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Premmeditations | Reflections on premmie parenting

Reflections on premmie parenting

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Premmeditations | Reflections on premmie parenting | premmeditations.wordpress.com Reviews

https://premmeditations.wordpress.com

Reflections on premmie parenting

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1

Good News Friday | Premmeditations

https://premmeditations.wordpress.com/good-news-friday

Reflections on premmie parenting. Diagnosis and Other Dilemmas. Tale of Two NICUS. What is Cerebral Palsy? Good News Friday does exactly what it says on the tin. Every Friday I take time to take stock of all the good things that have happened in the past seven days, but that I am likely to overlook in the chaos of parenting two children, the quagmire of appointments for Mr Boo and work. Think of it as a pick me up for the weekend. I love hearing from you, so please join in if you can! October 24, 2014 at...

2

What is Cerebral Palsy? | Premmeditations

https://premmeditations.wordpress.com/what-is-cerebral-palsy

Reflections on premmie parenting. Diagnosis and Other Dilemmas. Tale of Two NICUS. What is Cerebral Palsy? What is Cerebral Palsy? Wednesday 2 October 2013 is a big day for us. Boo will be exactly 18 months old (actual, not corrected), it will be 6 months to the day since I wrote my very first blog post, and it’s World Cerebral Palsy Day. World Cerebral Palsy Day. Is a great initiative. I’m a big fan of awareness days and weeks. I’ve written in support of several ( World Meningitis Day. But for all I don...

3

The Secret Life of a SEN Parent | Premmeditations

https://premmeditations.wordpress.com/2015/03/26/the-secret-life-of-a-sen-parent

Reflections on premmie parenting. Diagnosis and Other Dilemmas. Tale of Two NICUS. What is Cerebral Palsy? The Secret Life of a SEN Parent. At home, I am happy. Sure, sometimes I am frustrated. OK, often I am frustrated. Sometimes I am sad. But mostly, with my kids, I am happy. Happy with them. Happy for them. Happy because of them. But when I am out and about … well, sometimes I am not happy. Often I am unhappy. Unhappy because people stare. (Why are you feeding that child a drink on a spoon? I’m ...

4

Back and forth | Premmeditations

https://premmeditations.wordpress.com/2015/03/16/back-and-forth

Reflections on premmie parenting. Diagnosis and Other Dilemmas. Tale of Two NICUS. What is Cerebral Palsy? I am so pleased to have come back to the blog, although it feels weird. I don’t know why. It just does. And it may just get a bit weirder still as I won’t be blogging for at least another week as I have to travel with work for a few days. And that makes me feel weirder still. Still, missing them doesn’t quite explain the tight knot in my stomach I am feeling right now. What will happen to them.

5

Whizzing around in the Wizzybug | Premmeditations

https://premmeditations.wordpress.com/2014/10/29/whizzing-around-in-the-wizzybug

Reflections on premmie parenting. Diagnosis and Other Dilemmas. Tale of Two NICUS. What is Cerebral Palsy? Whizzing around in the Wizzybug. A lot of my posts recently have been about the various fires we’re trying to put out here in Boo land. The statementing debacle. The Wizzybug. Is it a wheelchair? Is it the funkiest toy car you have ever seen? Is it just about one of the most fun and life enhancing things anyone has ever invented? To be honest, it sounded too good to be true. Which explained their ch...

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anearlystartblog.com anearlystartblog.com

Other Preemie Stories – An Early Start

https://anearlystartblog.com/other-preemie-stories

Our story of love, hope, and survival. Welcome to our blog about our micro-preemie born at 23 weeks. Catch Up With Jax (Past Posts). Where You’ve Seen Us. Everyone’s story deserves to be told! A Fish, a Helicopter, and a Surprise – My Story. A Micropreemie Miracle – Michele’s Story. A 14oz Fighter – Kari’s Story. Tiny Twins – Stacy’s Story. The Brothers P – Nicole’s Story. What are some of your favorite blogs? 8211; a huge online resource for parents of NICU babies. Stream of the Consciousness. 6 thought...

orangethisway.co.uk orangethisway.co.uk

Work – Orange This Way

http://orangethisway.co.uk/category/being-a-parent-carer/work

Mind Body & Soul. Out & About. Life without a diagnosis. Posts about being undiagnosed. Accessible bench and hoist loos. Posts about bench & hoist loos. Childcare for disabled children. Posts about being a working parent carer. November 27, 2016. The hare, the tortoise and the mountain. A true story. But I didn’t. Because I didn’t want to hear it. I didn’t want to feel it. And I didn’t want it to be real. Because as women we are supposed to be able to do everything, right? A race against time every morni...

mamalewis.com mamalewis.com

About May | Mama Lewis

http://www.mamalewis.com/about-may

May was born on April 23rd, 2009. She suffered poor feeding, shallow breathing and major seizures in the first 12 hours of her life. She stayed in the Special Care Baby Unit for almost six weeks. You can read more about this in the post ‘ The Story of May’s Birth. May has severe brain damage caused by oxygen deprivation. The medical term is hypoxic-ischemic encephalopathy (HIE; for more definitions of medical jargon and silly acronyms see my GLOSSARY. Want to help children like May? Until 2011. Small...

