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Hrvatski Savez za rijetke bolesti

Hrvatski Savez za rijetke bolesti (HSRB) je socijalno-humanitarna, nestranačka i neprofitna udruga u koju se dobrovoljno udružuju udruge s članovima oboljelim od rijetkih bolesti, pojedinci oboljeli od rijetkih bolesti te osobe s invaliditetom nastalim kao posljedica rijetke bolesti

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Hrvatski Savez za rijetke bolesti (HSRB) je socijalno-humanitarna, nestranačka i neprofitna udruga u koju se dobrovoljno udružuju udruge s članovima oboljelim od rijetkih bolesti, pojedinci oboljeli od rijetkih bolesti te osobe s invaliditetom nastalim kao posljedica rijetke bolesti
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Hrvatski Savez za rijetke bolesti | rijetke-bolesti.hr Reviews

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Hrvatski Savez za rijetke bolesti (HSRB) je socijalno-humanitarna, nestranačka i neprofitna udruga u koju se dobrovoljno udružuju udruge s članovima oboljelim od rijetkih bolesti, pojedinci oboljeli od rijetkih bolesti te osobe s invaliditetom nastalim kao posljedica rijetke bolesti

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Hrvatski Savez za rijetke bolesti » Donatori

http://www.rijetke-bolesti.hr/donatori

Hrvatski savez za rijetke bolesti od srca zahvaljuje svim donatorima koji su na bilo koji način poduprli naš rad. Vaše donacije koriste se za podršku naših programa i projekata i u pravilu se koriste direktno za aktivnosti. Vaša donacija može biti namjenska za točno specifičan program, projekt ili aktivnost. Svi naši dobročinitelji mogu odabrati svrhu i način trošenja svoje donacije i dobiti detaljne financijske izvještaje za sredstva koja su uplatili. Pogledajte tko se sve uključio. Abbvie d.o.o. Članst...

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Hrvatski Savez za rijetke bolesti » O Savezu

http://www.rijetke-bolesti.hr/o-savezu

HRVATSKI SAVEZ ZA RIJETKE BOLESTI. HSRB) je socijalno-humanitarna, nestranačka i neprofitna udruga u koju se dobrovoljno udružuju udruge s članovima oboljelim od rijetkih bolesti, pojedinci oboljeli od rijetkih bolesti te osobe s invaliditetom nastalim kao posljedica rijetke bolesti, u jedinstvenu zajednicu na području Republike Hrvatske, a u svrhu ostvarivanja, usklađivanja i zaštite njihovih pojedinačnih i zajedničkih prava i interesa. Nadalje, želimo olakšati pristup postojećim lijekovima, razviti cen...

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Hrvatski Savez za rijetke bolesti » Kontakti

http://www.rijetke-bolesti.hr/kontakti

Ivanićgradska 38 (u Domu zdravlja Zagreb Istok) 10 000 Zagreb. Besplatna linija pomoći za rijetke bolesti:. Https:/ www.facebook.com/HrvatskiSavezZaRijetkeBolesti. Nikolina Čović, Ivana Hrastar. Trebate savjet ili vas zanimaju vaša prava? Hrvatsku liniju pomoći za rijetke bolesti. Članstvo u Savezu je besplatno, Savez okuplja preko 400 individualnih članova oboljelih od rijetkih bolesti i članova njihovih obitelji te 20 neprofitnih organizacija. Što je to nuspojava? Nuspojava je svaka štetna i neželjena ...

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Hrvatski Savez za rijetke bolesti » Pravne informacije

http://www.rijetke-bolesti.hr/pravne-informacije

Savez prepoznaje važnost zaštite osobnih podataka te čuva privatnost posjetitelja svojih stranica. Sve informacije koje posjetitelj pošalje ili su automatski zabilježene koriste se isključivo u skladu s ovom izjavom odnosno Zakonom o zaštiti osobnih podataka i Zakonom o elektroničkim komunikacijama. Web stranice Saveza sadrže linkove na druge web stranice koje nisu u vlasništvu Saveza. Takve stranice sadrže vlastite izjave o privatnosti te Savez ne preuzima odgovornost za sadržaje tuđih stran...Savez na ...

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Hrvatski Savez za rijetke bolesti » Newsletteri

http://www.rijetke-bolesti.hr/materijali

Trebate savjet ili vas zanimaju vaša prava? Hrvatsku liniju pomoći za rijetke bolesti. Članstvo u Savezu je besplatno, Savez okuplja preko 400 individualnih članova oboljelih od rijetkih bolesti i članova njihovih obitelji te 20 neprofitnih organizacija. Potrebe za volonterima možete pratiti na našoj web i Facebook stranici te stranicama Zagrebačkog volonterskog centra. Ukoliko se želite pridružiti - javite se na naše kontakte. Što je to nuspojava? Nuspojava je svaka štetna i neželjena reakcija na lijek&...

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Zajedno do zdravlja događanja - obilježavanje svjesnosti autizam rijetke maligne

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Događanja u 2012-oj godini:. 20122012. Donacija umjetničkih slika. 24082012. Doček - "Prava doza ustrajnosti". 20062012. Kreativne radionice. 16062012. Dan otvorenih vrata. 12052012. Donacija Palčićima. 10052012. Redovna i izborna sjednica Skupštine. 03052012. Posjet biskupu. 21042012. Konferencija "Razumjeti autizam". 31032012. Dan svjesnosti o autizmu. 29022012. Dan rijetkih bolesti. 15022012. Dan djeteta oboljelog od maligne bolesti. Poveznice na prethodne događaje:. Prostori udruge 12.2012. Iako im n...

