myotoniacongenita.com
Myotonia CongenitaInformation on Myotonia Congenita including Thomsen's Disease and Becker's Myotonia, with access to a forum for patients and their families
http://www.myotoniacongenita.com/
Information on Myotonia Congenita including Thomsen's Disease and Becker's Myotonia, with access to a forum for patients and their families
http://www.myotoniacongenita.com/
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Myotonia Congenita | myotoniacongenita.com Reviews
https://myotoniacongenita.com
Information on Myotonia Congenita including Thomsen's Disease and Becker's Myotonia, with access to a forum for patients and their families
myotoniacongenita.com
Myotonia Congenita
http://www.myotoniacongenita.com//index.htm
The Myotonia Congenita Project. Is hosted by Bravenet - it is only accessible through this website in order to maintain privacy. Once you are at the site, you can add the page to your favorites for quicker access. Letter for Health Care Providers. Word Document - English. PDF Format - English. Word Document - German. PDF Format - German. Word Document - Russian. PDF Format - Russian. Special thanks to Evelyn M. for the German translation. And Yegor L. for the Russian translation! Letter for School Staff.
James Lyons, Thomsen's Disease
http://www.myotoniacongenita.com/jamesl.htm
James L., Atlanta, Georgia. First memory of myotonia. How I was diagnosed. When I was younger, around 4 yrs old, I complained to my mother about muscle stiffness. She took me to our pediatrician, and he said that he couldn’t find out anything wrong. He said it was probably just an emotional problem. My father had a terrible temper, so that’s what they attributed it to. I guess they just ignored the problem until I entered grade school and started playing sports. I can remember where I was exactly the fir...
MC Documentary
http://www.myotoniacongenita.com/documentary.htm
James Lyons, a filmmaker and myotonia congenita patient in Atlanta, Georgia, has written a proposal and outline for a documentary about our condition. You can read the revised outline below and I will post updates as he continues with this project. Special thanks to Lois, Jody and Julie for their help!
New Page 1
http://www.myotoniacongenita.com/jody.htm
Jody, Minnesota, USA. This disease has affected every part of my life. My husband of 20 years couldnt handle my being sick all of the time and we divorced, I almost miscarried both my children and the Drs said No More after that!
Jackie, New Jersey
http://www.myotoniacongenita.com/jackie.htm
Jackie, New Jersey, USA. Unlocking the Cage of Denial: Acceptance. I didn’t and learned the hard way. It was my last soccer game ever; I tear up just thinking about it. I kicked my last kick; it was a nice one too! The mystery was why did this happen. I was told maybe I exerted my muscle by vigorous exercise. (Aren’t athletes supposed to exert their bodies? I went to 4 different neurologists in 8 years. The 1. But, thankfully the 4. Doctor was the charm. Obviously, my mind is not agreeing yet with the tr...
TOTAL PAGES IN THIS WEBSITE
7
Myotone Dystrophie - Muskelschwäche besonders der Hände und der Fußhebung
Aus dem Behandlungsschwerpunkt Neuromuskuläre Erkrankungen. Der Neurologischen Abteilung der Klinik Hoher Meissner. Weitere Medizinische Informationen und Links - auch speziell von. Neurologischen Abteilung der Klinik Hoher Meissner -. Von Dr. Carsten Schröter. In der Klinik Hoher Meissner werden Patienten mit Myotone. R Dystrophie von einem interdisziplinären Behandlungsteam, bestehend aus Ärzten, Krankengymnasten, Ergotherapeuten, Logopäden, Sozialarbeitern und Psychologen behandelt. Merkmalsträger geb...
Myotone | Microcurrent Facial Lifting, Toning, Wrinkle Reduction | Microcurrent, facial toning, wrinkle reduction and anti-aging device by Myotone. |
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:: Myotone Dystrofie Centrum Maastricht :: : Home
Welkom op de site van Myotone Dystrofie Centrum Maastricht. Deze informatie site is bedoeld voor patiënten met de diagnose myotone dystrofie type I en hun familie en vrienden, maar ook voor hulpverleners. Helaas is de ziekte niet bij iedereen bekend. Zowel patiënten als familieleden en hulpverleners weten vaak niet goed hoe ze met de ziekte om moeten gaan en wie ze om hulp moeten vragen. Daarnaast zullen we de nieuwe ontwikkelingen op wetenschappelijk gebied vermelden. Spierziekten Nederland heeft ook een.
