I am a Filipina college student and I have Marfan's Syndrome. This blog is intended to connect with and to provide information and support to others with Marfan's, especially to other Pinoys.
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Living with Marfan's Syndrome | precypinoy.blogspot.com Reviews
https://precypinoy.blogspot.com
I am a Filipina college student and I have Marfan's Syndrome. This blog is intended to connect with and to provide information and support to others with Marfan's, especially to other Pinoys.
precypinoy.blogspot.com
Living with Marfan's Syndrome: Refreshing My Memory
http://precypinoy.blogspot.com/2011/09/refreshing-my-memory.html
Living with Marfan's Syndrome. I am a Filipina college student and I have Marfan's Syndrome. This blog is intended to connect with and to provide information and support to others with Marfan's, especially to other Pinoys. Tuesday, September 20, 2011. It has been three years or so since I had my eye and heart surgeries. A lot has happened in those four years, and my life direction has changed. Then I went to the city for college, and during my first year we discovered I had Marfan’s. My eyesigh...I still...
Living with Marfan's Syndrome: November 2009
http://precypinoy.blogspot.com/2009_11_01_archive.html
Living with Marfan's Syndrome. I am a Filipina college student and I have Marfan's Syndrome. This blog is intended to connect with and to provide information and support to others with Marfan's, especially to other Pinoys. Sunday, November 29, 2009. We all work to keep it perfectly neat and clean, and business is picking up after a slow summer when people were all staying home due to the flu. A lot of my childhood was memorable, but not in a good way. My parents were always poor. About the time I...A rec...
Living with Marfan's Syndrome: God Rides a Jeepney
http://precypinoy.blogspot.com/2009/12/god-rides-jeepney.html
Living with Marfan's Syndrome. I am a Filipina college student and I have Marfan's Syndrome. This blog is intended to connect with and to provide information and support to others with Marfan's, especially to other Pinoys. Sunday, December 6, 2009. God Rides a Jeepney. Last Sunday, after my cousin Marilyn and I went to church, we went to Gaisano Mall to buy my meds and some stuff for here at home. After we finished at the mall, we walked to the park near Gaisano to wait for a Bayabas jeepney.
Living with Marfan's Syndrome: September 2011
http://precypinoy.blogspot.com/2011_09_01_archive.html
Living with Marfan's Syndrome. I am a Filipina college student and I have Marfan's Syndrome. This blog is intended to connect with and to provide information and support to others with Marfan's, especially to other Pinoys. Tuesday, September 20, 2011. It has been three years or so since I had my eye and heart surgeries. A lot has happened in those four years, and my life direction has changed. Then I went to the city for college, and during my first year we discovered I had Marfan’s. My eyesigh...I still...
Living with Marfan's Syndrome: Learn about Marfan's Syndrome
http://precypinoy.blogspot.com/2009/11/marfans-syndromehttpshealthgooglecomhea.html
Living with Marfan's Syndrome. I am a Filipina college student and I have Marfan's Syndrome. This blog is intended to connect with and to provide information and support to others with Marfan's, especially to other Pinoys. Sunday, November 8, 2009. Learn about Marfan's Syndrome. Syndrome is a genetic disorder which affects the connective tissue of the body. The weakened connective tissue can produce certain external features, which aren't all bad, and certain internal problems, which are. Is that very of...
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Tall Like The Sunflowers: Annual Visit
http://marfangirl.blogspot.com/2010/08/annual-visit.html
Tall Like The Sunflowers. Just a mom and a wife managing to keep it all together with a daughter and husband with Marfan Syndrome. Wednesday, August 18, 2010. Yesterday was full of nerves - the annual visit to Hopkins for B and G's checkups at the genetics clinic. The result of the 6 hours worth of doctor appointments - status quo. And I am just fine with that. With the kind of aorta damage that Hubby has.). I woke up this morning feeling so much better. We got through it - surgery #2. Is joining the fam...
NEW WEBSITE | Musings of a Marfan Mom
https://marfmom.wordpress.com/2010/02/21/new-website
Musings of a Marfan Mom. February 21, 2010 · 11:13 AM. PLEASE UPDATE YOUR BLOG ROLLS AND READERS! THIS SITE HAS MOVED TO. Thank you so much for reading, and I hope to see you over at the new, self-hosted, site! One response to “. February 23, 2010 at 2:43 PM. Just stopping by to thank you for visiting me on my SITS day and leaving some blog love! Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). Own Your Own Health.