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My Husband Is Literally Giving The Shirt Off His Back | Mama Lewis

http://www.mamalewis.com/2014/07/31/my-husband-is-literally-giving-the-shirt-off-his-back-for-me

A bit of praise. My husband is literally giving the shirt off his back. My husband is literally giving the shirt off his back. Posted on Jul 31, 2014 0 comments. 8230;and swapping it for an Anthony Nolan Trust one. And here he is! Wearing his brand new Anthony Nolan Trust racing top for the charity cycle he is doing in my name. Or, spa treatment as I insist my doctor calls it. Which she does. Why not celebrate with me by donating to the charity that has played such a massive part in saving my life? Most ...

mamalewis.com mamalewis.com

Someone, Please Tell Me What To Do Now? | Mama Lewis

http://www.mamalewis.com/2015/05/11/someone-please-tell-me-what-to-do-now

Someone, please tell me what to do now? Someone, please tell me what to do now? Posted on May 11, 2015 4 comments. Last Thursday, my husband and I skipped off to the polling station with my downstairs neighbours and our children. They played tag between the voting booths and we shushed them and giggled at the same time, delighted to be there and to vote. And, I hadn't just read. I was writing myself. My post on the shocking truth behind Samantha Cameron's Daily Mail article. But, the truth is, people sym...

mamalewis.com mamalewis.com

Press | Mama Lewis

http://www.mamalewis.com/about/press

Sometimes determined, articulate people manage to win small victories on behalf of everyone.". Winifred Robinson, BBC Radio 4's. I'm always interested in hearing from campaigns and charities that want to help the disabled and chronically ill. You can find out more about working with me. Please use this handy contact form. Or get in touch via. If she can do this, I can. Disability cuts will hurt deeply. Government Cuts: On the nursery slopes. How long should a severely disabled child wait for housing?

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Highlights | Mama Lewis

http://www.mamalewis.com/1st-year-highlights

This page is like me welcoming you into my home. I’ve invited you over. Plied you with tea and biscuits. Before you know what’s happening, I’m proudly forcing you to view slides of my baby girl. The difference being, you can click back to the home page if you are bored. If you just subscribed to my blog, this page is for you! Marvel at my great works and despair! For some answers, or start below for some cuteness. Or, perhaps you are my mother or someone like her. If so, this page is also for you! Finall...

23weeksocks.com 23weeksocks.com

NICU Resources

https://23weeksocks.com/nicu-resources

Blogs That I Love. Share the Love Linky. Linkys I’ve Featured In. Headspace Perspective http:/ headspace-perspective.com. Not Even a Bag of Sugar http:/ notevena.blogspot.co.uk/. Premmeditations https:/ premmeditations.wordpress.com/. Bee Mighty http:/ www.beemighty.org/. Bliss http:/ bliss.org.uk. British Heart Foundation http:/ bhf.org.uk. First Touch http:/ www.first-touch.org.uk/. Graham’s Foundation http:/ grahamsfoundation.org/. Hand to Hold http:/ handtohold.org/. Other Resources –. This is my blo...

singlemom2b.blogspot.com singlemom2b.blogspot.com

My Amazing Ella: Sleep Deamons

http://singlemom2b.blogspot.com/2013/05/sleep-deamons.html

MicroPreemie Mom, Single Mom by Choice, Infertility survivor (CCRM Success). Ella born at 25 weeks! It's been a wild ride! Thursday, May 30, 2013. Ella can distinguish night and day. Ella sleeps at night. She goes to bed around 7pm. She generally sleeps until 7am, waking once during the night* and on most (lucky) nights, settling back down fairly easily. Ella does not sleep during the day. Something happened about 1 1/2 weeks ago. Ella began throwing a tantrum at bedtime. It was OUT OF THE BLUE! Ella has...

mamalewis.com mamalewis.com

Time To Share Some Sunshine… | Mama Lewis

http://www.mamalewis.com/2015/07/23/07232015time-to-share-some-sunshine

A bit of praise. Time to share some sunshine…. Time to share some sunshine…. Posted on Jul 23, 2015 6 comments. Four months ago, I could barely walk across my kitchen. One month ago, I marched, along with thousands of others, from the Bank of England to Parliament Square. A march of protest against austerity, but for me another protest too: against ill health with the physical proof that I could walk the length of the march. A lake. Who cares if it was small. She had an excellent end-of-year report from ...

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Premmeditations | Reflections on premmie parenting

Reflections on premmie parenting. Diagnosis and Other Dilemmas. Tale of Two NICUS. What is Cerebral Palsy? That elusive emotional middle ground. I am struggling this week. And I am struggling to understand why I am struggling. But I have decided to stop thinking about that. I just haven’t got a cubic cm of struggle space left in my head. I feel like I’m breaking. This entry was posted in Uncategorized. July 22, 2015. An update from Booland. And the little piece of sanity it offers me, Boo got struck down...

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Cloud, Moon, Mercury | Everything is mutable.

Cloud, Moon, Mercury. October 3, 2015. May 27, 2014. Shit My Son Says. He was buying Mountain Dew and Miller Lite, wearing an Angry Birds tee-shirt and a Dale Junior hat. Somebody needed to tell him to tone it the fuck down. Posted in Living With Adult Children. Shit my son says. May 24, 2014. To II on the IVth Anniversary of His Demise. I didn’t even know who I was. Much less who you were. And yet I let you define me. And all my improvements. Were built on a hollow scaffold. When I found myself. I wrote...

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