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National Alliance for Myalgic EncephalomyelitisNational Alliance for Myalgic Encephalomyelitis Home Page
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National Alliance for Myalgic Encephalomyelitis | name-us.org Reviews
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National Alliance for Myalgic Encephalomyelitis Home Page
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2011 ICC
http://www.name-us.org/DefintionsPages/DefICC.htm
The 2011 International Consensus Criteria. Myalgic encephalomyelitis is an acquired neurological disease with complex global dysfunctions. Pathological dysregulation of the nervous, immune and endocrine systems, with impaired cellular energy metabolism and ion transport are prominent features. Published July 2011, this definition has provided the foundation for a new set of clinical and research criteria: Myalgic Encephalomyelitis: International Consensus Criteria. An International Consensus Panel consis...
NAME-US.org ME/CFS Canadian Consensus Document
http://www.name-us.org/DefintionsPages/DefCCC.htm
The Canadian Consensus Document for ME/CFS. The Canadian Consensus Document should be read. And studied by every medical provider. David S. Bell, MD, FAAP- (USA). UPDATE: This definition has provided the foundation for a new set of clinical and research criteria as of July 2012,. Myalgic Encephalomyelitis: International Consensus Criteria,. For both adult and pediatric cases. Its authors have followed with Physician's Guidelines, 2012 ICC Primer. This definition places the hallmark symptom of post-exerti...
NAME-US.org Dr. E.G. Dowsett describes M.E.
http://www.name-us.org/DefintionsPages/DefDowsett.htm
Dr EG Dowsett describes M.E. To the very few physicians still practicing today who began seeing patients with this illness some 40 years ago and who have continued to record and publish their clinical findings throughout, the current enthusiasm for renaming and reassigning this serious disability to subgroups of putative and vague 'fatigue' entities, must appear more of a marketing exercise than a rational basis for essential international research. It was not always so unnecessarily complicated! Showing...
NAME-US.org ME/CFS Definitions Overview
http://www.name-us.org/DefintionsPages/DefOverview.htm
The failure to agree on firm diagnostic criteria has distorted the data base for epidemiological and other research, thus denying recognition of the unique epidemiological pattern of myalgic encephalomyelitis. Dr A Melvin Ramsay-. Relating to the brain). Relating to the spinal cord). Brain and spinal cord inflammation with muscle pain). UPDATE - October 2012* *. This new definition (ICC) published July 2011provides the foundation for a new set of clinical and research criteria,. As stated in our Goals.
MECFS Explained
http://www.name-us.org/MECFSExplainPages/MECFS%20Explained.htm
Clearing up the Confusion. In view of more recent research and clinical experience that strongly point to. Widespread inflammation and multisystemic neuropathology, it is more appropriate and correct to use the term 'myalgic encephalomyelitis' (ME). Because it indicates an underlying pathophysiology. Journal of Internal Medicine. As the authors of the 2011 Consensus Criteria. For more in depth information on the science and politics of ME and CFS, read. See a brief description of this book on the Links.
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HIV-NEGATIVE AIDS: Is it CFS, GWS, or AIDS?: November 2005
http://cfsstraighttalk.blogspot.com/2005_11_01_archive.html
HIV-NEGATIVE AIDS: Is it CFS, GWS, or AIDS? Let me applaud what you are doing. In those countries in which progress against HIV-AIDS is being made, it is because of efforts of people such as you. World Bank: Global Program. Wednesday, November 02, 2005. MAILBAG - UNITED NATIONS. I am in awe of my life. So, I have to ask: Have you ever gotten a package from the United Nations? An average week's mail includes:. A handful of Senator/Congressman responses telling me that I am not their problem:. Thank you fo...
