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Savanna's Journey | IS. Epilepsy. TPO Resection. ASD.

IS. Epilepsy. TPO Resection. ASD.

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Savanna's Journey | IS. Epilepsy. TPO Resection. ASD. | savannalininger.wordpress.com Reviews

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IS. Epilepsy. TPO Resection. ASD.

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kenlininger | Savanna's Journey

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Infantile Spasms. Partial Epilepsy. Surgical Treatment. ASD. Skip to primary content. Skip to secondary content. Parent of Savanna, author of the blogs, husband to Rebecca, learning about all things epilepsy and autism. A Bucket of Flowers. April 1, 2016. It’s just a bucket of wild flowers from the pipeline behind our house. But, it is a bucket Savanna decided on her own to fill with flowers to give to Mommy on Easter Sunday. That was not the plan! But, I must say, many of them turned out great. She rece...

2

Three Years Later | Savanna's Journey

https://savannalininger.wordpress.com/2014/12/10/three-years-later

Infantile Spasms. Partial Epilepsy. Surgical Treatment. ASD. Skip to primary content. December 10, 2014. If I could have a conversation with Savanna, who has ASD (Autism), and she could magically understand things the way we understand them, just for this conversation, it might sound something like this:. Me: Savanna, you can play with all the toys in the bins, not just dump them out and throw them. Savanna: What do you mean, the toys in the bins are not just for dumping on the floor? Savanna: Oh, I see!

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She Talks! A #TBT video post… | Savanna's Journey

https://savannalininger.wordpress.com/2015/07/22/she-talks-a-tbt-video-post

Infantile Spasms. Partial Epilepsy. Surgical Treatment. ASD. Skip to primary content. A #TBT video post…. July 22, 2015. Savanna is 2 years, 3 months, and 21 days (842 days total) since her second surgery which completed a full TPO resection. She is nearly 8 months medication free! She spoke very little entering that surgery, 4-1-2013. A “mama” here and there was about it. A month later, it was gone. A year later, still no expressive language, I was worried. She thinks, then speaks! Here is a video from ...

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Savanna’s Story | Savanna's Journey

https://savannalininger.wordpress.com/savannas-story

Infantile Spasms. Partial Epilepsy. Surgical Treatment. ASD. Skip to primary content. Updated December 4, 2014. I knew big news was forthcoming when Rebecca visited my office unannounced. Yes, we both wanted to have more children. But with Tristan a month away from turning 3 and Brandon 6 months old, we were just starting to find our way again. There before me was my beautiful wife not speaking and showing me an ultrasound picture clearly indicating 2 embryo sacs! I Think Something is Wrong? The second d...

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Savanna's Journey | Infantile Spasms. Partial Epilepsy. Surgical Treatment. ASD. | Page 2

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Infantile Spasms. Partial Epilepsy. Surgical Treatment. ASD. Skip to primary content. Skip to secondary content. Newer posts →. IS Awareness Week: Luna’s Story. November 7, 2014. She explained the treatment plans in place from her neurologist. She translated documents for review. I advised her how cases like hers are handled here in the USA at a facility familiar with IS, the kind of tests usually ordered and why, and why it is so important to move quickly and accurately with the workup. Two things I lea...

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trluckhardt | Eli's Journey with Epilepsy

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Eli's Journey with Epilepsy. Updates and information for our family and friends. Almost 2 years seizure free! February 16, 2016. I have been meaning to update this blog for a while. Our little man has been doing sooooo well! We have come so far from the continuous, generalized spiking and epileptic discharges that were there 22 months ago. Now, unless we see any seizure activity, we don’t have to do anymore routine EEGs…eek! Some pics of his growth over the last year:. Turning 3 in October 2015! I hate t...

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Normal EEG | Eli's Journey with Epilepsy

https://elisepilepsy.wordpress.com/2014/08/23/normal-eeg/comment-page-1

Eli's Journey with Epilepsy. Updates and information for our family and friends. Hope for 2015 →. August 23, 2014. It has also been determined that he DOES NOT have Tuberous Sclerosis (YAY! They did genetic testing on his cortical tuber, and it was negative. That along with the fact that he only had 1 tuber and absolutely no other findings suggestive of tuberous sclerosis means that he likely doesn’t have it. The geneticist did not feel we need to do anymore testing or follow up! Hope for 2015 →.