UDRUGA MYOTONIA CONGENITA
Join us on Facebbook! The sound you have just heard is not the sound of a bomber but the so-called “myotonic roar”, the characteristic sound you hear during the EMG (electromyography) muscle test, with the persons who have congenital myotonia disease. The Association for Persons with Congenital Myotonia and Related Neuromuscular Diseases is registered with the State Administration Office of the City of Zagreb (Ured državne uprave grada Zagreba) and the inner structure is determined by its Statute. 8211; ...
MYOTONIA - WILLKOMMEN
Dienstag, 10. April 2018. Aus diesem Grund habe ich im Jahre 2007 MYOTONIA ins Leben gerufen. Seit dem gibt diese Website vielen Erkrankten und Angehörigen Mut und Kraft mit der Erkrankung zu leben und umzugehen. Diese Tatsachen geben wiederum mir Kraft dieses Projekt zu betreiben und weiter zu entwickeln! Myotonie Diagnose per Gentest. Die Myotonie kann am sichersten mit einem Gentest diagnostiziert werden. Hierzu gibt es folgende Kontakstelle:. Prof Dr. Dr.h.c. Frank Lehmann- Horn. Tel: 49 731 500-23251.
Myotonia Congenita
The Myotonia Congenita Project. Is hosted by Bravenet - it is only accessible through this website in order to maintain privacy. Once you are at the site, you can add the page to your favorites for quicker access. There is also a Facebook page for people with non-dystrophic myotonias which includes myotonia congenita as well as the sodium ion channel myotonias like paramytonia congenita, hyperkalemic periodic paralysis, and others. Myotonias - Non-Dystrophic Facebook Group. Word Document - English. Put f...
Myotonia Congenita
The Myotonia Congenita Project. Is hosted by Bravenet - it is only accessible through this website in order to maintain privacy. Once you are at the site, you can add the page to your favorites for quicker access. There is also a Facebook page for people with non-dystrophic myotonias which includes myotonia congenita as well as the sodium ion channel myotonias like paramytonia congenita, hyperkalemic periodic paralysis, and others. Myotonias - Non-Dystrophic Facebook Group. Word Document - English. Put f...
Myotonic Research
Classification and external resources. DM) is a chronic. Slowly progressing, highly variable inherited multisystemic disease. That can manifest at any age from birth to old age. It is characterized by wasting of the muscles (muscular dystrophy), posterior subcapsular iridescent cataracts. Opacity of the lens of the eyes), heart conduction defects, endocrine. There are two classifications of DM, each having different associated symptoms. Differences between DM1 and DM2. Differences between DM1 and DM2.
Myotonic Dystrophy Foundation | Care & A Cure
Skip to main content. How DM Affects Your Body. DM As a Family Disease. Family Planning with DM. Working with Your Doctor. 2018 MDF Annual Conference. Study and Trial Resource Center. Key DM Research Discoveries. Grant Opportunities and Awards. DM Research Newsletter Archive. How DM Affects Your Body. DM As a Family Disease. Family Planning with DM. Working with Your Doctor. 2018 MDF Annual Conference. Study and Trial Resource Center. Key DM Research Discoveries. Grant Opportunities and Awards. Join the ...
myotonicdystrophy-ourfamilysjourney.blogspot.com
Myotonic Dystrophy - Our Family's Journey
Myotonic Dystrophy - Our Family's Journey. Wednesday, April 1, 2015. Aiden and Brian's Annual trip to the Stan Cassidy Center for Rehabilitation. The boys made their annual trip to the Stan Cassidy Center for Rehabilitation, in Frederiction this week. For anyone not familiar with this Center here is a link to their site. SCCR. We are very fortunate to have these services available for us, here in Canada, at no cost to the boys and their family. Aiden showing off his ball throwing skills. After getting bo...
