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oneofthewonders | life with a child with atypical Rett Syndrome

They say I must be one of the wonders Of God's own creation And as far as they can see they can offer No explanation O, I believe Fate smiled and destiny Laughed as she came to my cradle Know this child will be able Laughed as my body she lifted Know this child will…

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They say I must be one of the wonders Of God's own creation And as far as they can see they can offer No explanation O, I believe Fate smiled and destiny Laughed as she came to my cradle Know this child will be able Laughed as my body she lifted Know this child will…
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oneofthewonders | life with a child with atypical Rett Syndrome | oneofthewonders.wordpress.com Reviews

https://oneofthewonders.wordpress.com

They say I must be one of the wonders Of God's own creation And as far as they can see they can offer No explanation O, I believe Fate smiled and destiny Laughed as she came to my cradle Know this child will be able Laughed as my body she lifted Know this child will…

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I wasn’t expecting that… | oneofthewonders

https://oneofthewonders.wordpress.com/2015/07/24/i-wasnt-expecting-that

Life with a child with atypical Rett Syndrome. What am I doing here? Showing support →. I wasn’t expecting that…. July 24, 2015. Unimpressed with another visit to the hospital. Expensive and we feel that the money could be better spent on therapy, equipment and activities that would directly improve Miss Z’s life. To be honest, I had given up ever having a diagnosis for Miss Z. Of course, even with our new plan, we may not get an answer. It feels good, however, to be back looking. After tryin...Enter you...

2

August 2013 | oneofthewonders

https://oneofthewonders.wordpress.com/news-updates/2013-2/august-2013

Life with a child with atypical Rett Syndrome. What am I doing here? 15 August – a new kind of seizure. I was holding her when she had a seizure, otherwise I might have missed it. The seizure only lasted 30 seconds at most. Lil Z went rigid and started grinding her teeth. She came out of it herself and had hiccups afterwards (which is common after a seizure). 13 August – Seizure. 7 August – Hospital admission. Leave a Reply Cancel reply. Enter your comment here. Address never made public). We Are More Th...

3

2015 | oneofthewonders

https://oneofthewonders.wordpress.com/news-updates/2015-2

Life with a child with atypical Rett Syndrome. What am I doing here? Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). You are commenting using your WordPress.com account. ( Log Out. You are commenting using your Twitter account. ( Log Out. You are commenting using your Facebook account. ( Log Out. You are commenting using your Google account. ( Log Out. Notify me of new comments via email. Follow Blog via Email. I’ve ...

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July 2013 | oneofthewonders

https://oneofthewonders.wordpress.com/news-updates/2013-2/july-2013

Life with a child with atypical Rett Syndrome. What am I doing here? 25 July – Paediatrician appointment. Scoliosis – it is a big problem for girls with Retts and several professionals have said they’ve noticed a slight curve in Lil Z’s spine. The doctor referred us for a baseline x-ray so that they can begin to track if/when it worsens. 18 JULY – FLEXOR SPASM SEIZURE. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public).

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April 2015 | oneofthewonders

https://oneofthewonders.wordpress.com/news-updates/2015-2/april-2015

Life with a child with atypical Rett Syndrome. What am I doing here? 27 April 2015 – Another fracture! Located just above the knee on the right femur – the third time she has had a fracture in that location. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). You are commenting using your WordPress.com account. ( Log Out. You are commenting using your Twitter account. ( Log Out. Notify me of new comments via email. Let m...

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oneofthewonders | life with a child with atypical Rett Syndrome

Life with a child with atypical Rett Syndrome. What am I doing here? They say I must be one of the wonders. Of God’s own creation. And as far as they can see they can offer. O, I believe. Fate smiled and destiny. Laughed as she came to my cradle. Know this child will be able. Laughed as my body she lifted. Know this child will be gifted. With love, with patience and with faith. She’ll make her way. I’m a challenge to your balance. I’m over your heads. How I confound you and astound you. When Did You Know?

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