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SAgolAne AymA

INSTITUT NATIONAL D●●●●●●●●●●●●●●●●●●● RECHERCHE MEDICALE

Pa●●is , 75013

FR

33.1●●●●8139
33.1●●●●8138
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SAgolAne AymA

INSTITUT NATIONAL D●●●●●●●●●●●●●●●●●●● RECHERCHE MEDICALE

Pa●●is , 75013

FR

33.1●●●●8139
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OrphaData | orphadata.org Reviews
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Provided by Orphanet
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1 Orphanet
2 Inserm
3 rare disease
4 rare diseases
5 orphan drug
6 orphan drugs
7 genetic disease
8 genetic diseases
9 rare disorder
10 rare disorders
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downloads,legal issues,my orphadata,welcome to orphadata,for more information,freely accessible dataset,ordo,orphanet classifications,sparql endpoint,beta,linearisation of disorders,textual information,patient organisations,expert clinics,orphan drugs
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OrphaData | orphadata.org Reviews

https://orphadata.org

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orphadata.org orphadata.org
1

OrphaData

http://www.orphadata.org/cgi-bin/inc/product1.inc.php

Free access data from Orphanet. Rare diseases and cross-referencing. New XML format version. Http:/ www.orphadata.org/data/xml/en product1.xml. Http:/ www.orphadata.org/data/xml/fr product1.xml. Http:/ www.orphadata.org/data/xml/es product1.xml. Http:/ www.orphadata.org/data/xml/it product1.xml. Http:/ www.orphadata.org/data/xml/pt product1.xml. Http:/ www.orphadata.org/data/xml/de product1.xml. Http:/ www.orphadata.org/data/xml/nl product1.xml. Deprecated entity: These are entities formerly considered a...

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OrphaData

http://www.orphadata.org/cgi-bin/inc/product4.inc.php

Free access data from Orphanet. Phenotypes associated with rare disorders. The Orphanet inventory of rare disorders is now annotated with the Human Phenotype Ontology (HPO) terms, a standardized and controlled terminology covering phenotypic abnormalities in human diseases. Files available in XML format. Http:/ www.orphadata.org/data/xml/en product4 HPO.xml. Http:/ www.orphadata.org/data/xml/en product4 HPO status.xml. Http:/ www.orphadata.org/data/xml/fr product4 HPO.xml. Occasional: the phenotype is pr...

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OrphaData

http://www.orphadata.org/cgi-bin/inc/private.inc.php

Free access data from Orphanet. Wednesday, 31 August, 2016. Some datasets are available only on request and after signature of a material transfer agreement. To make a request, please fill in the request form. (contact). Description of the restricted dataset. The dataset is a partial extraction of the data stored in Orphanet, which is also accessible at www.orpha.net. For consultation purposes only. Only non-nominative data are accessible in accordance with personal data protection laws.

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OrphaData

http://www.orphadata.org/cgi-bin/inc/FAQ.inc.php

Free access data from Orphanet. Wednesday, 31 August, 2016. What can I use the data for? See the Legal issues. What is an XML file? How do I use it? If you have to ask, you are probably not at ease with parsing and processing XML. Extensible Markup Language (XML) is a markup language that defines a set of rules for encoding documents in a format that is both human-readable and machine-readable. See wikipedia for further information. Mac users, beware! For consultation purposes only. We do not provide dat...

5

OrphaData

http://www.orphadata.org/cgi-bin/inc/collaborate.inc.php

Free access data from Orphanet. Wednesday, 31 August, 2016. Orphanet is the reference portal for information on rare diseases and orphan drugs, for all audiences. Orphanet s aim is to help improve the diagnosis, care and treatment of patients with rare diseases. The Orphanet website gives access to :. An inventory of rare diseases. Of diseases elaborated using existing published expert classifications. An encyclopaedia of rare diseases. An inventory of orphan drugs. A bimonthly newsletter, OrphaNews.

