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National Office (Open Tue-Thu 09:00 13:00):. What is Myotonic Dystrophy. Variations in Myotonic Dystrophy. How is Myotonic Dystrophy inherited? How Myotonic Dystrophy can affect your health. Myotonic Dystrophy type 2 (DM2). What causes Myotonic Dystrophy? Myotonic Dystrophy Type 1. Myotonic Dystrophy Type 2. Myotonic Dystrophy and the Brain. Myotonic Dystrophy and the Eye. UK DM Patient Registry. UK DM Patient Registry. We welcome new members and new ideas. Keep up to date with research in this field.

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National Office (Open Tue-Thu 09:00 13:00):. What is Myotonic Dystrophy. Variations in Myotonic Dystrophy. How is Myotonic Dystrophy inherited? How Myotonic Dystrophy can affect your health. Myotonic Dystrophy type 2 (DM2). What causes Myotonic Dystrophy? Myotonic Dystrophy Type 1. Myotonic Dystrophy Type 2. Myotonic Dystrophy and the Brain. Myotonic Dystrophy and the Eye. UK DM Patient Registry. UK DM Patient Registry. We welcome new members and new ideas. Keep up to date with research in this field.
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Home - Myotonic Dystrophy Support Group | myotonicdystrophysupportgroup.org Reviews

https://myotonicdystrophysupportgroup.org

National Office (Open Tue-Thu 09:00 13:00):. What is Myotonic Dystrophy. Variations in Myotonic Dystrophy. How is Myotonic Dystrophy inherited? How Myotonic Dystrophy can affect your health. Myotonic Dystrophy type 2 (DM2). What causes Myotonic Dystrophy? Myotonic Dystrophy Type 1. Myotonic Dystrophy Type 2. Myotonic Dystrophy and the Brain. Myotonic Dystrophy and the Eye. UK DM Patient Registry. UK DM Patient Registry. We welcome new members and new ideas. Keep up to date with research in this field.

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Conference booking form - Myotonic Dystrophy Support Group

http://www.myotonicdystrophysupportgroup.org/conference-booking-form

National Office (Open Tue-Thu 09:00 13:00):. What is Myotonic Dystrophy. Variations in Myotonic Dystrophy. How is Myotonic Dystrophy inherited? How Myotonic Dystrophy can affect your health. Myotonic Dystrophy type 2 (DM2). What causes Myotonic Dystrophy? Myotonic Dystrophy Type 1. Myotonic Dystrophy Type 2. Myotonic Dystrophy and the Brain. Myotonic Dystrophy and the Eye. UK DM Patient Registry. UK DM Patient Registry. Annual Conference Book Online. To speak to one of our advisors please call us on:.

2

About MDSG - Myotonic Dystrophy Support Group

http://www.myotonicdystrophysupportgroup.org/about-mdsg

National Office (Open Tue-Thu 09:00 13:00):. What is Myotonic Dystrophy. Variations in Myotonic Dystrophy. How is Myotonic Dystrophy inherited? How Myotonic Dystrophy can affect your health. Myotonic Dystrophy type 2 (DM2). What causes Myotonic Dystrophy? Myotonic Dystrophy Type 1. Myotonic Dystrophy Type 2. Myotonic Dystrophy and the Brain. Myotonic Dystrophy and the Eye. UK DM Patient Registry. UK DM Patient Registry. Annual Conference Book Online. The Myotonic Dystrophy Support Group. Keep up to date ...

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myotonic.org myotonic.org

FAQs | Myotonic Dystrophy Foundation

http://www.myotonic.org/what-dm/faqs

Skip to main content. How DM Affects Your Body. Study and Trial Resource Center. Key DM Research Discoveries. DM Research Newsletter Archive. How DM Affects Your Body. Study and Trial Resource Center. Key DM Research Discoveries. DM Research Newsletter Archive. What is Myotonic Dystrophy? What are other names for myotonic dystrophy? Myotonic muscular dystrophy - often abbreviated as MMD. Myotonia atrophica - a Latin name, not commonly used. DM2 is also known as Proximal myotonic myopathy or PROMM. Muscul...

myotonic.org myotonic.org

Events | Myotonic Dystrophy Foundation

http://www.myotonic.org/calendar/day/2015-08-08

Skip to main content. How DM Affects Your Body. Study and Trial Resource Center. Key DM Research Discoveries. DM Research Newsletter Archive. How DM Affects Your Body. Study and Trial Resource Center. Key DM Research Discoveries. DM Research Newsletter Archive. Saturday, August 8, 2015. Support Group: Washington, DC. Hill Day Training Webinar. Wednesday, August 31, 2016. Support Group: Ottawa, Canada. Tuesday, September 6, 2016. PFDD Meeting Preparation Webinar. Wednesday, September 7, 2016.

myotonic.org myotonic.org

Start Here | Myotonic Dystrophy Foundation

http://www.myotonic.org/what-dm/start-here

Skip to main content. How DM Affects Your Body. Study and Trial Resource Center. Key DM Research Discoveries. DM Research Newsletter Archive. How DM Affects Your Body. Study and Trial Resource Center. Key DM Research Discoveries. DM Research Newsletter Archive. Note: Medical information available on this site is designed as general information only. Patients should consult with a physician or other qualified medical professionals for advice on medical treatment. How DM Affects Your Body. Considerable var...

