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The Portfolio Group, Inc.
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UNITED STATES
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The PKU Connection: Resources
http://pkuconnection.blogspot.com/p/resources.html
National PKU Alliance (Our National Organization- great advocacy info) www.npkua.org/. National PKU News (order your newsletter here-it's wonderful! Http:/ www.pkunews.org/. PKU Listserv ( a great way to connect) - http:/ www.pkunews.org/. The Mid-Atlantic Connection http:/ www.macpad.org/. Canadian PKU and Allied Disorders http:/ www.canpku.org/. Cook for Love ( Amazing Recipes! Http:/ www.cookforlove.org/. European Organisation for Rare Diseases http:/ www.eurordis.org/. Food and Formula Companies:.
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www.patientpostcard.com
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Patient POV - Speak up so we all hear you!Patient POV | Speak up so we all hear you!
Speak up so we all hear you! Women Write Medicine and Health Policy Blogs and Stories. December 26, 2017. Judy Graham (Kaiser Health News) and Paula Span (New York Times) write about navigating aging. Judy also hosts a Facebook group titled Navigating Aging with Judy Graham. It covers a soup-to-nuts discussion on challenges growing older, retiring, getting healthcare, and more. Paula Span writes regularly for the NYTimes Old Age. And Ending Ageism or How Not to Shoot Old People. Or alerting you to proble...
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Patient Power
Digitalization is Changing the Power of Relationships. Myeloma 2015: Advances in Genomics and Precision Medicine. CheckMate 067: Potential New Immunotherapeutic Approach for Advanced Melanoma. How to Become an Empowered Patient. Participating in a Clinical Trial is the Best Way to Treat Pancreatic Cancer. L’utilisation de la chimiothérapie et ses bénéfices. Advice for patients with stage III melanoma. Introducing venetoclax, a powerful new drug that may treat CLL. Patient Power Likes more. Terms & C...
4th Annual Conference | PPFC | Patient Advocacy – Giving Voice to Patients
Information Therapy – India. 4th Annual Conference: Patient Advocacy - Giving Voice to the Patients. View the event live - click here. BOOK LAUNCH: Patient Advocacy - Giving Voice to Patients by Dr.Aniruddha Malpani, M.D.,on Saturday, 16 November, 2013. 4th Annual Conference PPFC. Mumbai, India ·. 16th November 2013 - 10am- 1.30pm. Register for the event. Nov 16, 2013. 10:00 am - 10:15 am. How Patient Advocates Promote Patient Safety. 10:15 am - 10:30 am. Why every doctor needs to be a patient advocate!
Connect to the Knowledge of a Community of Cancer Experts | Patient Power
Knowledge. Confidence. Hope. Health Centers ▾. Head and Neck Cancer. Empowering Others: Myeloma Patient Climbs Mount Kilimanjaro. With the right treatment myeloma patients are capable of amazing feats. Join us to hear Matt Goldman’s remarkable ascent, along with six other patients, up Mount Kilimanjaro. The Pursuit of Happiness: Enjoying Life With Prostate Cancer. Andrea’s Story: The Fight to Live Well, Not Just Live Longer With Myelofibrosis. Why should you remain hopeful on your MPN journey? Sex Concer...
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Patient Power America | Taking Power Back from ALL patients across America.
Taking Power Back from ALL patients across America. Skip to primary content. Skip to secondary content. Lessons from Ryan Care: We Need Reform, Not Relabeling. March 30, 2017. By: Elizabeth Lee Vliet, M.D. Drain The Swamp was President Andrew Jackson’s rallying cry to rid Washington of cronyism and corruption in 1828. This call has new meaning in 2017, intensified by the saga of House Speaker Paul Ryan’s failed American Health Care Act (AHCA). ObamaCare, ironically called. Rising out of pocket costs.
