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Planet Elliott | ….living with a rare chromosome disorder

The inspiration for creating this website comes from being mum to Elliott. Elliott was born in 2002 and was diagnosed with a very rare chromosome disorder just before his first birthday. The impact of rare chromosome disorders can vary greatly but many babies are born sick and/or disabled with no clear prognosis for the future.  The prognosis…

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Planet Elliott | ….living with a rare chromosome disorder | planetelliott.wordpress.com Reviews
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The inspiration for creating this website comes from being mum to Elliott. Elliott was born in 2002 and was diagnosed with a very rare chromosome disorder just before his first birthday. The impact of rare chromosome disorders can vary greatly but many babies are born sick and/or disabled with no clear prognosis for the future.  The prognosis…
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Planet Elliott | ….living with a rare chromosome disorder | planetelliott.wordpress.com Reviews

https://planetelliott.wordpress.com

The inspiration for creating this website comes from being mum to Elliott. Elliott was born in 2002 and was diagnosed with a very rare chromosome disorder just before his first birthday. The impact of rare chromosome disorders can vary greatly but many babies are born sick and/or disabled with no clear prognosis for the future.  The prognosis…

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Support and Information | Planet Elliott

https://planetelliott.wordpress.com/disability-links/support-and-information

8230;living with a rare chromosome disorder. Rare Chromosome Disorders (RCD). Elliott’s Chromosome Disorder. Quote from The Water Giver. Activities, Playschemes, Childcare and Respite. Learning disability and behaviour. Learning disability and behaviour. Children with Special Needs Foundation. Http:/ www.childrenwithspecialneeds.co.uk/. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). A post from Elliott’s Auntie.

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Activities, Playschemes, Childcare and Respite | Planet Elliott

https://planetelliott.wordpress.com/disability-links/playschemes-and-respite

8230;living with a rare chromosome disorder. Rare Chromosome Disorders (RCD). Elliott’s Chromosome Disorder. Quote from The Water Giver. Activities, Playschemes, Childcare and Respite. Learning disability and behaviour. Activities, Playschemes, Childcare and Respite. Play and leisure for disabled children and young adults. Based in Surrey, UK (See if you can spot Elliott on the Home Page! Http:/ www.disability-challengers.org/. Offers services to young people with learning disabilities in Surrey Age 16-35.

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Photos of Elliott | Planet Elliott

https://planetelliott.wordpress.com/gallery/photos-of-elliott

8230;living with a rare chromosome disorder. Rare Chromosome Disorders (RCD). Elliott’s Chromosome Disorder. Quote from The Water Giver. Activities, Playschemes, Childcare and Respite. Learning disability and behaviour. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). You are commenting using your WordPress.com account. ( Log Out. You are commenting using your Twitter account. ( Log Out. About the blog page….

4

Elliott’s Chromosome Disorder | Planet Elliott

https://planetelliott.wordpress.com/rare-chromosome-disorders/elliotts-chromosome-disorder

8230;living with a rare chromosome disorder. Rare Chromosome Disorders (RCD). Elliott’s Chromosome Disorder. Quote from The Water Giver. Activities, Playschemes, Childcare and Respite. Learning disability and behaviour. Elliott’s Chromosome Disorder. Elliott’s chromosome disorder is so rare that it doesn’t have a name, just a series of numbers to define it (his karyotype). Elliott’s karyotype is 46,XY, der(18)t(18;20)(p11.21;p11.2)mat. Whereas people with normal chromosomes will have a karyotype of 46, XY.

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Welcome to Holland | Planet Elliott

https://planetelliott.wordpress.com/moral-support/inspiring-quotes/welcome-to-holland

8230;living with a rare chromosome disorder. Rare Chromosome Disorders (RCD). Elliott’s Chromosome Disorder. Quote from The Water Giver. Activities, Playschemes, Childcare and Respite. Learning disability and behaviour. By Emily Perl Kingsley. I am often asked to describe the experience of raising a child with a disability – to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It’s like this……. 8221; you say. “What do you mean Holland? It’...

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thisisnoordinarykid.blogspot.com thisisnoordinarykid.blogspot.com

This is No Ordinary Kid: The Most Fun Appointment Ever

http://thisisnoordinarykid.blogspot.com/2014/06/the-most-fun-appointment-ever.html

This is No Ordinary Kid. Family life, raising a child with special needs after surviving Meningitis. Thursday, 5 June 2014. The Most Fun Appointment Ever. Another forgotten blog post and this was from last year. There's an update at the end. Cameron's Ipad and Ipod. The Most Fun Appointment Ever is what I think Cameron would have called our appointment at the Independent Learning Centre. Cameron got to have a play on the mini ipad and the two Samsung devices too. He really was in heaven. An update - Foll...

thisisnoordinarykid.blogspot.com thisisnoordinarykid.blogspot.com

This is No Ordinary Kid: Cam Got a Haircut .... Ooops

http://thisisnoordinarykid.blogspot.com/2014/06/cam-got-haircut-ooops.html

This is No Ordinary Kid. Family life, raising a child with special needs after surviving Meningitis. Monday, 16 June 2014. Cam Got a Haircut . Ooops. On Saturday Cameron went with MMM to get a much needed hair cut. I was referring to his hair as Sideburns Gone Wild. He really needed a hair cut. This visit MMM settled Cameron into a chair and spoke with the hairdresser before leaving them both and sitting in the waiting area. Cameron did really well and after a quick consult with MMM about whether pro...

