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Our SMA JourneyOur life since our perfect little Noah was diagnosed with SMA type 2
http://oursmajourney.blogspot.com/
Our life since our perfect little Noah was diagnosed with SMA type 2
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Our life since our perfect little Noah was diagnosed with SMA type 2
oursmajourney.blogspot.com
Our SMA Journey: December 2012
http://oursmajourney.blogspot.com/2012_12_01_archive.html
Our life since our perfect little Noah was diagnosed with SMA type 2. Friday, December 7, 2012. Since Eli was born it has been a little.okay, A LOT busy for us. I have been terrible at updating because frankly I just don't have the time. Work full-time two kids, 1 with special needs college Lane and I having opposite work schedules = NO time :-). We went and looked at the house and we fell in love. We put in an offer which the seller accepted and now the house is ours! New House : ). Where did March go?
Our SMA Journey: January 2013
http://oursmajourney.blogspot.com/2013_01_01_archive.html
Our life since our perfect little Noah was diagnosed with SMA type 2. Thursday, January 24, 2013. This post is meant to be insightful, not offensive. Expectations are a funny thing.just about as funny as people's perspectives. Now I'm not complaining, simply giving insight to a day from my perspective. This is where it all becomes funny. I have had multiple people say why don't you take a break, or why don't you ever have any time? 7 things you don't know about a special needs parent. Where did March go?
Our SMA Journey: September 2012
http://oursmajourney.blogspot.com/2012_09_01_archive.html
Our life since our perfect little Noah was diagnosed with SMA type 2. Saturday, September 29, 2012. D-day Anniversary #1 9-29-2011 Our Story and Thoughts (By Lauren). It has been a hard road, he uses a feeding tube to eat and relies on many other machines to keep him healthy. These machines that I hated in the beginning I am thankful for. They keep my baby strong and healthy. When I sit back and think about it, it's not even the physical disability.if it was only. Lauren, Lane, Noah and Eli. Presley and ...
Our SMA Journey: September 2013
http://oursmajourney.blogspot.com/2013_09_01_archive.html
Our life since our perfect little Noah was diagnosed with SMA type 2. Friday, September 13, 2013. Noah's first insignificant (we thought) medical diagnosis was laryngomalacia. Laryngomalacia is a congenital softening of the tissues of the larynx (voice box) above the vocal cords. This is the most common cause of noisy breathing in infancy. The laryngeal structure is malformed and floppy, causing the tissues to fall over the airway opening and partially block it. 2 weekends ago, we went out to breakfast a...
Our SMA Journey: Limitations..........
http://oursmajourney.blogspot.com/2014/03/limitations.html
Our life since our perfect little Noah was diagnosed with SMA type 2. Tuesday, March 25, 2014. I remember every detail of the day he was born. How it felt to hold him in my arms for the first time. The way he smelled. The first time he smiled. The first time he rolled over. The first laugh. The first word. Unforgettable and overwhelming blessings that I am so deeply thankful for. These are the challenges that I dread and fear that if I handle them incorrectly, I may damage him. I said the exact thing...
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robertsonfamilyblog.blogspot.com
The Robertson's: HAPPY MOTHER'S DAY!!
http://robertsonfamilyblog.blogspot.com/2012/07/happy-mothers-day.html
Est February 3, 2007. Sunday, July 8, 2012. The best mother and MeMe anyone could ever ask for! Posted by Robertson Family. Subscribe to: Post Comments (Atom). Like father Like daughter. Someone was super excited to see her NeNe.
robertsonfamilyblog.blogspot.com
The Robertson's: April 2012
http://robertsonfamilyblog.blogspot.com/2012_04_01_archive.html
Est February 3, 2007. Sunday, April 29, 2012. WhoaIt's been a while. Wow it has been forever since I blogged.I am going to skip a little so that I can try and catch up. January was a great month. Why? Wellllll ALABAMA WON A NATIONAL CHAMPIONSHIP. No better way to start the new year. As you can see Rylee was not in the mood for picture taking. She didn't even make it to the end. Rylee loves her MEME. Rylee and her BFF. Trying to catch some fish. Anna Beth turns 1. Posted by Robertson Family.
robertsonfamilyblog.blogspot.com
The Robertson's: February 2012
http://robertsonfamilyblog.blogspot.com/2012_02_01_archive.html
Est February 3, 2007. Saturday, February 25, 2012. Not in the mood for pictures. Well thanksgiving was lots of fun this year. I knew this year the holidays would be lots of fun with little Miss Rylee. She is just a bundle of joy. I am not sure what we did before her. Posted by Robertson Family. Links to this post. Wednesday, February 8, 2012. Oh my goodness this child is not afraid of anything. She loved the mega slide. Me, Rylee, and NeNe. Impossible to get a good family picture these days.
