impairment, seizures, aspiration/swallowing issues, low tone and developmental delay - but she doesn't let that slow her down! We have had a pretty crazy journey, but it's been a learning experience and an absolutely wonderful ride. Saturday, July 21, 2012. We have a diagnosis. View my complete profile.

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ejbamommy.blogspot.com

JOURNEY TO US: Eli's Journey

http://ejbamommy.blogspot.com/p/elis-story.html

Books, Toys, and Goodies. This may not be the best organized story. It may not flow well. But our journey hasn't flowed perfectly. It’s been a bumpy road, and continues to be. I will keep this page updated and try over time to smooth out some of the writing. But for now this gives our bumpy journey in some sort of order. January 2010 was spent at doctor’s offices and labs. Eli couldn't seem to gain weight. He kept choking and gagging and throwing up. The NG tube was in and out. Noth...Then came March 201...

ejbamommy.blogspot.com

JOURNEY TO US: Goals

http://ejbamommy.blogspot.com/2014/08/goals.html

Books, Toys, and Goodies. Tuesday, August 26, 2014. Goals Most of us have them. Sometimes we meet them, sometimes we don't. Sometimes we forget we even set goals days later. Finally I said enough. This cycle had to stop. I was simply setting myself up for failure over and over again. I joined a monthly mileage group, I started posting every single mile on a document for my online running group to see. I started telling people what my goals were. This month I won't reach my utmost goal. My fall Sunday has...

ejbamommy.blogspot.com

JOURNEY TO US: Eli's Final Journey

http://ejbamommy.blogspot.com/2014/04/eli-final-journey.html

Books, Toys, and Goodies. Friday, April 25, 2014. I have gone round and round in my mind if I'm going to share this video publicly or not. Some of my closest medical mommas have seen it but that's all. I have held onto it for almost 1 yr, as this video was made a week or two after Eli's funeral. I have decided now, on this day, 1 yr after my son was wheeled into his final surgery, to share. This is my tiny man's final journey. This was our family's journey. This was our life. Love you guys 3. Subscribe t...

ejbamommy.blogspot.com

JOURNEY TO US: Silence

http://ejbamommy.blogspot.com/2014/08/silence.html

Books, Toys, and Goodies. Monday, August 11, 2014. We are here again. The kids start school tomorrow. I'm torn. I have the mommy excitement of some quiet time, some time to clean house without having them come along 2 steps behind, the pride of them starting another year in school, the accomplishment. But I also have the flip side. Tomorrow begins another cycle of me here, home alone, wondering what I'm supposed to do. What my purpose is. Subscribe to: Post Comments (Atom). Books, Toys, and Goodies!

ejbamommy.blogspot.com

JOURNEY TO US: Flickers of Light

http://ejbamommy.blogspot.com/2015/03/flickers-of-light.html

Books, Toys, and Goodies. Friday, March 27, 2015. I haven't blogged in months. For quite a bit of that time I was in a pretty deep funk. The holidays were hard, really hard. The longer it's been since losing Eli the harder it seems to be. I really sank into a pretty dark hole, and the world had moved on and didn't really seem to notice. I tried my hardest to engulf myself in life and did a pretty good job of faking it when I needed to be out and interacting in public. April 28th is fast approaching. ...

ejbamommy.blogspot.com

JOURNEY TO US: What happened??

http://ejbamommy.blogspot.com/2013/05/what-happened.html

Books, Toys, and Goodies. Tuesday, May 7, 2013. This will be disorganized. things won't be spelled right. punctuation will be wrong. sentences will be wrong. i simply have to type the words. feeling may show so strongly at points and others may sound so numb. this is the best i can do now. We were supposed to have more time. we weren't on hospice. this shouldn't be our story. They sent Eli home Friday April 26th around 6pm. The attending begged his primary doc to take over at home care. We got ho...Aroun...

ejbamommy.blogspot.com

JOURNEY TO US: Inspiration

http://ejbamommy.blogspot.com/2014/08/inspiration.html

Books, Toys, and Goodies. Wednesday, August 13, 2014. It's here. Today's the day. They are all 4 gone to school. I did pretty decent today. I have received many messages this week telling me how amazing I am, how much I inspire them, how I make them a better parent, how strong I am. I did NOT have my life together. It wasn't smooth sailing. I was in no condition to be looked up too, I wasn't a example of the "proper way to navigate grief". I was failing. I don't have it all together. If our story, if our...

ejbamommy.blogspot.com

JOURNEY TO US: Cold and Warm @ Target

http://ejbamommy.blogspot.com/2014/11/cold-and-warm-target.html

Books, Toys, and Goodies. Tuesday, November 11, 2014. Cold and Warm @ Target. Yesterday was 3 weeks until Eli's 5th birthday, yet we only got to celebrate 3 with him in our arms. Today it's all of a sudden turned cold. The leaves are falling off the tree. There is talk of snow. Winter is right around the corner. Eli loved the cold. It was his time of year. Thanksgiving. Eli's birthday. Christmas. Tears poured down my face the entire drive home. These last few months I have gotten away from doing these li...

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My Journey Into Holland

My Journey Into Holland. This is about my journey into "Holland" and my experiences with my daughter, Elizabeth. Elizabeth has multiple disabilties - Dandy Walker Malformation, hepatic fibrosis, vison impairment, seizures, aspiration/swallowing issues, low tone and developmental delay - but she doesn't let that slow her down! We have had a pretty crazy journey, but it's been a learning experience and an absolutely wonderful ride. Saturday, July 21, 2012. We have a diagnosis. Wednesday, July 18, 2012.

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