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A new lease of Life!

A new lease of Life! Saturday, March 27, 2010. Wednesday, March 17, 2010. Who said life's fair? So my trip to Helsinki was fun . with Rajni and didi (Uma). kids stayed at home with Senaka and Lalani (God bless them! Dont really know. Still on 133mg of Cytoxan but only 9mg of Prednisone. As always taking one day at a time, and keeping my spirits high! Friday, December 25, 2009. One done three to go. yeah! Now that is positive. I had a follow up with Dr. Moness and she suggested a lipid panel soon and ...

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A new lease of Life! | rajwegener.blogspot.com Reviews
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A new lease of Life! Saturday, March 27, 2010. Wednesday, March 17, 2010. Who said life's fair? So my trip to Helsinki was fun . with Rajni and didi (Uma). kids stayed at home with Senaka and Lalani (God bless them! Dont really know. Still on 133mg of Cytoxan but only 9mg of Prednisone. As always taking one day at a time, and keeping my spirits high! Friday, December 25, 2009. One done three to go. yeah! Now that is positive. I had a follow up with Dr. Moness and she suggested a lipid panel soon and ...
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A new lease of Life! | rajwegener.blogspot.com Reviews

https://rajwegener.blogspot.com

A new lease of Life! Saturday, March 27, 2010. Wednesday, March 17, 2010. Who said life's fair? So my trip to Helsinki was fun . with Rajni and didi (Uma). kids stayed at home with Senaka and Lalani (God bless them! Dont really know. Still on 133mg of Cytoxan but only 9mg of Prednisone. As always taking one day at a time, and keeping my spirits high! Friday, December 25, 2009. One done three to go. yeah! Now that is positive. I had a follow up with Dr. Moness and she suggested a lipid panel soon and ...

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A new lease of Life!: Merry Chritmas!

http://www.rajwegener.blogspot.com/2009/12/merry-chritmas.html

A new lease of Life! Friday, December 25, 2009. Time to think back and thank the god for all that I have today, I have a lot to thank him for, thank him for what I would have lost or my family would have. I am blessed. Merry Christmas to all! This disease has made me humble and I have learnt to respect it knowing how much of a damage it can inflict on you. BUT I AM GOING TO SNEAK BEHIND IT'S BACK and BEAT IT ONE DAY! One done three to go. yeah! Now that is positive. Subscribe to: Post Comments (Atom).

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A new lease of Life!: July 2009

http://www.rajwegener.blogspot.com/2009_07_01_archive.html

A new lease of Life! Sunday, July 26, 2009. More on Dr. Shapiro's Visit. So, my last LFT study came out real good. AST (SGOT) - 33 [10 - 40]. ALT (SGPT) - 132 [9 - 60]. Alkaline Phosphatase - 75 [40 - 115]. Bilirubin - 0.5 [0.2 - 1.2]. Iron 440 [250-425 U/L]. I think if I draw my blood today the numbers are now probably in the exceptable range. The data that I had suggested otherwise. I came back home and plotted a graph to convince my self. Here's it. (click on the picture to blow it up). My Ottolaryngo...

3

A new lease of Life!

http://www.rajwegener.blogspot.com/2009/07/i-had-promised-myself-to-update-this.html

A new lease of Life! Thursday, July 23, 2009. I had promised myself to update this blog regularly, but dang, no excuses for laziness, and here I am with some time in hand to cope up with my laziness. So, some 3 months have passed since I came back from the hospital. Things have been a roller coster for me, as has been for all my fellow weggie people. Lots of thick crusts came out of my sinuses in the first few usages. How could I have survived without it. Here's a link for the interested -. Calls it the ...

4

A new lease of Life!: Visit to Stanford

http://www.rajwegener.blogspot.com/2010/03/visit-to-stanford.html

A new lease of Life! Saturday, March 27, 2010. February 8, 2011 at 2:33 PM. Sorry to hear about the WG diagnosis and I wish you all the best! Any comments would be greatly appreciated. I appear to be waiting for activation of my account on the WG website so I couldnt reply to your comments on there. Once again. hope all is well with you. February 8, 2011 at 8:22 PM. Hope your daughter swings back soon. Good luck… - raj. Subscribe to: Post Comments (Atom). My Wife Rajni and I. View my complete profile.

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A new lease of Life!: Moving Along!!!

http://www.rajwegener.blogspot.com/2010/03/moving-along.html

A new lease of Life! Wednesday, March 17, 2010. Who said life's fair? So my trip to Helsinki was fun . with Rajni and didi (Uma). kids stayed at home with Senaka and Lalani (God bless them! Dont really know. Still on 133mg of Cytoxan but only 9mg of Prednisone. As always taking one day at a time, and keeping my spirits high! Subscribe to: Post Comments (Atom). My Wife Rajni and I. View my complete profile.