myotonic.org myotonic.org

What is DM | Myotonic Dystrophy Foundation

http://www.myotonic.org/what-dm

Skip to main content. How DM Affects Your Body. Study and Trial Resource Center. Key DM Research Discoveries. DM Research Newsletter Archive. How DM Affects Your Body. Study and Trial Resource Center. Key DM Research Discoveries. DM Research Newsletter Archive. How DM Affects Your Body. 1004A O'Reilly Avenue San Francisco, CA 94129. Toll Free (US only): 86-MYOTONIC (866-968-6642). Care and a Cure.

idmc10.org idmc10.org

Partners | IDMC-10

http://www.idmc10.org/partners

INTERNATIONAL MYOTONIC DYSTROPHY CONSORTIUM MEETING. Partners & Sponsors. Welcome, please log in. If you are not receiving our emails and want to be informed of online registrations opening and/or other updates, please leave your contact information.

smn.scot.nhs.uk smn.scot.nhs.uk

Scottish Muscle Network Myotonic Dystrophy Page

http://www.smn.scot.nhs.uk/myotonicdystrophy.html

Services in your area. This page contains some useful information and guidance for myotonic dystrophy. Guideline for the management of Myotonic Dystrophy in adults. Anaesthetic Guideline for Myotonic Dystrophy. The Myotonic Dystophy Care Card. Can fold up to fit into a wallet or purse. Useful information for families and professionals is available through the following websites:. The Myotonic Dystrophy Support Group website. The Muscular Dystrophy Campaign website.

treat-nmd.eu treat-nmd.eu

TREAT-NMD : Advancing diagnosis, care and treatment for people with neuromuscular diseases around the world.

http://www.treat-nmd.eu/home.php

All about the network. Network Chair and Vice-Chair. About the TREAT-NMD network. Donate to the TREAT-NMD Alliance. Nominations for Executive Committee members. Draft of EU data protection regulation. Meetings and events calendar. Submit a newsletter article. Cookies and privacy policy. Neuromuscular care and trial centres. Care and trial site registry. What is a patient registry? List of registries by disease. Principles of a review. Future meetings and events. NMR (MRI and MRS). Why use the BioBank?

caremanagementservices.co.uk caremanagementservices.co.uk

Who we cater for | Care Management Services

http://caremanagementservices.co.uk/services/who-we-cater-for

Who we cater for. England (West) & Wales. Who we cater for. We supply a full body of care service to disabled people who want to live independently; we specialise in delivering fully supported care for young adults with neuromuscular conditions and complex care needs. I know that sounds very specific, however it does cover a full spectrum of conditions; Muscular Dystrophy. If you want to live independently and would like more information then please contact us. I’ve listed a few of the condition specific...

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Myotonic Research

Classification and external resources. DM) is a chronic. Slowly progressing, highly variable inherited multisystemic disease. That can manifest at any age from birth to old age. It is characterized by wasting of the muscles (muscular dystrophy), posterior subcapsular iridescent cataracts. Opacity of the lens of the eyes), heart conduction defects, endocrine. There are two classifications of DM, each having different associated symptoms. Differences between DM1 and DM2. Differences between DM1 and DM2.

myotonic.org myotonic.org

Myotonic Dystrophy Foundation | Care & A Cure

Skip to main content. How DM Affects Your Body. DM As a Family Disease. Family Planning with DM. Working with Your Doctor. 2018 MDF Annual Conference. Study and Trial Resource Center. Key DM Research Discoveries. Grant Opportunities and Awards. DM Research Newsletter Archive. How DM Affects Your Body. DM As a Family Disease. Family Planning with DM. Working with Your Doctor. 2018 MDF Annual Conference. Study and Trial Resource Center. Key DM Research Discoveries. Grant Opportunities and Awards. Join the ...

myotonicdystrophy-ourfamilysjourney.blogspot.com myotonicdystrophy-ourfamilysjourney.blogspot.com

Myotonic Dystrophy - Our Family's Journey

Myotonic Dystrophy - Our Family's Journey. Wednesday, April 1, 2015. Aiden and Brian's Annual trip to the Stan Cassidy Center for Rehabilitation. The boys made their annual trip to the Stan Cassidy Center for Rehabilitation, in Frederiction this week. For anyone not familiar with this Center here is a link to their site. SCCR. We are very fortunate to have these services available for us, here in Canada, at no cost to the boys and their family. Aiden showing off his ball throwing skills. After getting bo...

myotonicdystrophyblog.blogspot.com myotonicdystrophyblog.blogspot.com

Myotonic dystrophy blog

This blog is for anyone who has in interest in Myotonic dystrophy to share some of their stories. Thursday, 30 December 2010. Decided to create a Myotonic dystrophy blog. Since starting to blog about my PGD, I have become aware of a whole blogging community, that I didn’t even know existed. I have also discovered that many people with medical conditions are using blogs for a variety of reasons:. To raise awareness of their condition. To find emotional support from people in similar situations. Instead of...

myotonicdystrophysupportgroup.org myotonicdystrophysupportgroup.org

Home - Myotonic Dystrophy Support Group

National Office (Open Tue-Thu 09:00 13:00):. What is Myotonic Dystrophy. Variations in Myotonic Dystrophy. How is Myotonic Dystrophy inherited? How Myotonic Dystrophy can affect your health. Myotonic Dystrophy type 2 (DM2). What causes Myotonic Dystrophy? Myotonic Dystrophy Type 1. Myotonic Dystrophy Type 2. Myotonic Dystrophy and the Brain. Myotonic Dystrophy and the Eye. UK DM Patient Registry. UK DM Patient Registry. We welcome new members and new ideas. Keep up to date with research in this field.

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