aussierett.org.au
Useful Links, Rett Syndrome, Telethon Institute for Child Health Research
http://www.aussierett.org.au/resources/useful-links
AussieRett: Australian Rett Syndrome Study. InterRett: International Rett Syndrome Study. What is Rett Syndrome? Family Association and ANZACRett. Guidelines, Reports and Books. ARACY - Australian Research Alliance for Children and Youth. Children with disability Australia. Worldwide Rett Syndrome Associations. Austrian Rett Syndrome Association. Argentina - Rett Argentina. Belgium - Belgische Rett Syndroom Vereniging. Canada - Ontario Rett Syndrome Association Canada. Italy - Associazione Italiana Rett.
run4rett.blogspot.com
Quest for Balance and Optimal Health: May 2010
http://run4rett.blogspot.com/2010_05_01_archive.html
Quest for Balance and Optimal Health. Monday, May 17, 2010. The post-food race was excellent. You had your standard bananas and bagels but they also had an array of packaged nuts, nut bars and sugary sweet popcorn. Yumm! Friday, May 14, 2010. I am starting to wonder how much negative karma my husband and I have built up over our past lives because it seems that we are in a payback zone these last 5 years. The latest issue is that Reilly has come down with Chicken Pox. Yes, Chicken Pox! Current week - 34k.
blog.vha.ca
A Rare Relationship: Living with Rett Syndrome – VHA Home HealthCare
http://blog.vha.ca/a-rare-relationship-living-with-rett-syndrome
Caring for a child. Caring for a adult. Caring for a senior. Caring for a child. Caring for a adult. Caring for a senior. Caring for a child. Caring for a adult. Caring for a senior. Caring for a child. Caring for a adult. Caring for a senior. Caring for a child. A Rare Relationship: Living with Rett Syndrome. October 27, 2016. Nazir and his daughter Tasneem have a rare relationship. Tasneem and VHA PSW Jasmine share a close relationship. Nazir takes charge of all Tasneem’s care from baths, feeding, medi...
rettcatalana.es
Sindrome de Rett; Syndrome de Rett; Enfermedades raras
http://www.rettcatalana.es/castellano/enlaces.html
Qué es el Síndrome de Rett? Escuelas de E.E. con niñas Rett. Jornadas Médicas Rett. Blog Elisabet Pedrosa: http:/ planetarett.blogspot.com. Blog Josele y María: http:/ www.mimundorett.com. Xavi Avellana: http:/ ironxevi.blogspot.com. Asociaciones del Síndrome de Rett. Asociación Española del Síndrome de Rett: http:/ www.rett.es. Información del Síndrome de Rett en Español: http:/ www.rettsyndrome.org.es. International Rett Syndrome Association(IRSA): http:/ www.rettsyndrome.org. Asociación Noruega...
andreacameron.blogspot.com
Andrea Cameron: September 2010
http://andreacameron.blogspot.com/2010_09_01_archive.html
Welcome to my blog about writing, reading, creating.and, of course, mothering. Friday, September 10, 2010. Rett Syndrome Golf Tournament. Tomorrow is the seventh annual Rett. At the Cedar Valley Golf Club in Brockville. The proceeds will go to the Jessica Carr Endowment Fund at CHEO. This tournament has raised $180,000 to help the Eastern Ontario Rett. Syndrome Chapter. They have also established a fund at CHEO. And contribute to advanced research at Sick Kids in Toronto. For more information on Rett.
run4rett.blogspot.com
Quest for Balance and Optimal Health: Can you imagine?
http://run4rett.blogspot.com/2011/01/can-you-imagine.html
Quest for Balance and Optimal Health. Thursday, January 6, 2011. Talk about a frustrating finish, in my opinion the race organizers should have done a better job in transitioning the vehicles off the route in the last few meters of the race, check it out for yourself http:/ sports.yahoo.com/olympics/blog/fourth place medal/post/Video-Japanese-runner-makes-wrong-turn-in-Tokyo? That would have been heart-breaking. Poor guy - I felt really bad for him. January 6, 2011 at 1:56 PM. View my complete profile.
run4rett.blogspot.com
Quest for Balance and Optimal Health: April 2010
http://run4rett.blogspot.com/2010_04_01_archive.html
Quest for Balance and Optimal Health. Sunday, April 25, 2010. We then proceeded into the arena to get our pancake breakfast which everyone enjoyed. London accompanied me on running some errands in the afternoon and she proudly sported her medal around her neck to anyone that would listen or look at her. In the end we probably biked for about 22k which was an excellent start for acclimatizing my bum to my bike seat. Boy is it sore today! Tuesday, April 20, 2010. Small miracles can happen. So there is hope...
run4rett.blogspot.com
Quest for Balance and Optimal Health: April 2011
http://run4rett.blogspot.com/2011_04_01_archive.html
Quest for Balance and Optimal Health. Friday, April 1, 2011. Last night I was supposed to do Yasso's with the group but I am still fighting off a cold and didn't have the energy to expend on them, so I headed out with the group on their warm up portion and left them to do their Yasso's while I headed back. I only did 6k but in the end I think that was the smart decision. HR Avg: 145 bpm. Subscribe to: Posts (Atom). View my complete profile. Ontario Rett Syndrome Association. Girl Power 2 Cure.
run4rett.blogspot.com
Quest for Balance and Optimal Health: March comes to a close
http://run4rett.blogspot.com/2011/03/march-comes-to-close.html
Quest for Balance and Optimal Health. Thursday, March 31, 2011. March comes to a close. I will start small today and see where it goes from there. I ran Around the Bay 30k on Sunday and had an amazing race. Hopefully I can elaborate on this at a later point. For the record books though I came in at 2:48:14 and felt great at the finish line. Yesterday I joined the Running Room (RR) for a nice easy run and kept to this goal:. HR Avg: 137 bmp (something I am starting to track). 1 Run 210 km total mileage.
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