Conference Recap | Musings of a Marfan Mom
https://marfmom.wordpress.com/2009/08/19/conference-recap
Musings of a Marfan Mom. Six Flags →. August 19, 2009 · 7:28 AM. Sat night a family from another country came to see me and I took them to meet some of the teens. It was the first time the son had ever met another person that looked like him. The father looked around at the teens in wonder and asked me How many years have these kids known each other? And prep for officially kicking off the weekend. I can’t think of a better way to get things started than by having Rick Guidotti from Positive Exposure.
Marfan Through a Mother’s Eyes | Musings of a Marfan Mom
https://marfmom.wordpress.com/2010/01/18/marfan-through-a-mothers-eyes
Musings of a Marfan Mom. Support Ehlers-Danlos Syndrome Research! January 18, 2010 · 12:32 AM. Marfan Through a Mother’s Eyes. Today starts a three-part series: Marfan Through the Eyes of the Unaffected. You’ve read my story. But what about how Marfan has affected those around me? Her fiancée pointed at Mark and said, Well,. And that got me thinkingwhy. I mean, besides love and all that jazz.] How did he/does he view Marfan that makes him want to stay, when it’s made other guys run away? There were a few...
The Situation | Musings of a Marfan Mom
https://marfmom.wordpress.com/2010/02/17/the-situation
Musings of a Marfan Mom. February 17, 2010 · 1:15 AM. Well, the votes are in. They came from the blog, from Twitter, from Facebook, and emails. The Situation it is (by far). Original photo from http:/ chichi212.com/files/2009/12/mike-the-situation-306x460.jpg. I think he rocks it, don’t you? And no, I was not responsible for this awesome picture. Credit goes to April, aka Kethaera. Check out her artwork. Honorable mention for a brace name goes to Kristi. 6 responses to “. February 17, 2010 at 6:19 AM.
My Life With Marfan, Part 3 | Musings of a Marfan Mom
https://marfmom.wordpress.com/2009/07/13/my-life-with-marfan-part-3
Musings of a Marfan Mom. July 13, 2009 · 10:24 PM. My Life With Marfan, Part 3. Previous installments in this series can be found. I had decided that my mission was to make sure 1) everyone knew about Marfan and 2) people with Marfan knew how to advocate for themselves, especially in emergency situations, so that no one would die of aortic dissections anymore. Impossible goal? Yes But, I’m only going to stop trying to reach it when I’m dead. Ran the teen programming back then. At first I was really n...
Twice the Heart - A Double Marfan Family Blog: July 2012
http://twicetheheart.blogspot.com/2012_07_01_archive.html
Twice the Heart - A Double Marfan Family Blog. A man and woman meet and marry. Neither of them knowing BOTH have undiagnosed Marfan Syndrome. What are the odds? Saturday, July 14, 2012. Update on Daniel since the last post. He finally shook the bug, but it did take going to the antibiotics to do it. We really didn't want to go there since he at risk for MRSA, and every antibiotic used now could make it that much harder to fight a bug down the road, but for this bug, it was necessary. When it could have g...
Twice the Heart - A Double Marfan Family Blog: Ambition, Marfan & Pain...
http://twicetheheart.blogspot.com/2014/01/ambition-marfan-pain.html
Twice the Heart - A Double Marfan Family Blog. A man and woman meet and marry. Neither of them knowing BOTH have undiagnosed Marfan Syndrome. What are the odds? Sunday, January 19, 2014. Ambition, Marfan and Pain. Sunday, January 19, 2014. Again the best laid plans of mice and men. I had planned to publish this blog in August of 2013, but if your are one of those that know me and how busy my life is now you can understand why it got put on the back burner. I'm finally going to try and get it done. The ma...
Twice the Heart - A Double Marfan Family Blog
http://twicetheheart.blogspot.com/2012/05/in-1994-my-husband-daniel-was-diagnosed.html
Twice the Heart - A Double Marfan Family Blog. A man and woman meet and marry. Neither of them knowing BOTH have undiagnosed Marfan Syndrome. What are the odds? Monday, May 14, 2012. Our Marfan Story Begins.Again! After many twists and turns of odd symptoms and a misdiagnosis of a related condition, I and several children from an earlier marriage (unrelated to Daniel) were also diagnosed with Marfan's in the fall of 2011. May 21, 2012 at 11:37 AM. Thanks for sharing your story. The Marfan Trust (UK).