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NAKOS - GRÜNE ADRESSEN

https://www.nakos.de/adressen/gruen

Junge Selbsthilfe bei der NAKOS. Materialserie "Selbsthilfe im Internet". Materialserie "Betroffene suchen Betroffene". Materialserie "Patient und Selbsthilfe". NAKOS Konzepte und Praxis. Junge Selbsthilfe bei der NAKOS. Materialserie "Selbsthilfe im Internet". Materialserie "Betroffene suchen Betroffene". Materialserie "Patient und Selbsthilfe". NAKOS Konzepte und Praxis. Sie befinden sich hier: HOME. Wählen Sie ein Thema. Nach Anfangsbuchstaben oder geben Sie ein Stichwort ein. Die Zahl der in den GR&U...

orpha.net orpha.net

Orphanet: Educational tools

http://www.orpha.net/consor/cgi-bin/Education_EducationTools.php?stapage=HM_BLOC_HEADER_HELP_SITEMAP&lng=EN

ORPHANET USER SATISFACTION SURVEY 2016. Welcome to the Orphanet User Satisfaction Survey 2016. Your opinion is essential in improving the services offered by Orphanet. Your contribution to this survey is also indispensable for our funding agencies. Please could you take 5 minutes of your time to answer the following questions? The portal for rare diseases and orphan drugs. There is no disease so rare. That it does not deserve attention. Expert centre and Networks. You are a health professional. The list ...

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Orphanet: Reports

http://www.orpha.net/consor/cgi-bin/Education_Home.php?lng=EN

ORPHANET USER SATISFACTION SURVEY 2016. Welcome to the Orphanet User Satisfaction Survey 2016. Your opinion is essential in improving the services offered by Orphanet. Your contribution to this survey is also indispensable for our funding agencies. Please could you take 5 minutes of your time to answer the following questions? The portal for rare diseases and orphan drugs. Rare diseases are rare. Rare disease patients are numerous. Expert centre and Networks. To install it, download Acrobat Reader. Lists...

portal-se.de portal-se.de

Impressum • ZIPSE

http://www.portal-se.de/impressum.html

Aktuell finden Sie hier Informationen zum Projekt,. Zukünftig ein zentrales Informationsportal zu Seltenen Erkrankungen. Zentrales Informationsportal über seltene Erkrankungen. Medical Informatics Group (MIG). Tel: 49 69 6301-84438. Fax: 49 69 6301-6567. Herr Dr. Holger Storf. Gefördert vom Bundesministerium für Gesundheit aufgrund eines Beschlusses des Deutschen Bundestages. ZIPSE nutzt für die Suche und die Zuordnung von Erkrankungen die Orphanet.

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Direcciones útiles: | Enfermedades Raras en Asturias

http://www.erarasasturias.es/id.html

Enfermedades Raras en Asturias. Dirección General de Salud Pública. Navegación del sitio [Omitir]. ACTIVIDADES SOBRE ENFERMEDADES RARAS. 15 de abril 2016. I JORNADAS MEDICAS SINDROME DE. Https:/ docs.google.com/forms/d/1v6kaUnip5wjqMARnf17ZaDh 2UcpQ x78r1xSV6wvTg/viewform? 29 de febrero 2016. COCEMFE Asturias y sus asociaciones celebran de DM, 28.02.2016. Https:/ www.cocemfeasturias.es/informate/noticias/cocemfe-asturias-sus-asociaciones-celebran-aviles-dia-mundial-enfermedades-raras.html. ICORD (Interna...

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orpha.net orpha.net

Orphanet

ORPHANET USER SATISFACTION SURVEY 2018. Welcome to the Orphanet User Satisfaction Survey 2018. Your opinion is essential in improving the services offered by Orphanet. Your contribution to this survey is also indispensable for our funding agencies. Please could you take 5 minutes of your time to answer the following questions? Expert centres and Networks. Networks of expert centre. Helplines for personal queries. Orphanet produces its data according to published procedures. Rare diseases are rare, but.

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orphadata.org orphadata.org

OrphaData

Free access data from Orphanet. Friday, 13 April, 2018. The mission of Orphadata is to provide the scientific community with a comprehensive, high-quality and freely-accessible dataset related to rare diseases and orphan drugs, in a reusable format. The epidemiological dataset is now available by request only. Users from Academia can obtain access for free via signature of a data transfer agreement, please see the catalogue ( http:/ www.orphadata.org/cgi-bin/docs/CataloguePdt-Academia.pdf. When quoting O...

orphadatum.com orphadatum.com

Home

Orpha Datum is an independent Sci-Fi game currently in development for PC and PS4. For more info visit our About page. We are in the very early stages of production, but hope to keep adding new content and updates each week! Thanks for stopping by!

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Welcome to OrphaDerm

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Orphados – ASSOCIATION POUR LE DEVELOPPEMENT DE L'ORPHELINAT DE SIHANOUKVILLE – CAMBODGE

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