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PKU Families: May 2009

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Sharing Stories, Recipes, Research. Wednesday, May 27, 2009. If I may toot my own horn. A while back, I made a video explaining PKU.  Well, there was a European organization for rare diseases that was running a video competition.  I thought I would go ahead and submit my video (even though I was a bit embarrassed to show them my goofiness).  If anything, my video was surely different- and PKU would get some attention.  . Well, guess what? Yep  The article is HERE.  . Subscribe to: Posts (Atom).

pkufamilies.blogspot.com

PKU Families: September 2008

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Sharing Stories, Recipes, Research. Monday, September 29, 2008. Apples for a sweet New Year. From Family Friendly Recipes. 4 Apples, peeled and cored, sliced. 1 1/2 C CBF Baking Mix. 1/2 C Brown Sugar. 6 Servings/ 1 slice each. 4 PHE per serving (.2 exchanges). Tuesday, September 16, 2008. As told on our blog.). Sell wheat free/dairy free waffles which happen to be lower in pro then regular waffles. Some days are still hard for me. I find that if I start to think too much about it, I tend to get ...We ha...

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PKU Families: Welcome to the community!

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Sharing Stories, Recipes, Research. Monday, September 28, 2009. Welcome to the community! I just wanted to post an update for our family. We welcomed into the world our daughter, Audrey, on August 31st. Audrey now joins her older brother Owen in the PKU community. We received the diagnosis 2 weeks ago and are happy to report she has taken off on her medical formula and is still gaining weight steadily! To do it all. So, please welcome a new girl to the block. our little Audrey girl. Subscribe to: Post Co...

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PKU Families: Alphabet

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Sharing Stories, Recipes, Research. Sunday, January 3, 2010. Cross posted at A Double Serving of Love. Ever since Ryan has been eating table food, we have tried to introduce "PKU language". We use words like "Low- protein" and "Phe". We don't like to use the words "can't eat" instead we say "doesn't eat". Today Ryan and I had a little conversation during lunch. Does Ryan eat chicken? Does Ryan eat meat? Ryan eats low protein foods.". Ryan eats low protein because Ryan has PKU. Can you say PKU?

pkufamilies.blogspot.com

PKU Families: November 2008

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Sharing Stories, Recipes, Research. Monday, November 10, 2008. With all my pride, I post a video. For now, I leave you with a video of her healing progress. Katy has just turned three years old. I truly believe in the healing power of laughter. We all deserve a chuckle. After all, we're all "normal". Toodles, PKU community. I love you all. Thanks for the friendship. Subscribe to: Posts (Atom). To become a blog author, send an email to heidisrecipes at hotmail dot com. We'd love to hear your stories!

pkufamilies.blogspot.com

PKU Families: July 2011

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Sharing Stories, Recipes, Research. Saturday, July 23, 2011. Subscribe to: Posts (Atom). To become a blog author, send an email to heidisrecipes at hotmail dot com. We'd love to hear your stories! Canadian PKU and Allied Disorders. PKU for Life Forum. Life with the Crisps. For Me This Is Heaven. Simple template. Powered by Blogger.

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PKU Families: Food for Thought

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Sharing Stories, Recipes, Research. Sunday, January 3, 2010. A good friend of mine, Beth over at Misadventures, Rants and Tidbits. Recently posed this question to me:. Out of curiosity, given the traditional high-pro foods normally served on T-day, what do you guys do or plan to do for your family meal now? That would be a stupendous, informative post! Well, ask a question and you shall receive an answer! When we learned of Ryan's PKU diagnosis. If we go to a party, will there be food for him to eat?

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PKU Families: February 2009

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Sharing Stories, Recipes, Research. Friday, February 20, 2009. ANY ADVICE FOR FOOD STORAGE WOULD BE A HUGE HELP FOR ME AND EVERYONE ELSE. Monday, February 2, 2009. Preaching the the Choir. I know, I know. We all know what PKU is. Still, I made a video explaining it a bit. If you follow me at all, you know Im a bit of a goof ball- but If you want to share the link its here:. Http:/ www.youtube.com/watch? Subscribe to: Posts (Atom). Canadian PKU and Allied Disorders. PKU for Life Forum. Life with the Crisps.

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PKU Families: PKU (low protein) pumpkin pie

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