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What is Rare Disease Day? What is a Rare Disease? Raise and join hands! What is Rare Disease Day? What is a Rare Disease? Overview of past Rare Disease Days. Raise and join hands! Sign up for updates. Fill in the form below. To sign up to the latest Rare Disease Day news! Tick to receive news from EURORDIS, organiser of Rare Disease Day. Thank you for signing up! You are almost finished. To complete the subscription process,. Please click the link in the email we just sent you! Rare Disease Day 2012.

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Rare Disease Day ® 2016 - Article

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What is Rare Disease Day? What is a Rare Disease? Raise and join hands! What is Rare Disease Day? What is a Rare Disease? Overview of past Rare Disease Days. Raise and join hands! Sign up for updates. Fill in the form below. To sign up to the latest Rare Disease Day news! Tick to receive news from EURORDIS, organiser of Rare Disease Day. Thank you for signing up! You are almost finished. To complete the subscription process,. Please click the link in the email we just sent you! Rare Disease Day 2009.

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Rare Disease Day ® 2016 - Article

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What is Rare Disease Day? What is a Rare Disease? Raise and join hands! What is Rare Disease Day? What is a Rare Disease? Overview of past Rare Disease Days. Raise and join hands! Sign up for updates. Fill in the form below. To sign up to the latest Rare Disease Day news! Tick to receive news from EURORDIS, organiser of Rare Disease Day. Thank you for signing up! You are almost finished. To complete the subscription process,. Please click the link in the email we just sent you! Rare Disease Day 2013.

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Rare Disease Day ® 2016 - Article

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What is Rare Disease Day? What is a Rare Disease? Raise and join hands! What is Rare Disease Day? What is a Rare Disease? Overview of past Rare Disease Days. Raise and join hands! Sign up for updates. Fill in the form below. To sign up to the latest Rare Disease Day news! Tick to receive news from EURORDIS, organiser of Rare Disease Day. Thank you for signing up! You are almost finished. To complete the subscription process,. Please click the link in the email we just sent you! Rare Disease Day 2015.

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Rare Disease Day ® 2016 - News

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What is Rare Disease Day? What is a Rare Disease? Raise and join hands! What is Rare Disease Day? What is a Rare Disease? Overview of past Rare Disease Days. Raise and join hands! Sign up for updates. Fill in the form below. To sign up to the latest Rare Disease Day news! Tick to receive news from EURORDIS, organiser of Rare Disease Day. Thank you for signing up! You are almost finished. To complete the subscription process,. Please click the link in the email we just sent you! Thu 05 February, 2015.

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Rare Disease Day ® 2016 - Article

http://www.rarediseaseday.org/article/rare-disease-day-2010

What is Rare Disease Day? What is a Rare Disease? Raise and join hands! What is Rare Disease Day? What is a Rare Disease? Overview of past Rare Disease Days. Raise and join hands! Sign up for updates. Fill in the form below. To sign up to the latest Rare Disease Day news! Tick to receive news from EURORDIS, organiser of Rare Disease Day. Thank you for signing up! You are almost finished. To complete the subscription process,. Please click the link in the email we just sent you! Rare Disease Day 2010.

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Rare Disease Day ® 2016 - United Kingdom

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What is Rare Disease Day? What is a Rare Disease? Raise and join hands! What is Rare Disease Day? What is a Rare Disease? Overview of past Rare Disease Days. Raise and join hands! Sign up for updates. Fill in the form below. To sign up to the latest Rare Disease Day news! Tick to receive news from EURORDIS, organiser of Rare Disease Day. Thank you for signing up! You are almost finished. To complete the subscription process,. Please click the link in the email we just sent you! I will be climbing the.

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Real-World Patient to Patient to Advice on Integrating Type 1 Gaucher Disease into an Active Life. Gaucher Disease Patient Organizations. ÖGG - Österreichische Gaucher Gesellschaft. BOKS - Belgische Organisatie Voor Kinderen En Volwassenen Met Een Stofwisselingsziekte Vzw. Udruženje Oboljelih Od Rijetkih Bolesti U Bosni I Hercegovini. Associação Brasileira dos Portadores da Doença de Gaucher / Brazilian Association of Gaucher Disease [Português]. The National Gaucher Foundation of Canada. Wwwaadelfa....

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Rare Disease Day ® 2016 - Article

http://www.rarediseaseday.org/article/overview-of-past-rare-disease-days

What is Rare Disease Day? What is a Rare Disease? Raise and join hands! What is Rare Disease Day? What is a Rare Disease? Overview of past Rare Disease Days. Raise and join hands! Sign up for updates. Fill in the form below. To sign up to the latest Rare Disease Day news! Tick to receive news from EURORDIS, organiser of Rare Disease Day. Thank you for signing up! You are almost finished. To complete the subscription process,. Please click the link in the email we just sent you! In 85 countries and regions.

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Hrvatski Savez za rijetke bolesti

Hrvatski Savez za rijetke bolesti (HSRB) je socijalno-humanitarna, nestranačka i neprofitna udruga u koju se dobrovoljno udružuju udruge s članovima oboljelim od rijetkih bolesti, pojedinci oboljeli od rijetkih bolesti te osobe s invaliditetom nastalim kao posljedica rijetke bolesti, u jedinstvenu zajednicu na području Republike Hrvatske, a u svrhu ostvarivanja, usklađivanja i zaštite njihovih pojedinačnih i zajedničkih prava i interesa. Trebate savjet ili vas zanimaju vaša prava? EURORDIS is a non-gover...

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