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MYOSITIS MUSINGS HOMEPAGE

Size of third legs, mental gymnastics and more. The Hospital for Special Surgery in New York. The Muscular Dystrophy Association. Roly Clulow's Survive Myositis Site. This is Michael, Dagmar's son, writing on her behalf. It is with great sadness that I let you know that she has left this world in June of 2016 for her next adventure. Here is a link to her obituary in the Quincy Patriot Ledger. You can see Dagmar's yearly updates from previous years by clicking on the links below. The user name is.

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MYOSITIS MUSINGS HOMEPAGE | myomusings.com Reviews

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Size of third legs, mental gymnastics and more. The Hospital for Special Surgery in New York. The Muscular Dystrophy Association. Roly Clulow's Survive Myositis Site. This is Michael, Dagmar's son, writing on her behalf. It is with great sadness that I let you know that she has left this world in June of 2016 for her next adventure. Here is a link to her obituary in the Quincy Patriot Ledger. You can see Dagmar's yearly updates from previous years by clicking on the links below. The user name is.

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MYOSITIS MUSINGS HOMEPAGE | myomusings.com Reviews

https://myomusings.com

Size of third legs, mental gymnastics and more. The Hospital for Special Surgery in New York. The Muscular Dystrophy Association. Roly Clulow's Survive Myositis Site. This is Michael, Dagmar's son, writing on her behalf. It is with great sadness that I let you know that she has left this world in June of 2016 for her next adventure. Here is a link to her obituary in the Quincy Patriot Ledger. You can see Dagmar's yearly updates from previous years by clicking on the links below. The user name is.

INTERNAL PAGES

myomusings.com

1

MYOSITIS MUSINGS - MY STORY 2014 UDPATE

http://www.myomusings.com/myoupdate2014.htm

Quotes, Poetry and Stories. Me and Bill last September at the 2013 Walk. This update comes rather belated this year, but as you will read below, quite a bit has happened and needs to be reported about my ongoing journey with IBM. This past year has proven to be a balancing act for me; it is as if I have been balancing my way along a very narrow mountain ridge with steep drop offs on both sides. Huge changes from one day to the next! I do not find it easy to post about this but I do owe it to everyone here.

2

MYOSITIS MUSINGS - MY STORY 2015 UDPATE

http://www.myomusings.com/myoupdate2015.htm

Quotes, Poetry and Stories. Like many others, my life has ups and downs, but somehow I always seem to find the strength inside of me to persevere and keep going, no matter what. My ability to have a positive attitude is a gift too; one I am only now becoming aware off. My family is learning to accept bits of wisdom from "this wise old crone" as I like to call myself these days! In case you are wondering why I chose an Easy Pivot lift instead of a ceiling lift system, the architecture of our home would no...

3

MYOSITIS MUSINGS - MY STORY 2009 UDPATE

http://www.myomusings.com/myoupdate2009.htm

Quotes, Poetry and Stories. MY SECOND YEARLY UPDATE. March 28, 2009. This year marks the 20. Year of my having to deal with myositis. It was first diagnosed in 1989 as Polymyositis and then changed to the diagnosis of Inclusion Body Myositis in 1998. Like they say: I have come a long way! But that has become my reality at this point. If I was not aware of this myself the frequent fatigue and my achy body would be a swift reminder. Transport chair with pillow, without pillow, and ready for the car. I also...

4

MYOSITIS MUSINGS - MY STORY 2010 UDPATE

http://www.myomusings.com/myoupdate2010.htm

Quotes, Poetry and Stories. April 10, 2010. A beautiful fall day. All in all, I would say that I found it harder to make peace with the loss of hand functions and dexterity than I have with the loss of strength in my legs and the ability to walk. Speaking of these extremities: my hands and feet are always ice cold! The chair that helps me into the pool. The Ride allows me to get around town.or even into the city. This past month I had the opportunity to exchange one of my Jet-3 chairs which was a 2003 mo...

5

MYOSITIS MUSINGS - MY STORY 2012 UDPATE

http://www.myomusings.com/myoupdate2012.htm

Quotes, Poetry and Stories. April 4, 2012. Myositis Walk - September 2011. Another year has passed, and I've continued to travel on my journey with my constant companion, IBM. (Inclusion Body Myositis). Staying with this subject, I found out recently that there is a hand surgery option, called tendon transfer surgery for IBM patients. This can restore finger function to the point of being able to once again tie shoes, button clothes, use zippers and more. Amen to that! Me exiting the new van. In December...

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lifedisabled.com

Bedroom – Life! disabled

http://lifedisabled.com/category/daily-living/bedroom

Tips, tools and inspiration for the physically challenged. Sleeping, Dressing, etc. Chronicles of Disability: Twenty Years Since Diagnosis of IBM. San Diego Access Issues. On the left, the way we were in 1996. On the right, with some of my grandchildren and great grandchildren, late last year. Twenty years ago I didn’t think there was much wrong with me. Yes I was slowing down in my running, and my golf shots seemed to be getting shorter, and I did fall once in a while, so what? By the way, one of the sp...

lifedisabled.com

Mobility – Life! disabled

http://lifedisabled.com/category/mobility

Tips, tools and inspiration for the physically challenged. Getting around when your legs aren’t much help. Chronicles of Disability: Twenty Years Since Diagnosis of IBM. San Diego Access Issues. On the left, the way we were in 1996. On the right, with some of my grandchildren and great grandchildren, late last year. I was 55 years old, just normal aging? My current home features the ultimate “open floor plan”. My wheelchair loves it. By the way, one of the special pleasures I get these days is when someo...

