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Patient PhD | BlogWriting at the Intersection of Academia, Advocacy, and Chronic Illness
http://www.patientphd.com/
Writing at the Intersection of Academia, Advocacy, and Chronic Illness
http://www.patientphd.com/
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Patient PhD | Blog | patientphd.com Reviews
https://patientphd.com
Writing at the Intersection of Academia, Advocacy, and Chronic Illness
patientphd.com
A Year with Kineret (Anakinra): Some Reflections | Patient, PhD
http://patientphd.com/2014/06/19/a-year-with-kineret-anakinra
Patient, PhD Writing at the Intersection of Academia, Advocacy, and Chronic Illness. Resources & Links. A Year with Kineret (Anakinra): Some Reflections. June 19, 2014. As I near the one-year anniversary of starting my Kineret injections, I want to take a moment to bask in the glow of getting my inflammatory arthritis into remission. I was one of the lucky people who responds to anakinra almost immediately, with a significant reduction in symptoms (in my case a magical ACR70 level of improvement. Kineret...
narrative | Patient, PhD
http://patientphd.com/category/narrative
Patient, PhD Writing at the Intersection of Academia, Advocacy, and Chronic Illness. Resources & Links. When “Self-help” Isn’t So Helpful. July 11, 2014. 8220; When you are ill or disabled, do not feel that you have failed in some way, do not feel guilty. Do not blame life for treating you unfairly, but do not blame yourself either.” –Eckhart Tolle,. The Power of Now. For the past few weeks I’ve been reading bits and pieces of Eckhart Tolle’s. The Power of Now. 8221; “be a victim! More importantly, wheth...
gender | Patient, PhD
http://patientphd.com/category/gender
Patient, PhD Writing at the Intersection of Academia, Advocacy, and Chronic Illness. Resources & Links. Sometimes Access is About Getting in the Door, and Sometimes It Isn’t. August 13, 2014. That life is complicated is a fact of great analytical importance. Law often seeks to avoid this truth by making up its own breed of narrower, simpler, but hypnotically powerful rhetorical truths. –Patricia Williams,. The Alchemy of Race and Rights. About one patient’s. Maybe But providers don’t usually deny c...
On Being a Zebra (or why Occam’s razor doesn’t always work) | Patient, PhD
http://patientphd.com/2014/05/20/on-being-a-zebra
Patient, PhD Writing at the Intersection of Academia, Advocacy, and Chronic Illness. Resources & Links. On Being a Zebra (or why Occam’s razor doesn’t always work). May 20, 2014. Among competing hypotheses, the one with the fewest assumptions should be selected. ( Occam’s razor. 8220;Patients can have as many diseases as they damn well please.” ( Harrum’s Dictum. This is Zoe. She’s a rare “Golden Zebra.”. 8220; When you hear hoofbeats, think of horses not zebras. 8221; This is generally taken to mean tha...
Academia | Patient, PhD
http://patientphd.com/tag/academia
Patient, PhD Writing at the Intersection of Academia, Advocacy, and Chronic Illness. Resources & Links. Pretending to be normal. October 15, 2012. Super-crip Narratives and the Burden of Disability. August 17, 2012. In the academic discipline of Disability Studies, one of the topics in discussions of disability narratives and the social construction is disability and the so-called “super-crip narrative” or super-crip stereotype. Implying that “overcoming” is a matter of will and that accommod...While I a...
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Objects in Mirror are Closer than They Appear: Absence and Return
http://mirroredlens.blogspot.com/2014/04/absence-and-return.html
Objects in Mirror are Closer than They Appear. Life, Autoimmune Disease, and a side of Snark. Wednesday, April 23, 2014. 8220;I tramp a perpetual journey.” ― Walt Whitman, Song of Myself. The expected first entry after a long hiatus from blogging is usually an apology from the author. But you know what? I'm not here to apologize. In the past year, I took a full time administrative job, found a biologic medication that works for me, convinced my insurance company to pay for said biologic, served as a.
Objects in Mirror are Closer than They Appear
http://mirroredlens.blogspot.com/2014/07/welcome-just-as-reminder-im-now.html
Objects in Mirror are Closer than They Appear. Life, Autoimmune Disease, and a side of Snark. Tuesday, July 15, 2014. Just as a reminder, I'm now blogging at PatientPhD.com. I would love to see you there. For those of you using a RSS feed, the new feed url is. I look forward to hearing from you. I read and write like it's an addiction. I teach. I design objects and interfaces. I laugh often, though rarely early. I also happen to have autoimmune disease. 8212; Joseph Campbell. 8212; Flannery O'Connor.
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Patient PhD | Blog
Patient, PhD Writing at the Intersection of Academia, Advocacy, and Chronic Illness. Resources & Links. Thinking about Robin Williams, Chronic Illness, and Suicide Risk. August 15, 2014. Someone I know posted the following today on Facebook after news of Robin William’s Parkinson’s diagnosis. Broke: “If you should choose to take drugs and abuse alcohol, one of the many consequences is brain damage causing Parkinson’s.” How heartless. And. It must be nice up there on that high horse. Sometimes Access is A...
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