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Perfect Little Me - Home

Site dedicated to a child's journey with VACTERL Syndrome.

http://www.perfectlittleme.com/

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PAGE TITLE
Perfect Little Me - Home | perfectlittleme.com Reviews
<META>
DESCRIPTION
Site dedicated to a child's journey with VACTERL Syndrome.
<META>
KEYWORDS
1 VACTERL Syndrome
2 VATER Syndrome
3 VACTERL Association
4 VATER Association
5 VATER
6 VACTERL
7 EA/TEF
8 Esophageal Atresia
9 Imperforate ****
10 tracheoesophageal fistula
CONTENT
Page content here
KEYWORDS ON
PAGE
perfect little me,our story,blog,links,how to support,tatiana's journey,about tatiana,every day
SERVER
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CONTENT-TYPE
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Perfect Little Me - Home | perfectlittleme.com Reviews

https://perfectlittleme.com

Site dedicated to a child's journey with VACTERL Syndrome.

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1

How to Support - Perfect Little Me

https://www.perfectlittleme.com/how-to-support.html

EA/TEF and VACTERL Association. We are grateful for the quality of care Tatiana has received throughout her journey to overcome her challenges. While our family is fortunate to have insurance, there were significant out of pocket expenses. January is EA/TEF Awareness Month. Join us in a worldwide campaign to help raise awareness regarding a birth defect that effects 1 out of every 3,000 - 5,000 infants born each year. In the month of January 'Color it Periwinkle' on your facebook page. If you didn't have...

2

Our Story - Perfect Little Me

https://www.perfectlittleme.com/our-story.html

EA/TEF and VACTERL Association. This page provides a chronological view of Tatiana's story where you can read the early posts in order from the beginning, starting with her birth. To read up on her current shenanigans, be sure to check out the blog link. And subscribe to our feed. Thank you! Earth Day 2009: Tatiana's Debut Into This World. The Morning After 03/29/10. Maybe they made a mistake. Maybe, this was all a misunderstanding. Maybe, I imagined it all. How could this have happened? Ldquo;They said ...

3

Perfect Little Me - crafting-sanity

https://www.perfectlittleme.com/blog.html

EA/TEF and VACTERL Association. Along this journey, many people have wondered how I was brave enough to have another child after having had Tatiana with her EA/TEF and VACTERL issues. It's like a wave of internal questions and memories that takes me out of the present, and my own connotations to that question come raining down, pulling at me, demanding articulation. The swirl goes something like this:. How do I explain that it wasn't an act of bravery? Allow me to throw in some context. I originally ...

4

Links - Perfect Little Me

https://www.perfectlittleme.com/links.html

EA/TEF and VACTERL Association. EA/TEF Child and Family Support Connection, Inc. Tracheo Oesophageal Fistula Support Group (TOFS). VATER Connection, Inc. TEF/VATER/VACTRL National Support Network. Birth Defect Research for Children. Genetic and Rare Diseases (GARD) Information Center. March of Dimes Birth Defects Foundation. Lucille Packard Children's Hospital. VACTERL Association Groups on Facebook. VACTERL Association Support Group. DrugWatch.com - Keeping an Eye on Pharmaceuticals.

5

EA/TEF & VACTERL Association - Perfect Little Me

https://www.perfectlittleme.com/eatef--vacterl-association.html

EA/TEF and VACTERL Association. About Esophageal Atresia/Tracheoesophageal Fistula. EA/TEF is a rare congenital birth defect which affects approximately 1 in 4,000 babies. Nobody knows what causes this abnormality. In babies who have esophageal atresia ("ee-sof-ah-gee-all at-tree-see-ah"), the esophagus doesn't connect to the stomach. It just ends in a pouch, so nothing the baby swallows gets into the stomach. Http:/ familydoctor.org/online/famdocen/home/children/parents/special/birth/345.htm. Index of R...

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citlalirose.com citlalirose.com

Welcome! – Citlali Rose

http://www.citlalirose.com/welcome

Posted by: Rosanna Alvarez. Date: February 14, 2014. Posted in: Citlali Rose. I’m Rosanna, creative renaissance woman extraordinaire, and this is my blog. I am a mom of three beautiful girls who are, in truth, the inspiration for most of my creative adventures. When I’m not reading a book, wrangling my wild little monsters, nagging the husband, I love to create – oh, who am I kidding? Most times, I’m juggling all four! Share on Google Plus. 6 Inspirational Nature Quotes. April 22, 2014. May 13, 2014.

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EA/TEF and VACTERL Association. When we think of babies, we imagine perfection. Tatiana reminds us that perfection comes in many forms; she reminds us that all children are perfect and that they have much to teach us by way of resiliency, hope, and healing. When we think of babies, we imagine perfection. Tatiana reminds us that perfection comes in many forms; she reminds us that all children are perfect and that they have much to teach us by way of resiliency, hope, and healing. She is now a thriving fou...

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