lifedisabled.com

Beth – Life! disabled

http://lifedisabled.com/category/beth

Tips, tools and inspiration for the physically challenged. The last days of my beautiful wife who passed away October 11, 2012. J Michael Shirk Obituary. When Mike was no longer able to paint he turned his focus back to writing, sharing his experiences of living with disability. In 2010, Mike started his blog, Life! A gathering to celebrate Mike’s life will be held at his daughter’s home in Poway on Monday, August 29, at 3PM. For more information, please contact mshirksd@gmail.com. I was diagnosed with i...

livingwithmyositis.wordpress.com

Annette Starr | Living With Myositis

https://livingwithmyositis.wordpress.com/inclusionbodymyositis/annette-starr

Myositis is a neuro muscular disorder. Dysferlinopathy misdiagnosed as Polymyositis. IBM Inclusion Body Myositis. Dagmar Slaven updated 04-04-14. This was a comment posted in the comments section in answer to Michael Harper’s post. Annette in San Diego. Let me know you were here. leave a comment Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Email (Address never made public). You are commenting using your WordPress.com account. ( Log Out. Get it. Write.

livingwithmyositis.wordpress.com

Helpful Links | Living With Myositis

https://livingwithmyositis.wordpress.com/helpful-links

Myositis is a neuro muscular disorder. Dysferlinopathy misdiagnosed as Polymyositis. IBM Inclusion Body Myositis. Dagmar Slaven updated 04-04-14. Helpful links to sites. Http:/ myositisinfocus.weebly.com/. Http:/ www.hopkinsmyositis.org/. Http:/ sites.google.com/site/powachair/. My efforts at writing a book. Http:/ www.ezenbidet.com/contents 02/contents 03.html. SA site for wash and dry toilet /bidet seats. Http:/ valuecare.co.za/. SA site for wheelchairs and other assistive devices and help aids. You ar...

itsmyositis.blogspot.com

it's myositis: Myositis Outcomes from NINDS

http://itsmyositis.blogspot.com/2013/06/myositis-outcomes-from-ninds.html

An inflammatory myopathy that affects the muscles. BOOKS ON MYOSITIS: Polymyositis, Dermatomyositis, Inclusion Body Myositis. Myositis Outcomes from NINDS. The DM Disease Activity Collaborative Study Group, and later the International Myositis Outcome Assessment Collaborative Study Group recommended development of outcome measures in all forms of IIM - I diopathic Inflammatory Myopathies -. In adults and children, and coordination and facilitation of clinical trials in adult and juvenile myositis. Please...

itsmyositis.blogspot.com

it's myositis: ACTIVITIES OF DAILY LIVING (ADL) CHECKLIST

http://itsmyositis.blogspot.com/2013/05/activities-of-daily-living-adl-checklist.html

An inflammatory myopathy that affects the muscles. BOOKS ON MYOSITIS: Polymyositis, Dermatomyositis, Inclusion Body Myositis. ACTIVITIES OF DAILY LIVING (ADL) CHECKLIST. The Checklist is provided to help you think of all the tasks you do and may need assistance with. This checklist is something you may find useful if you are starting to have difficulties with daily activities such as personal grooming like shaving or brushing your hair or preparing and cooking food. 8226; Rocker knife. 8226; Digital timer.

livingwithmyositis.wordpress.com

Dagmar Slaven updated 04-04-14 | Living With Myositis

https://livingwithmyositis.wordpress.com/inclusionbodymyositis/dagmar-slaven

Myositis is a neuro muscular disorder. Dysferlinopathy misdiagnosed as Polymyositis. IBM Inclusion Body Myositis. Dagmar Slaven updated 04-04-14. Dagmar Slaven updated 04-04-14. See Dagmar’s website here http:/ www.myomusings.com/. My diagnosis of Inclusion Body Myositis is perhaps easier to pronounce than many of the other rare diseases that fall under the big umbrella of muscle wasting diseases that the Muscular Dystrophy Association of America has supported over the years. This year marks the 20.

livingwithmyositis.wordpress.com

Dermatomyositis | Living With Myositis

https://livingwithmyositis.wordpress.com/dermatomyositis

Myositis is a neuro muscular disorder. Dysferlinopathy misdiagnosed as Polymyositis. IBM Inclusion Body Myositis. Dagmar Slaven updated 04-04-14. Dermatomyositis (DM) is a connective-tissue disease related to polymyositis. PM) that is characterized by inflammation. Of the muscles and the skin. X-ray. Findings sometimes include dystrophic calcifications. Another concern is interstitial lung disease. 8211; childhood to adulthood. 8211; gradual; immunosuppressant medications often effectively control sympto...

livingwithmyositis.wordpress.com

Carer’s Corner | Living With Myositis

https://livingwithmyositis.wordpress.com/carers-corner

Myositis is a neuro muscular disorder. Dysferlinopathy misdiagnosed as Polymyositis. IBM Inclusion Body Myositis. Dagmar Slaven updated 04-04-14. Http:/ en.wikipedia.org/wiki/Caregiver. UK, NZ, Australian usage) and caregiver. Is also used for the service provided. [1]. Terms such as “ voluntary caregiver. 8221; and “informal carer” are also used occasionally, but these terms have been criticized by carers as misnomers. 8220;, “personal assistant”, “healthcare assistant (HCA)” or ...More recently, Carers...

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MYOSITIS MUSINGS HOMEPAGE

Size of third legs, mental gymnastics and more. The Hospital for Special Surgery in New York. The Muscular Dystrophy Association. Roly Clulow's Survive Myositis Site. This is Michael, Dagmar's son, writing on her behalf. It is with great sadness that I let you know that she has left this world in June of 2016 for her next adventure. Here is a link to her obituary in the Quincy Patriot Ledger. You can see Dagmar's yearly updates from previous years by clicking on the links below. The user name is.

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