rarekidneystones.org
Rare Kidney Stone ConsortiumConsortium for Hereditary Causes of Nephrolithiasis and Kidney Failure
http://www.rarekidneystones.org/
Consortium for Hereditary Causes of Nephrolithiasis and Kidney Failure
http://www.rarekidneystones.org/
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Rare Kidney Stone Consortium | rarekidneystones.org Reviews
https://rarekidneystones.org
Consortium for Hereditary Causes of Nephrolithiasis and Kidney Failure
rarekidneystones.org
Dent Disease - Rare Kidney Stone Consortium
http://www.rarekidneystones.org/dent
Please participate by checking out the webpage at: DENT Disease Foundation. The RKSC investigators collaboration has published a new article that also includes updated diagnostic algorithms for the four rare kidney stone diseases in the RKSC, including a Dent algorithm: Edvardsson V, Goldfarb DS, Lieske JC, Beara-Lasic L, Anglani L. Milliner DS, and Palsson R. Hereditary Causes of Kidney Stones and Chronic Kidney Disease. Ped Neph 2013. John C. Lieske, MD. Mayo Clinic, Rochester, MN. Julie Olson, RN.
Cystinuria - Rare Kidney Stone Consortium
http://www.rarekidneystones.org/cystinuria
David Goldfarb, MD. New York University, New York, NY and Lenox Hill Hospital, New York, NY. Join the Cystinuria Registry. The International Cystinuria Registry. Is now operational. Participation of patients will help physicians and scientists learn more about this rare disease, and help design new treatments. To learn more about the Cystinuria registry at New York University, please send an e-mail to cystinuria@nyumc.org or visit the official registry site. At New York University. International Cystinur...
APRT / DHA - Rare Kidney Stone Consortium
http://www.rarekidneystones.org/dha
APRT Deficiency / 2,8-DHA crystalluria. Vidar Edvardsson, M.D. Principal Investigator) Landspitali - The National University Hospital of Iceland bio. Runolfur Palsson, M.D., FACP, FASN. Co-Principal Investigator) Landspitali - The National University Hospital of Iceland bio. Amrik Sahota, PhD, FACB, FACMG, FIBiol, FRCPath. Consultant) Department of Genetics, Rutgers University, New Jersey, USA bio. Inger M. Agustsdottir. Study Coordinator) Landspitali - The National University Hospital of Iceland contact.
Primary Hyperoxaluria - Rare Kidney Stone Consortium
http://www.rarekidneystones.org/hyperoxaluria
Dawn S. Milliner, MD. Mayo Clinic, Rochester, MN. Liz Lorenz, MD Mayo Clinic, Rochester, MN. John Lieske, MD Mayo Clinic, Rochester, MN. Hatem Amer, MD Mayo Clinic, Rochester, MN. Peter Harris, PhD Mayo Clinic, Rochester, MN. Candice Granberg, MD Mayo Clinic, Rochester, MN. Craig Langman Northwestern University / Lurie Children's Hospital of Chicago, Chicago, IL. Ellen Brooks, PhD Northwestern University / Lurie Children's Hospital of Chicago, Chicago, IL. Julie Olson, RN (Study Coordinator). The Registr...
Vidar Edvardsson - Rare Kidney Stone Consortium
http://www.rarekidneystones.org/bio/vidar-edvardsson.html
Vidar Edvardsson, MD. Vidar Edvardsson is the Director of Pediatric Nephrology at the Children s Medical Center, Landspitali University Hospital, Reykjavik, Iceland. He is a Clinical Assistant Professor of Pediatrics and a Senior Lecturer in Pediatrics at the Faculty of Medicine, School of Health Sciences, University of Iceland. He is the Director of Pediatric Solid Organ Transplantation at Landspitali University Hospital. Selected Peer Reviewed Publications. Europace. 2010 Mar;12(3):356-63. Olafur S....
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Related Organizations - Rock Society
http://www.rocksociety.org/resources/related-organizations
Skip to main content (Press Enter). Skip auxiliary navigation (Press Enter). Skip main navigation (Press Enter). 2016 - 2017 Board. List of Past Presidents. Grant and Award Opportunities. American Society of Nephrology. The American Society of Nephrology (ASN) leads the fight against kidney disease by educating health professionals, sharing new knowledge, advancing research, and advocating the highest quality care for patients. International Kidney Stone Institute. National Institutes of Health. Each wit...
Resources
http://www.dentdisease.com/resources.html
Dent Disease Austin Forrest. Rare Kidney Stone Consortium. What is Dent Disease? Information regarding Dent’s Disease and other Kidney related conditions can be found in the following links. RareShare is a website to help patients and professionals with conditions such as Dent’s connect to each other. They have a discussion board for conversation about Dent’s and many other topics. Dr John Lieske YouTube Video - Dent Disease. NYU Nephrology - Lada Lasic. European Journal of Human Genetics - Dent Disease.
About Hyperoxaluria | OxThera
http://www.oxthera.com/about-hyperoxaluria
Hyperoxaluria is a condition where there is too much oxalate present in the urine. It can be caused by inherited (genetic) disorders, an intestinal disease or eating too many oxalate-rich foods. Oxalate is an end product from the metabolism in vertebrates. It is primarily derived from the amino acid and glyoxalate metabolism. Oxalate can also be absorbed from oxalate-rich food such as rhubarb, spinach, coffee and chocolate. Organisations associated with Hyperoxaluria. Http:/ www.ohf.org. OxalEurope, Euro...
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Rare Kidney Stone Consortium
Welcome to the Rare Kidney Stone Consortium. The Consortium facilitates cooperative exchange of information and resources among investigators, clinicians, and patients, and researchers in order to improve care and outcomes for patients with rare stone diseases. The consortium promotes ready availability of diagnostic testing, pooling of clinical experiences, and availability of tissue banks in order to advance the science. Our goals are to:. News and Upcoming Events. Request for Applications - Pilot Study.
Rare Kids Inc.
14th Annual Clothing Drive to Benefit Rare Kids. Wednesday, October 15th thru Friday October 16, 2015. Clothing should be circulated within the last five years and free of tears and stains).
Rare Kids; Well Done | Home
The most important decision you ever made was to have kids. Really? A lot of people think so. How so? Rare Kids: The Book. Rare Kids; Well Done is a fresh, new, easy-read from the pen of Dr. Don Jacobsen. It’s a family-changer. more. Helping Re-shape America’s Families This is not just a class, it’s an experience! You’ve been to seminars where you sat and listened, more.
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