rebootingjenny.blogspot.com

In search of a treatment for Myositis

In search of a treatment for Myositis. An account of Jenny's attempt to treat Myositis with high-dose cyclophosphamide (HiCy). Tuesday, January 22, 2013. 8220;If you can't fly then run, if you can't run then walk, if you can't walk then crawl, but whatever you do you have to keep moving forward.” - Martin Luther King, Jr. Wednesday, January 16, 2013. A Thing of the Past. Still in remission and staying active. =). Wednesday, January 12, 2011. Saturday, August 7, 2010. Friday, April 9, 2010. CK is down a b...

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In search of a treatment for Myositis | rebootingjenny.blogspot.com Reviews

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In search of a treatment for Myositis. An account of Jenny's attempt to treat Myositis with high-dose cyclophosphamide (HiCy). Tuesday, January 22, 2013. 8220;If you can't fly then run, if you can't run then walk, if you can't walk then crawl, but whatever you do you have to keep moving forward.” - Martin Luther King, Jr. Wednesday, January 16, 2013. A Thing of the Past. Still in remission and staying active. =). Wednesday, January 12, 2011. Saturday, August 7, 2010. Friday, April 9, 2010. CK is down a b...

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In search of a treatment for Myositis | rebootingjenny.blogspot.com Reviews

https://rebootingjenny.blogspot.com

In search of a treatment for Myositis. An account of Jenny's attempt to treat Myositis with high-dose cyclophosphamide (HiCy). Tuesday, January 22, 2013. 8220;If you can't fly then run, if you can't run then walk, if you can't walk then crawl, but whatever you do you have to keep moving forward.” - Martin Luther King, Jr. Wednesday, January 16, 2013. A Thing of the Past. Still in remission and staying active. =). Wednesday, January 12, 2011. Saturday, August 7, 2010. Friday, April 9, 2010. CK is down a b...

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rebootingjenny.blogspot.com

1

In search of a treatment for Myositis: One Year Later - Strength Comparison

http://rebootingjenny.blogspot.com/2009/12/one-year-later-strength-comparison.html

In search of a treatment for Myositis. An account of Jenny's attempt to treat Myositis with high-dose cyclophosphamide (HiCy). Tuesday, December 1, 2009. One Year Later - Strength Comparison. Subscribe to: Post Comments (Atom). Johns Hopkins Myositis Center. One Year Later - Strength Comparison.

2

In search of a treatment for Myositis: January 2010

http://rebootingjenny.blogspot.com/2010_01_01_archive.html

In search of a treatment for Myositis. An account of Jenny's attempt to treat Myositis with high-dose cyclophosphamide (HiCy). Thursday, January 14, 2010. CK is down a bit more and I am officially in the normal range at 224. I have not seen a lab printout without an H for High next to CK in 3 1/2 years. Subscribe to: Posts (Atom). Johns Hopkins Myositis Center.

3

In search of a treatment for Myositis: July 2009

http://rebootingjenny.blogspot.com/2009_07_01_archive.html

In search of a treatment for Myositis. An account of Jenny's attempt to treat Myositis with high-dose cyclophosphamide (HiCy). Monday, July 27, 2009. Down again to 429 now! Every month things are normalizing- well for CK that is=). Thursday, July 16, 2009. Today I got my titer results back and found out that all the travel vaccinations I had done before HiCy are still in my system and giving me immunity. This is great news and means I do not need to be re-vaccinated! Thursday, July 9, 2009.

4

In search of a treatment for Myositis: June 2009

http://rebootingjenny.blogspot.com/2009_06_01_archive.html

In search of a treatment for Myositis. An account of Jenny's attempt to treat Myositis with high-dose cyclophosphamide (HiCy). Monday, June 1, 2009. CK was 613 for May which is down a little from last month. It isn't moving fast, but it is still moving which is good. I am still at 10mg of Prednisone a day and we are going to discuss how long I will stay there at my next appointment. I am not too anxious to change anything up until I am officially in the "normal" range. Subscribe to: Posts (Atom).

5

In search of a treatment for Myositis: January 2011

http://rebootingjenny.blogspot.com/2011_01_01_archive.html

In search of a treatment for Myositis. An account of Jenny's attempt to treat Myositis with high-dose cyclophosphamide (HiCy). Wednesday, January 12, 2011. I can officially report that I am off Prednisone and am still in remission since my HiCy treatment 2 years ago. I have recovered a remarkable amount of muscle strength and continue to target the areas where the most damage occurred- hamstrings and glutes. Subscribe to: Posts (Atom). Johns Hopkins Myositis Center.

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latemstunnel.blogspot.com

Light at the End of the MS Tunnel: No Chicago Visit

http://latemstunnel.blogspot.com/2010/09/no-chicago-visit.html

Light at the End of the MS Tunnel. This is an account of my participation in a clinical trial to treat Multiple Sclerosis with high dose cyclophosphamide. (chemo). Thursday, September 9, 2010. I was supposed to see Dr. Balabanov. Get in the air. At least I made it home in time to see my kids before their. Several days ago I broke down and bought a cane. I used it in the airport but I wish I hadn't. I don't like the attention. I had someone ask me if I wanted a wheelchair, and if I could stand...Jane, you...