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Normal(ish) Brain! | Eli's Journey with Epilepsy

https://elisepilepsy.wordpress.com/2015/02/21/normalish-brain

Eli's Journey with Epilepsy. Updates and information for our family and friends. 1 YEAR SEIZURE FREE! February 21, 2015. Well, it has been 10 months since our little man had part of his brain removed, and he is doing amazing! His EEG is normal and looks great. No spiking, no abnormal discharges, yay! I also wanted to post because since my last post, Eli has had a word explosion! All in all, just really great news. My little man amazes me so much. He has been through so much and just really takes ...Fill ...

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Our Story | Eli's Journey with Epilepsy

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Eli's Journey with Epilepsy. Updates and information for our family and friends. Little man is much happier now and overall appears to be in a better mood, even though there has been no change in his seizures. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). You are commenting using your WordPress.com account. ( Log Out. You are commenting using your Twitter account. ( Log Out. Notify me of new comments via email.

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One in Twenty Six « Raising awareness and building hope, one story at a time « Page 2

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One in Twenty Six. Raising awareness and building hope, one story at a time. Newer posts →. After struggling to get pregnant, Kristin and Jason were delighted to learn that they were expecting twins. Even though she was carrying a double burden of babies, Kristin sailed through her pregnancy and delivered a healthy boy, Jackson, and a healthy girl, Charlie Claire, just two weeks prior to their due date. The North family rejoiced at the addition of their two blond, cherubic babies. Shortly after this reve...

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Doing really well at home!! | Eli's Journey with Epilepsy

https://elisepilepsy.wordpress.com/2014/04/27/doing-really-well-at-home

Eli's Journey with Epilepsy. Updates and information for our family and friends. Doing really well at home! April 27, 2014. Sorry I haven’t posted since coming home. It has been pretty busy at home chasing after little man trying to make sure he doesn’t take any hits to his head. And, once we hit the bed, we have been out pretty quick every night with no computer time. I have also been a little afraid to post because I didn’t want to jinx anything…. Eli has been doing so great! April 28, 2014 at 12:06 am.

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3 Weeks!! | Eli's Journey with Epilepsy

https://elisepilepsy.wordpress.com/2014/05/09/3-weeks

Eli's Journey with Epilepsy. Updates and information for our family and friends. Doing really well at home! May 9, 2014. Today is 3 weeks post surgery, and Eli continues to do amazing! Unfortunately he new wake up time is 5-5:30am, but we will take it now that we are getting 8 hours of sleep a night. I definitely heard “mama” once when he was trying to get my attention, but not consistent yet, but I know it is coming soon. Overall, just really more than we could have ever hoped for. 1 YEAR SEIZURE FREE!

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February | 2016 | Eli's Journey with Epilepsy

https://elisepilepsy.wordpress.com/2016/02

Eli's Journey with Epilepsy. Updates and information for our family and friends. Monthly Archives: February 2016. Almost 2 years seizure free! February 16, 2016. I have been meaning to update this blog for a while. Our little man has been doing sooooo well! We have come so far from the continuous, generalized spiking and epileptic discharges that were there 22 months ago. Now, unless we see any seizure activity, we don’t have to do anymore routine EEGs…eek! Some pics of his growth over the last year:.

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Eli's Journey with Epilepsy | Updates and information for our family and friends | Page 2

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Eli's Journey with Epilepsy. Updates and information for our family and friends. Newer posts →. Day 3 after surgery – a little better. April 21, 2014. April 21, 2014. They removed his bandages this morning, so we got our first look at his incision. Overall it was better than I expected, and I think it looks really good. I hope everyone had a wonderful Easter! April 19, 2014. Rough first morning after surgery…. Resting in the ICU, part 2. April 19, 2014. April 18, 2014. So they are closing him up right no...

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Savanna's Journey | IS. Epilepsy. TPO Resection. ASD.

IS Epilepsy. TPO Resection. ASD. A #TBT video post…. July 22, 2015. Savanna is 2 years, 3 months, and 21 days (842 days total) since her second surgery which completed a full TPO resection. She is nearly 8 months medication free! She spoke very little entering that surgery, 4-1-2013. A “mama” here and there was about it. A month later, it was gone. A year later, I was worried. Still no expressive language that involved the English language. She thinks, then speaks! She feels, then speaks! Here is a video...

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