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CRISTINA BONO
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Cristina Bono
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Who We Are | Fundación Noelia
http://fundacionnoelia.org/en/conocenos/quienes-somos
The Noelia Foundation, children with congenital muscular dystrophy due to the lack of collagen VI. Is an organization that has been created as a result of our son Adrià, four years aged and diagnosed with this condition when he was 3. It is a minority degenerative disease. That currently has no cure and the only possible way we have to help our son is by supporting the research. It is a non-profit organization. For all those children who suffer as Adrià this serious disease.
The Disease | Fundación Noelia
http://fundacionnoelia.org/en/conocenos/la-enfermedad
Congenital Muscular Distrophy (CMD) caused by deficit in collagen VI is a very severe illness,. This type of CMD is one of the rare diseases, and at the moment does not have cure. CMD caused by dèficit in collagen VI is a degenerative illness. That affects the muscles. It is caused by a mutation in some of the genes involved in the syntesisof collagen VI (COL6A1, COL6A2, COL6A3). There are 2 different kind of illness depending on the evolution:. Is clinically more severe. Is clinically less severe.
Solidarity Products | Fundación Noelia
http://fundacionnoelia.org/en/colabora/productos-solidarios
Discover our Solidary Products! We are very excited to present our solidary products. Through the purchase of our products you will help in the fight against Congenital Muscular Dystrophy with Collagen VI. Silicone Bracelet. 2 Available in different colors and sizes. Technical sport T-shirt, 10 . Available in all sizes, men and women. Sorry, this entry is only available in ES and CA. Homemade soaps, 3 . Fundación Noelia hola@fundacionnoelia.org.
Transparency | Fundación Noelia
http://fundacionnoelia.org/en/conocenos/estatutos
La Fundación Noelia, Niños contra la Distrofia Muscular por Déficit de Colágeno VI. Fue constituida con fecha 13/08/2015 mediante escritura pública número 774, costando su inscripción en el Registro de Fundaciones del Departamento por Orden Ministerial de 21/09/2015 siendo el número de registro asignado el 1766. La inscripción conlleva el reconocimiento del interés general de sus fines. Según consta, a día de hoy, en este Registro de Fundaciones. View and download Inscripción al Registo de Fundaciones.
Goals | Fundación Noelia
http://fundacionnoelia.org/en/conocenos/objetivos
The main purpose of the Foundation is to support scientific research. Of this disease to prolong the life of these children and find out a treatment or cure for the disorder. To introduce and bring the reality of this. Raise funds for research. In order to start and improve clinical trials. Gathering the maximum number of patients with. Congenital Muscular Dystrophy with Collagen V. Are vital for that purpose. Fundación Noelia hola@fundacionnoelia.org.
Material Solidarity | Fundación Noelia
http://fundacionnoelia.org/en/colabora/material-solidario
Sorry, this entry is only available in ES. Fundación Noelia hola@fundacionnoelia.org.
(ES) El derecho a la Salud y la Desigualdad Social
http://fundacionnoelia.org/en/avances/el-derecho-a-la-salud-y-la-desigualdad-social
ES) El derecho a la Salud y la Desigualdad Social. Sorry, this entry is only available in ES. Written by Cris Bono. View all posts by: Cris Bono. ES) Bicicleta popular y solidaria en Reus. March 10th, 2017. ES) 1a Carrera Solidária Fundación Noelia. March 7th, 2017. ES) Día Mundial de las Enfermedades Raras. February 28th, 2017. ES) Congreso Internacional sobre Trastornos del Colágeno VI, Washington. February 27th, 2017. ES) Conferencia Internacional sobre Trastornos del Colágeno VI. Washington.
Our Story | Fundación Noelia
http://fundacionnoelia.org/en/conocenos/nuestra-historia
When we had to say to everyone that our little boy is poorly, and the illness he is suffering doesn’t have any cure was the hardest thing I’ve ever done. All people know that rare illnesses. Exist, but you never expect to suffer them on a close member of your family. Adrià was born apparently healthy. During his first year nothing was making us suspect what would happen in the next few years. He was a big boy, his actions, his movements, his diet, his expressions, everything looked completely fine. When ...
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Ra-Ra-s-tear (Mademoiselle Méchante) - DeviantArt
Window.devicePixelRatio*screen.width 'x' window.devicePixelRatio*screen.height) :(screen.width 'x' screen.height) ; this.removeAttribute('onclick')" class="mi". Window.devicePixelRatio*screen.width 'x' window.devicePixelRatio*screen.height) :(screen.width 'x' screen.height) ; this.removeAttribute('onclick')". Join DeviantArt for FREE. Forgot Password or Username? Deviant for 8 Years. This deviant's activity is hidden. Deviant since Oct 19, 2008. This is the place where you can personalize your profile!
