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My Life My Voice | The Teen NMD Study

The Teen NMD Study

http://www.mylifemyvoice.org/

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My Life My Voice | The Teen NMD Study | mylifemyvoice.org Reviews
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The Teen NMD Study
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6 transition resources
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My Life My Voice | The Teen NMD Study | mylifemyvoice.org Reviews

https://mylifemyvoice.org

The Teen NMD Study

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Autumn 2015 | My Life My Voice

https://mylifemyvoice.org/2015/05/30/autumn-2015

My Life My Voice. The Teen NMD Study. How many teenagers are doing this? What’s in it for you? The Questionnaire and the ICF:. About who’s doing this research. Who is helping with this research:. Who is co-ordinating this research:. It’s ok to talk. To NMD Best Practice/ Specialist Centres. Welcome all new visitors. We’ve just sent out information flyers to 14-19 year old teenagers via Princess Margaret Hospital for Children, Perth and the Women’s and Children’s Hospital, Adelaide. May 30, 2015.

2

Uncategorized | My Life My Voice

https://mylifemyvoice.org/category/uncategorized

My Life My Voice. The Teen NMD Study. How many teenagers are doing this? What’s in it for you? The Questionnaire and the ICF:. About who’s doing this research. Who is helping with this research:. Who is co-ordinating this research:. It’s ok to talk. To NMD Best Practice/ Specialist Centres. Learning and Learning…. Please let me know. And I’ll include it in the data. Click to share on Twitter (Opens in new window). Share on Facebook (Opens in new window). Click to share on Google (Opens in new window).

3

The callout has started! | My Life My Voice

https://mylifemyvoice.org/2014/11/04/the-callout-has-started

My Life My Voice. The Teen NMD Study. How many teenagers are doing this? What’s in it for you? The Questionnaire and the ICF:. About who’s doing this research. Who is helping with this research:. Who is co-ordinating this research:. It’s ok to talk. To NMD Best Practice/ Specialist Centres. The callout has started! The first flyers asking about your interest to join this research were sent snail mail to 14-19year old members of the MDWA (Sept), SMAAA, MDSA (Oct) and FSHD Global (Nov 2014). First particip...

4

To Patient Organisations | My Life My Voice

https://mylifemyvoice.org/links-3/links-2

My Life My Voice. The Teen NMD Study. How many teenagers are doing this? What’s in it for you? The Questionnaire and the ICF:. About who’s doing this research. Who is helping with this research:. Who is co-ordinating this research:. It’s ok to talk. To NMD Best Practice/ Specialist Centres. Click to share on Twitter (Opens in new window). Share on Facebook (Opens in new window). Click to share on Google (Opens in new window). Click to email (Opens in new window). Click to print (Opens in new window).

5

Conor Murphy | My Life My Voice

https://mylifemyvoice.org/its-ok-to-talk/conor-murphy

My Life My Voice. The Teen NMD Study. How many teenagers are doing this? What’s in it for you? The Questionnaire and the ICF:. About who’s doing this research. Who is helping with this research:. Who is co-ordinating this research:. It’s ok to talk. To NMD Best Practice/ Specialist Centres. Conor’s brothers Brendan and Eamon prepared his message to teens living with NMD. Conor Murphy named this research My Life My Voice in May 2014. Click to share on Twitter (Opens in new window). Send to Email Address.

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Call for patients: highlighted research projects | Australasian Neuromuscular Network

http://www.ann.org.au/call-for-patients

Australasian Neuromuscular Network blog site. Background to the ANN. 1 Year & 5 Year Goals. Allied Health and Nursing Alliance (AHNA). Annual scientific report 2013. Annual Scientific Report 2012. Call for patients: highlighted research projects. Resources for Health Professionals. Charcot-Marie-Tooth: why feet matter. A resource for allied health professionals. Limb girdle muscular dystrophies. Scoliosis in neuromuscular disorders. Muscular dystrophy (emergency response). New Zealand DMD Registry. Patie...

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