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Friedreich's ataxia and me

Please say hello, let me know that you've been here. Last updated: July 2017. Friedreich's ataxia and I. My name is Katie, I'm 33 and I'm from Coventry in the UK. I was diagnosed with Friedreich’s ataxia. FA) when I was 8. On this website you'll find information on FA and how it affects me. I CAN live with this! Looking for a good place to start? Head to FA and I: Celebrating 25 years together. Why does this happen?

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Friedreich's ataxia and me | ohbother.co.uk Reviews
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Please say hello, let me know that you've been here. Last updated: July 2017. Friedreich's ataxia and I. My name is Katie, I'm 33 and I'm from Coventry in the UK. I was diagnosed with Friedreich’s ataxia. FA) when I was 8. On this website you'll find information on FA and how it affects me. I CAN live with this! Looking for a good place to start? Head to FA and I: Celebrating 25 years together. Why does this happen?
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Friedreich's ataxia and me | ohbother.co.uk Reviews

https://ohbother.co.uk

Please say hello, let me know that you've been here. Last updated: July 2017. Friedreich's ataxia and I. My name is Katie, I'm 33 and I'm from Coventry in the UK. I was diagnosed with Friedreich’s ataxia. FA) when I was 8. On this website you'll find information on FA and how it affects me. I CAN live with this! Looking for a good place to start? Head to FA and I: Celebrating 25 years together. Why does this happen?

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ohbother.co.uk ohbother.co.uk
1

Friedreich's ataxia and me

http://ohbother.co.uk/usingahoist.html

Please say hello, let me know that you've been here. Last updated: July 2016. During that time mum and dad would lift me to transfer. We just got on with it and I always thought I’d be able to build myself back up. However because I hadn’t been taking my own weight and stretching my calf muscles/tendons, my ankles had become really weak and when I tried to take my own weight again they just gave way. So mum and dad continued to take my weight when transferring. I am not encouraging anyone to use a hoist ...

2

Friedreich's ataxia and me

http://ohbother.co.uk/europe.html

Please say hello, let me know that you've been here. Last updated: July 2016. May 2006 Polis, Cyprus. My mum was very dubious about me travelling without her, especially without a carer, but my friend persistently encouraged me to try C&A Apartments. And I was adamant to give it a try. So when my friend organised a group of mostly people with ataxia and their carers to go there the following year, I went along too. June 2007 Polis, Cyprus. As the C&A Apartments. We took the beach walkway to Latchi and li...

3

Friedreich's ataxia and me

http://ohbother.co.uk/usingawheelchair.html

Please say hello, let me know that you've been here. Last updated: July 2016. My disabilty: Using a wheelchair. If you look up ataxia in a dictionary it will define it as "loss of the ability to coordinate muscular movement" or similar. One way to induce ataxia is to drink too much, and, after a few too many, you will find that you begin to walk much like I did. I lost out on so much, didn't I? I began using the wheelchair full-time when I was 14 and I didn't look back. I'm so much more able and inde...

4

Friedreich's ataxia and me

http://ohbother.co.uk/independentliving.html

Please say hello, let me know that you've been here. Last updated: July 2016. I moved into my own adapted flat in 2010 - I love it here; it's given me the space to be me and set things up exactly the way I need them to be. My flat - my home. Before you actually get in my flat you'd meet my first can't live without adaptation - my automatic front door (left). I can't coordinate my hands to use a key to unlock the door so I have an automatic door so all I need to do is press a button on a key-fob. ...Ned a...

5

Friedreich's ataxia and me

http://ohbother.co.uk/usingmybike.html

Please say hello, let me know that you've been here. Last updated: July 2016. Things that help: My Motomed exercise bike. I bought my a MOTOmed Viva 2 Lower Body from a company called Medimotion. The only small problem is that I can't use the lower-body part of my bike independently as I need help to put my feet in the pedals. My PA and a neighbour help me to do this - so most days I cycle for 30 minutes most days.

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ataxiasouthdowns.co.uk ataxiasouthdowns.co.uk

Ataxia South Downs - Links

http://ataxiasouthdowns.co.uk/links.html

Fundraising cycle Andrew Downie is organising:. Friends with Ataxia websites, well worth a look:. If I have left anyone off this list please. Me and let me know!

peachys-blog.blogspot.com peachys-blog.blogspot.com

Peachys Blog: EXAMS ARE SO CHALLENGING THESE DAYS

http://peachys-blog.blogspot.com/2007/09/exams-are-so-challenging-these-days.html

Tuesday, September 11, 2007. EXAMS ARE SO CHALLENGING THESE DAYS. T he following questions and answers were collected from last year's GCSE. Exam results in Swindon, Wiltshire. They are genuine responses (from 16. Q: Name the four seasons. A: Salt, pepper, mustard and vinegar. Q: Explain one of the processes by which water can be made safe to drink. A: Flirtation makes water safe to drink because it removes large. Pollutant like grit, sand, dead sheep and canoeists. Q: How is dew formed? Q: How can you d...

