rdss.org.sg

Rare Disorders Society (Singapore) | Love is not Rare

Programmes & Services. WE KNOW YOU CARE FOR RARE. AND AWARENESS ON RARE DISEASES. READ OUR PATIENT STORIES. EVERY CHILD HAS A STORY TO TELL. RUN FOR THE CHILDREN. YOU'LL NEVER WALK ALONE. CHILDREN NEED HELP, DONATE TO OUR CAUSES. Little Sarah needs a new suction machine. Thank you to all the kind donors. We have hit the amount we need to raise to purchase the suction machine for Sarah. Thank you so much! Early Intervention Support Scheme. 8220;Power for Life” support program. Kaelyn needs a cough assist.

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Rare Disorders Society (Singapore) | Love is not Rare | rdss.org.sg Reviews

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Programmes & Services. WE KNOW YOU CARE FOR RARE. AND AWARENESS ON RARE DISEASES. READ OUR PATIENT STORIES. EVERY CHILD HAS A STORY TO TELL. RUN FOR THE CHILDREN. YOU'LL NEVER WALK ALONE. CHILDREN NEED HELP, DONATE TO OUR CAUSES. Little Sarah needs a new suction machine. Thank you to all the kind donors. We have hit the amount we need to raise to purchase the suction machine for Sarah. Thank you so much! Early Intervention Support Scheme. 8220;Power for Life” support program. Kaelyn needs a cough assist.

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1 about us

2 who we are

3 leadership

4 our supporters

5 resources

6 rare facts

7 genetic facts

8 be the change

9 patient stories

10 our causes

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Rare Disorders Society (Singapore) | Love is not Rare | rdss.org.sg Reviews

https://rdss.org.sg

Programmes & Services. WE KNOW YOU CARE FOR RARE. AND AWARENESS ON RARE DISEASES. READ OUR PATIENT STORIES. EVERY CHILD HAS A STORY TO TELL. RUN FOR THE CHILDREN. YOU'LL NEVER WALK ALONE. CHILDREN NEED HELP, DONATE TO OUR CAUSES. Little Sarah needs a new suction machine. Thank you to all the kind donors. We have hit the amount we need to raise to purchase the suction machine for Sarah. Thank you so much! Early Intervention Support Scheme. 8220;Power for Life” support program. Kaelyn needs a cough assist.

INTERNAL PAGES

rdss.org.sg

1

Our Supporters | Rare Disorders Society (Singapore)

http://www.rdss.org.sg/our-supporters

Rare & Genetic Facts. Programmes & Services. Rare and Genetic Facts. Thank you to our partners, who over the years, supported RDSS with donations and sponsorship. Your contributions made it possible for us to achieve our goals in supporting and caring for patients and families affected by rare diseases. With our mutual partnership, we can raise the awareness and promote the importance of educating and empowering the rare disease community. Our Donors and Sponsors. WE KNOW YOU CARE FOR RARE.

2

Medical Intervention Support Scheme (Yr 2016) | Rare Disorders Society (Singapore)

http://www.rdss.org.sg/cause-view/intervention-support-program

Rare & Genetic Facts. Programmes & Services. Rare and Genetic Facts. Medical Intervention Support Scheme (Yr 2016). Everyone faces difficulties in their lives at some time or another. Children with rare diseases need multiple therapies at early age in order to improve their overall growth and development . Therapies will probably become part of their daily activity for life because intensive therapies will help them lead a normal life. You donation will help these children to lead a quality life! Change ...

3

Be the Change | Rare Disorders Society (Singapore)

http://www.rdss.org.sg/be-the-change

Rare & Genetic Facts. Programmes & Services. Rare and Genetic Facts. The lack of scientific knowledge and quality information on the disease often results in a delay in diagnosis. Also the need for appropriate quality health care engenders inequalities and difficulties in access to treatment and care. This often results in heavy social and financial burdens on patients. Given the crippling nature of rare disease can lead to emotional, physical and financial stresses upon the individual, the caregivers an...

4

Events | Rare Disorders Society (Singapore)

http://www.rdss.org.sg/events

Rare & Genetic Facts. Programmes & Services. Rare and Genetic Facts. Join us in the events that are open to you and together, we can build an inclusive society. There are no events that match the criteria. WE KNOW YOU CARE FOR RARE. SHOW YOUR SUPPORT TODAY. MAKE A DONATION NOW. Change this in Theme Options. Change this in Theme Options.

5

Little Sarah needs a new suction machine | Rare Disorders Society (Singapore)

http://www.rdss.org.sg/cause-view/little-sarah-needs-a-new-suction-machine

Rare & Genetic Facts. Programmes & Services. Rare and Genetic Facts. Little Sarah needs a new suction machine. Little Sarah requires regular suctioning to ensure her airway is clear in order to breath better. Everyday, her mother has to do suctioning round the clock even in the middle of the night. This has caused the suction machine to wear out easily. RDSS is hoping to reach out to kind donors who will support our cause in raising $650.00 to purchase this equipment for her. WE KNOW YOU CARE FOR RARE.

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Pompe Mom's Diary: Before Trip to Taiwan

http://pompemom.blogspot.com/2011/10/before-trip-to-taiwan.html

Thanks to all the prayers, help and support from friends and families, my girls have 2nd chance of life. Still, I hope that there will be a well and sustainable medical system to protect the right of getting free treatment for my girls and all the other LSD patients in Malaysia one day. Wednesday, October 12, 2011. Before Trip to Taiwan. It had been a long time that I failed to write down anything for almost a month, felt a little bit of guity but was really out of time. Did my plan work out? Even before...

