icon-itp.org
ICON: Pediatric ITP Consortium of North America » Resources/Links
http://icon-itp.org/for-patients/resourceslinks
8211; Main Menu –. Platelet Disorder Support Association (PDSA). Intercontinental Cooperative ITP Study Group (ICIS). ITP UK Support Association. American Society of Hematology (ASH). American Society of Pediatric Hematology/Oncology (ASPHO). International Society of Thrombosis and Hemostasis (ISTH). ITP Consortium of North America (ICON), icon-itp@chboston.org. Photos by Sam Ogden.
davidmcnally.blogspot.com
David McNally - Wiskott Aldrich Syndrome, Bone Marrow Transplant, and Graft-vs-Host Disease: +2786 Days Post BMT - David is doing great!
http://davidmcnally.blogspot.com/2014/03/2786-days-post-bmt-david-is-doing-great.html
Tuesday, March 25, 2014. 2786 Days Post BMT - David is doing great! David will be 10 yrs old on June 7th! He still has ongoing health issues which I'll outline here:. He still has petechiae (tiny pin point blood spots) but his platelets are normal. The doctors have no explanation. IGF3 Binding Protein - 4.4 - normal. IGF1 Insulin-like Growth FActor - 130 - normal. Celiac Disease Panel - TTG IgA Antibody - 1.2 - normal. Deamidated liadin ABS, IGA - 2.2 - normal. T4FREE - 1.06 - normal. 98/63 - very stable.
attainablemission.blogspot.com
Mission: Attainable: July 2014
http://attainablemission.blogspot.com/2014_07_01_archive.html
Thursday, July 10, 2014. End of day 3 for the "boot camp". Today at rehearsal a couple of people commented on how amazing I'm looking.and how different I look (in a good way). They just don't understand the wonders of personal growth work and how this work effects you physically. It's amazing. I'm still just floored. 133.7 pounds. Darn tooten. Monday, July 7, 2014. Boot Camp: End of Day 1. Impressive was I weighed and measured myself, just for kicks. (I'll do it again at the end). Legs: 22.5 inches.
attainablemission.blogspot.com
Mission: Attainable: April 2014
http://attainablemission.blogspot.com/2014_04_01_archive.html
Tuesday, April 15, 2014. Well it has been a busy few months! Now I need to catch up.Oh boy. let's see. Playing on "West Side" = awesome. There was still no rain.so I took the opportunity to clean the gutters. It was quite the undertaking, but they are all clean now! Which is a good thing.cause once it started raining.there was all kinds of small floods around the yard). Cleared the side yard by the garage. soooooooooooo many spiders. So. Many. Another gig with Merced. Always a good time. :-). This month ...
attainablemission.blogspot.com
Mission: Attainable: August 2014
http://attainablemission.blogspot.com/2014_08_01_archive.html
Sunday, August 3, 2014. Well that lasted long *facepalm*. My 30 day boot camp lasted a week. *sigh* It just was too much, especially since I had no one to hold me accountable. But it was a good run and a good lesson. Mom and I went to the State Fair, and had a blast as always. The first thing we did was get her this large, woven hat. I was a little jealous. It looked better than mine. :-) And MUCH better than the pink grandma hats she was first looking at. Close call on that one! I also started composing...
attainablemission.blogspot.com
Mission: Attainable: Well that lasted long *facepalm*
http://attainablemission.blogspot.com/2014/08/well-that-lasted-long-facepalm.html
Sunday, August 3, 2014. Well that lasted long *facepalm*. My 30 day boot camp lasted a week. *sigh* It just was too much, especially since I had no one to hold me accountable. But it was a good run and a good lesson. Mom and I went to the State Fair, and had a blast as always. The first thing we did was get her this large, woven hat. I was a little jealous. It looked better than mine. :-) And MUCH better than the pink grandma hats she was first looking at. Close call on that one! I also started composing...
attainablemission.blogspot.com
Mission: Attainable: Platelets!!!! Oh God, PLATELETS!!!
http://attainablemission.blogspot.com/2014/05/platelets-oh-god-platelets.html
Friday, May 16, 2014. Oh God, PLATELETS! The light at the end of the tunnel can finally be seen! The beginning of May, we put on two workshops: Embracing Emotions and then Finding Your NO. Just the process of putting on the workshops and getting the space ready was a workshop in itself! And I had a major breakthrough around growing up and being an adult. A MAJOR break through. Side effect of saying "no" to myself:. The phone call went something like this:. Secretary, "Well. it's 70.". Secretary, "70.".
attainablemission.blogspot.com
Mission: Attainable: 2014 Recap....Enter 2015: A humdinger!
http://attainablemission.blogspot.com/2015/01/2014-recapenter-2015-humdinger.html
Wednesday, January 21, 2015. 2014 Recap.Enter 2015: A humdinger! I took a swimming class this semester. It was a great life lesson: "One stroke in front of the next." Swimming 500s seemed almost impossible at first.but you just keep swimming, and the next thing you know, you're there! I finally got the ball rolling with actually. I saw Mykel for the first time. that woman is amazing and has changed my life.for-ev-er! And it ended up being a really good concert. I got my first voice student. I puked again...
attainablemission.blogspot.com
Mission: Attainable: June 2013
http://attainablemission.blogspot.com/2013_06_01_archive.html
Sunday, June 30, 2013. Napping Alien dream.yet again. What's with the aliens in my dreams! She casually gestured with a hand as she led me to where I'd be working, "A poll with invisible dildos or something like that." (I'm not kidding. she said that). And then I woke up. Time for bed. hehehehhehe. It's been a month. Time for an update! So what I've been up to for the month of June:. Carver ended splendidly. Our final concert was SO much better than last time. And I'm looking forward to next year! I've b...
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