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Precyllia's blog - Pomme d'amour & Grande soeur - Skyrock.com
Pomme d'amour and Grande soeur. 12/12/2010 at 8:36 AM. 25/04/2011 at 2:14 AM. Mon grand frere sur le kelle je pourrais. Subscribe to my blog! Mon grand frere sur le kelle je pourrais tjr contais .On ne sais pas bcp parler mais j'espere ke sa va changer . Je t'aime et sa pour la vie :). Don't forget that insults, racism, etc. are forbidden by Skyrock's 'General Terms of Use' and that you can be identified by your IP address (66.160.134.3) if someone makes a complaint. Elle C'est MAMAD0U La MIENNE! Don't f...
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Mot de passe :. J'ai oublié mon mot de passe. Eviiite lÀ c0nfiience and lΣs cǾnfidence , Diit tǾii qÚe déЯiiere sÀ balÀnce . Mise à jour :. Ecoute Skyrock en live. Les n 1 sont Rap and RnB. Abonne-toi à mon blog! N'oublie pas que les propos injurieux, racistes, etc. sont interdits par les conditions générales d'utilisation de Skyrock et que tu peux être identifié par ton adresse internet (67.219.144.114) si quelqu'un porte plainte. Ou poster avec :. Posté le jeudi 16 juillet 2009 07:41. Ou poster avec :.
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Blog de precylliaetsabrina - ceci c'est le blog de precyllia et de sabrina - Skyrock.com
Mot de passe :. J'ai oublié mon mot de passe. Ceci c'est le blog de precyllia et de sabrina. Salut a tous; laissé(e)s beaucoup de commentaire. Mise à jour :. L'anniversaire de sabrina. A mon aniversaire de sabrina. Cc c'est sabrina sava. J'aimerais tellement (Vous Remercier). Abonne-toi à mon blog! Ou poster avec :. Retape dans le champ ci-dessous la suite de chiffres et de lettres qui apparaissent dans le cadre ci-contre. Posté le samedi 28 novembre 2009 10:34. Ou poster avec :. Cc c'est sabrina sava.
Plateforme REgionale de CYtométrie pour la Microbiologie
Plateforme REgionale de CYtométrie pour la Microbiologie. Flow cytometry made in MIO. Rechercher dans le site. Bienvenue sur le site Internet de PRECYM. Est spécialisée dans l’analyse à l’échelle individuelle des micro-organismes : identification, tri, dénombrements, physiologie, viabilité, activités. Labellisée par le GIS IBiSA. Elle met ses équipements et son savoir-faire à disposition des équipes du MIO. Ainsi que de toute unité ou institut de recherche du domaine public ou privé. Mardi 23 juin 2015.
Living with Marfan's Syndrome
Living with Marfan's Syndrome. I am a Filipina college student and I have Marfan's Syndrome. This blog is intended to connect with and to provide information and support to others with Marfan's, especially to other Pinoys. Thursday, February 15, 2018. Mini Conference @ Stanford University in California. Their possible topics during this conference are the following:. Targeting medical issues/led by professionals). Eyes (at least two maybe 3 sessions). Gyn focused on women’s issues. If any of you has inqu...
Precy Pinto New Product Development
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Présentation de l’application. Bienvenue sur www.precyplan.com! Ous recherchez un out. Il simple et gratuit pour gérer. Efficacement le planning de travail de votre équipe? Voici la nouvelle version de PRECYPLAN! Si vous avez la responsabilité du planning de travail de votre équipe, notre outil vous comblera, dans la mesure où vous gagnerez, non seulement un temps considérable, mais également la confiance de vos collaborateurs! Gratuit grâce à votre soutien! De modifier le planning. Pour accéder au téléc...
Precyranel-bongo's blog - Blog de Precyranel-bongo - Skyrock.com
More options ▼. Subscribe to my blog. Created: 31/12/2012 at 1:34 PM. Updated: 04/07/2016 at 4:40 AM. Black Mesrime feat. Bakry-Mon Son S'évade. Add this video to my blog. Don't forget that insults, racism, etc. are forbidden by Skyrock's 'General Terms of Use' and that you can be identified by your IP address (66.160.134.4) if someone makes a complaint. Please enter the sequence of characters in the field below. Posted on Sunday, 21 April 2013 at 6:23 AM. La Fouine en duo avec Youssoupha. Posted on Wedn...
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