rarecarenet.eu
RARECARENet - Information Network on Rare CancersRARECARENet aims at building an information network to provide comprehensive information on rare cancers to the community at large
http://www.rarecarenet.eu/
RARECARENet aims at building an information network to provide comprehensive information on rare cancers to the community at large
http://www.rarecarenet.eu/
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RARECARENet - Information Network on Rare Cancers | rarecarenet.eu Reviews
https://rarecarenet.eu
RARECARENet aims at building an information network to provide comprehensive information on rare cancers to the community at large
RARECARENet - Information Network on Rare Cancers
http://www.rarecarenet.eu/rarecarenet/index.php/patient-organisations
Jump to main navigation and login. Information on Rare Cancers. Patient Organisations by Country. Patient Organisations by Cancer Site. Patient Organisation Registration Form. Search Our Data - Online Analysis. Annually rare cancer diagnoses in Europe represent about 22% of all cancer cases diagnosed. RARECARE. ESO-ESMO-RCE Clinical Update on Rare Adult Solid Cancers 2016.
RARECARENet - Publications
http://www.rarecarenet.eu/rarecarenet/index.php/publications
Jump to main navigation and login. Information on Rare Cancers. Search Our Data - Online Analysis. A previous EU funded project based on population-based cancer registries and focused on rare cancer survival produced results in terms of dissemination in the scientific literature and scientific meetings. Ophthalmologists, paediatricians, gastroenterologists, oncologists together with epidemiologists have led and developed analyses about the following rare cancers:. What news of chemiotherapy. Incidence an...
ESSO Course on Peritoneal Surface Malignancy
http://www.rarecarenet.eu/rarecarenet/index.php/rare-disease-day-event/eventdetail/51/-/esso-course-on-peritoneal-surface-malignancy
Jump to main navigation and login. Rare Disease Day Event. Information on Rare Cancers. Search Our Data - Online Analysis. ESSO Course on Peritoneal Surface Malignancy. Preserve formatting in description (only supported in some calendar applications). Aim of the Course. This course will address current treatments for specific tumour groups and future challenges for developping services in different health care settings. For more information click here. JEvents v2.2.8.
ESSO Course on Diagnosis and Management of Pancreatic NeuroEndocrine Tumours (PNETs)
http://www.rarecarenet.eu/rarecarenet/index.php/rare-disease-day-event/eventdetail/56/-/esso-course-on-diagnosis-and-management-of-pancreatic-neuroendocrine-tumours-pnets
Jump to main navigation and login. Rare Disease Day Event. Information on Rare Cancers. Search Our Data - Online Analysis. ESSO Course on Diagnosis and Management of Pancreatic NeuroEndocrine Tumours (PNETs). Preserve formatting in description (only supported in some calendar applications). For more information click here. London (UK) 1st-2nd October 2015. JEvents v2.2.8.
RARECARENet - Rare Cancers Data Quality
http://www.rarecarenet.eu/rarecarenet/index.php/dataquality
Jump to main navigation and login. Information on Rare Cancers. Search Our Data - Online Analysis. One of the aims of the RARECARE project was to improve the data quality in rare cancers registration. Work Package 6 performed a data quality analysis of the RARECARE database and a data quality study on a sample of rare tumours with the objectives of:. Assessing validity, completeness and standardisation of cancer registries data on rare cancers between registries. Data Quality Report - download PDF.
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I tumori in Italia
http://www.tumori.net/it3/primopiano.php
La salute degli italiani. Nuova edizione del Rapporto Osservasalute sullo stato di salute della popolazione e della qualità dell'assistenza sanitaria nelle regioni italiane. Si registra un calo dell'aspettativa di vita degli italiani e un aumento dell'incidenza di alcune patologie tumorali prevenibili. La novità di quest'ultima edizione è la presenza di informazioni più dettagliate per i diversi tipi istologici di ciascuna sede tumorale. Nuove stime di incidenza, mortalità e prevalenza. Il primo Rapporto...
RARECARE - Surveillance of Rare Cancers in Europe
http://www.rarecare.eu/links.asp
Work Packages / Partners. Publications / Presentations at Scientific Congresses. RARE CANCERS EUROPE: http:/ www.rarecancers.eu. EUROCARE: http:/ www.eurocare.it. HAEMACARE: http:/ www.haemacare.eu. EUROCHIP: http:/ www.tumori.net/eurochip. START: http:/ www.startoncology.net/site. European Cancer Patient Coalition. European Union Committee of Experts on Rare Diseases. Official Journal of the European Union.
RARECARE - Surveillance of Rare Cancers in Europe
http://www.rarecare.eu/default_dut.asp
Work Packages / Partners. Publications / Presentations at Scientific Congresses. Building on the experience of RARECARE and, in collaboration with RCE and many others we have launched RARECARENet. Click here for more info. RARECARE wordt mede gefinancierd door de Europese Commissie - Gezondheid en consumentenbescherming. DG SANCO), PHEA programma, en draagt onder andere bij aan projecten die zich bezighouden met de oprichting van netwerken voor zeldzame ziekten. Milaan, Italië) is de leidende organisatie...
