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Retinoblastoma Follow-Up Study - What is the Retinoblastoma Follow-Up Study?

National Cancer Institute's (NCI) long-term follow-up study of health outcomes for adult survivors of retinoblastoma.

http://rbstudy.cancer.gov/

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Retinoblastoma Follow-Up Study - What is the Retinoblastoma Follow-Up Study? | rbstudy.cancer.gov Reviews
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Retinoblastoma Follow-Up Study - What is the Retinoblastoma Follow-Up Study? | rbstudy.cancer.gov Reviews

https://rbstudy.cancer.gov

National Cancer Institute's (NCI) long-term follow-up study of health outcomes for adult survivors of retinoblastoma.

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rbstudy.cancer.gov rbstudy.cancer.gov
1

Retinoblastoma Follow-Up Study - Study Participants

http://rbstudy.cancer.gov/participants.html

Skip to Main Content. Staying in Touch with our Study Participants. We are starting a new health survey. If you received an invitation letter,. Please select this survey link to participate. Over the years, NCI has lost touch with some of the survivors who were in our study. We would like to reconnect with them to ask about their health. The group we are trying to reach were diagnosed with retinoblastoma and treated in New York or Boston, especially between 1984 and 2006. Are You One of Our Survivors?

2

Retinoblastoma Follow-Up Study - Research Publications

http://rbstudy.cancer.gov/publications.html

Skip to Main Content. Research Publications from the Retinoblastoma Follow-Up Study. Most retinoblastoma survivors do not develop depression or anxiety. Breast cancer risk after radiotherapy: a US-UK study. Changes in treatment practice and second cancer risk in long-term hereditary RB survivors. Risk of second cancer is higher in retinoblastoma survivors who have a family history of retinoblastoma. Women who had hereditary retinoblastoma are at increased risk of a rare uterine cancer. It is well known t...

3

Retinoblastoma Follow-Up Study - Health Effects

http://rbstudy.cancer.gov/health.html

Skip to Main Content. What do we study? NCI scientists leading the Retinoblastoma Follow-up Study are studying the long-term health effects of retinoblastoma on survivors, including the risk of developing second cancers. Retinoblastoma survivors enjoy long productive lives and most do not develop second cancers. Survivors who had cancer in only one eye (sporadic disease) do not develop another cancer any more frequently than someone who was not diagnosed with retinoblastoma. Soft tissue sarcoma, and.

4

Retinoblastoma Follow-Up Study - Cancer Prevention

http://rbstudy.cancer.gov/prevention.html

Skip to Main Content. Cancer Prevention for Retinoblastoma Survivors. Visit your health care provider regularly for cancer screening. Women should obtain regular mammograms starting at age 40. These screening tests can detect cancer early. Early detection of second cancers. How to minimize your chances of getting another cancer. You can minimize your chance of developing some second cancers by choosing these healthy behaviors:. With a new on-line guide to quitting smoking. Call from anywhere: 1-877-4...

5

Retinoblastoma Follow-Up Study - FAQs

http://rbstudy.cancer.gov/faqs.html

Skip to Main Content. Why did you start the Retinoblastoma Follow-up Study? NCI started the Retinoblastoma Follow-up Study in 1984 because we wanted to learn if survivors are at risk of developing second cancers as they grow older, especially if they received radiation therapy to treat their retinoblastoma. Why should I continue to participate in this study? Why are hereditary retinoblastoma survivors susceptible to second cancers? Is the information I gave you kept confidential? You should consult with ...

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Retinoblastoma Follow-Up Study - What is the Retinoblastoma Follow-Up Study?

Skip to Main Content. At the National Institutes of Health. What is the Retinoblastoma Follow-Up Study? What is the goal of the study? The goal of this study is to learn about second cancers that retinoblastoma survivors may face as they grow older. What does this study mean for me? To learn how to reduce your risk of second cancers. Read our Cancer Prevention. The Retinoblastoma Follow-up Study is an epidemiology. Study All epidemiologic studies at NCI are carried out by the Division of Cancer Epidemiol...

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