Silver Sparkle
Upgrade to paid account! Three Hearts [Part 1]. Nov 24th, 2012 at 4:32 PM. Hyuna had always loved her best friends in the same amount of love. But what if the boys love her in a different way? Sep 11th, 2012 at 6:08 PM. As always) un-betaed, and really crappy. Chen had a nightmare about Kris leaving him. A Shoulder To Lean [Drabble]. Jul 1st, 2012 at 10:33 AM. Sehoon was always quiet. May 9th, 2012 at 10:45 AM. Fic is mine, the characters belong to themselves. It was just a dare for halloween.
RaRa
Under current. Includes high-quality download in MP3, FLAC and more. Paying supporters also get unlimited streaming via the free Bandcamp app. RaRa return with the defiant new single under current; marking a touch-down to earth, and birth of all new probings ‘ask me how I’ve been lately’ and introspection ‘I’ve been vulnerable’ - whilst subsequently interrogating the landscape ‘are you doing something dangerous? Released December 12, 2016. Written and performed by RaRa. Mastering - Jack Prest. Since th...
Rechtsanwälte Rausch & Arntzen
RECHTSANWALT JENS ARNTZEN, LL.M. Rechtsanwälte Rausch and Arntzen. Die Kanzlei Rechtsanwälte Rausch and Arntzen berät und unterstützt seit 2010 Mandanten in den verschiedensten Rechtsgebieten. Die Anwälte der Kanzlei bieten Beratungsdiensteistungen in ausgewählten Rechtsgebieten an und können Sie somit optimal vertreten. Denn nur eine Spezialsierung gewährleistet eine kompetente Beratung. Bitte nehmen Sie mit uns Kontakt auf, falls Sie ein Beratungsgespräch wünschen. 160;Urteil vom 10. Juli 2015 V ZR...
派遣の仕事に対して - お仕事がんばるお父さん日記
この仕事をされた事のない人、専業主婦の友人は私の仕事の話を少し聞いただけで わあー聞いてるだけで疲れそう と言う友人と あっちこっち知らない場所に行けて楽しそう と言う友人もいて、人によってもこの派遣の仕事に対してイメージや、受け止めかたがちがうみたいです。
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Blog de ra-ra - boum_cow - Skyrock.com
Mot de passe :. J'ai oublié mon mot de passe. Grand pop et n'oubliez pas d'ajouter des commentaires. Mise à jour :. Abonne-toi à mon blog! N'oublie pas que les propos injurieux, racistes, etc. sont interdits par les conditions générales d'utilisation de Skyrock et que tu peux être identifié par ton adresse internet (67.219.144.170) si quelqu'un porte plainte. Ou poster avec :. Retape dans le champ ci-dessous la suite de chiffres et de lettres qui apparaissent dans le cadre ci-contre. Ou poster avec :.
Rechtsanwalt Gerhard Raab, Frechen
Auf der Internetseite der Rechtsanwaltskanzlei Raab. Am Anfang der anwaltlichen Tätigkeit steht das Problem, das es für den Mandanten zu lösen gilt. Unabhängig vom jeweiligen Rechtsgebiet ist stets eine Konfliktsituation der Anlass, das know-how des Rechtsanwalts in Anspruch zu nehmen. Der Konflikt kann bereits bestehen oder sich als denkbare und mögliche Entwicklung darstellen. Aachener Straße 585 50226 Frechen-Königsdorf. Telefon: 02234 - 6 39 90 Telefax: 02234 - 6 49 60.
Notar und Rechtsanwalt Dieter Raabe
Hier entsteht eine neue Internetpräsenz. Notar und Rechtsanwalt Dieter Raabe. Tel: 04321 / 49010. Fax: 04321 / 490130.
RÁ+RÁ Bádogos Bt.
Rá rá Bádogos Bt. Baross u. 42. RÁ RÁ Bádogos Bt. Rácz Attilának hívnak. Foglalkozásom: Bádogos. E tevékenységgel 1990 óta foglalkozom, 2004 óta társas vállalkozóként. Az elmúlt 18 évben számos szakmai tapasztalatra tettem szert. Munkáim igényes kivitelűek, mely a pontos tervezésen, szervezésen túl a szerszámok jó minőségének is köszönhető. Munkavégzésünk során szem előtt tartom azt a követelményt, hogy a legjobb minőséget nyújtsam minden kedves megrendelőm számára. Bármiről, ami beleesik a bádogos.
RA-Rabald.de - Startseite
Willkommen auf der Internet-Seite der Anwaltskanzlei Rabald. Die Anwaltskanzlei Rabald wurde im Jahre 2002 gegründet. Seitdem vertrauen Mandanten in Rechtsfragen auf die Kompetenz meiner Kanzlei. Ich setze mich auf der Basis höchster Qualität und mit Leidenschaft für die Rechte meiner Mandanten ein. Sie werden bei mir eine kompetente Beratung und bestmögliche Interessenvertretung erhalten. Das Ziel ist eine möglichst schnelle, effektive und damit auch kostengünstige Lösung Ihrer Probleme.