RARECARE - Surveillance of Rare Cancers in Europe
http://www.rarecare.eu/default.asp
Work Packages / Partners. Publications / Presentations at Scientific Congresses. We have evolved into RARECARENet. Building on the experience of RARECARE and, in collaboration with RCE and many others. Click here for more info. RARECARE is co-funded by the European Commission (EC) from 01/04/2007 to 31/03/2010 through its Public Health and Consumer Protection Directorate. DG SANCO), PHEA programme, and contributes among other projects to the creation of networks of action for rare diseases. This project ...
RARECARE - Surveillance of Rare Cancers in Europe
http://www.rarecare.eu/rarecancers/dataquality.asp
Work Packages / Partners. Publications / Presentations at Scientific Congresses. Training Course on Rare Solid Cancers. View Video Presentations from the Event. One of the aims of the RARECARE project was to improve the data quality in rare cancers registration. Work Package 6 performed a data quality analysis of the RARECARE database and a data quality study on a sample of rare tumours with the objectives of:. Defining recommendations for improving data quality of rare cancers.
RARECARE - Surveillance of Rare Cancers in Europe
http://www.rarecare.eu/default_ger.asp
Work Packages / Partners. Publications / Presentations at Scientific Congresses. Building on the experience of RARECARE and, in collaboration with RCE and many others we have launched RARECARENet. Click here for more info. RARECARE wird von der Europäischen Kommission (EC) durch ihr Direktorat Gesundheit und Verbraucherschutz. DG SANCO), EAHC-Programm (Executive Agency for Health and Consumers), mitfinanziert, und trägt - neben anderen Projekten - zur Etablierung von Aktionsnetzwerken bei seltenen Erkran...
RARECARE - Surveillance of Rare Cancers in Europe
http://www.rarecare.eu/rarecancers/rarecancers.asp
Work Packages / Partners. Publications / Presentations at Scientific Congresses. The attached document provides a definition of rare cancers and explains the criteria used for defining the cancer entities shown in the list. Rationale and Questions for Consensus - download PDF. Please download the file above and then send us an email with your comments. Send us an email with your comments. List of Rare Cancers. This list includes information on all cancers. Download RARECARE List Excel spreadsheet. Europe...
RARECARE - Surveillance of Rare Cancers in Europe
http://www.rarecare.eu/activities/activities.asp
Work Packages / Partners. Publications / Presentations at Scientific Congresses. Information on Rare Cancer Activities. A previous EU funded project based on population-based cancer registries and focused on rare cancer survival produced results in terms of dissemination in the scientific literature and scientific meetings. Ophthalmologists, paediatricians, gastroenterologists, oncologists together with epidemiologists have led and developed analyses about the following rare cancers:. European disparitie...
Resources
http://iop.ecpc.org/resources
ECPC’s policy engagement in cancer immunotherapy and immuno-oncology. ECPC organises a workshop on Immuno-Oncology 5th of December 2013, European Parliament. Policy symposium on adapting policies to a new modality in cancer treatment - December 2013. Join us in celebrating Cancer Immunotherapy month! Launch of the Immuno-Oncology Policy Action Framework. Immuno-Oncology: report on November event. Policy Action Framework on Immuno-Oncology. A guide for patients (23 languages).
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Rare Care Adult Family Home, Veradale WA
Rare Care Adult Family Home. We are committed to maintaining a warm, caring environment that promotes the dignity and respect that each client deserves. Residents are encouraged to remain active and as independent as their health permits. 24-hour care, providing supervision, companionship and emotional support. Private and semi-private rooms. Balanced, home-made meals served family style. Special nutritional needs are determined on an individual basis. Medication administration or assistance as needed.
Rare Cancer Genetics Registry | Rare Cancer Genetics Registry
Jump to page content. Username or e-mail: *. Rare cancer recoveries could be key to wider treatments. Why do certain cancer therapies work for some tumors, but not others? What can we learn from the patients whose cancers have responded well to a treatment, when it flops for many others? A recent article published in the Science. Section of the Boston Globe. Highlights the findings and implications of a study published in the New England Journal of Medicine. Which seeks to explore these questions.
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RARECARENet - Information Network on Rare Cancers
Jump to main navigation and login. Information on Rare Cancers. Search Our Data - Online Analysis. Annually rare cancer diagnoses in Europe represent about 22% of all cancer cases diagnosed. RARECARE. Liver Surgery: from basics to advanced care. European Cancer Congress 2015 (ECC2015), Vienna, Austria. ESSO Course on Diagnosis and Management of Pancreatic NeuroEndocrine Tumours (PNETs). 47th Congress of the International Society of Paediatric Oncology (SIOP 2015).
| Rare Care UK
What is a Rare Disease? What is a Rare Disease? Common Problems of Rare Diseases. Specific Rare Disease Charities. Charities which Support Genetic Disorders. There are over 6,000 recognised rare diseases in the world and approximately 3.5 million people in the UK are effected. So alhough collectively rare diseases are not rare, people with rare diseases can still experience a lack of expert knowledge and/or expert care. Established in 2015, RareCareUK is the charitable arm of Euroscicon Ltd. Funding visi...
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