robertsonfamilyblog.blogspot.com
The Robertson's: First Pedicure
http://robertsonfamilyblog.blogspot.com/2012/07/first-pedicure.html
Est February 3, 2007. Sunday, July 8, 2012. For Mother's Day me, Rylee, mom, KK and Nancy all got together and ate lunch and had a pedicure. This was Rylee's first and she loved it. We have had to go back since. We had a great time. I vote we do this every year together! Posted by Robertson Family. Subscribe to: Post Comments (Atom). Like father Like daughter. Someone was super excited to see her NeNe.
robertsonfamilyblog.blogspot.com
The Robertson's: Pure Joy!!!
http://robertsonfamilyblog.blogspot.com/2012/07/pure-joy.html
Est February 3, 2007. Sunday, July 8, 2012. This has to be the sweetest picture. Rylee loves her K-K! Posted by Robertson Family. Subscribe to: Post Comments (Atom). Like father Like daughter. Someone was super excited to see her NeNe.
robertsonfamilyblog.blogspot.com
The Robertson's: January 2012
http://robertsonfamilyblog.blogspot.com/2012_01_01_archive.html
Est February 3, 2007. Saturday, January 28, 2012. Posted by Robertson Family. Links to this post. Wednesday, January 18, 2012. Annual Bake Day with KK (Year 5). We put Pop in charge of getting Rylee to take a nap and he succeeded! Posted by Robertson Family. Links to this post. Sunday, January 15, 2012. And this is where we found her.In Blu's cage. Posted by Robertson Family. Links to this post. Posted by Robertson Family. Links to this post. Subscribe to: Posts (Atom). Annual Bake Day with KK (Year 5).
robertsonfamilyblog.blogspot.com
The Robertson's: Yummy!!!
http://robertsonfamilyblog.blogspot.com/2012/06/yummy.html
Est February 3, 2007. Monday, June 18, 2012. Oh my goodness this is some GOOD corn! This little girl is just like her mommy when it come to corn! Posted by Robertson Family. Subscribe to: Post Comments (Atom). Two cute little girls!
robertsonfamilyblog.blogspot.com
The Robertson's: Two cute little girls!!
http://robertsonfamilyblog.blogspot.com/2012/06/two-cute-little-girls.html
Est February 3, 2007. Monday, June 18, 2012. Two cute little girls! Rylee and her BFF Jenna! Posted by Robertson Family. Subscribe to: Post Comments (Atom). Two cute little girls!
robertsonfamilyblog.blogspot.com
The Robertson's
http://robertsonfamilyblog.blogspot.com/2012/07/someone-was-super-excited-to-see-her.html
Est February 3, 2007. Sunday, July 8, 2012. Someone was super excited to see her NeNe. Posted by Robertson Family. Subscribe to: Post Comments (Atom). Like father Like daughter. Someone was super excited to see her NeNe.
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Our SMA Angels...
The largest on-line source of information and inspiration regarding children dealing with Spinal Muscular Atrophy. Come see their faces, read their stories, remember those who have passed and fight with those who are fighting. If you have difficulty getting into the site, or to skip the intro, enter the site Here. To break out of other frames, click Here. Site best viewed at 800x600 or higher, IE 4.0 or better, and Java enabling.
Our SMA Angels...
The largest on-line source of information and inspiration regarding children dealing with Spinal Muscular Atrophy. Come see their faces, read their stories, remember those who have passed and fight with those who are fighting. If you have difficulty getting into the site, or to skip the intro, enter the site Here. To break out of other frames, click Here. Site best viewed at 800x600 or higher, IE 4.0 or better, and Java enabling.
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Our SMA Journey
Our life since our perfect little Noah was diagnosed with SMA type 2. Tuesday, March 25, 2014. I remember every detail of the day he was born. How it felt to hold him in my arms for the first time. The way he smelled. The first time he smiled. The first time he rolled over. The first laugh. The first word. Unforgettable and overwhelming blessings that I am so deeply thankful for. These are the challenges that I dread and fear that if I handle them incorrectly, I may damage him. I said the exact thing...
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Listen to a mix of all the songs. here. And here is the track list / song order:. Light chair (midori hirano) / typewriter (dj codomo) / such a color (kazutoshi hara) / light chair (fujimoto yuichiro) / switch (marxy) /. Paparazzi (suppa micro pamchopp) / light chair (imai) / sleet (gng) / light chair (digiki) / lantern on the water (hot fudge sundae) /. Typewriter (david fenech) / kite of night (pandatone) / the mop (shugo tokumaru). Osl and music related's official store]. Here is a cover of the mop.