HIV-NEGATIVE AIDS: Is it CFS, GWS, or AIDS?: October 2005
http://cfsstraighttalk.blogspot.com/2005_10_01_archive.html
HIV-NEGATIVE AIDS: Is it CFS, GWS, or AIDS? Let me applaud what you are doing. In those countries in which progress against HIV-AIDS is being made, it is because of efforts of people such as you. World Bank: Global Program. Tuesday, October 04, 2005. Sex, Politics, and Religion. Why is it that we tip-toe around so many of the important subjects, all of which have been the epicenter of my universe: sex, politics, and religion? My days are filled with endless. Keep The Faith.". KEEP THE FAITH.". Did he mea...
Guidance
http://www.thegracecharityforme.org/guidance.asp
KENT GPs and PATIENTS. If you have M.E., the following might help you practically:. Get yourself a copy of the. Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A Clinical Case Definition and Guidelines for Medical Practitioners. Or phone 02380 251719. Why not give a copy of either the Canadian Guidelines or International Guidelines to your G.P? 3 The New International Consensus Criteria for M.E. Alternatively, it can be viewed and downloaded at National Alliance for M.E. (USA). Can also help muscular...
Chronic Fatigue Syndrome/Fibromyalgia Organization of Georgia, Inc. (CFOG)
http://www.cfog.us/cfslinks.html
Join us on Facebook! Organization of Georgia, Inc. A support group, like a lighthouse, is a beacon of hope.". CFIDS Association of America. The National CFIDS Foundation. International Association for Chronic Fatigue Syndrome. National Alliance for Myalgic Encephalomyelitis/CFS. CDC - CFS Site. National Institute of Health - CFS Information. National Institute of Health - CFS Fact Sheet and Brochure - PDF Document. CFS Learning Center on Healthline. Discovery Health - CFS. AllRefer Health - CFS. Dr Debra...
Katharine and M.E.: February 2015
http://katharineandme.blogspot.com/2015_02_01_archive.html
Friday, 20 February 2015. Mum, Helen and Heather walk 26.5 miles for ME Research UK! It's less than 6 months since my birthday fundraiser and I have more. Very exciting fundraising news! This time, though, I'm not doing anything myself because. My Mum, her best friend Helen, and my best friend Heather (who is also Helen's daughter) are walking 26 and a half miles in one day - all in the aid of ME Research UK. As part of the Bath Beat. And getting electrocuted by electric fences amongst other obstacles!
Living With ME / CFS: May 2010
http://livingwithmecfs.blogspot.com/2010_05_01_archive.html
Living With ME / CFS. Friday, 14 May 2010. ME Awareness WEEK.Why im a wee late. I was unable to post on the 12th as i had drs opd and then little beknown to me i was rushed to hospital to see consultant at the eye treatment center.I have been suffering from eye pain for about 7 days didnt do anything about it,if everyday i went to see gp due to pain id be there daily! Happy ME/CFS awareness day! I have copy and pasted this post from Laurel's blog. Are fully disabled, and many of those are homebound or co...
Educational Info | Bent But Not Broken
http://bentbutnotbroken.org/resources/educational-info
What is CFS and CFIDS? Get In The Loop. Other Ways To Give. US National CFIDS Association. Http:/ www.iacfsme.org. Http:/ www.hhv-6foundation.org. ME Society Of America. Http:/ www.cfids-cab.org/MESA/index.html. National Alliance for ME. Http:/ www.name-us.org. Can I Eat Here. Financial And Legal Assistance. Founder of Bent But Not Broken Honored: Giving To Those That Give. I Have A Disease…I’m Not Crazy! It’s Called SEID , CFS. Chronic Fatigue Syndrome Legitimate Disease Now Called SEID.
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National Alliance for Myalgic Encephalomyelitis
National Alliance for Myalgic Encephalomyelitis. Was established to address the issues of recognition and definition,. And to raise awareness of this devastating neuroimmune disease. That has afflicted nearly 1 million people in the U.S., and 17 million worldwide. Myalgic encephalomyelitis (ME) is a severe, complex neurological disease that affects all body systems. ME is more debilitating than most diseases. 2012 ICC Physican's Primer. Journal of Internal Medicine. Inflammation occurs in the brain and &...
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