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NF support in the LJ world's Journal

NF support in the LJ worlds Journal. Most Recent Entries] [Calendar View]. Below are the 20. Most recent journal entries recorded in NF support in the LJ world. Friday, March 5th, 2010. Does anyone have experience with any of the following doctors:. Rebecca Fisher - Beth Israel (I think). George Forster - Mt Sinai. Joel Delfiner - Roosevelt. I'm hoping for positive/negative feedback related to how well they listen, their level of pompousness, if they actually spend time with patients, punctuality, etc.

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NF support in the LJ worlds Journal. Most Recent Entries] [Calendar View]. Below are the 20. Most recent journal entries recorded in NF support in the LJ world. Friday, March 5th, 2010. Does anyone have experience with any of the following doctors:. Rebecca Fisher - Beth Israel (I think). George Forster - Mt Sinai. Joel Delfiner - Roosevelt. I'm hoping for positive/negative feedback related to how well they listen, their level of pompousness, if they actually spend time with patients, punctuality, etc.

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NF support in the LJ world's Journal | nfsupport.livejournal.com Reviews

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NF support in the LJ worlds Journal. Most Recent Entries] [Calendar View]. Below are the 20. Most recent journal entries recorded in NF support in the LJ world. Friday, March 5th, 2010. Does anyone have experience with any of the following doctors:. Rebecca Fisher - Beth Israel (I think). George Forster - Mt Sinai. Joel Delfiner - Roosevelt. I'm hoping for positive/negative feedback related to how well they listen, their level of pompousness, if they actually spend time with patients, punctuality, etc.

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nfsupport - Profile

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Created on 22 May 2003 (#1072929). Last updated on 23 December 2011. NF support in the LJ world. All Members , Moderated. This community is for those of us who have. Neurofibromatosis or the ones who love us. Cafe au lait spots, disease. Elephant man's disease, genetic. Nf type 1, nf1. Nftype1, nftype2, tumors. Follow us on Facebook. Follow us on Twitter. 1999 LiveJournal, Inc.

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33 Neurofibromatosis Open Clinical Trial Studies Recruiting: nfsupport

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33 Neurofibromatosis Open Clinical Trial Studies Recruiting. 33 Neurofibromatosis Open Studies Recruiting. Http:/ www.clinicaltrials.gov/ct2/resul. Post a new comment. We will log you in after post. We will log you in after post. We will log you in after post. We will log you in after post. We will log you in after post. Your IP address will be recorded. Post a new comment. Post a new comment. A LESSON IN PATIENTS w/ Porter Colley. New Tattoo for NF Awareness. Follow us on Facebook. Follow us on Twitter.

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Entries feed for nfsupport

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0} " class=" actions-entryunit item actions-entryunit item- comments js-elem-color- svgicon ". 8 & ($index 1) % 3 = = 0" ng-cloak. 4 & ($index 1) % 5 = = 0" ng-cloak. 9 & ($index 1) % 10 = = 0" ng-cloak. 9 & ($index 1) % 10 = = 0" ng-cloak. Sorry, there are no available entries to display. Follow us on Facebook. Follow us on Twitter. 1999 LiveJournal, Inc.

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New Here: nfsupport

https://nfsupport.livejournal.com/49178.html

My grandmother, mother, and myself all have NF Type 1, and my son was just affirmatively diagnosed with it. He has a large neurofibroma on his right rib cage and has an MRI scheduled on Friday to see what all it is attached to and the possibility of removal. My mother was covered in the small nodes, but I (knock on wood) so far have pnly discovered a small number (under ten) and have only had 1 removed from my nipple. We all have the numerous birthmarks. Post a new comment. We will log you in after post.

5

Hotter’N Hell Hundred Ride for NF: nfsupport

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Hotter’N Hell Hundred Ride for NF. NF group to ride for Disorder Awareness. For the Times Record News. Thursday, August 21, 2008. Http:/ www.timesrecordnews.com/news/200. Twenty members of the NF Endurance Team from across the United States will ride in the Hotter’N Hell Hundred for one reason to raise money and awareness for the Children’s Tumor Foundation. The Oslica’s 16-year-old daughter Katie and Kendra’s 13-year-old daughter Arianna both have NF. NF, neurofibromatosis, is a genetic disorder that oc...

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NF support in the LJ world's Journal

NF support in the LJ worlds Journal. Most Recent Entries] [Calendar View]. Below are the 20. Most recent journal entries recorded in NF support in the LJ world. Friday, March 5th, 2010. Does anyone have experience with any of the following doctors:. Rebecca Fisher - Beth Israel (I think). George Forster - Mt Sinai. Joel Delfiner - Roosevelt. I'm hoping for positive/negative feedback related to how well they listen, their level of pompousness, if they actually spend time with patients, punctuality, etc.

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