peachys-blog.blogspot.com peachys-blog.blogspot.com

Peachys Blog: Peachy - My Story

http://peachys-blog.blogspot.com/2007/11/peachy-my-story.html

Wednesday, November 7, 2007. Peachy - My Story. Hello, My name is Patricia Keogh. Peachy*, to my friends). The year is 2007, I was born in 19? You didn't think I was really going to tell you my age did you? I was born and brought up in Birmingham. England (no I don't have that terrible Brummie accent) Born to Irish emigrants. Never did drugs, orgies or got so drunk I didn't know what I was doing, not that I can remember anyway. Christy was a keen hurler. By this time my sister Catherine and her husband, ...

peachys-blog.blogspot.com peachys-blog.blogspot.com

Peachys Blog: Disaster Appeal - The American Response

http://peachys-blog.blogspot.com/2007/09/disaster-appeal-american-response.html

Tuesday, September 11, 2007. Disaster Appeal - The American Response. Subscribe to: Post Comments (Atom). A View of Enniscorthy Town. THIS IS PATRICIA KEOGH. Hello, My name is Patricia Keogh. (Peachy*, to my friends) The year is 2007, I was born in 19? You didn't think I was really going to tell you my age did you? Never did drugs, orgies . SEE THE REST OF THE STORY IN THE NOVEMBER 07 BLOG ENTRY . View my complete profile. OR by going into the comment box for each of the blog entries. This BLOG is just o...

peachys-blog.blogspot.com peachys-blog.blogspot.com

Peachys Blog: Peachy Music - The Soundtracks of my Life

http://peachys-blog.blogspot.com/2007/10/peachys-country-music-selection.html

Wednesday, October 24, 2007. Peachy Music - The Soundtracks of my Life. What’s the soundtrack of my life? Well currently the soundtrack is dominated by the great American country music that I can plug into on-line through the CMT.COM radio station. Dence Clearwater Revival. I also sometim. Es like a bit of the Halleluja type stuff - which, by the way is ok but I can’t take it for too long. The people I real. O hear coming on the radio are Travis Tritt, Alan Jackson, Dweight Yokum, Mar. I saw Ricky in.

peachys-blog.blogspot.com peachys-blog.blogspot.com

Peachys Blog: Peachy - Conference Journalist

http://peachys-blog.blogspot.com/2007/11/peachy-conference-journalist.html

Saturday, November 10, 2007. Peachy - Conference Journalist. Delivering Outcomes to People Project. This blogsite will feature as part of the forthcoming Delivering Outcomes to People Project conference in Tullamore. At the end of November. Because the blog is my way of telling my story it is being used along with 5 other stories to show how important it is for a person to have their personal experience heard. Having my story heard acts as a type of validation of my experiences. A View of Enniscorthy Town.

peachys-blog.blogspot.com peachys-blog.blogspot.com

Peachys Blog: September 2007

http://peachys-blog.blogspot.com/2007_09_01_archive.html

Tuesday, September 11, 2007. EXAMS ARE SO CHALLENGING THESE DAYS. T he following questions and answers were collected from last year's GCSE. Exam results in Swindon, Wiltshire. They are genuine responses (from 16. Q: Name the four seasons. A: Salt, pepper, mustard and vinegar. Q: Explain one of the processes by which water can be made safe to drink. A: Flirtation makes water safe to drink because it removes large. Pollutant like grit, sand, dead sheep and canoeists. Q: How is dew formed? Q: How can you d...

peachys-blog.blogspot.com peachys-blog.blogspot.com

Peachys Blog: Day 1 of the Tullamore Conference

http://peachys-blog.blogspot.com/2007/11/day-1-of-tullamore-conference.html

Wednesday, November 28, 2007. Day 1 of the Tullamore Conference. We arrived a little after the conference. Started. There were a lot of people attending so we had to wait at the back of the hall for the first session. We missed Maria Wolfe from Galway who opened the conference. I have to say that the sound from the outset was not great. The male speakers in particular were difficult to hear. Olive Moore and Carol Green were easier to make out. Subscribe to: Post Comments (Atom). A View of Enniscorthy Town.

peachys-blog.blogspot.com peachys-blog.blogspot.com

Peachys Blog: November 2007

http://peachys-blog.blogspot.com/2007_11_01_archive.html

Wednesday, November 28, 2007. Day 2 - Tullamore Conference. We spent the night in the hotel, had breakfast. And went into the conference. We didn't get the wheelchair accessible room that we had previously booked. There was a double booking and unfortunately. The food was excellent all day today. My main choice. Would have been a bar of chocolate . but however I selected the meal that was on offer here. Lovely! No speaker really stood out for me to comment on. But the second day of the conference. In the...

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Tuesday, February 22, 2011. I regret to inform you that I am suspending all blogging activities, for one main reason: I gots too much other stuff going on right now. Mainly the requirements of learning a new job and going to school are taking the lion's share of my attention these days. Whereas I used to spend quite a bit of time at work writing for this here blog, that is not an option at my present place of employment. But I wouldn't have it any other way. I am certainly not bored anymore! It’s an odd ...

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Friedreich's ataxia and me

Please say hello, let me know that you've been here. Last updated: July 2017. Friedreich's ataxia and I. My name is Katie, I'm 33 and I'm from Coventry in the UK. I was diagnosed with Friedreich’s ataxia. FA) when I was 8. On this website you'll find information on FA and how it affects me. I CAN live with this! Looking for a good place to start? Head to FA and I: Celebrating 25 years together. Why does this happen?

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