latemstunnel.blogspot.com

Light at the End of the MS Tunnel: June 2011

http://latemstunnel.blogspot.com/2011_06_01_archive.html

Light at the End of the MS Tunnel. This is an account of my participation in a clinical trial to treat Multiple Sclerosis with high dose cyclophosphamide. (chemo). Wednesday, June 1, 2011. Yup, it's been too long. I know I haven't posted since September. Sheer laziness, quite frankly! Anyway, what do I have to report? That being said on to the complaints. I am officially menopausal. The weight gain has me bummed out. Totally. I'm so disgusted that I've decided to stop. Subscribe to: Posts (Atom).

latemstunnel.blogspot.com

Light at the End of the MS Tunnel: September 2010

http://latemstunnel.blogspot.com/2010_09_01_archive.html

Light at the End of the MS Tunnel. This is an account of my participation in a clinical trial to treat Multiple Sclerosis with high dose cyclophosphamide. (chemo). Thursday, September 9, 2010. I was supposed to see Dr. Balabanov. Get in the air. At least I made it home in time to see my kids before their. Several days ago I broke down and bought a cane. I used it in the airport but I wish I hadn't. I don't like the attention. I had someone ask me if I wanted a wheelchair, and if I could stand...Http:/ re...

latemstunnel.blogspot.com

Light at the End of the MS Tunnel: A Year Later

http://latemstunnel.blogspot.com/2013/11/a-year-later.html

Light at the End of the MS Tunnel. This is an account of my participation in a clinical trial to treat Multiple Sclerosis with high dose cyclophosphamide. (chemo). Sunday, November 3, 2013. The folks at Gilenya deny it but I did some searching on the internet and it seems that this is fairly common with this rx. My hair is growing back but not as fast as it's falling out. Thankfully it's long so I can cover most of the spots. My hair is also growing back in grey. In fact, it's almost white.

latemstunnel.blogspot.com

Light at the End of the MS Tunnel: November 2009

http://latemstunnel.blogspot.com/2009_11_01_archive.html

Light at the End of the MS Tunnel. This is an account of my participation in a clinical trial to treat Multiple Sclerosis with high dose cyclophosphamide. (chemo). Tuesday, November 24, 2009. On November 13 th. I saw Dr. Balabanov. A couple of days after we got back I started feeling sick. Sore throat. Wednesday, November 11, 2009. Halloween and Other Stuff. I've really been pushing myself. I'm back to using the Velcro. Andy and I are flying to Chicago on Friday. I had my blood work last week. My...

latemstunnel.blogspot.com

Light at the End of the MS Tunnel: August 2010

http://latemstunnel.blogspot.com/2010_08_01_archive.html

Light at the End of the MS Tunnel. This is an account of my participation in a clinical trial to treat Multiple Sclerosis with high dose cyclophosphamide. (chemo). Friday, August 6, 2010. One year ago today I left Rush for home. It's hard to believe. So, let's see, what's new. The slow release 4-AP script turned out to be the same thing I was already taking. (stupid me) It's just a higher dose. Last Sunday. I can't afford the Ampyra. That Dr. Balabanov. And I like the $! I am flying out to Chicago. Which...

latemstunnel.blogspot.com

Light at the End of the MS Tunnel: September 2012

http://latemstunnel.blogspot.com/2012_09_01_archive.html

Light at the End of the MS Tunnel. This is an account of my participation in a clinical trial to treat Multiple Sclerosis with high dose cyclophosphamide. (chemo). Wednesday, September 12, 2012. Subscribe to: Posts (Atom). Stu's Views and MS News. Http:/ wwwmsviewsandrelatednews.blogspot.com. MS Views and News. Http:/ www.msviewsandnews.org. Http:/ rebootingjenny.blogspot.com. National Multiple Sclerosis Society. Ive been approved for the Gilenya patient assista. New England, United States.

latemstunnel.blogspot.com

Light at the End of the MS Tunnel: February 2010

http://latemstunnel.blogspot.com/2010_02_01_archive.html

Light at the End of the MS Tunnel. This is an account of my participation in a clinical trial to treat Multiple Sclerosis with high dose cyclophosphamide. (chemo). Wednesday, February 24, 2010. It's a good feeling. Also, I didn't mention in my last entry that I haven't gotten my period since September. I guess it's menopause. My hair is getting longer by the day and it's ultra thick. Things are good! Thursday, February 18, 2010. I saw Dr. Balabanov. From November 2008 and January 2010! It was great to se...

latemstunnel.blogspot.com

Light at the End of the MS Tunnel

http://latemstunnel.blogspot.com/2012/08/this-will-probably-be-my-last-post.html

Light at the End of the MS Tunnel. This is an account of my participation in a clinical trial to treat Multiple Sclerosis with high dose cyclophosphamide. (chemo). Monday, August 6, 2012. Website is gone, too. I'm still plugging along. I'm trying to get on Gilenya and right now it's a matter of paying for it. I'm waiting for the insurance paperwork. I got a custom made AFO (ankle foot orthotic for foot drop) and that has helped quite a bit. Not much else to say. Subscribe to: Post Comments (Atom).

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In search of a treatment for Myositis

In search of a treatment for Myositis. An account of Jenny's attempt to treat Myositis with high-dose cyclophosphamide (HiCy). Tuesday, January 22, 2013. 8220;If you can't fly then run, if you can't run then walk, if you can't walk then crawl, but whatever you do you have to keep moving forward.” - Martin Luther King, Jr. Wednesday, January 16, 2013. A Thing of the Past. Still in remission and staying active. =). Wednesday, January 12, 2011. Saturday, August 7, 2010. Friday, April 9, 2010. CK is down a b...

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