thisisnoordinarykid.blogspot.com thisisnoordinarykid.blogspot.com

This is No Ordinary Kid: Just How Many Pairs of Jeans Does One Person Need???

http://thisisnoordinarykid.blogspot.com/2014/06/just-how-many-pairs-of-jeans-does-one.html

This is No Ordinary Kid. Family life, raising a child with special needs after surviving Meningitis. Tuesday, 17 June 2014. Just How Many Pairs of Jeans Does One Person Need? This post is not an advertisement and has not been paid for. I just like to tell people when I think a product or service is good. Recently I took Cameron shopping for Jeans. He very inconsiderately grew out of about 4 pairs of last years jeans and now that we don't have school uniforms we need more casual clothes. Cameron happily e...

thisisnoordinarykid.blogspot.com thisisnoordinarykid.blogspot.com

This is No Ordinary Kid: I Don't Consider Myself a Special Needs Parent

http://thisisnoordinarykid.blogspot.com/2014/06/i-dont-consider-myself-special-needs.html

This is No Ordinary Kid. Family life, raising a child with special needs after surviving Meningitis. Friday, 6 June 2014. I Don't Consider Myself a Special Needs Parent. I've read a few blog posts over the last few months about how parents of children with special needs would like people to talk to them and be friends with them. The blog posts I have read have been wonderfully written and have stirred up a lot of good discussion amongst the special needs community. Don't get me wrong, I'm not embarrassed...

thisisnoordinarykid.blogspot.com thisisnoordinarykid.blogspot.com

This is No Ordinary Kid: Why Cameron is No Ordinary Kid - Part 60

http://thisisnoordinarykid.blogspot.com/2014/06/why-cameron-is-no-ordinary-kid-part-60.html

This is No Ordinary Kid. Family life, raising a child with special needs after surviving Meningitis. Thursday, 12 June 2014. Why Cameron is No Ordinary Kid - Part 60. I know you were expecting to read whether our marriage survived or not but that was further along in the story so you will just have to wait and see. There were some absolute positives about moving back to the city and mostly they were based around our families and friends. Michael also had a huge positive by moving to the city. He beca...

thisisnoordinarykid.blogspot.com thisisnoordinarykid.blogspot.com

This is No Ordinary Kid: Toileting - 18 Year Old Style

http://thisisnoordinarykid.blogspot.com/2014/06/toileting-18-year-old-style.html

This is No Ordinary Kid. Family life, raising a child with special needs after surviving Meningitis. Thursday, 19 June 2014. Toileting - 18 Year Old Style. The quest for Cameron to become an independent toileter continues. It is painstaking and tiring, frustrating and infuriating. And sometimes it's just plain funny but not very often anymore. Lately he has been having a morning wee in the shower and I figure this is fine. It's all going down the drain and he knows he's doing it so that has to be a p...

thisisnoordinarykid.blogspot.com thisisnoordinarykid.blogspot.com

This is No Ordinary Kid: Cameron

http://thisisnoordinarykid.blogspot.com/p/why-is-cameron-no-ordinary-kid.html

This is No Ordinary Kid. Family life, raising a child with special needs after surviving Meningitis. Cameron was born a healthy bouncing baby boy. First grandchild on both sides of the family and much awaited by family and friends. It had taken five years to have Cameron and we were overjoyed with our little baby boy. Cameron started therapy as soon as he was awake and free of machines to support his body. Therapy has been a major part of his life and continues today seventeen years later. We hav...Camer...

thisisnoordinarykid.blogspot.com thisisnoordinarykid.blogspot.com

This is No Ordinary Kid: My Marvellous Man

http://thisisnoordinarykid.blogspot.com/p/my-marvellous-man.html

This is No Ordinary Kid. Family life, raising a child with special needs after surviving Meningitis. My Marvellous Man and I have been married for twenty four glorious years. We met at University when I was studying early childhood teaching and he was studying industrial chemistry. Neither of us understood what the other one was studying but our best friends were a couple, studying the same courses, and they introduced us. He is always supportive and the only person I need to hold my hand through this am...

thisisnoordinarykid.blogspot.com thisisnoordinarykid.blogspot.com

This is No Ordinary Kid: June 2014

http://thisisnoordinarykid.blogspot.com/2014_06_01_archive.html

This is No Ordinary Kid. Family life, raising a child with special needs after surviving Meningitis. Thursday, 26 June 2014. My Nightmare Came True. Cameron 18 years old. I've been quiet for a week because I was in shock and trying to process what happened. Why? I admit I have lived a sheltered life, yes I drink wine but didn't try alcohol until I was in my twenty's and I've never smoked and have never taken drugs either. This can't be true. The person Cameron was with took advantage of the fact Cameron ...

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Planet Elliott | ….living with a rare chromosome disorder

8230;living with a rare chromosome disorder. Rare Chromosome Disorders (RCD). Elliott’s Chromosome Disorder. Quote from The Water Giver. Activities, Playschemes, Childcare and Respite. Learning disability and behaviour. The inspiration for creating this website comes from being mum to Elliott. Elliott was born in 2002 and was diagnosed with a very rare chromosome disorder just before his first birthday. So, why create a website? 2 I often find myself having to explain Elliott’s condition to medical...

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