southeastgenetics.org
Video Presentations | HRSA Southeast NBS & Genetics Collaborative
http://southeastgenetics.org/education.php
Medical Home and Transitioning. Southeast NBS and Genetics Collaborative is proud to offer the following videos, presentations and lectures free of charge. For more information on these videos and other training opportunities, please use our contact page. Videos, Lectures and Presentations. Whole Genome Sequencing – It’s Time Has Arrived. 2016 SERC-SERGG Annual Conference. Ponte Vedra Beach, FL. July 16th, 2016. Finding Pearls in a Sea of Skeletal Dysplasias. 2016 SERC-SERGG Annual Conference. 2016 SERC-...
f2fmichigan.org
Medical Home | Family to Family
https://f2fmichigan.org/medical-home
Resources, information and education for children and youth with special health care needs, the families who love them and the professionals who support them. Follow us on Facebook! What is a Medical Home? A medical home is not a place or a building, but a way for doctors to provide health care. It is based on everyone working together as a team. One of the key ideas is that parents. Having a medical home means your child’s care is:. Your family, your child’s doctors and other service providers wor...
heartlandcollaborative.org
Genetic Service | Newborn Screening | Arkansas, Iowa
http://www.heartlandcollaborative.org/about/mission-history
Mission & History. How We’re Organized. How Can I Participate? Professional Resources & Services. The Heartland Genetics Services Collaborative is focused on ensuring the best possible outcome for individuals with heritable disorders and optimizing the health of the population throughout the life cycle by improving understanding and awareness of genetics, expanding access to health care, and translating new findings to improve the quality of care within an eight-state region. The major purpose of the Hea...
westernstatesgenetics.org
Western States Genetics Services Collaborative
http://www.westernstatesgenetics.org/links.htm
Other Regional Genetics Collaboratives. Additional Collaborators and Organizations. OTHER REGIONAL GENETICS COLLABORATIVES. Region 1: New England Regional Genetics Group. Region 2: New York-Mid-Atlantic Consortium for Genetics and Newborn. Region 3: Southeast Regional NBS and Genetics Collaborative. Region 4: The Region 4 Midwest Genetics Collaborative. Region 5: Heartland Genetics Services Collaborative. Region 6: Mountain States Genetics Regional Collaborative Center. Baby’s First Test. Evaluation of G...
oaanews.org
Newborn Screening Websites | OAA
http://www.oaanews.org/links_nbs.htm
Newborn Screening and Parent Support Groups. Oral testimony presented by Ms. Kathy Stagni, Executive Director of the Organic Acidemia Association and parent of an adolescent with propionic acidemia, a metabolic disorder, to the Health and Human Services Policy Committee of the Minnesota House of Representatives on March 19, 2003. What Does Your State Screen For? Newborn Screening in the US by State. Parent Information on Newborn Screening. Mayo Clinic - Rochester, MN - Newborn screening. The Heartland Re...
ibem-is.org
Home Page
https://www.ibem-is.org/Default.aspx
History, Mission, Specific Aims, and Expected Outcomes. Staff, Membership and Partners. Inborn Errors of Metabolism. Inborn Errors of Metabolism Collaborative. IBEM-IS has passed the 1,900 participant mark! As of January 11, 2016, 1,949 participants representing 41 conditions have data entered into the IBEM-IS. Of those 1,949 participants, 1,364 were identified by NBS. Hyperphe/PKU has the largest number of enrollees (465) closely followed by MCAD (351), Biotinidase (208) and Galactosemia (189)&#...Quart...
msgrcc.org
Mountain States Genetics Regional Collaborative Center
http://www.msgrcc.org/regionalcollaborative.html
Moutain State Genetic Regional. Region 1: New England Regional Genetics Group. Region 2: New York-Mid-Atlantic Consortium for Genetic and Newborn Screening Services. Region 3: The Southeast Regional Genetics Group. Region 4: Region 4 Midwest Genetics Collaborative. Region 5: Heartland Genetics Services Collaborative. Region 6: Mountain States Genetics Regional Collaborative. Region 7: Western States Genetic Services Collaborative. XHTML 1.0 CSS 2.0 Last updated on:5/5/2011.
annualreport.mphi.org
MPHI Annual Report - Voices of Communities
https://annualreport.mphi.org/projects/voices_of_communities.html
Supporting Families of Children and Youth with Special Health Care Needs. Risk, Resiliency, and Coping in National Guard Families. Working Collaboratively for Social Justice: Michigan Power to Thrive. Spirit of Community Health: Exploring Characteristics of Tribal Public Health System Organization and Performance. Helping Children with Genetic Conditions Gain Access to Optimal Services. Supporting Families of Children and Youth with Special Health Care Needs. Launched a statewide information repository o...
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