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Long-QT Syndrome Blog

Patients' Views Of A Rare Heart Disease. Saturday, September 06, 2008. New Defibrillator Study Is Raising Worries. A new study published in the September 2008 issue of the New England Journal of Medicine (NEJM)* indicates that that people who receive shocks from implanted defibrillators (ICD) are more likely to die later on. News agencies and newspapers around the world reported on these findings, which caused some unease among the long-QT syndrome community on the internet. Links to this post. I got an ...

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Patients' Views Of A Rare Heart Disease. Saturday, September 06, 2008. New Defibrillator Study Is Raising Worries. A new study published in the September 2008 issue of the New England Journal of Medicine (NEJM)* indicates that that people who receive shocks from implanted defibrillators (ICD) are more likely to die later on. News agencies and newspapers around the world reported on these findings, which caused some unease among the long-QT syndrome community on the internet. Links to this post. I got an ...

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Long-QT Syndrome Blog | qtsyndrome.blogspot.com Reviews

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Patients' Views Of A Rare Heart Disease. Saturday, September 06, 2008. New Defibrillator Study Is Raising Worries. A new study published in the September 2008 issue of the New England Journal of Medicine (NEJM)* indicates that that people who receive shocks from implanted defibrillators (ICD) are more likely to die later on. News agencies and newspapers around the world reported on these findings, which caused some unease among the long-QT syndrome community on the internet. Links to this post. I got an ...

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qtsyndrome.blogspot.com

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Long-QT Syndrome Blog: September 2006

http://qtsyndrome.blogspot.com/2006_09_01_archive.html

Patients' Views Of A Rare Heart Disease. Monday, September 25, 2006. Finally, Africa Has An Arrhythmia Website. Lusan, my South African acquaintance, kept her promise. Prevent Arrhythmic Cardiac Events or PACE. Finally went online. It is Africa's first website of its kind and perhaps the most important new entrant in the Sudden Arrhythmia Death Syndromes (SADS) awarness webcommunity. Africa is catching up with the other continents. Posted by Jon N. Mettler-Bennett at 8:15 pm. Links to this post. Swiss re...

2

Long-QT Syndrome Blog: July 2006

http://qtsyndrome.blogspot.com/2006_07_01_archive.html

Patients' Views Of A Rare Heart Disease. Tuesday, July 25, 2006. Long-QT Syndrome Brings People Together. One of the pleasant side effects of running an international website such as QTsyndrome.ch is to get in touch with a lot of people around the globe. Sometimes, you even meet them face to face. I recently got an eMail from a woman with long-QT syndrome from South Africa. She started a heart organization and asked me to assist her. Posted by Jon N. Mettler-Bennett at 11:57 am. Links to this post. If sc...

3

Long-QT Syndrome Blog: Update: When The Interviewer Becomes The Interviewee

http://qtsyndrome.blogspot.com/2008/06/update-when-interviewer-becomes.html

Patients' Views Of A Rare Heart Disease. Thursday, June 12, 2008. Update: When The Interviewer Becomes The Interviewee. The EP Lab Digest magazine, a medical journal for electrophysiology in the US, made an interview with me for the June issue. The article is about why I started the long-QT syndrome blog and about patient support on the internet. EP Lab Digest put the interview online now. To read it, please click here. Labels: Long-QT Syndrome Blog. Posted by Jon N. Mettler-Bennett at 5:35 pm.

4

Long-QT Syndrome Blog: August 2006

http://qtsyndrome.blogspot.com/2006_08_01_archive.html

Patients' Views Of A Rare Heart Disease. Sunday, August 20, 2006. Update: Long-QT Syndrome brings People Together. So my girlfriend and I finally met Lusan today in Interlaken. She is a long distant runner from South Africa who came to Switzerland for a race. But Lusan also is the co-founder of PACE, Prevent Arrhythmic Cardiac Events. This charity organization was started in South Africa by parents and medical professionals in 2004. Posted by Jon N. Mettler-Bennett at 10:20 pm. Links to this post. I usua...

5

Long-QT Syndrome Blog: Long-QT Syndrome At Work

http://qtsyndrome.blogspot.com/2008/08/long-qt-syndrome-at-work.html

Patients' Views Of A Rare Heart Disease. Wednesday, August 20, 2008. Long-QT Syndrome At Work. I got an interesting e-mail from a construction site manager today. She hired a young worker suffering from long-QT syndrome and asked for advice. Not only did the construction firm provide an automated external defibrillator (AED), but the manager also took a first aid course. I call that commendable and hope more companies follow that example. Long-QT Syndrome In Everyday Life. Links to this post:.

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Long-QT Syndrome Blog

Patients' Views Of A Rare Heart Disease. Saturday, September 06, 2008. New Defibrillator Study Is Raising Worries. A new study published in the September 2008 issue of the New England Journal of Medicine (NEJM)* indicates that that people who receive shocks from implanted defibrillators (ICD) are more likely to die later on. News agencies and newspapers around the world reported on these findings, which caused some unease among the long-QT syndrome community on the internet. Links to this post. I got an ...

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