sclero-what.blogspot.com
June 2014 ~ Sclero-what?
http://sclero-what.blogspot.com/2014_06_01_archive.html
Experiences of a 30-year old living with a rare auto-immune disease called Scleroderma. Sunday, June 29, 2014. Scleroderma Awareness Day 2014. June has been Scleroderma Awareness month, and I did a poor job of spreading the word, but today is World Scleroderma Awareness Day, so I'm making it a priority to not only "rock teal" (the color for Scleroderma), but to also spread awareness via facebook, instagram, and through my blog. My strength. I am a wuss. I have a hard time lifting my purse, or a g...My jo...
sclero-what.blogspot.com
May 2014 ~ Sclero-what?
http://sclero-what.blogspot.com/2014_05_01_archive.html
Experiences of a 30-year old living with a rare auto-immune disease called Scleroderma. Friday, May 16, 2014. Looking back over the past few months can be a bit overwhelming when I consider all the random acts of kindness that I have received. I mean, really over the last two years it's been quite amazing to me, but for some reason the past two months it seemed like one thing right after another. I haven't been feeling overly stressed, everything is good, so why now? It was hard, because I like to think ...
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July 2014 ~ Sclero-what?
http://sclero-what.blogspot.com/2014_07_01_archive.html
Experiences of a 30-year old living with a rare auto-immune disease called Scleroderma. Thursday, July 31, 2014. PAH and Right Heart Cath. So, Monday morning finally rolled around, and my rheumy called me first thing in the morning. He told me that my echo hadn't changed much from last year, but there was still a bit of high pressure in one of my arteries. Because pulmonary arterial hypertension. Saturday, July 26, 2014. Because Scleroderma, and especially the form that I have, can affect the internals, ...
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A "Typical" Wednesday ~ Sclero-what?
http://sclero-what.blogspot.com/2015/06/a-typical-wednesday.html
Experiences of a 30-year old living with a rare auto-immune disease called Scleroderma. Thursday, June 11, 2015. My stomach does not handle large breakfasts very, and using silverware I'm not used to can be hard, really uncomfortable, and hurt my fingers. Not to mention, eating sitting straight up is really hard. Then there's the fear of spilling on myself. I can't just run home and change quickly. It's not that easy for me. What will be easy to cut into small pieces and fit in my mouth? Questions most p...
sclero-what.blogspot.com
February 2014 ~ Sclero-what?
http://sclero-what.blogspot.com/2014_02_01_archive.html
Experiences of a 30-year old living with a rare auto-immune disease called Scleroderma. Monday, February 24, 2014. Says about immunosuppressive therapy,. And cyclophosphamide. A recent study suggested that methotrexate did not significantly alter the skin score (a measure of skin thickening) compared with placebo (no treatment). Cyclosporine is not completely studied due to reports of renal toxicity. The most promising drugs are mycophenolate mofetil. With Dr. Garg. It was scheduled for Monday, t...I'm g...
sclero-what.blogspot.com
Scleroderma Foundation Video ~ Sclero-what?
http://sclero-what.blogspot.com/2014/03/scleroderma-foundation-video.html
Experiences of a 30-year old living with a rare auto-immune disease called Scleroderma. Monday, March 3, 2014. I have been so lucky to meet people who suffer with Scleroderma, Raynaud's, and other various Auto-immune diseases through Instagram. Totally random, right? And her facebook page here: https:/ www.facebook.com/kcmcreations? Scleroderma Foundation Michigan Chapter. Kind of neat right? Contact Me: bre11414@hotmail.com. To the Dentist I Go. Comfortable In My Thick Skin. Daily Ramblings of Bre.
sclero-what.blogspot.com
April 2014 ~ Sclero-what?
http://sclero-what.blogspot.com/2014_04_01_archive.html
Experiences of a 30-year old living with a rare auto-immune disease called Scleroderma. Tuesday, April 29, 2014. The same week I got shingles, I actually had my next appointment with Dr. Walker. By then I was feeling much better compared to the beginning of the week. When he walked in he said, "Really? I should have told him that I blamed him, but I didn't. We just talked for a little, then he had me hop up on that bed thing (seriously, is there a name for that thing? Sunday, April 20, 2014. Monday came ...
sclero-what.blogspot.com
Stepping Out to Cure Scleroderma 2015 ~ Sclero-what?
http://sclero-what.blogspot.com/2015/06/stepping-out-to-cure-scleroderma-2015.html
Experiences of a 30-year old living with a rare auto-immune disease called Scleroderma. Tuesday, June 23, 2015. Stepping out to cure scleroderma. Stepping Out to Cure Scleroderma 2015. It's time to sign up and register for the Northern Utah: Stepping Out to Cure Scleroderma 2015 race! The site to register for the Scleroderma 5K: http:/ www.scleroderma.org/steppingoututah. The walk/run will be held August 8 at Memory Grove Park in Salt Lake City. October 12, 2015 at 3:46 PM. To the Dentist I Go. Yesterday...
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January 2015 ~ Sclero-what?
http://sclero-what.blogspot.com/2015_01_01_archive.html
Experiences of a 30-year old living with a rare auto-immune disease called Scleroderma. Saturday, January 31, 2015. The Last Few Months. The last few months have been pretty ordinary. I’ve had two appointments with Dr. Walker (my rheumy) which both went well. They were just basic, “How are you feeling? 8221; Umm, well you guys called me, so why don’t you tell me. But Dr. Garg just asked me a few questions about the medication and swallowing. Or, how do I feel compared to this time last year? Oh hey, that...
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March 2014 ~ Sclero-what?
http://sclero-what.blogspot.com/2014_03_01_archive.html
Experiences of a 30-year old living with a rare auto-immune disease called Scleroderma. Sunday, March 30, 2014. At work, I generally always wear gloves. Especially in the colder weather. There is not a time when I don't. My hands would just freeze and stop working. I get a lot of questions, and I never really know how to answer. I typically answer with quick replies and hope they don't ask more questions. Depending on how they ask their question also depends on how I respond. Why are you wearing gloves?
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