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My Princess Danielle: May 2015

http://myprincessdanielle.blogspot.com/2015_05_01_archive.html

A little life transforming many lives. . Monday, May 4, 2015. Making a difference for a special need child by students of Bukit Batok Sec Sch. Back in early month of April , we had a visitation by 4 students (Afiq, Crystal, Yongan and Bryan) and their teacher, Ms Liu from the Bukit Batok Secondary School class 3n1. They came to know about Danielle' s Story through our CNY goodies sale published on the Straits Times Newspaper in Feb 2015. Personally, I felt $1,500 is an impressive sum coming from students!

myprincessdanielle.blogspot.com

My Princess Danielle: April 2015

http://myprincessdanielle.blogspot.com/2015_04_01_archive.html

A little life transforming many lives. . Tuesday, April 28, 2015. Another interesting lesson that taught Danielle about COW. Learning about what Cow do and what cow produce. Danielle enjoys the lesson and now looking forward for the next lesson. Links to this post. Saturday, April 25, 2015. Goodby my BFF Kaelyn. On the 23rd April 2015, Kaeyln 3 yrs old went home with the Lord. To my BFF Kaeyln .every time we meet, even though we didn' t utter a word,. We already understand each other like old friends.

myprincessdanielle.blogspot.com

My Princess Danielle: Danielle playing 2 musical instrument

http://myprincessdanielle.blogspot.com/2015/05/danielle-playing-2-musical-instrument.html

A little life transforming many lives. . Sunday, May 3, 2015. Danielle playing 2 musical instrument. It started just a drum and now we expose her to the xylophone. If you like to comment but find it hard to get your comment up. Just click under Anonymous and end with your name. Look forward to your comment. Subscribe to: Post Comments (Atom). When Danielle is 6months old, she is diagnosed with. This blog started out as a way to keep our family and friends updated on her condition. View my complete profile.

myprincessdanielle.blogspot.com

My Princess Danielle: Goodby my BFF Kaelyn

http://myprincessdanielle.blogspot.com/2015/04/goodby-my-bff-kaelyn.html

A little life transforming many lives. . Saturday, April 25, 2015. Goodby my BFF Kaelyn. On the 23rd April 2015, Kaeyln 3 yrs old went home with the Lord. To my BFF Kaeyln .every time we meet, even though we didn' t utter a word,. We already understand each other like old friends. I thank God we have many sweet moments together. We held hands together, watched shows together, fight virus bravely in the same ward, cared by the most caring. Dr Chan and most lovable Dr Chong. View my complete profile. We as...

myprincessdanielle.blogspot.com

My Princess Danielle: Trip to the River Safari

http://myprincessdanielle.blogspot.com/2015/04/trip-to-river-safari.html

A little life transforming many lives. . Wednesday, April 1, 2015. Trip to the River Safari. On the 13th March 2015, Thanks to Club Rainbow that both my wife, Rebekah and my helper brought Danielle to the River Safari. Danielle had a fun time watching different type of fishes living in the Amazon River, Nile River. Expose herself to the open. A different experience she had with the last year December visit to the Sea Aquarium. Subscribe to: Post Comments (Atom). View my complete profile. Spinal Muscular ...

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Bishan Home 15th Anniversary. Bishan Home MIS Outing. Bishan Home Rotary Club. Food from the Heart. FFH Shanghai Yue Opera. FFH Walkathon cum Family Carnival. Fun from d'Heart 2013. GYSS Commendation Day 2013. GYSS Commendation Day 2014. GYSS Cross Country 2014. GYSS Splendour of Green. GYSS Sports Day 2012. GYSS Sports Day 2013. GYSS Sports Day 2014. HWA Year End Party 2013. DSA Bowling Tournment 2013. DSA Dads' Bowl 2013. DSA Despicable Me 2. DSA St Patrick's Day Parade 2012. Green Carpet Awards 2013.

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December By The Isle Of You | Jonathan Meur

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December By The Isle Of You. Includes unlimited streaming via the free Bandcamp app, plus high-quality download in MP3, FLAC and more. Get all 4 Jonathan Meur releases. Available on Bandcamp and save 40%. Includes unlimited streaming via the free Bandcamp app, plus high-quality downloads of How To Build A Kite. Live at the Esplanade. And December By The Isle Of You. This song is featured on Christmas In Singapore, a compilation of Christmas songs made in Singapore. The entire album is available online at.

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Rare Disorders Society (Singapore) | Love is not Rare

Programmes & Services. WE KNOW YOU CARE FOR RARE. AND AWARENESS ON RARE DISEASES. READ OUR PATIENT STORIES. EVERY CHILD HAS A STORY TO TELL. RUN FOR THE CHILDREN. YOU'LL NEVER WALK ALONE. CHILDREN NEED HELP, DONATE TO OUR CAUSES. Little Sarah needs a new suction machine. Thank you to all the kind donors. We have hit the amount we need to raise to purchase the suction machine for Sarah. Thank you so much! Early Intervention Support Scheme. 8220;Power for Life” support program. Kaelyn needs a cough assist.

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