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Weggie’s Unite Awareness | wegener'sgranulomatosis

https://patricebrown.wordpress.com/2011/01/04/weggies-unite

First Time In Western US: Vasculitis Symposium. January 4, 2011 · 7:28 am. Weggie’s Unite Awareness. A wonderful selection of tees and hoodies made by Weggies Unite to raise awareness. Available at www.zazzle.com/weggiesunite. First Time In Western US: Vasculitis Symposium. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). You are commenting using your WordPress.com account. ( Log Out. Join 27 other followers. Matthew ...

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Patient Stories | wegener'sgranulomatosis

https://patricebrown.wordpress.com/patient-stories

One response to “. August 3, 2009 at 1:11 am. My heart goes out to your family over the loss of your son who contracted Wegener’s. My husband was dx with Wegener’s in 2006. It is a constant battle to stay healthy and in good spirits. You have to take each day as it comes and keep the faith. Wegener’s is not only a mean disease, but a costly one to keep under control. We just treat each day as it was the next day for the rest of our lives. Our prayers to you and yours. Leave a Reply Cancel reply. PR3 Asso...

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Twenty-four-seven | wegener'sgranulomatosis

https://patricebrown.wordpress.com/2006/09/29/201

Understanding Your Feelings and Reactions to Illness. Eye Pillow/Pain Relief Mask →. September 29, 2006 · 7:57 pm. When caregivers are on call 24/7, they are often so selfless in their care of a loved one that they neglect to take care of themselves. Did you know caregivers have a higher than normal incidence of getting sick? They often become so depleted they cannot maintain the stamina to continue caring for another person. Don’t let this happen to you. Ten Tips to Nurture YOU. Strive for a minimum.

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Books | wegener'sgranulomatosis

https://patricebrown.wordpress.com/books

There must be a reason. Myrna Swart, whose daughter, Carol, was diagnosed with Wegener? S granulomatosis 29 years ago, juggled family and a job while writing this book. She helped form the current Vasculitis Foundation, served on the board of directors, led the Los Angeles chapter and wrote a how-to manual for starting groups. Currently the south Florida group leader, she brings inspiration and answers to those coping with long-term chronic illness. To order at amazon Click Here. The Wegener’s Gran...

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Basic Information | wegener'sgranulomatosis

https://patricebrown.wordpress.com/basic-information

Wegener’s Granulomatosis is a multi-system disease. Which means many parts of the body may be affected. The nose, throat, lungs and ears usually become swollen and inflamed. The kidneys can be involved, too, while for some people it affects the eyes and skin. Around 50 per cent of people with the disease develop arthritis. Wegener’s granulomatosis is an uncommon disorder that causes inflammation of your blood vessels, which in turn restricts blood flow to various organs. Before reviewing the various symp...

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wegener'sgranulomatosis | A resource guide for patients and families | Page 2

https://patricebrown.wordpress.com/page/2

Newer posts →. November 6, 2009 · 11:04 pm. You’ve been a caregiver over a period of several years and have recently made a decision about your role as caregiver. Or, your care recipient’s condition has taken a turn for the worse and. You know his time is very limited. Some steps you can take during stage 5:. 1 Allow yourself time to mourn and grief. 2 Remember your care recipient. 3 Reflect back on your caregiving responsibilities and decisions with pride. 4 Review your journal. Hospital admission and d...

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First Time In Western US: Vasculitis Symposium | wegener'sgranulomatosis

https://patricebrown.wordpress.com/2010/05/25/first-time-in-western-us-vasculitis-symposium

15 Reasons Why To Walk in 2010. Weggie’s Unite Awareness →. May 25, 2010 · 6:02 am. First Time In Western US: Vasculitis Symposium. The All Star Vasculitis Symposium will be held. July 30 – August 1, 2010. At the beautiful Westin Long Beach Hotel in. Long Beach, California. This is the first time the Symposium will be held in the western USA. For more info on symposium including schedule click here. For reservations at Long Beach Westin click here. To register click here. 15 Reasons Why To Walk in 2010.

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A new lease of Life!

A new lease of Life! Saturday, March 27, 2010. Wednesday, March 17, 2010. Who said life's fair? So my trip to Helsinki was fun . with Rajni and didi (Uma). kids stayed at home with Senaka and Lalani (God bless them! Dont really know. Still on 133mg of Cytoxan but only 9mg of Prednisone. As always taking one day at a time, and keeping my spirits high! Friday, December 25, 2009. One done three to go. yeah! Now that is positive. I had a follow up with Dr. Moness and she suggested a lipid panel soon and ...

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